#erythromelalgia

[this-teen-is-on-fireee]

Moment of silence for all the heat sensitive disabled ppl as the world actively tries to kill us this summer

#erythromelalgia #chronic illness #chronically ill #chronic pain #invisible disability #disability #disabled #actually disabled

[a-dinosaur-a-day]

G-d/The Universe: welcome to the world, Meig! you're going to be obsessed with dinosaurs me: okay cool G-d/The Universe: you're going to be aware of mass extinctions before you understand death me: is that a good thing- G-d/The Universe: and as such, you'll realize the true dangers of climate change before you start school me: that doesn't seem appropriate for a 6 year old to kn- G-d/The Universe: you also have PCOS and erythromelalgia. you'll basically only be comfortable at temperatures at or under 68F/20C me: but wait the climate is getting warmer so am I screwed or- G-d/The Universe: and you'll spend your whole life watching all the people older than you completely ignore and or trivialize this issue in the favor of infinite growth and capitalism. Also, everyone around you will act like you're crazy for being warm all the time. Have fun! me: oh for FUCK'S SAKE

#I hate climate change #climate change #about the blogger #sixth mass extinction #the world is on fire and I'm burning first #erythromelalgia #pcos #paleontology

[inkdandimpulsive]

Shout out to disabled people who are, ya know, existing with symptoms - whatever they may be. Who are exhausted/fatigued some (or all) days. Who are in pain. Who live in a world that doesn’t understand them, a world that isn’t built for them.

I hope you have the time to cuddle your favorite stuffed animal. I hope you watch an amazing episode of your favorite show. I hope you meet a doctor that smiles and sees you and works with you. Much love to you all.

#chronic illness #autoimmine disease #autoimmune #chronic fatigue #spoonie #chronic pain #spoonie life #chronic migraine #sjogrenssyndrome #raynauds #postural orthostatic tachycardia syndrome #erythromelalgia #nerve pain #gastroparesis #tmj disorder #disabled #ableism #disability

[ifihadmypickofwishes]

It turns out that things like hot baths and moderate exercise, while good for many types of chronic pain, are bad for Body Unable To Handle Heat and Movement Diseases.

Me and @autisticslp (I'm the one on the right.)

#erythromelalgia #postural orthostatic tachycardia syndrome #ehlers danlos syndrome #rare disorder #chronic pain #disability #not autism

[chronically-izzzzle]

Guess who gets to add a new illness to their garbage body resume…. It’s this bish!

Welcome Erythromelalgia to the family🙃🫥😐😶😭🥳

Now my feet and toes get to suffer in constant pain, neuropathy and hot agony…. FOREVER!

FML!

#erythromelalgia #spoonie #spoonie stuff #chronic pain #chronic illness #chronically ill #chronic illness meme #irritable bowel syndrome #spoonie meme #fibromyalgia

[zeldalover6969]

who up being chronically ill rn ! anyways i wish my hands wouldn't do All That

#my erythromelalgia HAAAATES this hot humid weather #my hands have not known peace in days #my wpw has actually not been too bad....suspicious #erythromelalgia #wolff parkinsons white #chronically ill #chronic pain

[hauntedmortuary]

#gothic #goth girl #goth gf #silver hair #cripple punk #small fiber neuropathy #erythromelalgia #grey hair #grunge #grungy aesthetic #vampire

[this-teen-is-on-fireee]

Reblog if schools should stop spending thousands on new sports equipment and should fix their elevator and air conditioning to increase accessibility for disabled students and quality of life for everyone

#like #everyone appreciates good ac #just fix it #please we dont need a new track #chronic illness #chronic pain #chronically ill #erythromelalgia #invisible disability #disabled

[bonsaiiiiiii]

So I've just recently come to terms with it, but apparently a few months ago I got diagnosed a rare chronic illness that is so rare that it has no cure/therapy so I have to show up at the hospital for controls twice a year and if it worsens then it's a constant travel to the hospital but it's 🆒️ because I study in one already yay yay

but anyways

have a tictac about it (under a read more because it's like a sorta description and while it's not detailed it still describes an illness so ??? idk)

#iris speaks #tw illness #erythromelalgia #erythromelalgia awareness #chronic illness #i also got the new i have it just after my birthday #even if i showed the symptoms for a while now #so yay #can someone please page Dr. Tracy onto me pls? #idc if it's Grandma or Virgil #i need a Tracy 🥺 #anyway im talking about it now because it flared up again and maybe talking about it can make me feel better ??? #and because i can #obvi #medical rant over *jumps off homepage*

[sourburialground]

Being around a whole new group of people again + having to set up and decorate an apartment is making me realize once again that most people don’t deal with physical hindrances/chronic pain (and aren’t autistic but that’s not my main point) and that I genuinely am disabled

#I’ve come to terms with the disability fact in terms of mentally a while ago #but still feel like I’m not at a point where I can say the same physically #but the shit I deal with isn’t the normal and I forget that so much #until I get the horrified look from someone who’s physically abled when i off handledly mention something or something like my leg gives out #I’m still so hesitant to use my cane but it’d probably help a fair amount #but I don’t want the questions or stares #ugh #this is what I get for over doing it today #verbal vomit #chronic pain #erythromelalgia #fibromyalgia

[nonstopfandomposts]

Erythromelalgia is crazy like you're telling me I have MAN ON FIRE syndrome and I'm supposed to just walk around like that's not the most metal shit I've ever heard?

#erythromelalgia #chronically ill #chronic illness

[ifihadmypickofwishes]

I'm begging rental agencies to be more clear about air conditioning. This is not a difficult task. I should not have to contact a manager to ask whether I'm going to boil alive in the summer.

I know I'm especially sensitive to this because I have heat-induced nerve pain that is charitably described by the medical literature as "intense burning," but good grief. A dinky little window unit is not going to do shit in a heat wave. I regret to inform you that we're not reversing global warming any time soon, and it's probably time to fork over money for actual air conditioning.

#erythromelalgia #disability #not autism

[justaratswriting]

A self portrait of sorts

#erythromelalgia #disability #self portrait #original art

[a-forger-and-a-point-man]

This is important to share for awareness. I learned a lot here. Pass it on. It’s the whole point of this piece.

#tw: chronic illness #tw: medical #erythromelalgia #EM

[octernity-bitches]

I'm now technically a vampire and 7 year old me is so happy

I've been waiting for someone to put a name to my chronic pain and my dermatologist said that he is certain that is Erthropoietic Porphyria (epp). This is also called vampire disease and its called this because any and all light hurts like a mother fucker, like vampires (I sparkle in the sun lol).

Because its so rare there really isn't much about it that I can find that would be helpful so is there any other vampires willing to help me out?

#chronic disease #celiacs #vampire #erythropoietic porphyria #chronic pain #what is this #help plz #spoon theory #either way im going to die #misdiagnosis #erythromelalgia #spoonie #end my suffering

[eco-bill-olkowski]

The Magnesium Solution for High Blood Pressure, How to Use Magnesium to Help Prevent and Relieve Hypertension Naturally.

By Jay S. Cohen, MD. 2004. 82 pp. Reviewed by: William Olkowski, PhD This small booklet tells the story of widespread magnesium deficiencies in the US population and how this is part of the causal pathway to hypertension. Supplemental magnesium should be part of the treatment program for hypertension treatment, but it is not recommended by most physicians who recommend drugs for hypertension…

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#blood pressure #Erythromelalgia #health #magnesium #magnesium for high blood pressure #prevention