#the best thing about longer uptime means more endurance - the longer i'm able to stay up the more my legs should begin to adapt

[cextra-loz]

Today I was able to stand for a new limit of 50 minutes when my physical symptoms are at their most minimal in a controlled environment. So we know 50 is the max now we're trying to reach 1 hour. I feel like I could've reached an hour with how I was feeling but the muscle endurance in my legs wouldn't have let me. I'm reaching a weird stage in my progress where its been so long since my body has had to support my weight for that long the blood pooling in my soles irritates and hurts like hell the days afterwards so now i'm rubbing the my feet like i've worked a hard day to prevent the inflammation from impeding my progress. I feel tho if I can reach that 1 hour limit I can reach longer times with practice. Its been years since i've stood for so long i'm really excited to keep practicing and hopefully keep improving. Last year around this time I was barely reaching 35 maybe 40 if I really really pushed- during my least symptomatic hours. Those extra 10 minutes might not mean much but since the beginning of my illness I never imagined i'd be able to make it to 30 let alone 50. I felt pretty good this session too which is the most important part, I feel like its the lack of muscular stamina that held me back rather than cardiac endurance. Anyway update is over, if I reach that 1 hour time it'll be a happy day I cannot tell how long it'll take me to reach that time but with some more practice I think a few weeks or months at least i'd imagine maybe even sooner. I'm so happy lets go! Dreams do come true at least 4 me ehehe!

#pots #dysautonomia #progress #the best thing about longer uptime means more endurance - the longer i'm able to stay up the more my legs should begin to adapt #if I can push the amount of time when i'm not as symptomatic maybe it'll help increase my endurance when i'm most symptomatic #when i'm at my most symptomatic I cannot stand for the life of me more than a minute #i will collapse #but increasing my minimal symptomatic time to higher numbers means I feel less physical pain and exhaustion when I am at my most #symptomatic which is honestly all i want #if I can withstand the exhaustion of when i'm most physically ill for more than a minute or two at a time then I can endure it #when i'm compeltely still and laying down which is rlly hard and it hurts like hell and i'm exhausted when it happens #theres nothing in this world like trying to catch your breath while your body is writhing in pain and youre trying not to pass out #i'm just glad on a good day and lots of monitoring i can manage a few hours without any of those #when it was happening once an hour for like hours at a time for months i was in literal hell #the scariest bit is i'm forgetting how it felt to be like normal-ish #like there were days where the most I worried about was like regular stuff like homework #now i'm worried about things like making sure i have a glass of water with me or else i'll die #which sounds absurd but its now my reality its strange how that just becomes real #ive been typing for so long but i don't feel fatigued it really shows how far ive gotten these last few years #last time i wrote this much on a tumblr text post about my illness i was trying to catch my breath the entire time #im kinda happy #ehehe!