#dysphagia

[wheelie-sick]

seeing people misuse thickened water makes me so fucking angry

they don't understand that it's a choice between "die" and "die" if someone isn't able to get it

you either risk dying of dehydration or you risk dying of aspiration trying to drink

dysphagia kills, don't misuse our resources

#physical disability #physically disabled #cripple punk #cripplepunk #dysphagia #neurological disability #I dont personally use thickened water but I care a lot about this because I have dysphagia and many people in my community do use it #also I'm headed that direction

[sopranoentravesti]

Yknow, this is likely a result of having worked too long in a Pediatric Feeding Disorders Unit, and being someone who also has both a history of extreme food selectivity (thankfully grown/ trained out of) and who struggles with dysphagia/aspiration and dysmotility (from the esophagus through the colon) but I truly think Seven of Nine would have a much more difficult time adjusting to actually eating food???

Like I worked with kids who were G-Tube and occasionally nasogastric and nasojejunal tube dependent. It isn’t easy. It’s doable, there are protocols, but ??? There’s a fair amount of discomfort involved.

Like, it takes intensive occupational therapy to develop the motor skills to chew, manipulate food within your mouth, etc…you need to ensure they can swallow safely and effectively (even if they “seem fine,” silent aspiration and fatigue can be dangerous).

Then you get into trying new foods… there’s a lot of sensory stuff!! Obviously Seven is an adult, so she likely won’t demonstrate the same overwhelming neophobia that the 2-8 year olds I worked with would have! But I imagine she would probably be picky initially (especially with Neelix’s concoctions, which most of the crew found often unpalatable due to being unusual).

And as most of us with gastrointestinal issues know, that is also no picnic (hah). She likely wouldn’t have the enzymes she once had, and I’m willing to bet her microbiome was pretty starved. Probably they have a hypo for that, but it’s still an issue…

Obvious disclaimer, it is a fairly niche thing to think about (and not pretty), this is television, entertainment, and sci-fi, so maybe they can magically make it as if she was eating her whole life…

But it’s still something that I cannot stop thinking about.

#food cw #star trek #voyager #star trek voy #voy #seven of nine #I’m so sorry guys the autism is firing on all cylinders #feeding disorders #dysphagia

[wheresernie]

Big family meals and food holidays are hard for me because of my tremors and dyspraxia.

So shout out to people with tremors, motor disorders and coordination disorders, muscle weakness and nerve damage in hands and face, people with dysphagia.

We deserve a good holiday too, even if we're not talked about often

#cripplepunk #cpunk #disability #disabled #actuallydisabled #dyspraxia #actually dyspraxic #tremors #nerve damage #motor disorders #dysphagia

[chronic-gastro-illness-culture]

hows the tummy hurty fandom doing

#digestive disorders #chronic illness #stomach problems #irritable bowel syndrome #irritable bowel disease #gastroesophageal reflux disease #food intolerance #food allergies #stomach ulcer #crohn's disease #gastroparesis #celiac disease #dysphagia #pancreatitis #diverticulosis #delayed stomach emptying

[adhbabey]

The fact that all pills do not have a liquid or tablet alternative is a literal accessibility issue, and I should not have to be infantilized or condescended or be given unsolicited advice on how I need to learn to take pills.

I never learned how, and its genuinely traumatic to force myself to take medication. I've cried, had panic attacks, immediately spit shit back out after taking it, everything, in the process of trying to take disgusting medication.

It should not be this horrific to struggle this hard. Please make medication more accessible. I am lucky that ADHD medication exists for children too. Or else I would never have been physically able to take it safely.

It is traumatic to take meds for me, and that deserves to be talked about. From sensory processing disorder to dysphagia to general anxiety to anything that causes this issue. People should not have to force themselves to swallow pills to be treated.

#babey posts #dysphagia #sensory processing disorder #actually nd #medication #i didnt want to mention coughing shit back up in this post but that is what happens when i try to take bitter crushed up meds #i feel my throat tensing up just thinking about it #its fucking traumatic and that deserves to be said #swallowing pills

[gwydion-aacblog]

not easy try heal when have problems swallow when no one believe need help because then everything everything everything will not go down and people yell how much need to take like try on purpose to not swallow when really try hardest to swallow but body will not listen . can only take pills when cut small small small and even liquids not work unless mix with thick thick yogurt , and all still very very hard . and not believe just yell and make harder

#dysphagia

[five-thousand-loaves-of-bread]

achievement unlocked: choke on NOTHING

#usually it spit & liquid & stuff but this time it randomly ✨nothing✨ #dysphagia #🍞.txt

[duality-disability]

as someone with more mild dysphagia (difficulty swallowing) that hasn't required thickened liquids (as of it)

Hearing the people are using thickened water to make.... fucking slime, of all things. Is so entirely disrespectful.

It's already in limited supply in places that do stock it. If you don't have a need for it, Don't grab it! Please!

your sensory needs are not worth starving someone over..

#chronic illness #dysphagia #difficulty swallowing #disability

[wheelie-sick]

I feel like people don't understand the severity of dysphagia very well. they see it as struggling to swallow and occasionally coughing on something we swallow wrong. that can be what mild dysphagia looks like but dysphagia can be incredibly serious too.

sometimes people's reflex to cough up what goes "down the wrong tube" can become impaired and material can build up in people's lungs. sometimes we can have that reflex but still choke and die. often people with severe dysphagia have feeding tubes because swallowing is too dangerous. some people with dysphagia have to suction the saliva out of their mouth because swallowing it is a choking hazard. dysphagia is one of the things that tends to kill people with fatal neurological disorders. dysphagia is some people's inevitable cause of death. it's not always severe but having severe or progressive dysphagia is a serious diagnosis.

#dysphagia #neurological disability #cripple punk #cripplepunk #physically disabled #physical disability

[stillfuckingtired]

Swallowed my coffee wrong and coughed so hard I tweaked my back and can no longer move certain ways. Good morning, chronic illnesses.

#chronic illness #chronic pain #fibromyalgia #ouchies #dysphagia #chronic fatigue #disability #bad back

[birdofmay]

I had a sandwich with lettuce on it for breakfast and I DIDN'T choke on it - I'm gonna be SO powerful today, I can feel it! 😁😂

#dysphagia #rambling

[chronic-gastro-illness-culture]

chronic gastro illness culture is will this mild stomach discomfort pass or is it gonna turn into smth bigger

#digestive disorders #chronic illness #stomach problems #gastroesophageal reflux disease #irritable bowel syndrome #irritable bowel disease #food allergies #food intolerance #stomach ulcer #crohn's disease #gastroparesis #dysphagia #delayed stomach emptying #diverticulosis #pancreatitis

[url0cal-weird0]

maybe you "love me" and tell me how much you love my body but do you feed me when my body doesn't work? do you stay with me when I'm having seizures on the bathroom floor and can't breathe? do you walk an hour in the summer heat to be with me? do you offer to buy me disability aids that are expensive? do you listen when I use aac? Do you comfort me when my "just a fish" dies? then my second one dies? or when my cat is taken back to the shelter? I thought so.

#appreciation post #boyfriend appreciation post #autism #autistic things #actually autistic #autistic teen #gay #invisible disability #disabilities #disabled #disability #dysphagia #fnd awareness #fnd #actually disabled #seizures #functional neurological disorder #conversion disorder

[sproutflags]

Dysphagia

Dysphagia - Difficulty swallowing foods or liquids, arising from the throat or esophagus, ranging from mild difficulty to complete and painful blockage.

#my flags #disability flag #disorder flag #dysphagia #liom #liom flag #new flag

[brightsunnydaysofcastamere]

Since it's disability pride month I wanna pitch a cooking show that is just some famous TV chef having to cook for a person with a bunch of dietary restrictions

Like every episode it'll be a different person with a completely different set of dietary needs who the chefs will have to create recipes for and they'll also have a nutritionist looking over their shoulder to make sure the food is actually healthy

And then at the end of the episode the chef has to throw a dinner party for this person and a bunch of their family/friends

Benefits include

Awareness for people with dietary restrictions

Awareness for a bunch of different conditions

The person featured in the episode will get a fine dining experience without having to worry about it for once

They also get a bunch of yummy and healthy recipes they can work with afterwards

We get to watch some famous dude weep as he has to throw all conventional cooking skills out the window

#actually disabled #chronic illness #dysphagia #making this post specifically because my achalasia makes it a pain to eat healthy lol #I mean technically I can eat most things #but healthy things tend to be hard to swallow so I usually end up with rlly greasy and or sugary foods

[oneshortdamnfuse]

I think it’s worthwhile to talk about pill swallowing and the importance of different medication options, actually. Not being able to swallow pills is not a sign that you’re either 1) not chronically ill enough or 2) immature. I’ve been accused of both. I’ve been told that it should be easy to swallow pills, and that I simply need to “get over” it (my inability to do so). This has made it very difficult for me to take medication. For many years, I was only able to take medications that were inhaled or suspended in liquid. If pills were the only options, I had to crush them and put them in applesauce or chug an entire bottle of water just to swallow one pill. I am better at taking pills now, but I still have some difficulty taking pill medications and doing so can be sort of… traumatic.

The thing is that I have multiple medical conditions that make it difficult for me to swallow. I have lived with GERD and Silent Reflux for most of my life. This causes acid from my stomach to enter my esophagus and larynx, burning it. This makes it much more difficult to swallow anything. I struggle to swallow soda, and that’s supposed to be an “easier to swallow” soft drink. Additionally, my nervous system doesn’t work quite right. I am B12 deficient, and my digestive system is deformed in a way that prevents me from getting the nutrients I need to have a healthy, functioning nervous system. This also impacts my ability to swallow pills. On top of all of this, I am emetophobic. The possibility of choking and/or inducing v***ting from taking pills, which has happened, will give me a panic attack.

I’ve had plenty of doctors and nurses roll their eyes at me or insist that I am just faking my inability to swallow - I was literal sat down in my asthma doctor’s office as a teenager and told to try swallowing a pill before I could leave. I couldn’t. I was hospitalized from a car accident and there were a few times that the person delivering medication “forgot” that I couldn’t swallow pills, so I had to wait longer to get my medication. My GERD PPI medication was a pill, and the pill was the only option available despite the fact that this condition can cause difficulty swallowing. Most of my medications and supplements for chronic illness have been pills, though my primary has tried to their best to get me on dissolving tablets, inhaled medications, and liquid suspensions. It makes staying healthy harder.

All of this is to say that there need to be more medication options readily available for people with dysphagia. People with dysphagia are chronically ill regardless if we can swallow pills. People with dysphagia aren’t just immature nor do we just need to “get over it” or “grow up.” Multiple tags on that pill swallowing poll highlight that people just don’t understand why swallowing pills is hard - this is why. It is a condition that is often caused by other chronic illnesses. People’s bodies don’t all work the same way.

#dysphagia #gerd #silent reflux #b12 deficiency #chronic illness