#adultswithcf

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RISING UP FOR A DREAM - BY NICHOLAS KELLY, RD

Nicholas Kelly, dietitian, motivational speaker, author, DJ, artist, poet, dancer, advocate, and CF Warrior, shares the secrets to his freestyling "sauce.”

Enjoy his inspirational freestyle artistry entitled “Rise Up For A Dream,” and learn how you can empower and express your unique voice.

WATCH FULL CF COMMUNITY VOICES PODCAST:

Find more from Nicholas Kelly @NicholasKellyRD on Twitter, Facebook, Instagram and Youtube.

CF Community Voices is made possible to date through grants from Chiesi USA, Genentech, and Viatris.

#cysticfibrosis #cfirl #comunidadfq #CFcommunity #65roses #adultswithcf #riseup #ihaveadream #cureCF #makeCFstandforCureFound #spokenword #poetry #Freestyling #motivationalspeaker #dietician #CFwellness #cfcommunityvoices #CFRI

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ZOOM INTO NOW! JANUARY 24, AT 5PM PT (8PM ET)

Zoom Into Now with Dr. Julie Desch combines mindfulness practices with meditation, which has been shown to reduce anxiety and depression. Open to those with CF and family members, 16 years and up.

REGISTER: https://cfri.tiny.us/CFRI-ZoomIntoNow

Sponsored to date by Chiesi USA, Viatris, Genentech, Gilead Sciences, Vertex Pharmaceuticals, and private donors.

#cysticfibrosis #CFwellness #Mindfullness #SelfCare #SelfCompassion #ReduceAnxiety #CFcommunity #65Roses #BreatheEasy #AdultsWithCF #CFcaregiver #CFsibling #ZoomIntoNow #CFRI

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FAT-FREE MASS LINKED TO LIVER FUNCTION IN TEENS WITH CF

A study in the U.K. shows that fat-free mass - the lean mass in muscles, organs, bones, ligaments and tendons - in adolescents with CF was significantly lower in those with CF-related liver disease.

Results also show that physical activity increases fat-free mass. Fat-free mass was assessed using bioelectrical impedance analysis.

CF mortality has been shown to be more strongly linked to low fat-free mass rather than a low BMI.

#cysticfibrosis #liverfunction #CFliver #CFresearch #TeensWithCF #CFteen #AdultsWithCF #BMI #LeanMass #CFcommunity #CureCF #65Roses

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RSV CASES ON THE RISE

Previously known as an infection of young children, RSV (Respiratory Syncytial Virus) cases are on the rise and impacting adults, particularly adults with chronic lung disease.

The CDC has information about RSV, including symptoms, and complications to watch for.

#cysticfibrosis #childwithCF #AdultsWithCF #COPD #LungTransplant #LungDisease #RSV #infectiousdisease #respiratoryvirus #pulmonology #criticalcaremedicine