phleb0tomist

[phleb0tomist]

#rb #bandages #dressings

[phleb0tomist]

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#blood #transfusion #vials #blood vials #tubing #medical #medcore #hospital #hospitalcore #op #2024

[phleb0tomist]

yep, i’m still ME-posting!

so another young woman with severe ME is being denied basic sensory accommodations in an NHS hospital. carla’s parents have been advocating tirelessly for her and even taking turns physically shielding her from the unnecessary light that is causing seizures, pain, and loss of consciousness. if carla’s symptoms were unexplained then maybe i would understand why the hospital keeps trying to expose her to lights, but she’s literally diagnosed with very severe ME, where the body cannot adjust to sensory input, so forgive me for finding it evil and pointless to do the thing that makes her illness worse. this is the norm for how hospitals treat people with ME and it’s inescapable if you want to receive any medical care at all like the feeding tube that carla needs

link to article and news video

#ok to reblog #highly triggering video #ive been through the same thing at nhs hospitals i thought the pain was going to kill me. my mom shielded me from the light too #the staff forced the curtains open when i was at hospital and refused to switch fluorescents off #txt #severe myalgic encephalomyelitis #myalgic encephalomyelitis #medical #medical mistreatment #medical misogyny #trigger warning #Youtube #negative

[phleb0tomist]

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#signage #hospital #hospitalcore #medcore #medical. #op #2024

[phleb0tomist]

hydrocodone-acetaminophen and amoxicillin

#rb #pills #pink

[phleb0tomist]

i just wanted to thank you for running this blog and speaking about your experiences with ME so openly. i followed you initially because i found the medical aesthetic interesting and comforting, but what i've learned about ME and chronic illness in general from following you has been a hundred times as valuable, and i'm really grateful. you've opened my eyes a lot! thank you so much!!

hi i can’t tell you how much that means to me :’’) thank you for sending this lovely ask, i’m glad to be sharing the experience of chronic illness and particularly ME. it’s close to my heart especially given i never saw anyone talking about ME when i was growing up with it. we’re all learning about each other and understand better every day <3

#answered #ct

[phleb0tomist]

Hello i havent visited your account in a long while, but i remembered it and came to look back. It helped me alot when i was in the hospital/recovering from surgeries 4 years ago and i just wanted to say tyvm and i hope you are always doing well.

hi again! thank you for that, i’m happy to hear it helped you while you were going through a lot! very best wishes to you now <33

#it’s sweet that you visited my blog again :) #answered #Ct

[phleb0tomist]

#rb #syringes #sharps #tools #surgical

[phleb0tomist]

abandoned hospital // march 2022

#teddy bear :) #beds #curtains #dark #rb

[phleb0tomist]

if you want to help, there’s a petition for millie which is still current as of April 2024. to me, nothing is a clearer demonstration of the nhs’s stubbornness than the fact that ME experts say millie must be fed 1) lying down, and 2) in a quiet/dark place, and the nhs is still refusing. like those are very simple things

the recent surge of articles on severe ME is shattering my heart. we’re looking at a live, ongoing portfolio of the NHS’s failure to protect young ME patients, the same failures that cast a shadow over both my childhood and my current life, and it’s so wild that things aren’t changing. there’s no repair, no apology for the highly preventable suffering or the deaths, which are mostly young women.

the improper care of ME patients isn’t because of a lack of funding, it’s because of ignorance & stubbornness. the bare minimum of appropriate care to prevent a severe ME patient from getting worse is to allow them to be somewhere dark, quiet, lying down, hydrated & fed, and somehow the NHS can’t even provide that. my main shred of hope is that this is finally being reported and i wonder if that will be the catalyst for a little bit of repair. i’m desperate to believe it will be

#it all comes back to an unwillingness to see ME as a real illness #and the invalidation of young women with chronic illness #txt #medical mistreatment #negative

[phleb0tomist]

the recent surge of articles on severe ME is shattering my heart. we’re looking at a live, ongoing portfolio of the NHS’s failure to protect young ME patients, the same failures that cast a shadow over both my childhood and my current life, and it’s so wild that things aren’t changing. there’s no repair, no apology for the highly preventable suffering or the deaths, which are mostly young women.

the improper care of ME patients isn’t because of a lack of funding, it’s because of ignorance & stubbornness. the bare minimum of appropriate care to prevent a severe ME patient from getting worse is to allow them to be somewhere dark, quiet, lying down, hydrated & fed, and somehow the NHS can’t even provide that. my main shred of hope is that this is finally being reported and i wonder if that will be the catalyst for a little bit of repair. i’m desperate to believe it will be

#feel free to reblog. it means a lot that ppl are becoming aware #txt #negative #medical trauma #medical. #severe myalgic encephalomyelitis #myalgic encephalomyelitis #chronic illness #starvation tw #death mention #let me know if more trigger tags are required

[phleb0tomist]

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#gurneys #backboard #unit #emergency #hospital #hospitalcore #medcore #medical. #op #2024

[phleb0tomist]

#operating room #lights #rb

[phleb0tomist]

there’s a backlog of lovely asks in my inbox and hopefully very soon they will get answered by the ask-answering fairy!! aka me

#wish my luck with my executive dysfunction some of these asks are months old 🥲 #i’m drafting replies hopefully to post later this week #txt

[phleb0tomist]

I'm so sorry that you had your day wasted ☹️ Healthcare professionals tend to waste a lot of your time

thank you, it’s honestly my standard expectation at this point :s hopefully next appointment will be better!

#answered

[phleb0tomist]

over an hour late and we just got a call from the social worker saying “i was out and i forgot to tell you that i can’t make the appointment”

social worker is 45 mins late for my social care assessment. hate to say it but that isn’t very social of them

#bestie i blocked out my entire day for this. I intentionally didn’t do a lot of stuff today so i would have energy for the appointment #yes im being a whiner about this because it is whine worthy ‼️ this was my entire day #txt

[phleb0tomist]

social worker is 45 mins late for my social care assessment. hate to say it but that isn’t very social of them

#my family: spend 3 hours preparing for an important appointment #gov employee: doesn’t show up and doesn’t contact us to let us know what’s going on #txt