#I have my infusion tomorrow

[robbies-treehouse]

Trying to find a sitting position doesn’t hurt my back but also doesn’t hurt my ass

#or my neck #or my legs #or my chest #or my ankles #disabled life #actually disabled #disabled #physically disabled #physical disability #chronic pain #disability #disabilties #ostiogenisis imperfecta #I’ll make this tag by hand oath #*istg #I have my infusion tomorrow #gonna die #no I won’t #I’m just a drama queen 🩷✨✨🩷

[sadgirlautumn]

I’m so miserable rn I can’t lie

#my cramps are bad #I have my infusion tomorrow #I can’t even forget about my problems on the dash because everyone is making joke as #jokes* about the one thing I don’t like #it’s just rough #autumn rambles

[steorransaluki]

this was probably the worst long weekend of my life, tbh

#talking #I had an iron infusion -- and a lot of side effects which made me miss my flight to see my fiancee #then my brother's dog has acute respiratory distress syndrome (? I believe) and has to be euthanized at under 2 years old #she was dead for twenty minutes before they were able to revive her but at thet point it was too late #and I just....not even 2. lady wasnt even 2. #I'm shocked. upset. exhausted. and I feel like shit #and we have a ~ staff retreat ~ tomorrow that I'll have to go deal with #truly worst weekend in a long time #dog death mention - #animal death mention -

[roetrolls]

I need to do something creative or I will die

#but im TIRED #in mind AND body #i tried to work on a drabble. wrote one sentence and just went :| at the paper for like 30 seconds #with nary a thought in my head #i wanna DRAW i wanna WRITE i wanna MAKE #but i got an infusion yesterday and also it’s midnight #and tomorrow i have to pack for school #AAAAUGH #IM GOING TO GO FERAL

[telltalebatman]

if i die tomorrow (which realistically shouldn't happen, but the past few months had been so fucking complicated and bad my first ocrevus infusion might as well turn out to be lethal, amirite) someone reach out to jason spisak on my behalf to tell him i love him

which is something he is well aware of, but it still wouldn't hurt to remind him

#4.txt #spisakposting #i have my first ocrevus infusion tomorrow and bro i am stressed n depressed #bc if this turns out to not be working as well then well. they'll just stop treating me for multiple sclerosis lmao #and so far 100% of the meds turned out to not work #so i have no reason to believe ocrevus is gonna be different! yay!

[the-mushroom-faerie]

good evening. I am going to cry for a lot of valid reasons but none of them current and most of them resolved :)

#mushroom cries a lot #like a lot a lot #there was a new nurse at my eye doctor and she didnt listen for shit #the office was renovated which like good for them it does look better but Change #then what i wanted for lunch was closed for reno but we got the second option which was still good #then i had a case of the overstimulated rage while trying to Get Stuff Done #then the groceries get here and they smell so strongly of weed we had to throw out half of it and also recirculate our air #then mum forgot the air was on and i got too cold #oh forgot that infusion almost didn't work bc my scar tissue was being rude #that was fun #but i am currently getting infusion so its fine #and i have to get up early tomorrow to go to a makers market that we would totally skip if we didnt need the money #so yeah crying is valid right now

[threnodians]

took a vyvanse and now i feel like an actual person again 😅

#kayleigh.txt #unfortunately vyvanse does not cure my autoimmune diseases but it helps with the crippling brainfog 🤷🏼‍♀️ #it helps mentally basically and not physically 😂 #but i have a rheumatologist appointment tomorrow afternoon! and since the current meds are not working... #i am gonna have to either get weekly infusions (absolutely not) or an injectable med that i can give myself #it will be a challenge but it's basically an epipen so 🤷🏼‍♀️

[maraeffect]

past couple weeks have been hard.... been struggling to wash my face and brush my teeth (especially bc my mouth is practically torn to shreds rn and everything hurts). BUT. today i was able to do some cleaning, take a long warm shower for my joints, brush my teeth gently, do my skincare, etc ❤️‍🩹 im EXHAUSTED now, and it's gonna suck to wake up early the next 2 days when i can hardly get up before noon... but i'm done with a lot of the big stuff ❤️‍🩹

#I'm very proud of myself today! i need to journal about it but damn I'm too tired tonight #i was falling asleep before 8pm #all that's left is that i have an early virtual appt tomorrow. and then therapy. and then my death Doula (!!!!) #and Thursday is infusions at the crack of dawn. then hopefully a nap and getting the car inspected !! #i can do it i can do it 😤😤🥴🥴🤞🤞🤞 #i feel like total ass from the new meds. but letting myself sit in one spot all day isn't helping !! #gotta force myself to go through the motions a lil #okay love u guys ❤️‍🩹 #round 2 #chatter

[dragqueenpentheus]

thw most dangerous time of the month is the final day bc i havent yet paid rent and all my money comes in so i have liquid assets baby. i have unspent cold hard digital cash. whats a landlord. i want a medieval cat portrait. of my sweet kitty myshka.

#ill resist ill be responisble #im allowed so make ONE silly boy purchase a month #and only after ive paid rent #BUT CONSIDER i have my first invusion at the clinic tomorrow and im #NERVOUS. #i havent had an iv since i was. BABy. like six. #itll be fine but. anytime you recieve an instruction to 'come alone here is the passcode for the secret door' ????? nerve wracking #itll get easier once i have a couple months under my belt #tomorrows infusion is four hours but im sure thatll get shorter too #until then im going to daydream about spending fifty dollars on a sweet kitty drawing #irl #medical cw #myshka tag

[sadgirlautumn]

I’ll be like “oh my periods aren’t that bad” but then the second I’m on my period i feel so horrible and tired and wonder how I survive this each month while being expected to do normal everyday things

#I have my infusion tomorrow and I’m dreading the car ride #autumn rambles #tw menstruation

[catboyfurina]

i am never living four people to a bathroom ever again

#beeep #medical talking aka shit talking ahead nya. predictably. because. looks at the words part of the post #i know literally nobody would take my side since im the bathroom hog but #i hurt so bad and im so nauseous and i DO need like. 12 hours. that might be an exaggeration but not that big of one #adn people keep kicking me out like . my organs dont work i need to FIX THINGS #and im NOT quick and just rhgrhghrhhgr #its not this bad except before infusion but like. i NEED a fucking. schedule. i have to take the laxatives and i need #time for my system to get over them and just rhgrhghr #and i dont think id be needing to take the big ones tomorrow if people had just let me have my 6 hours that week before infusion requires. #which!!! sounds like a fucking lot i know!!!!!!! i am not healthy. #and just rghgrhgrbhgrbnifshsfen im so cranky #im so tired and hot and cranky and i hate everything #except for some things but im sooooooo sure that the only reason they can tolerate me is me not being a huge fussy nuisance in person #and jsut #AURGH #i wish id gotten the bag they told me about it like a scary thing but it sounds SO freeing #like yeah im sure its a scary adjustment but rgh #and im just so scared that the big laxative will not fix me and then ill be bathroom locked before infusion and miss it and aaa #and i hate everything and i wanna explode and i hate things and im cranky and upset. #and beause theres no predictable schedule im probably gonna have to use the Fail proof Tactic because i will not be allowed in the bathroom #for six consecutive hours the night before (because if i have to stop it takes hours for my body to free the shit again!!!!! because!!! #shits fucking broken!!!!!) and i dont like the fail proof tactic:< #it is Egg Diet (diet of Only Hardboiled Eggs and Juice. so that i an have enough sustenance to not die but also not enough to cause problems #pre appointment #) #and. rgh its like 3 days away. i dont wanna do egg diet for three days. its unpleasant and i get so shaky #and i wanted to make soup.....but i shouldnt make soup if i cant eat soup.............. #anyway i hate everything and i am so cranky i need sleep so i can cry about this in the morning when i an have nice song voice to distract m #im not even sure about 2 people to a bathroom..... like.....that wouldnt be nearly as bad as 4 but i still feel like #there needs to be minimum 2 bathrooms for anyone to tolerate living with me / have peace

[adelaidedrubman]

extremely cozy core rn snuggled up with my heated blanket to soothe my achey hiking muscles drinking my sleepytime tea out of my opossum mug and listening to the sounds of rain outside...... moments of peace.......

#tomorrow will be hell but for now i am at peace #hoping i can get out of court in time to actually make my infusion appointment #so i can have my meds on time + not die

[lady-harrowhark]

fuckkkkk i’m scheduled to have my home health nurse come tomorrow morning for my infusion and i just realized my meds were never delivered and i’m looking back through my messages and stuff and am realizing my nurse scheduled me a little bit early so when i confirmed the delivery with the pharmacy they probably still thought i was getting it next week UGH

#it's literally midnight here so i'm gonna have to call her in the morning and basically cancel on an hour's notice which feels so shitty #also like. rescheduling's gonna be a pain in the butt #because i have a covid booster scheduled for my only other free day this week #and they can't be on the same day since obviously i don't want to mix an IMMUNOSUPPRESSANT #with a vaccine that's literally designed to STIMULATE IMMUNE RESPONSE #bleh sometimes she can pick the meds up and bring them with her but since it's scheduled for first thing tomorrow idk that she can #anyway not that tumblr's gonna help i'm just annoyed and stressed and venting #these infusions are $10k per dose so like. you see where i am coming from here.

[bushwattle]

.

#grumpy bc it’s past midnight and i don’t like to get less than 8 hrs sleep #just took some panadol rapid hoping that knocks me out #when it takes me a while to fall asleep i start getting this horrible pain in my legs which just makes things worse bc i become a big sook #and like i’m sick of being in pain everyday i was hoping my iron infusion was going to fix all this but it seems to have made things worse #to start with since i had a weird reaction a d pa #passed out #i just want to feel normal and not sore like it’s been so many years feeling this way #and yet tomorrow #i will wake up and push through it all again #and i’ll get a grip and it will be fine

[outahell]

i think......... i think i feel decent enough to write <3

#⌜ / 𝐌𝐀𝐒𝐓𝐄𝐑 𝐎𝐅 𝐏𝐔𝐏𝐏𝐄𝐓𝐒 › ooc #i have a lot more movement in my arm and face is feeling / looking better #talking to some surgeons tomorrow at the hospital i was going to have an infusion at tomorrow before it got pushed back 2 weeks #typicalllll

[wp100]

tried to solo the blood infusion quest for shadowmourne but im terribad and running out of time because i have to go to bed. and too tired for this shit

#i did the sun darter hatchling secret and oh my god i stressed out bad #i got teleported out like twice #and then i kept dc'ing whenever i tried to walk past a certain spot so i had to walk around it #i did get the pet. but man i thought i wasted like half an hour of my time there #so much stress for a stupid pet #anyway yeah if anyone wants to help me with the blood infusion at some point... hit me up lmao #this sort of shit in the game raises my blood pressure #it's why i never started the questline because i knew i had to do this shit at some point #i have a second account so two other people helping me would be great ;w; #not now though. i have to work tomorrow #maybe on my weekend ? #if i cant find anyone i'll just have to bite the bullet and solo it 😭 #darion mograine says 'suffer well' IT'S HARD MAN BUT I'LL TRY #delete later