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#Demystifying Leprosy: What You Need to Know
jpshealth · 8 months
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Demystifying Leprosy: What You Need to Know
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Introduction
Leprosy, also known as Hansen's disease, is a condition that has been shrouded in mystery and misconceptions for centuries. But fear not! In this article, we're here to demystify leprosy, unravel its mysteries, and provide you with the essential information you need to know about this ancient disease.
Understanding Leprosy
What Is Leprosy, Anyway?
Leprosy, caused by the bacterium Mycobacterium leprae, primarily affects the skin and nerves. It's not highly contagious, and its transmission usually requires prolonged close contact with an infected person.
The Historical Significance
Leprosy's history is as old as civilization itself. Throughout history, leprosy has been misunderstood, leading to social isolation and stigmatization of those affected. Fortunately, modern medicine has made great strides in understanding and treating the disease.
Symptoms and Diagnosis
The Warning Signs
So, how do you recognize leprosy? The disease manifests with various symptoms, primarily affecting the skin. Look out for skin lesions, nodules, and loss of sensation in affected areas.
Early Diagnosis Is Key
Early diagnosis is crucial for effective treatment. If you suspect you have leprosy or notice any symptoms, seek medical advice immediately. Leprosy can be diagnosed through a physical examination and laboratory tests.
Treatment and Prevention
Advanced Treatments for Leprosy
The good news is that leprosy is curable with antibiotics, primarily a combination called multidrug therapy (MDT). Treatment duration can be several months, but it's highly effective.
Prevention Is Better Than Cure
Preventing leprosy involves practicing good hygiene and avoiding prolonged close contact with untreated individuals. Regular screenings in high-risk areas can also help identify and treat cases early.
Debunking Myths
Myth #1: Leprosy Is Highly Contagious
Contrary to popular belief, leprosy is not highly contagious. It requires extended, close contact for transmission.
Myth #2: Leprosy Is a Punishment
Historically, people believed leprosy was a divine punishment. In reality, it's a bacterial infection that anyone can contract.
Myth #3: Leprosy Causes Body Parts to Fall Off
This is perhaps the most persistent myth. Leprosy causes nerve damage, which can lead to injuries, but it doesn't make body parts fall off.
Real Stories of Resilience
Leprosy Survivor Stories
While leprosy has a dark history of stigma and discrimination, many individuals have shown remarkable resilience in the face of the disease. Their stories are inspiring and remind us that a diagnosis of leprosy doesn't define a person.
Lending a Helping Hand
Ways to Support Leprosy Research
If you'd like to make a difference in the fight against leprosy, consider donating to organizations dedicated to research, treatment, and support for affected individuals.
Conclusion: Shedding Light on Leprosy
Leprosy, once shrouded in fear and ignorance, is now better understood and highly treatable. By debunking myths, sharing survivor stories, and spreading knowledge, we can reduce stigma and discrimination surrounding this ancient disease. With compassion and awareness, we can make a positive impact in the lives of those affected by leprosy.
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tobinifesi · 4 years
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The Word I Needed To Know Right Now
How Tom Hanks called my attention to the word that emphasizes the essence of these crazy times
Words are capable of demystifying and filling blank spaces. 
If you walk into an empty hollow hallway in a forgotten and mysterious building in the middle of nowhere, your eyes will capture the nothingness that surrounds you and your brain will calculate the probability of something - someone or some creature - springing out from one of the hollow ends of the hallway. However, the moment you make a sound or utter a word, an echo fills the hallway, detaches you from your anxiety and reminds you that you are, in fact, safe; thus weakening the mystery of the empty space. 
Sometimes, our minds are filled with such empty spaces. When this happens, there are gaps in our thought, comprehension and interpretation of our reality. Things don’t add up. The details don’t make sense. It becomes increasingly difficult to control the narrative. We are thrust into a world of uncertainty and unknowns. So much might be said but none of it resonates with you. This goes on until you stumble on a word - somewhere and somehow - that bridges the gap and fills the blank spaces. 
Amidst the realities of the world today, I recently stumbled on a word. The word doesn’t necessarily solve the issue at hand but it gives me some much-needed perspective on the state of things as they are and have always been. Most importantly, it sets me on a path towards having a deeper understanding of the nature of our societies during pandemics like the COVID-19. 
Before January 2020, I had never heard the word ‘coronavirus’ despite my academic background in the sciences. I may be wrong but I do not believe that it has ever been a popular term amongst laymen and biology undergraduates. Keep in mind that the word ‘coronavirus’ isn’t the word I’m referring to in my last paragraph (or in this article’s title and subtitle) but I found it interesting when I heard it. It was a novel word to me and so, as I lay in my bed on the evening of January 23, I googled the word ‘coronavirus’. 
The first two Wikipedia pages I read agreed that the coronavirus wasn’t exactly a virus. It was actually “a group of related viruses that cause diseases in mammals and birds” and the novel coronavirus (now known as COVID-19) just happens to fall into that group. Suddenly, the news article I had been reading earlier that day about the Chinese government imposing a lockdown on Wuhan, the capital city of the Hubei province, began to make sense. The news made sense but the idea of locking down an entire city didn’t make much sense. I marvelled at the thought of a lockdown. At the time, I could barely imagine what that would look or feel like. 
It seemed crazy to me. 
I needed some clarity on the current situation meant for us in the long run. I wanted to know what the world might look like after almost half of its population are either advised or forced to stay within closed doors and away from each other. 
As of March 23, I had been on a province-wide lockdown in British Columbia for 12 consecutive days. By this time, the World Health Organization had labelled the novel coronavirus a pandemic. Even after 12 days of staying at home, I was still a little bit confused about what all of this meant - and how it could affect our societies. There was no news of a possible end date for the stay-at-home mandate. Later that week, an article written by The Atlantic’s Joe Pinsker suggested four possible timelines for the pandemic. His best-case scenario was one to two months and his worst-case scenario was 18 months. Neither of the two timelines made sense to me. I needed some clarity on the current situation meant for us in the long run. I wanted to know what the world might look like after almost half of its population are either advised or forced to stay within closed doors and away from each other. 
The 13th chapter of the biblical book of Leviticus describes the mosaic law regarding skin diseases - specifically, leprosy. The law is quite straightforward: once an individual has been diagnosed with a skin disease, “the priest is to isolate the affected person for seven days.” (Leviticus 13:4 NIV). With the proclamation of the mosaic law, isolation became the ideal response for dealing with skin (and many other forms of) diseases in those times. By the time Jesus Christ arrived on earth, isolation was still the norm. In Luke’s version of the gospel, as Jesus “was going into a village, ten men who had leprosy met him. They stood at a distance and called out in a loud voice, “Jesus, Master, have pity on us!” (Luke 17:12-13 NIV). Notice the verse suggests the lepers stood at a distance. They did so because they knew they ought not to come in close contact with others. Hence, isolation. 
By the 14th century, isolation was still a thing. At the time, the bubonic plague was ravaging cities and communities across Europe and Asia. Measures had to be taken to curb the continued spread of the infection. One notable measure was taken by the port authorities at Ragusa (now known as Dubrovnik in Croatia.) The officials established a trentino that ordered the isolation of ships arriving at the port for a 30 day period. Within the next century, other European communities - like Venice, Genoa and Marseilles - began to introduce similar laws. During this time, the 30 day period was increased to 40 days. In other words, the trentino became a quarantino. 
Quarantino (or Quarantine) is derived from the Italian word for 40, quaranta. Many historians have suggested that the introduction of the 40 day isolation period was inspired by the biblical or Christian references to and significance of a 40-day period. The observance of Lent, the great flood in the days of Noah, Moses’ stay on Mount Sinai, Jesus Christ’s fasting period in the Judean deserts and the period between his resurrection and ascension have one thing in common - they all happened in 40 days. Just as many historians believe there is a correlation here, many others dispute it. 
Nevertheless, the term ‘quarantine’ was born from the terms ‘quarantino’ and ‘quaranta’ in the 14th century. Since then, many quarantine laws have been passed in several countries around the world and the outbreak of any major diseases always calls for such laws to be invoked. Quarantine laws were invoked in the 18th century when the yellow fever epidemic hit Philadelphia, in the 19th century when cholera epidemic arrived in Canada’s Quebec City, in 2003 during the SARS pandemic as 30,000 Torontonians were quarantined (although in Canada, the law was actually introduced in 2005, its stipulations were observed in 2003), in 2014 when the Liberian government ordered the isolation of a local neighbourhood called West Point during the Ebola outbreak, on January 23, 2020, in Wuhan, and on March 25, 2020, when Canada’s Minister of Health, Patty Hadju, ordered all travellers entering the country to be isolated for 14 days. 
Despite being such a significant term over the last seven centuries, the word ‘quarantine’ and its fascinating history don’t shed much light on the essence of the times we are in. One thing is for sure: history is being written as we speak. Generations will speak of the plague that caused at least half of the world to stay indoors. The stories that are being lived out right now will inspire the creation of books, artworks, movies, documentaries and music that will ensure these moments aren’t easily forgotten. Yet, you can’t help but wonder what the world will look like then. 
Like most people, when I heard about the coronavirus in January, I didn’t think much of it. I knew it was a tragedy in Wuhan but I didn’t think it would become a global tragedy - one that would have large-scale disastrous impacts on global healthcare systems, economies, infrastructures and laws. On March 1, I was on a phone call with my friend - Solace - and we agreed that a pandemic was coming. 10 days later, Dr. Tedros Adhanom Ghebreyesus, the Director-General of the World Health Organization, charactered the COVID-19 outbreak as a pandemic. Later that day, an NBA player - Rudy Gobert - tested positive for the disease and as a response, the NBA 2019-2020 season was suspended. The next day, Tom Hanks, his wife and Sophie Trudeau (the wife of Canadian Prime Minister, Justin Trudeau) all tested positive for the disease. 
That day - March 12, 2020 - was the first day I heard the term ‘flatten the curve’. I heard it while listening to a live broadcast of British Columbia’s Provincial Health Officer, Dr. Bonnie Henry’s daily coronavirus update. She had urged British Columbians to avoid large gatherings so we could ‘flatten the curve.’ Another novel term that didn’t make much sense to me and although I now understand the message behind the term, it does little to help me understand the depth or importance of the situation we are in. It wasn’t until four days later that I found the word I had been looking for. 
Four days after announcing he had tested positive for COVID-19, Tom Hanks shared an Instagram post. In the post, the Cast Away actor attempted to encourage his 8.7 million followers by sharing a picture of some toasted bread slices covered with spreads of vegemite, accompanied by a caption that read:
“Thanks to the Helpers. Let’s take care of ourselves and each other. Hanx”
There it was. The word I needed to know. 
In Hank’s caption was one word that put the puzzle together for me. The caption references a famous quote from one of the longest-running children’s television shows, Mister Rogers' Neighborhood. On the show, the host - Fred Rogers - is quoted as saying,
“When I was a boy and I would see scary things in the news, my mother would say to me, "Look for the helpers. You will always find people who are helping.”
Decades later, this quote - specifically the line, “Look for the helpers.” - continues to be repeated and referenced during times of discomfort or shared crises.
Tom Hanks must have been acknowledging the helpers when he gave a nod to Rogers’ quote in his caption. By including the word ‘helpers’ in that caption, he was calling attention to the individuals around the world who have been and continue to risk their lives or provide essential services or assist the elderly or make key and life-saving decisions or share messages of hope and comfort or obey the law and stay at home to help curb the rapid spread of the diseases he had just tested positive for. 
The word ‘helpers’ is the word I was looking for. 
I am a Christian. I believe my help from God and the ultimate helper - the Holy Spirit - lives within me and gives me more peace than I can actually fathom. According to my belief, the Spirit of God in me counsels and comforts me - and for that, I am grateful. However, just as I believe there is a helper within me, I believe that there are even more helpers around me. Some are within my reach and others are far from it but, as Rogers said, I must look for them and acknowledge them. 
As you read this, there are healthcare professionals around the world who are risking their lives to care for and treat patients who have been infected with COVID-19. The majority of these professionals are working without adequate resources, information, time or physical and mental energy. They are being stressed and stretched by the influx of patients storming into their workplaces. Many retired professionals have come out of retirement and the elderly amongst them - who are highly susceptible to being infected - are knowingly putting themselves in danger. These are the helpers. 
There are community and world leaders who have been forced to make key decisions despite the fact that they can’t guarantee the outcomes. Presidents, prime ministers, premiers, governors, government officials, religious leaders, activists and heads of organizations and families who, despite being personally affected by the pandemic, must still lead and speak to and for their communities. They must listen carefully to experts, make the right calls, invoke the necessary laws, enforce orders, inspire hope in a seemingly hopeless situation, mourn the loss and sufferings of their community members and continue to do this regardless of how long the pandemic lasts. These are the helpers. 
There are employers and employees who should be at home. If they had their way, they would be with their families indoors all day and far away from scenarios that could get them infected with these diseases. However, our communities need their services. As such, they risk their lives by continuing to work at the grocery stores, deliver food and essential items to our homes, protect our communities by maintaining law and order, work in call centres for healthcare and emergency services, be first responders to emergency situations, work as caregivers for children, the elderly and individuals with disabilities, serve in organizations that support vulnerable populations, immigrants and refugees, manufacture goods and provide services necessary to keep our infrastructure and industries in good condition, and document and share information through media outlets. These (and many other essential occupations not referenced here) are the helpers. 
Yet, there you are. 
You are baffled by this crisis. It has affected your daily routine, income, wellbeing, peace of mind, plans for the future, family and fellow community members. You are not sure what the future holds for your family, career or immediate plans or what to do while you’re home or how you will fend for yourself after being laid off or what will happen if you get infected. Despite this, you listen to healthcare experts, obey the laws invoked by your government, stay at home as much as possible, practice physical distancing if you must go out, encourage people in your communities by sharing messages of hope and refocusing their attention on information that edifies them, work or live in uncomfortable conditions for long periods of time, donate to or volunteer with organizations supporting vulnerable populations, check in on family members, friends, and those in isolation, pray and virtually support those who are anxious, ill, mourning the loss of loved ones or in need, and maintain your sanity in these crazy times. You are the helper. 
No words can describe how much the world is hurting right now but I realize that I don’t need such adjectives. I need a noun that defines who we are, have always been and will be after the pandemic subsides. We are helpers and this is a call to the helpers. Humanity can’t survive without human beings and human beings can’t survive without help. The good news is that, in many ways, we are the help we need. Each and every human being is the helper we need right now. Humanity needs us to do our part. More than ever before, it needs us to unite and stay united. This is the essence of the times we are in - to remind us that we need each other. 
If you walk into an empty hollow hallway in a forgotten and mysterious building in the middle of nowhere, your eyes will capture the nothingness that surrounds you and your brain will calculate the probability of something - someone or some creature - springing out from one of the hollow ends of the hallway. However, the moment you make a sound or utter a word, an echo fills the hallway, detaches you from your anxiety and reminds you that you are, in fact, safe; thus weakening the mystery of the empty space. 
By acknowledging the word that defines us, we can weaken and demystify the mystery of this pandemic. The echoes of our daily, and sometimes seemingly small, decisions and actions can fill the void and remind us that we are not alone. We are safe because we are helpers and are surrounded by helpers.
I believe that my help comes from God and a helper lives in me. Yet, it is equally important for me to acknowledge and call on the helper that I am and the helpers that are around me. 
Helpers, help!
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