Tumgik
#cpunk
crippledpunks · 3 days
Text
my heart goes out to you if you're a disabled person who has a complicated or negative relationship with sleep. if you need to sleep a lot but can't due to life circumstances, or sleeping extra causing other symptoms to flare up. if you can't sleep enough due to pain, or nightmares, or psychosis, or bipolar, or depression. if you sleep way too much and find it hard to stay awake. if you can't fall or stay asleep. if you need medication in order to be able to sleep. if you don't feel rested from sleep. if you wake up a lot in the night. if you have bladder or bowel accidents while asleep. if you twitch or convulse or move too or get injured in your sleep. if you can't control your sleep schedule no matter what. if you can't sleep during "normal" sleeping hours. if you can't sleep for 8+ hours straight but can sleep for shorter amounts of time. if sleep is what you need but for one reason or another you just can't or refuse to do it.
i care about you. your disabilities deserve to be seen and acknowledged
748 notes · View notes
its-ticsticstics · 21 hours
Text
remind that no matter how 'severe' or 'mild' your tics are, its normal for them to sometimes be worse and other times barely noticeable!
its apart of the tics/tourettes phenomenon called "waxing and waning" and if anything, should make you feel more validated in your diagnosis <3
92 notes · View notes
cripplemetal · 3 days
Text
but seriously, i can't believe how far i've gone. and how i should be really proud of myself.
11 years of never-ending pain, of learning how to ignore and endure it, how to look and act "normal".
then my first shitty canes (they're pretty but completely unusable). first steps. first shame. how i was afraid to show up at work with it.
after that, i ordered a custom cane. and then another one. i decorated them. made them vibing. i started taking it to work, still afraid to use it around my colleagues.
then i got three house canes (first and second ones got chewed by my beloved dog lol) and started using it at home as well.
and now i use it everywhere i go. when i walk my dog, when i go to my lunch break on work, when i get around my apartment.
i got forearm crutches and learned how to use them. i decorated them too! they're yellow, covered in flowers stickers.
today i started saving up for my future rollator. i believe i'll be able to actually order it by june.
it all happened too fast, i still have impostor syndrome, i still feel self-conscious, like i'm not actually disabled and don't belong to cpunk communtiy and i'm a faker etc etc etc... but one thing happened: i improved my life. (even if i'm a faker lol) i got less pain every day, less fatigue, i stopped being ashamed at least of my canes.
my best friend was a big part of this journey, without her support i'd never get here. love her so much.
95 notes · View notes
belablog134 · 2 days
Text
Shoutout to people with arthritis, specially kids who have to deal with it the whole life.
It’s very hard to live with it, it’s worse without medication,
And very welcome to the disabled community.
62 notes · View notes
defiantcripple · 3 days
Text
A guy with a giant suitcase boarded the bus today without waiting for me to get off (the front is the only accessible exit), and tried to shove his way past me to get on.
I literally blocked his way, looked at him, and went "I need to get off." I made his ass back all the way back off the bus to let me out.
I do not care how able-bodied you are or how authoritatively you try to move. I need this exit, and I'm going to use it. The bus will still be here after I do, I promise.
45 notes · View notes
Text
Health update for those who care:
Had a hypomanic episode because I forgot to pick up my antispsychotics
Which led to me overdoing physical activity and therefore a BAD pain flare up that I’m still going through
I have received confirmation via MRI and ultrasound that my ankle has in fact been sprained for six years. My other ankle has considerable damage as well.
Several doctors have mentioned EDS (hypermobile and Classical) to me based on the type of ligament and tendon damage I have
I need to get injections in my ankles and then surgery on the bad one. At least there’s a solution!
Anyways hi I’m back!
21 notes · View notes
satellites-halo · 5 months
Text
yeah you're "punk" but are you normal about deformed people?
42K notes · View notes
thedisablednaturalist · 3 months
Text
In case the esim process confuses you or you aren't able to buy them yourself for any other reason, crips for esims for Gaza is collecting donations, they've almost met their goal of $150,000 raised. Donating allows them to buy esims in bulk which allows them to obtain more than individuals would be able to. I just donated and it was super easy as you can use paypal.
31K notes · View notes
cripple-council · 6 months
Text
when the “10 tips on how to make showering easy for disabled people” list doesn’t include a shower chair or a shower/changing table or grab bars etc, i know they don’t care about us physically disabled people.
good for u that turning off the lights and lighting a scented candle instead and listening to music or put on a show and using a bath bomb etc etc helps u but like none of those tips are that beneficial for physically disabled ppl specifically.
it’s good that those tips are there but for once we’d love to be included.
27K notes · View notes
cripple-punk-dad · 1 year
Text
Ok so at this point I've had two people roll up to me in manual wheelchairs, well, one of them was somebody pushing somebody who was nonverbal at the time, but it still counts. They asked me why I had zip ties around my tires.
It's winter where I'm living and we have really bad snow. And the snow plow people are really bad at their jobs probably because there aren't snow plow people who clean sidewalks. As a solution I got to thinking about how I could increase the traction on my wheels. And the most redneck thing I could think of was taking a bunch of zip ties and tying them around my wheels. They last surprisingly long, and work surprisingly well. It's basically the same premise as chains for your tires during the winter.
I chose to space them out pretty evenly so there's about one for every spoke. You could probably do more or less depending on how many you want and how much traction you get but I wouldn't go more than three per spoke. I realize that it's a bit later in the winter, and I probably should have made a post about this sooner, but I came up with it about a week ago. So please share this, even if you're not disabled, because there are tons of people I know who are stuck in their houses because they can't get around in the snow. A pack of zip ties costs about $5, which compared to $200 knobby snow tires is a big save, and if you want to invest you could get colored zip ties.
66K notes · View notes
cripplemetal · 2 days
Text
"you have such long beautiful legs" awww thank you! :3 they're useless
41 notes · View notes
sardonicdoll · 2 months
Text
Tumblr media Tumblr media Tumblr media
wanted to do my photo project this semester on the notion of mobility aids being extensions of our bodies, the yarn was done by a friend
12K notes · View notes
fallenstarcat · 7 months
Text
sure there’s a ramp, but is it steep? is there a curb at the top? is the ground uneven? do i need a key for the elevator? are the aisles and doorways wide enough? do i have room to turn? is there furniture and clutter in my way? is the carpet difficult to wheel on? can i open the doors myself?
accessibility to wheelchairs is more than just a ramp.
15K notes · View notes
defiantcripple · 2 days
Text
Just found out the tax return I'm using to buy forearm crutches can take 8 weeks to get to me. Having legs can wait, I guess.
Also, the fact that I have to use my tax return to be able to walk is fucking dystopian as shit, I hate it here.
28 notes · View notes
mimikyu-chr · 6 months
Text
Disabled people should be allowed to exist in public. Yes, I mean all disabled people.
That includes people with tic disorders.
That includes people who smell ‘bad’.
That includes people who can’t help being loud.
That includes people who move ‘strangely’.
That includes people with bulky mobility aids.
That includes people who drool.
That includes people who struggle with incontinence.
We all should get to exist, however that looks, and go out in public, use public transport, do activities outside our homes. And we should be allowed to do those things without being glared at or having ableist things said to us.
18K notes · View notes
hellyeahsickaf · 4 months
Text
I found an extremely dope disability survival guide for those who are homebound, bedbound, in need of disability accommodations, or would otherwise like resources for how to manage your life as a disabled person. (Link is safe)
It has some great articles and resources and while written by people with ME/CFS, it keeps all disabilities in mind. A lot of it is specific to the USA but even if you're from somewhere else, there are many guides that can still help you. Some really good ones are:
How to live a great disabled life- A guide full of resources to make your life easier and probably the best place to start (including links to some of the below resources). Everything from applying for good quality affordable housing to getting free transportation, affordable medication, how to get enough food stamps, how to get a free phone that doesn't suck, how to find housemates and caregivers, how to be homebound, support groups and Facebook pages (including for specific illnesses), how to help with social change from home, and so many more.
Turning a "no" into a "yes"- A guide on what to say when denied for disability aid/accommodations of many types, particularly over the phone. "Never take no for an answer over the phone. If you have not been turned down in writing, you have not been turned down. Period."
How to be poor in America- A very expansive and helpful guide including things from a directory to find your nearest food bank to resources for getting free home modifications, how to get cheap or free eye and dental care, extremely cheap internet, and financial assistance with vet bills
How to be homebound- This is pretty helpful even if you're not homebound. It includes guides on how to save spoons, getting free and low cost transportation, disability resources in your area, home meals, how to have fun/keep busy while in bed, and a severe bedbound activity master list which includes a link to an audio version of the list on Soundcloud
Master List of Disability Accommodation Letters For Housing- Guides on how to request accommodations and housing as well as your rights, laws, and prewritten sample letters to help you get whatever you need. Includes information on how to request additional bedrooms, stop evictions, request meetings via phone, mail, and email if you can't in person, what you can do if a request is denied, and many other helpful guides
Special Laws to Help Domestic Violence Survivors (Vouchers & Low Income Housing)- Protections, laws, and housing rights for survivors of DV (any gender), and how to get support and protection under the VAWA laws to help you and/or loved ones receive housing and assistance
Dealing With Debt & Disability- Information to assist with debt including student loans, medical debt, how to deal with debt collectors as well as an article with a step by step guide that helped the author cut her overwhelming medical bills by 80%!
There are so many more articles, guides, and tools here that have helped a lot of people. And there are a lot of rights, resources, and protections that people don't know they have and guides that can help you manage your life as a disabled person regardless of income, energy levels, and other factors.
Please boost!
14K notes · View notes