Hi! I uhm have not yet been diagnosed but I’m pretty confident that bpd is the answer to it all as shitty as that is. I’m almost more afraid for it to not be bpd cause nothing has ever made this much sense. But I’m really scared. And you’re in no way obligated to read this or respond but I don’t know. Just, do you have any advice for someone just now realizing and getting diagnosed with bpd?
hello, anon! first, i apologize ahead of time for how long this will be, but there's a lot i want to say. obligatory disclaimer that i am not a professional nor am i a qualified doctor to diagnose anyone, and these thoughts are mine and mine alone and do not constitute a professional's medical opinion/advice. all i can do here is speak my truth and explain my experiences with BPD in hopes that you and maybe others find it helpful.
second, at least with BPD, if you think you have it (i.e. you know you fit 5 or more of the 9 current diagnostic criteria), while of course obtaining a professional diagnosis is great, in this case, it's my personal belief that if you think you have BPD, there's a large chance you do have it. of course there will always be outliers, but for most people, pretending to have BPD or forcing a diagnosis just doesn't make sense. BPD is not something that makes people quirky and it makes life more difficult, not just from a personal standpoint as the person who has it, but the resulting reaction from friends, family, and even strangers you don't know and never will who have something to say on the internet. i don't know many people who'd lie about that and be okay with the negative stigma that persists around those diagnosed with BPD.
most (if not all) people with BPD don't want to have it, but understand they fit the criteria. with certain other mental illnesses and ailments, getting a professional to diagnose them is of course better than self-diagnosing, but i had self-diagnosed with BPD for years before i ever ended up in a psychiatric ward because i 5150'd myself and got professionally diagnosed with BPD. i had quite a strong hunch i had BPD years before a professional came to the same conclusion - but not in a "oh my god yay i'm so glad i have this horribly debilitating illness, woo!" more in a "holy fuck this all makes so much sense, and i wish it didn't, but i know myself, and i know that this is what i have". and getting the professional diagnosis was great in the sense of getting that final confirmation, but even without it, i'd have still considered myself as someone struggling with BPD.
it's okay to be scared. i think i'd be scared of you if you weren't scared - i was downright terrified when i figured out that what i'd been feeling, dealing with, doing, could be attributed to BPD. i hated it, wished it was something else, but the more i read, the more i watched, the more i took notes, the more i realized that BPD was the answer to a question i wish i didn't have to ask in the first place.
before i was diagnosed, i took notes as if i was in a class about BPD. i wrote down the criteria for a diagnosis, and put a check next to every one i fit into with specific notes of how and why i felt i checked that category. chronic feelings of emptiness? check. emotional instability in reaction to day-to-day events? check. frantic efforts to avoid real or imagined abandonment? check. unstable self-image/sense of self? double and triple check. impulsive and damaging behavior in regards to spending/sex/substance use/reckless driving/binge eating? i did all of those things, where only 2 were required to hit this bullet point. quadruple check. anger? checkity check check. unstable interpersonal relationships? fucking check. suicidal behavior/threats? check. paranoid ideation/dissociative symptoms? check. i hit all 9 of these and it "only" requires 5 to hit the diagnosis. so for me, i knew i had it because like you, nothing else made this much sense.
and you know what? i fucking hated it. i got angry at myself for being so fucking broken that my personality had apparently shattered somewhere in early childhood due to my trauma and left me with a gaping, angry hole that i had constantly tried to fill with something, anything. i was beyond angry, i was seething with rage. why did it have to be fucking me? why? i still grapple with "why me?" on the daily with my BPD. i didn't want BPD to be what made sense, but it did. and while i am still incredibly fucking angry with my diagnosis, i've also reached a level of resignation about it. almost a sense of radical acceptance.
my advice is gonna sound fucking stupid because i know how hard much of it is to do and a lot of it takes serious introspection, patience, and kindness (to yourself). my advice would be to truly try to practice self-compassion, self-love - when what you want to do is beat yourself up internally over anything - having BPD in the first place (hell, even thinking you have BPD in the first place), or something you did/said in reactionary anger/rage/sadness/impulsiveness, something you didn't do - anytime you want to emotionally flay yourself over this, the best advice i can give you is to practice the skill of forgiving yourself. of giving yourself compassion to learn and grow as a human who is struggling with something very difficult to live with.
and i'm going to be upfront with you - most times, you will fail. you will not give yourself the compassion, love, and kindness you truly deserve. it's hard to break the cycle of self-rage, hard to convince yourself that you're worth recovery, worth getting better, worth learning to live with BPD and all it entails. but there WILL be times where you catch yourself in moments of compassion and acceptance. they might be few and far between, and they might not feel like much at first, but with time and practice, you will notice moments that you are less critical of yourself and your perceived failures relating to BPD.
for instance - i've been in DBT for a few months now. some of it really doesn't help me specifically (some "action steps" just don't work), but there's a few things that have been pivotal to my growth and have helped. one of those being the not-so-simple act of radical acceptance. of forgiveness. of understanding that you are not the worst person to ever walk the face of this earth, no matter how much your brain will try and try and try to convince you that you are. i have caught a few very very very SMALL moments where i've internally said to myself "well, it's okay that i failed there" or "alright, so i didn't do XYZ, i'll move on and do better next time" instead of beating myself up emotionally/internally over it. and the first time i noticed that happened, a tiny light bulb went off in my head. it was weeks and weeks into my DBT, where i felt i wasn't seeing any changes in myself. but that one, tiny instance where i showed myself compassion? it gave me a faint spark of hope that maybe BPD isn't the death sentence i so often feel it is. and i still do, in a lot of ways, and i'm working to try to manage and cope better, but it's not smooth sailing and more often than not, i am being mean to myself, or unforgiving. but my advice is to try to be aware of those moments, whenever they may come, where you can sense yourself forgiving yourself or being nicer to yourself than you otherwise might have been.
i'm not gonna bullshit you and act like learning to live with BPD is a walk in the park, or that somehow after DBT (should you choose to ever go that route) will result in you being "cured" or "fixed" - at least in terms of DBT, it's not a cure so much as it is trying to instill new habits and coping skills that you will strengthen by repeated use and practice. (and remember, practicing a skill still counts even if you fail to correctly use that skill. practice does not mean you always do things right/correct, it simply means you tried.)
again, it's okay to be scared. please allow yourself to feel that emotion. but leave room for that fear to dissipate at times, leave room to challenge that fear on occasion.
most of all, allow yourself to be. however you feel isn't bad. emotions are messengers, so next time you're angry, ask yourself: what is my anger trying to tell me in this moment? if you're sad, ask yourself: what is my sadness trying to convey? with repeated practice, perhaps you can identify triggers for certain emotions.
practice observing how you're feeling physically in your body, and remember that emotions are not facts. and remember that emotions will come and go, no matter how much your brain will convince you they won't.
that's all i've got for you now, but to you and anyone else who made it this far down - my inbox is always, always open, for anyone and anything. you don't have to be alone. we can be alone together, and i'm just a message away.
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I’ve been struggling for literally years and your posts are like directly from my brain 😭 you explain it so well
i appreciate this, thank you!! it can feel a bit less lonely sometimes to read someone else's thoughts/experiences and feel like They Just Get It, yk? and while i do hate that you relate in the sense of "i fucking know what you're going through and it's horrible", i do appreciate it in the same sense, it actually makes me feel a bit less lonely (and im pretty prone to loneliness especially relating to BPD). so thank you for reaching out and i'm sending u lots of virtual hugs from my end of the world <3
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when you’re so perceptive about the way others interact with you, it makes you hyper focus on every element of yourself in relation to them. whether you were too loud or too angry or too rude or too attentive to them or too *anything*, having borderline personality disorder means you are constantly paying too much attention to how others speak with you, how their body language presents itself, and even in the absence of those things, your brain will come up with a storyline anyway. i don’t have to see someone physically to imagine them rolling their eyes in disgust when they see my name light up their screen, or picture their pity and imagine themselves wishing they had the guts to just unfollow me. i don’t have to be in the same room as my friend to think they’re just working up the courage to tell me to fuck all the way off. i don’t have to see any of it to come up with imaginary scenarios.
having BPD means being on high alert, constantly, with everything and everyone, and it's perpetually exhausting. i'm sure many others can relate, but i wish i had the ability to just stop caring so deeply about so many things, but i can't, and it's almost like the opposite happens when i try to care less. i end up caring more. and it's just beyond draining, beyond tiring.
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