#medical disableism

[enbycrip]

I am noticing a very serious and sustained media assault on people needing prescription drugs recently.

Panorama has attacked pain management drugs, ADHD diagnoses that could potentially lead to the NHS prescribing drugs to manage that, and now antidepressants. The same antidepressants pain management services are trying to claim are a replacement for pain management drugs btw. (They’re not. I take both.)

Given how much the Beeb are in the Tories’ pocket, this basically feels like a way of trying to shift the narrative about a disintegrating NHS (destroyed by Tory policies) into “you don’t actually need these anyway”. I.e. once again trying to victim blame sick and disabled people.

And the truly shittiest thing is that this will kill people. There’s still *so* much stigma around mental health and medication. People will flush their own drugs. People will flush the drugs of people they are caring for. And then people will have MH crises there is no capacity for the NHS to handle, and people will die.

#nhs #uk politics #oh ffs panorama could you not pls #bbc #chronic pain #chronic illness #mental illness #antidepressants #medical disableism #systemic disableism #disableism #ableism #stigma #adult adhd #autistic adult

[a-queer-crip-writes]

CWs for pregnancy loss, eugenics, disableism, medical trauma

Poetrytober day five

“Oh, you must be Catholic,” they said

When I told them there was no chance I’d be aborting a disabled foetus.

They did not even exist yet

And they never really did; it turned out

They were only a ghost of cells and hopes

And hurt and desperate longing

Of both of us

concentrated in a place that only cramped and bled and bled

And could not cradle and keep them as I,

As we

So desperately wanted

Washed away on a blood-tide into

The oblivion of never-being.

And yet even in that state of desperate longing that

Could never conjure into full being

I had to defend their right to be

From even the chance.

#poetry #poetrytober #spilled poetry #disableism #disabled poet #eugenics #pregnancy loss #pregnancy #medical disableism

[neurotypicalabusesurvivor]

This is a friendly reminder that none disabled people often do benefit from the same accommodations disabled people benefit from.

#mobility issues #leftism #mental illness #autism #medical model #mobility aid #social model of disability

[disableddyke]

onion not even doing satire at this point

#tweets #the onion #disabled #disability #ableism #medical negligence #oh this blew up #sure hope there aren’t any people being weird in my notes #5k #10k #20k #30k #40k #50k #60k

[spooniestrong]

This ABSOLUTELY works.

I have used this for many years. Definitely do it.

#spooniestrong #spoonie #disability #chronic illness #chronic pain #medical ableism #doctors

[uncanny-tranny]

Fat people deserve mobility aids, too. No matter if it's connected to their fatness or not, because having a mobility issue that is connected to one's fatness won't change that they're still fat and still have the issue at hand. Fat people don't deserve to "tough it out" because fatness should be this divine punishment doled out to those who "deserve" it. Fat disabled people deserve to have the peace of mind that they can exist in whatever way is most comfortable and accessible to them

#disability #ableism #ableism tw #fatphobia #fatphobia tw #also if it's an issue solved by weight loss why would you want them to suffer until the weight loss helps wouldn't that DISCOURAGE them? #because if i were suffering the entire time i sure as fuck wouldn't want to keep going for the ~idea~ of it's gonna pay off!!! #also even if they 'made themself disabled' by being fat or anything else that doesn't matter. they're still disabled. #there is no 'good' disabled and 'bad' disabled and you cannot sort people into those categories #for every 'bad' fat disabled person there are multiple 'good' fat disabled people but you can't tell them apart often actually! #because you would have to know the intimate details of their medical history and familial lineage and tbh if you're... #...being a piece of shit to a disabled person because you assume they're guilty until proven innocent i don't blame others for being... #...weary of you and not wanting to be around you. because you've already proven you can't handle the IDEA of complex disabled experience

[addamatic]

If you have a stockpile you are an addict

Btw you have to refill on the same day you run out of medication

Btw you will have seizures and possibly die if you miss your medication

Btw the pharmacy will not order your medication in advance of the one day you are allowed to call and refill it

But you are an addict who should be criminalized if you have a few days stockpiled so you don’t have a seizure and die.

This is a normal way to treat disabled people who need medication that keeps them from dying.

#chronic illness #disability #cripple punk #ableism #the medical system wants to kill me personally and everyone I love

[ratbastarddotfuck]

Trying to remind myself that im allowed to take painkillers even if the pain is "my fault".

A migraine is a result of, not a punishment for forgetting to eat - take the painkillers.

Back pain is a result of, not a punishment for poor posture - take the painkillers.

Sore joints are a result of, not a punishment for overexertion - take the painkillers.

Pain is not a punishment for a mistake. Painkillers are there to ease suffering. There is no glory in misery. There is no virtue in agony.

#chronic pain #chronic illness #disability #the system speaks #medication

[chronicsymptomsyndrome]

Can we please for the love of god stop telling teenagers they’re too young to have aches and pains. Can we please stop being dismissive about these things. Fakeclaiming is disgusting period, but it is exponentially harmful to youth. Just because you didn’t start hurting until your 20s or 30s or 40s doesn’t mean every teenager complaining of chronic pain must be lying. I learned the hard way that if kids are invalidated enough about this, they will just learn to accept constant pain as a fact of life. And then they will need surgery they can’t afford in ten years bc it turns out constant pain is NOT a fact of life. At any age.

p.s. same goes for mental health

#chronic pain #chronic illness #medical trauma #tw fakeclaiming #fake claiming #anti fakeclaiming #childhood trauma #complex trauma #physical disability #disability advocacy

[enbycrip]

It’s also notable that gender-affirming surgeries *can* fuck up, same as any other surgery. Like, dissatisfaction with, say, bad scarring or something that has caused ongoing pain does not mean the person isn’t trans - it means a variety of things, from medical incompetence/negligence to just bad luck.

It feels quite notable that I’ve seen a lot of other trans folk be really positive about surgeries that they might quite likely regard as dissatisfying under other circumstances because it’s still been better than the alternative.

(I have not accessed any gender-affirming healthcare. I’m nonbinary and disabled and chronically ill and I honestly don’t have the spoons to fight doctors about anything else, particularly when honestly a haircut and a binder has done so much for my mental health).

#disabled #disability #chronic illness #chronic fatigue #medical disableism #medical transphobia #transphobia #media transphobia #systemic transphobia

[hiiragi7]

Here's some positivity towards people with medical devices that others view as "gross", or "shouldn't be seen in public". It's bullshit the way this gets treated and I want more positivity about it, so I'm making it myself.

People with catheters. People with stoma bags. People with feeding tubes. People who have tubing or medical alterations they can't hide. People who otherwise have medical devices which are deemed "not socially acceptable" and "gross".

Your medical devices deserve to take up space. We should not be made to feel ashamed for devices which keep us alive. We should not be made to feel insecure for the ways our bodies function and the assistance we need to live. You deserve to be yourself, you deserve to exist in public as a disabled person, and you deserve to be accepted and celebrated as yourself, medical devices included.

#disability #disability aids #disability positivity #medical devices #physically disabled #physical disability #actually disabled #chronic illness #chronically ill

[utopicwork]

6 years ago I was told I was in too much pain to go through physical therapy, every doctor since has ignored this and now Im wheelchair bound (without the part where I actually have a wheelchair). No one will ever answer for this.

[Begin ID: "Pixel art of 6 nails in a column, each nail is progressively more dinged up and the last two have increasing levels of blood on them. There is text next to each nail, in order: HAVE YOU TRIED LOSING WEIGHT?" End ID]

#blood #medical #pixel art #disability #medical trauma

[smoov-criminal]

i just rbed a post about something similar but. i need my white disabled to folks to be more aware of the privileges they have when navigating the healthcare system. every bit of medical ableism one can experience can be made even worse by being a poc. some of us can't threaten to report a doctor to the ethics board, or refuse care from healthcare workers who aren't masking, without jeopardizing our access to care in general or even our physical safety. we are more likely to be seen as drug seeking, or marked as noncompliant, or experience medical abuse and neglect. that's not to say these things don't happen to white disabled people, but i just think it's important to recognize how dangerous receiving medical care can be for disabled poc specifically. please keep this in mind when giving advice on navigating healthcare.

#mj.txt #disabled #disabled poc #black history month #cripple punk #medical ableism #medical racism #medical abuse #lots of tags sorry

[inkskinned]

you have to go to work so you can pay for your doctor, who is not taking your insurance right now, and if you say i can't afford the doctor's you are told - get a better job. it is very sad that you are unwell, yes, but maybe you should have thought about that before not having a better job.

(where is the better job? who is giving out these better jobs? you are sick, you are hurting - how the hell are you supposed to be well enough for this better job?)

but you go to the doctor because you had the nerve to be hurt or sick or whatever else. and they tell you that it is because you have anxiety. you try your best. you are a self-advocate. you've done the reading (which sometimes pisses them off worse, honestly). you say it is actually adding to my anxiety, it is effecting my quality of life. so they say that you are fat. they say that all young people have this happen to them, isn't it a medical marvel! they say that you should eat more vegetables. they say that you probably just need to lose a little more weight, and that you are faking it for attention.

(what attention could this doctor possibly give? what validation? that's their fucking job, isn't it?)

there is always a hypochondriac, right. someone always tells you about a hypochondriac. or someone who is unnecessarily aggressive during the worst days of their life. or someone looking "for a quick fix". or some idiot who wasn't educated about how to properly care for themselves who just abandons their treatment. and again, the hypochondriac, the overly-cautious hysteric. these people don't deserve to be treated like humans (right), and since you might be one of these people, you also don't get treated like a human. because those people can really fuck with the system, you now have to pay for it. and besides. you're actually probably faking it.

(more often than not, you find a 2:1 ratio of these stories. for every "hypochondriac", there are 2 people who knew something was wrong, and yet nobody could fucking find it. the story often ends with pointless suffering. the story often ends with and now it's too late, and it's going to kill me.)

you are actually just making excuses. someone else got that procedure or that diagnosis and he's fine, you should be fine too. someone else said they watched a documentary about other inspirational people with your exact same condition, maybe you should be inspirational, too. you're just too morbid. your pain and your experience is probably just not statistically concerning. it is all self-reported anyway, and you're just being a baby.

(once, while sitting down in the middle of making coffee, you had the sudden, horrible thought - i could kill myself to make the pain stop. you had to call your best friend after that. had to pet your dog. had to cry about it in the shower. you won't, but that moment - god, fuck. the pain just goes on and on.)

you know someone who went in for routine surgery and said i still feel everything. they told her to just relax. it took her kicking and screaming before they figured out she wasn't lying - the anesthetic drip hadn't been working. you know someone who went in for severe migraines who was told drink water and lose weight. you know someone who was actively bleeding out and throwing up in the ER and was told you're just having a bad period.

in the ER there are always these little posters saying things like "don't wait! get checked today!" and you think about how often you do wait. how often the days spool out. you once waited a full week before seeing the doctor for what you thought was a sprained wrist. it had actually been broken - they had to rebreak it to set it.

but you go into the doctor. the problem you're having is immediate. the person behind the counter frowns and says we're not taking your insurance. you will be paying for this out-of-pocket.

they send you home with tylenol and a little health packet about weight loss or anxiety or attention deficit. on the front it has your birthday and diagnosis. you think about crying, and the words swim. it might as well say go fuck yourself. it might as well say you're a fucking idiot. it might as well say light your money on fire and lie down in it. and the entire fucking time - the problem persists.

it's okay. it's okay, it's just another thing, you think. it's just another thing i have to learn to live with.

#spilled ink #warm up #can you tell what i'm mad about today specifically #i will say that there are a LOT of things that go into this. like a lot. this is ungendered and unspecific for a reason #it isn't just sexism. it's also racism. and ableism. and honestly classism. #and before a healthcare professional reads this as a personal attack: i understand ur burnt out #we are ALSO burnt out. your situation is also dire. this is not an attack on you. #this is a commentary on the incredible amounts of bigotry that lie at the heart of capitalism #where people have to pay money out of pocket to be told to fuck off. #your job is important. so is our humanity. and if you cannot accept that people are fucking mad as hell #at the industry - you are probably not listening . #anyway at some point im gonna write a piece about sexism specifically in medical shit #but i don't want terfs clowning in it bc they can't understand nuance #> it is true that ppl w/a uterus are more likely to experience medical malpractice & dismissal globally #> it is also true that trans people experience an equally fucked up and bad time in the medical field #> great news! the medical industrial complex is an equal opportunity life ruiner :) #(if you find it necessary to go into a debate about biology while discussing medical malpractice #i want to warn you that you're misunderstanding the issue. because guess what. #cis MEN might experience this. particularly black men. particularly disabled men. #so YES having a uterus can lead to more trouble for you. but this happens a LOT. #instead of fighting those ALSO experiencing your pain.... try working WITH them. #which btw. is like. actual feminism.)

[alopecoiddaydream]

There should be a "Rate my Professor" but for disabled people trying to get diagnosed and doctors. That way we can avoid medical gaslighting.

#disability #disabled #chronic illness #medical gaslighting

[cistematicchaos]

Actually lol I think disabled people who've been abused/neglected by doctors/nurses should be allowed to be as pissed as they want about it and people who berate them for not understanding how hard being a doctor/nurse is or some such should literally shut the hell up. There is nothing immoral about being angry, especially about shit like this and if you think disabled people don't understand how hard capitalist systems can wear you down, well, you're not just mistaken but ignorant as fuck. 

#Ableism #sanism #abuse mention #medical neglect #medical abuse #disabled #disability #chaos is speaking