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And don't kid yourself into thinking that you're helping "real" disabled people by viciously attacking people you think might be faking their disabilities. The best thing you can do for disabled people is taking our words for who we are and what we need. Creating an environment where you constantly have to defend and explain yourself against accusations of faking will in fact harm the "real" disabled people you claim to support
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mental-mona · 16 hours
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How to Support People with Facial Differences - the Face Equality Week 2024 Special
[large text: How to Support People with Facial Differences - the Face Equality Week 2024 Special]
Today is the 13th of May, which means that the Face Equality Week has just started. This year's theme is “My Face is a Masterpiece” which is probably my favorite sentence ever said about having a facial difference. Huge fan, should be used way more often in my opinion.
Because of this occasion, I would like to share some thoughts about Face Equality that I think are rather entry-level, i.e. you don't need to know much to execute these, but you can still support us.
Stop the stare.
I know it's fun to stare - or so I guess, at least - but maybe you shouldn't. Next time you see someone who has a scar or who's face does not move the same way as yours, just mind your business. We can tell when you're “discreetly” looking.
Don't call us deformed. 
Knowing how the people you're trying to support actually call themselves should be an absolute first step, but most people still fail here. Most of us don't appreciate being called “deformed”. I certainly don't. Say “facial difference”, or “disfigurement” if you must. It's 2024. Leave “deformed” to medical reports from the 70s.
No more “What happened?!”s.
If you aren't a doctor, there's a high-to-100% chance that it's none of your business. It's cool that you're curious - keep it to yourself.
Stop insinuating that we are ugly.
“Support people who are ugly!” isn't very supportive. I would say, not in the slightest. Say “people who don't fit the current beauty standards” if that's what you mean. 
Or, to go with this year's theme, “people whose faces are masterpieces” : )
Use critical thinking online.
Is the reaction photo actually funny, or is it just a person with a craniofacial condition? Is the meme actually a meme, or is it just making fun of a person with a facial disfigurement? Is body-shaming suddenly hilarious to you when the person shamed has strabismus? 
If the entire punchline is “lol they have a disability xd”, it's ableism. Plain and simple.
To go with the point above - your joke is probably not funny.
We get it! You can't help telling us how "you're going to hell for laughing" (which yeah, probably) and how we remind you of the ugliest character you have ever seen. I guarantee you that we heard it, and that you are behaving like an edgy middle schooler who hasn't "found out" yet. It's boring and annoying. Also ableist, but you're aware of that already if you're saying that you're going to hell.
Stop with the goddamn trigger warnings. 
We aren't “body horror”, we aren't “gore”, we aren't something that you need to advise your viewers to use their discretion over. Every “graphic footage: child with neurofibromatosis” and “#tw burn scar” is a sign of ableism and disfiguremisia. People with facial differences deserve to be seen. Ableds can survive seeing a person without a nose.
Do a basic reading on what disfiguremisia is.
New word! And a pretty damn important one. It's a brand of ableism that intersects with more or less everything, and it means discrimination and hatred of people with facial differences/disfigurements. The bullying, harassment, endless name-calling, and microaggressions are all results of disfiguremisia. The ways in which everything is harder for us isn't some unchangeable rule of how the world works, it's just an extremely prevalent type of discrimination.
Understand that we are people.
I know, revolutionary - and yet impossible for so many people to get. We can be a visual representation of evil when it's necessary, we can be a feel-good inspirational story on a morning talk-show, but not much else, it seems. In reality, we are complex, we have our own lives, we can be happy and sad and have the same exact joys and worries that you have.
Hey, artists - facial differences don't make you evil.
Title stolen from a great essay by Lise Deguire (link). When's the last time you saw a positive character with a facial difference that wasn't inspiration porn? I mean a character that's not edgy, full of angst, a murderer, or a villain. Based on what you see in the media, you'd think that having a scar renders you evil on the spot, but in reality it just makes you loathe how artists apparently think you are like. It's boring, it's overdone, it's ableism. Stop doing this, and start noticing when it's being done. Point it out if your friend is writing their new villain to be an evil burn survivor. This kind of portrayal needed to stop ages ago, but tomorrow will be a great time as well.
Before you reply with “I've never seen this” - Darth Vader, Lion King’s Scar (subtle name, great thing to teach kids!), Freddy Krueger, Voldemort, we could be here forever. You're just not paying attention.
Pay attention to where we are not included.
As discussed, there are some places where you see us all the time. But where do you not see us?
Advertisements (unless it's for a scar-removal cream, of course). Fashion shows. Magazine covers. Romance movies where we are the main character.
We deserve to see ourselves in what's around us in the same way able-bodied people do. Trying to make it seem like we don't exist - that's deliberate. 
Interact with our art.
We draw, write, sing, act in movies, we do everything! Support us in the most tangible way - leave us a nice comment, read our books, listen to our songs. Watch movies where actual people with facial differences star, not pseudoinspirational stories about how “being disfigured is ok” where they shove an able-bodied actor into a full face prosthetic just to not have an actor with a disfigurement on set.
Include us.
As this year's Face Equality Week calls for, include us. In art, in movies, in books, in your life. Show us as positive people who are valuable, who are a part of your community - I guarantee that we are in every one that's out there. The world is hostile and unwelcoming to people with facial differences - be the change, wherever you are!
I know that it is different from the usual posts I make, but I hope it was somewhat educational. I just like to use every occasion that I can to force Face Equality into people's heads. To make this at least a bit about writing to keep the blog's theme, I will say that if you want to write about us, you need to care about us in real life as well. Otherwise, it's shallow and pointless.
Below the readmore are some links/resources that you can click to educate yourself further. A lot of them lead to Face Equality International because they have just about everything you should know. If you want to be a better ally to people with facial differences, I heavily recommend them!
#MyFaceIsAMasterpiece
mod Sasza
https://faceequalityinternational.org/2023/04/why-i-will-not-hide/
https://www.psychologytoday.com/gb/blog/disability-is-diversity/202111/hidden-community-the-movement-face-equality
https://faceequalityinternational.org/2022/05/facial-differences-in-the-media/
https://faceequalityinternational.org/2023/04/advertising-excludes-women-with-faces-like-mine/
https://www.phoenix-society.org/resources/burn-community-bookshelf
https://faceequalityinternational.org/about-fei/international-face-equality-week/
https://faceequalityinternational.org/2023/04/hidden-from-view-women-with-facial-differences-in-the-media/
https://www.phoenix-society.org/resources/i-dont-see-your-scars
whoa thanks for actually clicking the readmore!!
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mental-mona · 16 hours
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mental-mona · 17 hours
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Here's a website where Palestine GoFundMes are vetted and shared that you can send out to people. The url is gazafunds.com
Easy to use and simple. Just share the site whenever someone asks for GFMs for Palestine.
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mental-mona · 17 hours
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Women's Not So Distant History
This #WomensHistoryMonth, let's not forget how many of our rights were only won in recent decades, and weren’t acquired by asking nicely and waiting. We need to fight for our rights. Here's are a few examples:
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📍 Before 1974's Fair Credit Opportunity Act made it illegal for financial institutions to discriminate against applicants' gender, banks could refuse women a credit card. Women won the right to open a bank account in the 1960s, but many banks still refused without a husband’s signature. This allowed men to continue to have control over women’s bank accounts. Unmarried women were often refused service by financial institutions entirely.
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📍 Before 1977, sexual harassment was not considered a legal offense. That changed when a woman brought her boss to court after she refused his sexual advances and was fired. The court stated that her termination violated the 1974 Civil Rights Act, which made employment discrimination illegal.⚖️
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📍 In 1969, California became the first state to pass legislation to allow no-fault divorce. Before then, divorce could only be obtained if a woman could prove that her husband had committed serious faults such as adultery. 💍By 1977, nine states had adopted no-fault divorce laws, and by late 1983, every state had but two. The last, New York, adopted a law in 2010.
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📍In 1967, Kathrine Switzer, entered the Boston Marathon under the name "K.V. Switzer." At the time, the Amateur Athletics Union didn't allow women. Once discovered, staff tried to remove Switzer from the race, but she finished. AAU did not formally accept women until fall 1971.
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📍 In 1972, Lillian Garland, a receptionist at a California bank, went on unpaid leave to have a baby and when she returned, her position was filled. Her lawsuit led to 1978's Pregnancy Discrimination Act, which found that discriminating against pregnant people is unlawful
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📍 It wasn’t until 2016 that gay marriage was legal in all 50 states. Previously, laws varied by state, and while many states allowed for civil unions for same-sex couples, it created a separate but equal standard. In 2008, California was the first state to achieve marriage equality, only to reverse that right following a ballot initiative later that year. 
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📍In 2018, Utah and Idaho were the last two states that lacked clear legislation protecting chest or breast feeding parents from obscenity laws. At the time, an Idaho congressman complained women would, "whip it out and do it anywhere,"
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📍 In 1973, the Supreme Court affirmed the right to safe legal abortion in Roe v. Wade. At the time of the decision, nearly all states outlawed abortion with few exceptions. In 1965, illegal abortions made up one-sixth of all pregnancy- and childbirth-related deaths. Unfortunately after years of abortion restrictions and bans, the Supreme Court overturned Roe in 2022. Since then, 14 states have fully banned care, and another 7 severely restrict it – leaving most of the south and midwest without access. 
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📍 Before 1973, women were not able to serve on a jury in all 50 states. However, this varied by state: Utah was the first state to allow women to serve jury duty in 1898. Though, by 1927, only 19 states allowed women to serve jury duty. The Civil Rights Act of 1957 gave women the right to serve on federal juries, though it wasn't until 1973 that all 50 states passed similar legislation
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📍 Before 1988, women were unable to get a business loan on their own. The Women's Business Ownership Act of 1988 allowed women to get loans without a male co-signer and removed other barriers to women in business. The number of women-owned businesses increased by 31 times in the last four decades. 
Free download
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📍 Before 1965, married women had no right to birth control. In Griswold v. Connecticut (1965), the Supreme Court ruled that banning the use of contraceptives violated the right to marital privacy.
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📍 Before 1967, interracial couples didn’t have the right to marry. In Loving v. Virginia, the Supreme Court found that anti-miscegenation laws were unconstitutional. In 2000, Alabama was the last State to remove its anti-miscegenation laws from the books.
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📍 Before 1972, unmarried women didn’t have the right to birth control. While married couples gained the right in 1967, it wasn’t until Eisenstadt v. Baird seven years later, that the Supreme Court affirmed the right to contraception for unmarried people.
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📍 In 1974, the last “Ugly Laws” were repealed in Chicago. “Ugly Laws” allowed the police to arrest and jail people with visible disabilities for being seen in public. People charged with ugly laws were either charged a fine or held in jail. ‘Ugly Laws’ were a part of the late 19th century Victorian Era poor laws. 
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📍 In 1976, Hawaii was the last state to lift requirements that a woman take her husband’s last name.  If a woman didn’t take her husband’s last name, employers could refuse to issue her payroll and she could be barred from voting. 
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📍 It wasn’t until 1993 that marital assault became a crime in all 50 states. Historically, intercourse within marriage was regarded as a “right” of spouses. Before 1974, in all fifty U.S. states, men had legal immunity for assaults their wives. Oklahoma and North Carolina were the last to change the law in 1993.
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📍  In 1990, the Americans with Disability Act (ADA) – most comprehensive disability rights legislation in U.S. history – was passed. The ADA protected disabled people from employment discrimination. Previously, an employer could refuse to hire someone just because of their disability.
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📍 Before 1993, women weren’t allowed to wear pants on the Senate floor. That changed when Sen. Moseley Braun (D-IL), & Sen. Barbara Mikulski (D-MD) wore trousers - shocking the male-dominated Senate. Their fashion statement ultimately led to the dress code being clarified to allow women to wear pants. 
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📍 Emergency contraception (Plan B) wasn't approved by the FDA until 1998. While many can get emergency contraception at their local drugstore, back then it required a prescription. In 2013, the FDA removed age limits & allowed retailers to stock it directly on the shelf (although many don’t).
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📍  In Lawrence v. Texas (2003), the Supreme Court ruled that anti-cohabitation laws were unconstitutional. Sometimes referred to as the ‘'Living in Sin' statute, anti-cohabitation laws criminalize living with a partner if the couple is unmarried. Today, Mississippi still has laws on its books against cohabitation. 
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mental-mona · 17 hours
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I just realized the fundamental disconnect for people who think they can "boycott" voting:
People who threaten to withhold their vote are thinking of the government like a business. If you don't like what a business is doing, you can refuse to shop there, and that hurts them.
But your government is not a business, no matter how much the GOP tries to pretend it is, and refusing to participate doesn't hurt it. If you refuse to vote, you still have to live under that government. I know we're all fundamentally broken by late-stage capitalism, but you get that you can't "Well, you just lost a customer" this one, right? YOU AREN'T A CUSTOMER.
Refusing to vote isn't like refusing to buy McDonald's. It's like walking into a McDonald's, handing the cashier $20 (because you still gotta pay taxes whether you vote or not), and saying "Surprise me."
(Oh and during this particular trip, one of the two McDonald's options is maybe not your favorite food, and the other is deadly poison.)
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mental-mona · 17 hours
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There are actually multiple topics covered in this article, including finding your asthma triggers. All the info is useful.
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