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Fabulous
WHAT DO YOU MEAN I NEED TO SHOWER AGAIN? What kind of fuckery is this?
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This made my stomach drop and a piece of me died.
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WTF Was that!!
27.7.12 was just like any other day I although I had been experiencing a sore eye for a few days the drs said scleritis? Weird I’d never heard of it.
Putting my baby to bed I started to feel dizzy, sick. I laid down not wanting to move, waiting for my husband. He soon came home walked me to bed then BAM - I started to loose then sensation in my face, soon my hand then the whole right side of my body!!
What was happening to me. Panic spread I couldn’t find words, I was confused my arm was heavy- was I having a stroke?
My husband was on the phone to the ambulance- wait they were already here. I couldn’t think straight, I couldn’t stop shaking. They were taking me away- but what if my babies needed me ?
I couldn’t breathe properly they put me on oxygen. I woke up at hospital beeping tubes and bells. What a hell hole. It was a Friday night and they were under staffed they told my husband they thought I was having a stroke but couldn’t do a CT as it was shut for the night. I was given medication. It took them 2 Days to CT me. It was not a stroke thank god - but the hell is wrong with me I’m unable to move.
My best friend came to see me and I knew in her eyes how bad it looked. I’ll never forget, although I know it bothers her that she cried in front of me but I know she loves me and she has been there again and again throughout this whole ordeal and I love that girl and her beautiful family.
I ended up needing a spinal tap the first one left me with a leak of the spinal fluid then they needed a second one as they could get enough fluid from the first, they said to my husband- we are thinking MS WTF!!
All this is happening mind you will I’m drifting in and out of concness and in an enormous amount of pain.
Eventually they come back days later they don’t think it’s MS but all my blood work is crazy I need more scans this time an MRI 2hrs it took and to this day every time I I have one it brings backs these awful days ( worst days of my life)
It has now been about 1.5 weeks I can just move my feet.
The neurologist said he thinks it’s a hemiplegic migraine but it’s out of his field and he’s only ever read about them as they are not that common. Also my blood work shows some strange things happening but he’s not sure so follow up with the gp so when I can walk , talk and eat I can go home- gee what a fabulous dr.
6 days later I’m taken off the pca - all in one day have a terrible reaction. I called my dad to get me the hell out of that place I went home to hold my babies the best reward for fighting through it.
Did I think I was going to make it - no I didn’t.
I can’t thank my mum and husband enough for looking after my babies through out the whole time for me.
1 month later I had an official Diagnosis of Hemiplegic Migraine where one side of your body can go paralysed type migraine it can affect your speech walking fine motor etc.
9 months later after lots of I’m not sure from lots of different test I had an official Diagnosis of Lupus SLE.
How did I feel- scared, terrified, relieved!
That day defined the rest of my life and I will forever morn the girl I was before.
My story has so much more but that’s for another day………………
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