#there might not be any truly ''happy endings'' in uty but this is the real bad end | Explore Tumblr Posts and Blogs

sini-sterility · 7 years

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Y’all finally get my backstory now.

@weaponizedhorse I FINISHED FINALLY

Alright motherfuckers, you asked for it; you're gonna fucking get it. You've finally unlocked Sini's tragic backstory.

Let's begin with the childhood depression due to intense emotion abuse and manipulation, causing me to try to kill myself, not once, but twice before the age of ten. However, it seems that my body liked the idea, because within two months of turning ten, my legs began to go numb, and I would experience random pain. I told the nurse at school; she didn't believe me. Stir this mixture of reckless negligence and bitchy old-lady nurse until two years have passed, and I am now completely paralyzed in constant literal agony 24/7, to the extent of not being able to sleep, stand, sit, lounge; you name it.

I wasn't nauseus, but the pain was so horrible that I would fake getting sick every day in order to stay home and not face the ridicule the least liked person in my entire school (I am honestly not exagerrating. I got into my school's spelling bee, and was the last 6th grader standing. They called your name, you stood up, waved to the crowd, and they cheered. They got to me, and I shit you not, less than 1/5th of the 6th grade class, none of the other students, and three teachers clapped, and that was as good as I got. Maybe I was annoying or something, I don't know. I was a very, very quiet kid, so I actually don't know what their deal was; there were much uglier people there than me, too) would get from acting like they can't feel their limbs or stand up, or be constantly hunched over in pain.

So I'd stay home with my dad and watch old cowboy shows, trying to ignore the pain. I remember how we treated it was Icy-Hot and a fuck-ton of Ibuprofen.

Eventually, my bullshit quack of a doctor finally clued in that, no, I was not just suffering from a particularly bad UTI. She actually fucking told us that I had a UTI. Because UTI's are reknown for causing pain so bad you literally can't think straight.

So, one day, a week after my 12th birthday (which was the saddest shit you've ever heard of; my mom made my favorite cake and my favorite food (Flan Cake and Chicken Curry), my Godmother was there with a bunch of books, I had a few really cool presents; my sister Shirley even got me a hair straightener at Goodwill, because I'd finally learned that thick curly hair with the mind of it's own (that mind being one of a psychopath) didn't stand a chance against hot iron. They sang happy birthday to me, and I remember that after they finished, I just put my head down on the table in cried. It was the single saddest moment of my life, aside from April (which is another can of worms all together, and very few people know about it).

Anyway, a few days after my mom took me to the doctor, and at this point I had given up on trying to present any semblence of an ability to walk or feel anything at all, so I was in a wheelchair. The doctor saw how much pain I was in (fucking finally), and that I truly felt no sensation anywhere, and immediately sent me to a Neurologist in Indy.

We got there an hour later, and the Neurologist took one look and ordered an emergency MRI – that turned out to be a very traumatizing experience, as the even more amplified pain (metal + back issues of the highest caliber + loud noises + bright flashing lights = Literal torture. To this day I can't go in MRI machines without being knocked out (But I secretly love it because I get to play a little game I like to call 'Resist'. It's basically the game they have you do where you count up to or down from 100, only you ask the Anesthesiologist to push the anesthetic in as slowly as possible, and start counting. When you start to feel it kicking in, you count as fast as possible. My record is 128 bitches <3).

They were only able to get 15 minutes of an MRI with me, before the panic and pain were too much for me and I started convulsing. After that, they checked me into the hospital overnight while they went over the results.

You know that shit's bad when the next day the ICU Oncologist comes in at 7 am the next morning to tell your mom that you need emergency surgery right away, but don't tell you why.

It turned out that I had stage 4 (better known as terminal) Neuroblastoma. There were three main problematic tumors; one that was slung over my left shoulder and attached to the upper left lobe of my lung (bigass motherfucker holy shit it was enormous. They had to cut out a piece of my lung to get ride of (most) it.), one the size of a softball pressing on my brain, just above the temple (They drilled my skull open, and scooped it off my scalp like a blob of strawberry preserves, which is what it looks like anyway btw. They were nice enough to honor a request I made, and take a picture of the tumor. BUT THEY DIDN'T FUCKING SEND IT TO ME, THEY SENT IT TO MY DAD VIA TEXT, AND WE ENDED UP LOSING THE DAMN THING >:O), and then the worst one; the mac daddy of Neuroblastoma tumors.

It was a long, thick, malignant tumor that had infused itself with my spine, and was subsequently cutting off my spinal cord – thus causing all of the pain and the paralysis and numbness. It gave me a hella sweet scar though, shit looks like a zipper along my spine!

After they removed what they could of the spinal tumor (which still to this day causes me a great deal of pain. I'm on 10 mgs of Oxycodine up to 6 times a day, and more often than not I need 7 pills in one day.), they told my parents that I had maybe two months to live. That they were going to send me home with them with a car full of all the medical supplies they could spare us, and that I was going to be very dead, very soon.

Needless to say, everyone was shocked when the third month rolled around and I was still alive – and learning how to walk again. It's taken me 6 years to be able to walk up and down stairs, and depending on the treatment or how long they keep me in the hospital, I occasionally still need my walker. (Sparkly red thing with little stickers all over it. I think we gave it to my grandma, but I'm not sure?) They upped my prognosis to 6 months and then it would be all over, but by then Obamacare went into effect, and that got the ball rolling for CHIPS, and that little thing that so many Americans hate because they “don't want to pay for a stranger's abortions!” (actual reason I was given once. I know that there are real reasons, but I still am okay with paying a little bit extra each month so that another kid who's like I was six years ago today, might have a chance to beat the odds in an overwhelming way. Again, that's just me, and I'm probably over simplifying the matter.), is most likely the main reason I'm still alive.

See, because I was accepted into two (or maybe three, I'm not sure?) forms of health insurance because of the Obamacare plan, I was able to begin treatments within almost a month of diagnosis. After four months passed, they began to fit and train me to use a wheelchair at home, as it was an impossibility that I would ever walk again (or use fine motor control for that matter).

Two months after that, just six months after being told I was already dead; six months of hellish PT and OT; six months of taking chemo and painkillers and throwing up blood – and I fucking walked out of that God forsaken hospital with my walker and my family.

That was six years ago. My body is still healing, and I've had plenty of physical and psychological horrors since ( ie. Kathleen aka 'The ex that raped me last year', my mother becoming even more abusive towards me, to the point of egging me on in cutting myself, and losing most of my cats because they were outdoor and we weren't around enough for most of them to want to stay, for starters. Fortunately, the one that did stay was my kitty, Alice. She moved into my current house with my dad and I after my dad won sole custody of me during their divorce (those two NEVER should have gotten married, they hate each other so fucking much.), and she's been a driving force in my will to live and fight ever since. The week she went missing was the most miserable week of my life.) the beginning, but I've got something I never had as a child now; a will to live. A reason to live. It's honestly the reason I still believe in God, as twisted as that sounds. I had actually been begging God to just kill me and get it over with in the weeks leading up to my diagnosis, and though it seems like being told you have terminal (which, just incase some of you guys don't know this, does not actually mean that you're totally deadsies; it means that there are no approved treatments or treatments that are proven to be effective, so you have the two options of going home or staying in the hospital while they make you as comfortable as possible as you wait to die a slow, horrible death of cancer; or you subject yourself to potentially deadly, painful, and horrible experimental trials to try and find a cure for yourself and others like you. Guess which one I picked! Ahh, the stories I could tell you... I'd be willing to write another one of these if anyone is interested in my hospital horror stories.) cancer would be your answer in the affirmatory. But for some reason, that's not how I took it. I took it as a sign that I'm supposed to live, at least for as long as I'm needed to do something to make the world better. It sounds crazy; superstitious; egomaniacal to say this, but when I think about everything I've been through, the multiple attempts at killing myself yet living through each time, and the overwhelming feeling I got when I was told I was as good as dead, but I honestly feel like I'm supposed to do something big, even mildly so. I don't know what, but that thought drives me every day to quite literally be that change that I want to see in the world.

I haven't made a suicide attempt ever since diagnosis; I rarely try or succeed to hurt myself anymore, and when I get in that state, my first move is to call up my sister Lilly, or talk to @typical-atheist-scumbag, or even talk to my dad nowadays, rather than just go ahead and grab a razor blade. I'm entirely about absolution and forgiveness as long as a person is genuine, and I try to be as passive and understanding – yet not quite neutral – to other people's beliefs as I possible can be. I stretch myself thin trying to help other people, but I honestly feel all the better for it.

This lovely little “inspirational” (*eyes roll into the back of my head*) piece isn't even half of it, but it's the major stuff. I included that bit at the end to show that even though I've had a pretty bullshit lot in life, I absolutely refuse to let it kick me down.

You may laugh at how stupid and pretentious I sound now.

#inspirational #Sini's Backstory #Cancer #Neuroblastoma #Religion #Religious #Christian #Lutheran #Self harm #Self-Harm #tw #abuse #rape #mental abuse #mental disorder #terminal cancer

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