#understand thing. i have my computer read to me and i suffer. theres literally nothing else to b done abt it. and fucking next week i have

[opens-up-4-nobody]

...

#hmm its been an interesting week i suppose #very busy in a good way. but that is always how it starts. i make myself so busy and it feels good and then i wobble and fall out of my body #so im feeling wary. also bc ive been under sleeping more than ususal but im not really tired but im also not boiling out of my skin with #energy. i just feel ok. so thats good. but also a demon in the back of my head is always like: then stay up all night. lets see how far we #can push this. which is not good. and in fact ive been proscribed like basically emergency mood stablizers to knock me out if i start like #losing my mind and not sleeping lol. bc i dont wanna b getting ready for something big and like completely unavailable to control my #ability to think. and ive also been proscribed birth control to get a handke on my fucked up hormones. so we'll see if that makes things #less all over the place. hopefully it works bc im so busy i kinda dont have time to like freak thr fuck out #but i am a lil apprehensive bc like i can count on my hormones to make me feel things when a lot of the time i dont have much emotional #range. so its like fuck finally i can cry abt this. or like fuck this is so beautiful. but then i also cant function sometimes #so i guess i just gotta see what happens. sigh. also the typical frustrating in having to read so much. like ppl hear im dyslexic and r like #oh do u want accommodation? like literally wtf r u gonna do to help me as a grad student? it just takes an agonizing amount of time to #understand thing. i have my computer read to me and i suffer. theres literally nothing else to b done abt it. and fucking next week i have #to teach a fucking lab abt reading scientific papers. they have to read a paper in class. fuck off. those r the types of exercises that make #me feel so fucking stupid. like do this thing right now. read it right here and answer questions abt it. and i fucking read it and retain #fucking nothing. im fucking 26 and literally in my grant writing class i have to apologize to every person before i give them feedback like #lol sorry i can barely fucking read. i fucking cant understand language. its fine but it sucks. theres nothing to do abt it. it just makes #me mad i have to teach a class that would have made me cry as an undergrad. so ill prob hold their hands thru it more than the other TAs #will. bc fuck u im not making them read a whole fucking paper in class. fuck u #plus the frustration of not being able to express myself well in thr moments. like theres a delay in my brain so i feel so dumb when im #trying to convey myself off the top of my head. like give me time and ill write it all out for u i just cant actually process wtf ur saying #to me. also i probably spaced out for a sec so i missed part of the convo lol. frustrating but at this point its just how it is. it makes me #more empathetic when i have to teach i guess. like listen ive got all kinds of fucking learning probs i just wanna help u learn something #how can i help? fucking dyslexia. god. i dont wanna prep for class this weekend. ive gotta show up like yea i kno reading papers is hard at #first but it gets easier! fuck u. its worth the suffering if i enjoy to topic but its always suffering. but thats what i get for going into #academia. thr dr who proscribed me stuff was like well sounds like u have a stress trigger and ur a phd student where life is stress... u #gotta figure out whats gonna work for u. sometimes thats a career change. not in like a pushy way just like: if what u do makes u suffer #then wtf r u doing? and hes got a point. but in contrast to what i was doing this is a massive improvement #well see if its manageable. ugh. i just wanna draw #unrelated

[lenin-it-to-win-it]

just gonna rant about my health issues to no one in particular for a bit under the cut sooo

im just so fucking tired of being sick all the time like. its been almost 2 years now of actively Going To Doctors And Having Tests Done And Trying To Get A Diagnosis and fucking!!! nothing works!!! and i only have until the end of this coming school year to get it figured out before my insurance runs out otherwise im just fucked!!! because im sure as hell not gonna be able to afford a fucking mri every six months making 10 bucks an hour at some retail shithole but so far ive seen SIX different fucking doctors (not counting 2 ER visits) because they all just keep shuffling me back and forth like “idk maybe have someone else deal with this? weird lol” or like “have you considered that maybe you might have anxiety :) you seem stressed :)” 

like yeah its a fucking stressful situation getting progressively fucking sicker for two goddamn years wasting thousands of dollars and reaching the end of a fucking ticking clock because almost every doctor ive seen is an incompetent jackass who does NOTHING but waste my time and money and then fucking condescend to me about anxiety like!!! yeah i probably DO have anxiety and depression and autism and what the fuck ever else but this isnt THAT 

and the literal ONE TIME i had ANY treatment that worked AT ALL helping with my eye spasms (literally One of Many Symptoms that i deal with on a fucking daily basis that still manages to completely fuck up my life) is something i cant take anymore because it damaged my fucking eyes!!! possibly permanently!!! i already HAD issues wtih light sensitivity that this medicine made WAYYY fucking worse and guess whats one of the WORST things at setting off my eye spasms??? anything to do with fucking light so YEAH thANKS for that @ the opthalmologist who had me take those damn eye drops for two months straight, which other neuro opthalmologist said was bullshit when i saw her again, not that im letting HER off the hook either since she REFERRED me to that incompetent bitch in the first place and then had NO solution other than “hm well you definitely shouldnt take that medicine again, but theres literally No Other Treatment, maybe blow another $400 in a few months to come see me again so i can continue to Not Help You In Any Way”

and its getting wORSE ALL THE TIME!!! and the best thing doctors can think of is “hm well maybe wait a bit to see if it gets worse? and maybe then we’ll know what it is?” well its getting worse!!!! but they still dont seem to know what it is!!! like at first it was just my vision going out of focus for a few seconds at a time, then it was a few minutes, then i was having visual distortion (or maybe hallucinations? who knows! certainly not any of the fucking doctors ive seen!), then awful fucking eye strain headaches, then spasms in my neck, then my jaw, then my arms, then my legs, now all fucking over, and now i get sick and dizzy just by moving my HEAD too far or too suddenly and like at work earlier today i was just stumbling around for two hours bc there was too much pressure in my head and everything felt tilted and i was just grabbing at every surface trying not to fall with my head like on my shoulder bc keeping my neck straight was too fucking hard and i swear to fuckign god a couple nights ago there was this weird buzzing on the side of my face??? and like it felt like my mouth was moving slower than it should??? but i dont even KNOW if thats a Real SymptomTM or if i was just freaked out and tired and imagining things or if i really am just getting to be a paranoid delusional nutcase about my health because every little thing terrifies me at this point, like ive been coughing for a couple weeks and instead of being like “oh its a bad cold” im like “maybe now my immune systems fucked up too maybe this is A New Symptom” i literally cant tell anymore i have no fucking idea 

and i dont WANT to think about all this All The Fucking Time but i do!!!!! i literally HAVE to bc it affects my life in every fucking possible way and i cant escape it like even rn the light from the fuckign computer is hurting my eyes and i cant even see what im typing half the time bc my eyes keep going out of focus and my teeth keep chattering and my head hurts or ill go to get a drink of water but then just Stand there for a few minutes bc i dont trust myself to hold a cup full of water and not spill it bc im having spasms or ill have to wear sunglasses at the dinner table bc my fucking idiot asshole dad got the BRIGHTEST possible lightbulbs for the dining room and i physically cant stand them 

or like im already dreading having to explain all this shit to my professors this semester about how like “oh so i probably wont be able to keep up with daily readings, especialyl not if theyre on physical paper and i cant scale up the text because my eyes just spontaneously stop working and i cant read..... and ill need a computer to take notes, i can Usually hold a pencil but one time i had a spasm in class and flung it across the room and it was super embarrassing and i ltierally skipped that class for weeks because of it so id really rather not deal with that again.... and even though im a fuckign AMAZING public speaker like, state champion debate level public speaking, ill still probably get super fucking nervous and suck at any kind of in class presentation bc ill just be thinking about my spasms the whole time and wont be able to focus....... and ill have to wear sunglasses all the time too so hopefully thats not an issue........ and also ill probably miss a lot of class bc whether or not i can handle walking half a mile Varies Wildly from day to day and also i have a lot of doctors appointments and sometimes im on medicine that completely ruins my sleep schedule so you know... looking forward to a great semester, hope i dont completely fail your class” 

and i have fuckign work tomorrow where ill have to deal with trying to pretend like even the most minor tasks arent painful and difficult and deal with awful btichy entitled customers complaining that im not SMILEY enough for you like the motherfucker who asked me how i was and i said fine and he was like “jUuUUuuuST fINE” like shut the everlasting FUCK UP with that ive met my obligation leave me ALONE my day isnt FINE im in awful pain and i HATE you and everyone like you or ill have to deal with my coworkers giving me weird looks while im having spasms or outright MOCKING me for them like the asshole that called me TWITCH (and a whore, but thats Another Fucking Story) or just not knowing how to deal and making bad taste jokes like when my teeth are chattering bc I Physically Cant Make It Stop like “haha are you chewing an invisible piece of gum lol” like no bitch im a neurological nightmare and my brain doesnt work and im Barely Holding Together would you PLEASE shut the fuck up 

and most of the time i just feel like everyone thinks im a fucking freak like even just sitting in the waiting room to see the neurologist or opthalmologist or whatever and everyone else there is Old and im the only person even remotely close to my age there and even the doctors dont seem to take me that seriously bc of it like “oh shes young, cant be that bad, all these old people out here are gonna die like tomorrow so why worry about this girl, its probably just anxiety from being on her period or having a test to study for lol” like straight up when the movement disorder neurologist was examining me she was like “im not used to seeing anyone this young or healthy’ and i know she meant it relatively speaking but like!!! clearly im NOT healthy or i wouldnt BE here like obviously something is wrong with me and its ruining my life and its serious and id like it fixed thanks!!!!! 

and i feel like No One Gets It like, obviously there are people wayyyy sicker than i am who suffer a lot more or people in similar situations but like. i dont Personally Know someone like that i can just talk to and like, of course i have friends who can Listen but.................................. theres a difference from being able to listen and being able to actually Understand and sometimes you just cant Get It unless youve gone through it like i really dont think ANYONE in my life has any idea how serious this is or how much it affects me and i know i cant expect everyone to just Always Think Of My IssuesTM but little things!!! like maybe NOT having the brighest possible lightbulbs in the dining room!!!! my brother NOT having his birthday party at dave and busters, which i had TONS of spasms at last time i went (and im even worse now!) AND the staff gave me shit about wearing sunglasses so now im nervous about That too or just! idk! people respecting and listening to me when i tell them that i Cant Do Something or that Doing That Thing Hurts and not just brushing me off or telling me im overreacting and then getting all shocked pikachu face when their dumbassery actually physically HURTS me and i get pissed with them for it!!!!

i dont think anyone gets how much it scares me all the time or how its Always on my mind and i literally cant think about anything else like. this could be the rest of my life. this could end my life. i dont know what i have. i might get diagnosed in the next month and have it completely cured, i might get a diagnosis and still be sick forever, i might not find out until its too late and i have LITERALLY NO FUCKING IDEA WHICH ONE!!!! ITS GREAT!!!!!!!! WELCOME TO MY LIFE!!!!!!!!!!!!

#vent #rant #i sincerely doubt anyone will read to the end of this but whomst knows #besides it feels nice to just scream