#the three tumors on the other hand are considered terrors even though I’m pretty sure they DONT cause mass destruction and chaos | Explore Tumblr Posts and Blogs

chibioniyuri · 6 years

Text

So, I wanted to share my current medical status with y’all, but only if you want to actively read it, so I’ll be throwing it behind a cut. Plus it’s pretty long. So there’s that.

So, I have a brain tumor.

Only, technically not. It’s within the skull but outside the dura mater, the protective membrane around your brain itself. So, technically not a brain tumor.

But let’s start from the beginning.

Starting around summer of last year, my grandmother was in and out of the hospital. Falling without being able to get up on her own, leading her to spend the entire night sitting on the floor waiting for someone to visit her because the phone was out of reach. Pneumonia extending her hospital stay. Getting home and refusing the home health care my uncle and aunt set up for her. Falling again. Repeat.

Around August-ish, my aunt was cleaning her apartment for her and found pain killers stashed all over the apartment. In bottles. Free pills on her walker. Next to the phone, in the kitchen, in the bathroom, stashed in both nightstands. Turns out she’d been asking nearly everyone who visited her to bring her bottles “because she was running low.” Including us. We could get large bottles of Excedrin from Sam’s Club for cheaper than were available in her country. We’d bring over two extra large bottles. We didn’t think anything of it; our visits were spaced roughly four years apart. But concurrently, some tests were showing the beginning stages of liver and kidney damage that could be caused by self-medicating in the way my grandmother was.

Cut to me. “Wa-oh,” says I.

For like two and a half years, that I could remember, I’d been having trouble sleeping. Beyond the normal, that is. Taking over an hour to fall asleep, sleeping roughly three hours at a time, eventually needing to take naps on my days off just to function safely on my work days. I didn’t think much of it at the time. I was finishing school. Looking for a house. Moving back into my parents’ house so I wouldn’t have to break a lease when I finally found “the one.” Exposing myself back to my dad’s special brand of tough love. I figured it was just stress, and that it would go away when things were less hectic.

They didn’t.

Right around April of last year, my headaches starting spiking. Again, I didn’t think much of it. For most of my life, I’ve dealt with headaches. I’ve become a pro at the art of ignoring the headache away. But suddenly, I was having migraine-level headaches, frequently. I explained it away as lack of sleep. This was about a year and a half into the lack of sleep saga. It seemed reasonable to me. And I was more concerned about the nearly-falling-asleep-while-driving and the crying on the way to work and the endless feeling of “I don’t want to be here anymore.”

But these new headaches were debilitating. So... I started self-medicating. A lot.

I really should have been more aware; I mean, as a medical professional, there were so many red flags. But nothing like that could ever happen to me, right? I was just weak. Attention-grabbing. I just needed to suck it up and get back to work. My dad, after all, had never taken a sick day in twenty years, even if he was sick. He’d had some baaaad headaches, too, and he just powered through. I needed to do the same.

My grandmother was a wake-up call for me.

I finally convinced myself to do something about it September of last year. I thought it was just my thyroid. It controls so many things: your sleep cycle, your metabolism, your temperature regulation. My doctor initially agreed with me, and blood tests corroborated it. My thyroid hormone was low.

Something must have niggled at my doctor though, because she ordered more tests. Then more. First blood tests. I was stuck so many times, it was ridiculous. I counted 9 vials in one sitting, which.... personally, is a record. I can’t speak about the standard levels for anyone else. Then an ultrasound of my thyroid. Nothing too abnormal. Some nodules that were enlarged, but nothing alarming. An MRI of my brain. Just a precaution, she said. Some of my medical history meant that she wanted to fully rule some things out.

I had my MRI on a Wednesday. That Friday, her nurse called me. Said that my doctor wanted to talk to me about my results. That I should just name a time that day and she would make sure it was available.

Oh shit.

I called my mom. I remember thinking that I wasn’t reacting the way I thought someone who received bad news should. I was acting like I had a particularly juicy piece of gossip. Jovial, almost.

“Hey mom,” I said. “That thing I was joking about, back when she first mentioned the MRI? Tumors and cancer? The thing I said wouldn’t happen to me? Pretty sure she found it.”

“What?”

“Her nurse just called. Told me to name a time I can come in today. Whatever time, and it would be available. That only happens with bad news, right? She found it. Mom, I have a brain tumor.”

My mom told me that I had to hear the actual words from my doctor’s mouth before I could worry. And that if it was real, we would deal with it. And that I should call my dad so he could come with me.

So I did. He told me roughly the same thing, that I couldn’t be sure until the doctor said it herself. And that I should schedule it so my mom could go with me.

“I scheduled it for roughly an hour from now.”

“Oh. I guess your mom can’t go with you, then.”

No mention of him going. I was too afraid to ask.

I found out later that he had already started drinking and was too afraid that someone would figure it out. He’s the type of alcoholic that feels like, since he named himself an alcoholic, that’s it, kumbayah, crack open a cold one, but instinctively lies to medical professionals about his level of intake. He excused it away by saying he wasn’t really an emotionally supportive guy anyway, and he didn’t offer because he didn’t think I wanted him there. Plus, he said, he would’ve started crying and that’s not being emotionally supportive. I agree that he would’ve. I also think he fell into a mild depressive state because his employer declared bankruptcy and he was without the job he’d worked at since being honorably discharged from the military in 1995 and was having an identity crisis because so much of his personal identity is tied up into his work, and without it, he’s nothing. But you’re not here to read about my analysis of my dad.

So I sat alone in that room while my doctor told me I had a tumor on my pituitary gland. That it was pretty large and probably the cause of a lot of the lethargy and difficulty sleeping. That I should let her know if I start having headaches.

“I’ve got those,” I said.

“You didn’t mention it to me?”

“No. I mean, I’ve had them since puberty, really. They were more frequent, recently, but I thought it was the not sleeping thing.”

She made sure I walked out with a referral to the neurosurgeon in my hand and advised me to call him right away. Well, as soon as my insurance cleared.

Since October, I’ve struggled to feel it was real. I’ve sort of stepped aside from it, I guess. I’ve viewed it as one of those interesting case studies from nursing school. “Mary’s MRI results show a 2cm growth on her pituitary gland. Her growth hormone levels are __. She complains of headaches, lethargy, insomnia, and weight gain. What nursing diagnoses would apply to this case? What interventions would you consider implementing?”

I’ve analyzed my reactions and compared them to the stories I’ve read, fictional and anecdotal, about others dealing with serious medical issues and found myself lacking. I’ve thought of how I would write this situation. Definitely dread, I decided. Fear. Worry. A sense that suddenly, the world is crashing down around you. And alternately, a sort of freeing feeling. Suddenly, you can go out into the world and really live like it’s your last day.

And then I looked at my bank account. I looked at my insurance paperwork. I decided that I couldn’t afford the surgery to remove it until next year. Definitely couldn’t take the time off to process it. Gotta make that money, pay those bills.

“You’re so strong,” one of my fellow nurses tells me. I want to tell her I’m not. I’m just incredibly aware that I’m financially precarious and that I can’t afford anything else. And it’s so much easier to fall into routine and focus on caring for someone else. Avoidance at its best.

So why am I sharing this all of a sudden?

My surgery is in less than two weeks: April 4. And it’s definitely real now.

Suddenly, all that stuff that I imagined writing is happening to me. The closer that date crawls, the worse I feel. At first, it was mild concern. It’s approaching absolute terror now, though.

I’m about to let someone send some tools up my nose, poke around in my brain, and remove some bits of myself that have gone renegade. I’ll be in the ICU in case of complications. I’ll need someone with me for a while afterwards, when I finally get discharged. I have absolutely no idea how I’ll pay for it, considering my credit card has wracked up a truly impressive balance due to my car breaking down last year, and then all the lab work, diagnostic tests, and specialist visits, which let me tell you, are a special sort of expensive hell. Add on my mortgage and my student debts, and I squeak by every month. I’ll probably pick up a second job to help out with whatever costs I accrue.

One good thing about this is that my dad has stopped asking me “do you want mine?” when I mention I have a headache. But now he’s joking that I’ll be in the hospital for ages because, “I hate to say it like this, but you don’t do so well with the pain thing.” Fuck you.

The truly good thing: my brother got leave from the Air Force to come home for a week. We haven’t seen him since last July, when he came home for our it’s-been-four-years-time-to-go-to-Germany trip. I’m so happy about that, I could cry. I probably will before this whole thing is over.

So, there you go. The full update.

I’ll probably be typing more things up to work through this. Typing all this out has been oddly cathartic.

#personal #personal medical stuff #K's brain things

5 notes · View notes