#& i get that a lot of stuff got pushed forward/backward bc of covid so the schedule is wack but still

[lokigodofaces]

*sigh* marvel fatigue

#havent seen moon knight yet & i cant make myself care #havent seen the trailers for miss marvel or thor 4 #& i've had fun watching some of the most recent marvel stuff #wandavision was fun nwh was fun bw was fun tfatws was fun #all with their flaws but they were fun #the only stuff i straight up didnt care for was eternals & loki & what if i have complicated relationships with #but theres just so much marvel all at once #& i have to put in more effort to watch it all bc its weekly on d+ #(forgot about hawkeye that was fun too) #theres just so much of it all at once & its hard to not get a bit tired of it #& i get that a lot of stuff got pushed forward/backward bc of covid so the schedule is wack but still #it's hard to care now #i'll catch up eventually but it's a lot #maybe i should watch moon knight though my life has sucked & i've heard good things maybe it'll be a nice distraction #mcu critical

[myfshdlife]

9.14.2020

I know, haven't posted much of an update on my FSHD but since this covid pandemic, there's really not a whole lot going on other than getting a new wheelchair and now starting to catch up on appointments before the cold weather sets in. I plan on starting up my physical therapy again soon but not until it's chilly out because that's when my FSHD starts bothering me.

I had my first pulmonologist checkup appointment today but as per their requirement, I had to get a covid test done since it's a respiratory illness.

Covid tested negative. Pulmonologist went good, just gotta do a chest CT and a sleep study. She wanted a x-ray but wants a better image due to the FSHD and the x-ray may not show everything. The only thing I'm not looking forward to is that contrast stuff to drink so I'm guessing practice drinking fast lol.

No asthma BUT bc of the curve in my hyperlordosis, it is beginning to constrict my breathing space. Caught it in time and wolf and I agreed wheelchair more often to hopefully slow down the hyperlordosis progression rate.

So... Check out my new wheels! I plan to take off the arm rests but my husband wants me to keep them on. I feel really closed in and inhibited from moving my upper body freely. I'll give it a week's worth of rolling around to see if I can get used to them, but I'm pretty sure they're coming off regardless. I don't even use the arm rest in the car. The problem is, the arm rests unlocks in the front and hinge backwards so to fully remove them, it's gotta get unscrewed off. I plan to have a backpack on the back of the chair but if the arm rests are hinged back, they would block my bag access. Same if the arm rests are down since I can't lift high at all so I wouldn't be able to lift my bag over the arm rests. Oh well, if I'm that determined, I'll just go to the wheelchair place and have them do it for me.

I've been looking into accessories for the chair and holy crap, they are not cheap. No wonder why wheelchair users resort to the bicycles for them. A wheelchair cup holder is like 50-60 bucks and they're not a permanent fixture, they clamp on. A bicycle cup holder is less than 20 bucks and do the same thing. The only accessory I'm probably going to get is a set of push rims cover for my hands if I can't do the gloves.

I am looking forward to the shoes part tho. Already got me a pair of flat sandals for the first time in like, 17 years.

Check out the new wheels!

Also pictured are screenshots of accessories I'm looking into to find cheaper alternatives.