#sorry this is all kinda jumbled and longn

[thedisablednaturalist]

so sorry ppl that cant read are sending you messages about those posts but i get it completely. rheumatologists and osteos and NP's want to hear more abt my decade old severe anxiety and depression and adhd and ~more~ diagnoses than chronic debilitating pain and just slap vitamin D pills on it and throw up their hands because "test results are weird idk what to tell u even tho i said it was this two weeks ago". abled friends and coworkers can have conversations about their mental health struggles but its looked at self pityingly if i bring up how my life is irreparably damaged by my physical disability because disabled people have to be strong and resilient to earn a place in their field and if you cant cut it just get on those snazzy disability benefits and let it get worse. i think a lot of abled ND people just cant accept that they do not experience the worst of life's struggles and that solidarity doesnt make us the same

I try to be understanding and answer peoples questions politely when I have the spoons and if they are genuinely confused bc I used to be ignorant as well about a lot of aspects of physical disability but it gets so tiring. Nowadays there are a ton of resources from physically disabled people talking about their experiences its actually quite easy to educate yourself on our struggles. Like sorry I get a little frustrated and rude when I'm constantly bombarded by ableism and rude ass people.

Also yeah that's exactly what I've been trying to say. Doctors can usually relate to people having mental health struggles and even some aspects of neurodivergencey. But they cannot understand someone looking completely fine and not being able to detect anything but complaining of horrible pain and constant tiredness outside of the lense of mental health. And if your mental health is managed or only suffering because you are in constant pain, they say you're faking, or OBVIOUSLY you just need to lose weight, or drink more water, or exercise more than any able bodied person does. People take one look at me and think the solution is obvious and I'm just too stupid or lazy to figure it out.

And me saying this isn't saying that mental illness is super easy to deal with. Its fucking awful as well and many doctors say this shit to neurodivergents as well. And this is especially true for poc and people with psychosis or bipolar disorder or schizophrenia.

I went to my first therapist in my sophomore year of highschool and got medicated that same year. I started investigating my health issues in college freshman year and have JUST gotten actual results from treatment. SIX fucking years later. SIX fucking years of CONSTANT PAIN. And I have great insurance and a great dad who just wants me to feel better (my mom is a different story). My parents are sort of upper middle class and I live in a very privileged area. Of course that means I can't afford to move out even with an ok salary, but at least there are plenty of doctors around to choose from and plenty of appointments available. I can't imagine how long it takes someone without those advantages. And even still I had to fight to be listened to, I had to listen to so much bs from doctors and had to go from doctor to doctor begging for someone to listen.

Like they really don't get how unbelievably hard it is to get care for physical disabilities, visible and invisible. If you're visibly disabled you get treated like a child and a monster and you're isolated from society. If you're invisibly disabled you get laughed at by doctors and ignored. If it's hard for you guys imagine that difficulty increased by 100%.

I try to be really visible when I'm working in a position I know has my back. I really try to educate young people and children on what my disability looks like and I hope disabled kids and kids who eventually become disabled can see me and know that their lives are valuable and they are valuable. And it is possible to find joy in your life and reasons to keep living. And employers shouldn't be able to throw away our resumes and pay us less just cause we may need a little extra help. I know what everyone thinks when they see me in my wheelchair and using my walking sticks and when I tell them I need to take a break as I'm running out of spoons. I know their first thought is what the hell am I doing here if I'm in so much pain? When people see me by myself in my wheelchair they think I must have gotten lost and separated from my abled handler. I love my job, I love what I do, and I want to be able to keep doing it. But I can't work as long as an abled person, I can't do it without accommodations. Hell abled people shouldn't be working as long as they do either. I wish to live a life where I'm free to do the work I love without killing myself and still be able to live a comfortable life. Every disabled person, working or not, deserves to live a comfortable life.

#chronic disability #chronic pain #physical disability #cripplepunk #spoonie #disability #working while disabled #sorry this is all kinda jumbled and longn #as you all know i write long posts #wrenfea.ask