#crohn’s colitis

[cfs-crohns-colitis-warrior]

Man, the pain really be paining today huh?

#chronic illness warrior #chronic fatigue syndrome #cfs/me #myalgic encephalomyelitis #chronic illness #chronic illnesses #pain is an old friend #awareness #crohn’s warrior #crohn’s colitis #crohn’s disease

[thequietesthing]

the incredible harsh quiet revelation that you have when you are diagnosed with chronic illness(es) is that you will never be healthy again. I don't think able bodied people are able to understand what it means to just resign to the fact that your life is not just yours anymore. you share it with a weight that will be with you until you are gone from this world.

#chronic illness #chronically ill #ulcerative colitis #crohn's disease #ibd #spoonie #lupus #arthritis #fibromyalgia #chronic pain #chronic fatigue #invisible illness #invisible disability

[chaos-and-ink]

Hurts if I eat, hurts if I don't; hurts if I sleep, hurts so deep.

#chaos #vent art #my work #chronically ill #disabled #physically disabled #chronically sick #gi issues #idk how to tag this so Ill just do a ton #chronic pain #irritable bowel syndrome #irritable bowel disease #ulcerative colitis #crohn's disease #pots #pots syndrome #ehlers danlos syndrome #indigestion #digestive issues #digestive disorders

[spooniestrongart]

#spooniestrong #spoonie #chronic pain #chronic illness #ibs #ibd #cvs #crohns #colitis #diverticulitis

[thatchronicfeeling]

Do you have (a) a bowel condition (diagnosed/undiagnosed) AND/OR (b) POTS and have you (c) tried compression garments/shapewear that go over your belly? If yes, has this ever upset your gut? Any thoughts / advice welcome! <3 Longer Version: I have Ulcerative Colitis and POTS. Over the past few months, I've been trying out various kinds of compression to see if that helps my POTS. Trying to work out what has caused my current gut upset. Wondering if it might be connected to the shapewear shorts I was wearing at the weekend? I've been trying out different kinds of compression. Below-the-knee socks'/stockings are helpful. Since I'd seen some folk recommend the socks + shapewear combination, I've been trying that out (it helps with POTS). Maybe there's a difference depending on the shapewear shorts, though? I made sure to get ones that I can easily slide/roll down to go to the toilet. (Two 'accidents' whilst hospitalised with Ulcerative Colitis aged 21 are more than I need in a lifetime.) So, while there is some compression, these are not the tightest shapewear that you can get. I've been trying out different brands. One pair I wore all day and had no apparent problems with them. Then, I tried a different pair, which I wore all day (~14hours). These ones have slightly stiffer fabric (they're probably a wee bit tighter too). After I took them off, I felt very bloated. Overnight my belly started to feel achy/tender and this continued all of the next day. In terms of sensation, this was the same kind of soreness after lots of diarrhoea, or a colonoscopy. But I hadn't had either of those. Today, my gut doesn't feel as tender, but I'm experiencing urgency. Could the shapewear shorts have caused this? (or is something else going wrong with my colitis that I need to work out?!) I know nobody can have a definitive answer to this, but if you have any similar experiences relating to shapewear/compression (or even a corset), I'd really appreciate hearing your perspective! <3

#pots #postural orthostatic tachycardia syndrome #postural tachycardia syndrome #ibd #inflammatory bowel disease #ulcerative colitis #crohn's disease #ibs #inflammatory bowel syndrome

[hallmarkchrismasmovie]

so ive been having a flare up for 3 whole weeks now, symptoms include:

intense upper abdominal pain after eating

vomiting most solids*

intense back pain at the same height as the stomach pain but at different times

headaches

fevers

dizziness

fatigue

weight loss

*this has lessened since i went to the hospital a week ago and they gave me a new round of pantaparazole (which ive been on before because i have a gerd diagnosis)

ive had flare ups before with similar symptoms but this level of vomiting is new and its never gone on this long. the hospital confirmed its nothing viral and nothing super visible like a stomach bleed or something with my kidneys. does this seem familiar to anyone?

i should note that my doctor is adament its not crohns or colitis because of the stool tests shes done. ive had a colonoscopy, a gastroscopy, and a ct and the only thing they found was enlarged lymph nodes in my large intestine and acid reflux burns in my esophagus.

#im sick of my doctor saying its anxiety so im outsourcing #chronic illness #gastrointestinal #ibs #ibd #crohn's disease #ulcerative colitis #chronically ill #chronic pain #disability

[crohnschronicals]

#ibd #crohn's #crohn's disease #inflammatory bowel disease #chronic illness #ulcerative colitis #autoimmune #invisible illness #autoimmune disease

[imtheecrybaby27]

IBS IS HOMOPHOBIC 🗣️🗣️🗣️

And not buying from my store during disability Pride month is ableist too to be tbh /hj

🖤hoodies are 5XL-XS and the SAME price for ALL sizes (for my thiccems)🖤

👻10% off all month too if you even care👻

polkadotphantom(.)com

#ibs #disability #disabled #disability Pride #cyclic vomiting syndrome #crohns #ulcerative colitis #gluten free #dairy free #cripplepunk

[lawfullyhopeful]

Me walking 5 blocks this morning: woaw I feel almost no pain :) maybe I really am healing

My legs, at midnight: oh, looks like we're late. Opsies!

#arthritis #rheumatoid arthritis #ulcerative colitis #crohns disease #actually chronically ill #chronic illness #ibd #crohn's disease #cripple punk #cripplepunk #ibs #immunocompromised #nerve pain #joint pain #pain #just splitting pain #in my legs #ouch #mine #text

[copperkudzueye]

IBD is Like

“Holy fuck I am going to shit my pants”

“Wait false alarm

“DEAR LORD I WAS MISTAKEN HURRY HURRY”

But in a Walmart parking lot

#chronic illness #autoimmune disease #poop joke #copper talks #crohns #copperkudzueye #Crohn’s disease #ulcerative colitis #inflammatory bowel disease #IBD #disability

[cripple-council]

• this user has a digestive disability •

[id: a purple userbox with a black border, to the left is a picture of purple pixelated guts, and to the right is black text reading: “this user has a digestive disability”. /end id]

#cripple punk #crip punk #cripplepunk #physical disability #physically disabled #c punk #cpunk #digestive disorders #digestive disability #ibs #crohns #ibd #colitis #this user #userbox

[cfs-crohns-colitis-warrior]

I wish I could purr like a cat so I could make myself feel better

#chronic illness warrior #myalgic encephalomyelitis #chronic fatigue syndrome #cfs/me #chronic illness #chronic illnesses #crohn’s colitis #crohn’s disease #exhaustion #me/cfs #stoma #stoma bag #crohn’s warrior #nauseous #nausea

[stormyrainyday]

i have GOT to stop eating things i'm allergic to these foods are not giving me energy all they're doing is making my tummy hurt

#allergic to eggs and gluten #but i had ramen like 6 times in the last week #the pms cravings got my ass #also allergic to vanilla and beans and pineapple and a handful of other things #it wont kill me but the fatigue and stomach pain really isnt worth #not to mention the nausea #i wonder sometimes if i don't have crohns disease at all and just have these food allergies #bc my endoscopy only showed mild inflammation #technically i have microscopic/indeterminate colitis but if untreated it evolves into crohns or uc #and so based on my symptoms they call it crohns and are treating it as crohns #anyway since the inflammation was on the microscopic level it's entirely possible that it's just food allergies #which is still autoimmune mind you #but has a much easier treatment than crohns does #and i've noticed since i stopped gaffing abt my diet again my stomach hurts im having diarrhea im nauseous #hell my joints and head hurt again too #BUT i also havent been taking my meds so idk #i should talk to my doctor but i dont like him #so idk what to do #it's whatever

[pelipper]

say meowdy to the ibd brothers 👋

#disability tumblr #crohn's disease #ulcerative colitis #disabled #disability #where my fellow ibd queens and kings at? 👑 #i saw this meme and i wanted to take a swing at it #it was also a good excuse to post a picture of my cats #please ignore my poor photoshopping... i ended up using my trackpad for the speech bubbles #loke the cat #fish the cat #my cat #my photos #dumb memes

[space-spring]

Ostomy Awareness

October 7th 2023 is Ostomy Awareness Day! So I'm going to make you aware of ostomies whether you like it or not!

If you've never heard of an ostomy before, the first definition I get searching it is, "Surgical construction of an artificial excretory opening, as a colostomy or ileostomy." Which is just sort of a complicated way of saying, "the end of your intestines/urinary tract is surgically placed outside the skin such that the stuff that comes out of it ends up in a disposable bag."

Ostomies are, in general, considered a gross thing to talk about for a lot of people (which, alright. it's poop/pee. fair). But getting an ostomy is a life-saving procedure that about 100,000 people undergo in the US alone each year. The most common reasons for getting an ostomy are:

medical issues where the intestine or urinary tract is causing active harm to the individual, e.g. ulcerative colitis or colorectal cancer

specific injuries like car crashes that result in trauma to the abdomen

things like bowel obstructions that require surgery or removal of parts of the intestines

I couldn't find a great public domain image of what they look like, so here's a quick drawing:

The red bit is called a stoma, and is made up of a part of your intestines/urinary tract. The placement will differ slightly depending on the situation, but it'll always be roughly in that lower abdominal area. The bag is made up of plastic and rubber, and is made up of two parts: a base and the pouch itself. The base is made of a circular rubber "wafer" adhered to the skin using strong glue, and is replaced every few days or once a week. The pouch is attached to the wafer, and is replaced more often as needed. The one I have pictured here has a clear plastic front, but most people who have ostomies for an extended period of time end up using ones with non-transparent fronts (some people also get cloth coverings to go over the pouch that have fun designs).

I had an ostomy nearly a decade ago as just a temporary thing between surgeries, but I still think about it a lot. For me personally, my ostomy ended up being a really painful, embarrassing experience. I was in high school at the time, and having the whole "there is bodily waste coming out of my stomach" thing going on on top of just the general stress of having severe health issues was a lot. Nowadays I feel strongly about making it a more normal, commonplace thing to talk about, if just for kids who have to go through that sort of thing themselves.

But all of that said, I'd be wrong not to mention that there's a ton of people who have had ostomies for the majority of their lives and feel really happy with them. Ostomies can mean a huge relief in terms of chronic pain, and over time, it just becomes a normal part of people's lives. Chances are you've met someone with an ostomy before and never realized, due to the fact that it's often hidden under clothing.

#woe; tmi infopost be upon ye #health #ostomy #ulcerative colitis #crohn's disease #cw medical #cw surgery #cw blood #cw illness #ask to tag

[goodie-vibesss]

Today I ate nothing all day…

And felt amazing.

No guilt, no pain, no weird water retention, no symptoms

Just being empty allows me to live and enjoy life.

Instead of being focused on pain, I am focused on quality time with family and friends.

Why does food hate me?

#th1nsp1ration #thinspø #b0dii chexx #b0dy check #tw restriction #b0dych3x #tw depressing thoughts #body ch3ck #b0n3sp0 #anor3c1a #tw restrictive ed #ulcerative colitis #celiac disease #crohn's disease #irritable bowel syndrome