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#ibd
thatchronicfeeling · 12 hours
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Do you have (a) a bowel condition (diagnosed/undiagnosed) AND/OR (b) POTS and have you (c) tried compression garments/shapewear that go over your belly? If yes, has this ever upset your gut? Any thoughts / advice welcome! <3 Longer Version: I have Ulcerative Colitis and POTS. Over the past few months, I've been trying out various kinds of compression to see if that helps my POTS. Trying to work out what has caused my current gut upset. Wondering if it might be connected to the shapewear shorts I was wearing at the weekend? I've been trying out different kinds of compression. Below-the-knee socks'/stockings are helpful. Since I'd seen some folk recommend the socks + shapewear combination, I've been trying that out (it helps with POTS). Maybe there's a difference depending on the shapewear shorts, though? I made sure to get ones that I can easily slide/roll down to go to the toilet. (Two 'accidents' whilst hospitalised with Ulcerative Colitis aged 21 are more than I need in a lifetime.) So, while there is some compression, these are not the tightest shapewear that you can get. I've been trying out different brands. One pair I wore all day and had no apparent problems with them. Then, I tried a different pair, which I wore all day (~14hours). These ones have slightly stiffer fabric (they're probably a wee bit tighter too). After I took them off, I felt very bloated. Overnight my belly started to feel achy/tender and this continued all of the next day. In terms of sensation, this was the same kind of soreness after lots of diarrhoea, or a colonoscopy. But I hadn't had either of those. Today, my gut doesn't feel as tender, but I'm experiencing urgency. Could the shapewear shorts have caused this? (or is something else going wrong with my colitis that I need to work out?!) I know nobody can have a definitive answer to this, but if you have any similar experiences relating to shapewear/compression (or even a corset), I'd really appreciate hearing your perspective! <3
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it’s okay to do things that make your symptoms worse (as long as you’ll stay safe)
every once in a while you need to eat something yummy. or go on a walk. or a trip to the zoo. take a hot shower. cry your eyes out. dance. listen to music. draw for way to long. write. laugh. sit in a cafe with a friend. paint your nails. dye your hair. go on a run. pet a cat
sometimes you need to do things that are cathartic or make yourself feel alive. sometimes you need the reminder of why you’re fighting so hard to stay alive
this is your reminder that just because it makes your symptoms worse, it isn’t always the wrong thing to do. there can be value in these actions
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spoonful116 · 9 months
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Getting diagnosed with a chronic condition is easy! Just follow these steps:
Have symptoms
Schedule doctor visit
Wait indefinitely
Repeat
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spooniestrong · 2 years
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certifiedceliac · 2 years
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[Img id: bugs bunny meme. To the left the text reads, "I wish all people with chronic digestive problems a very plesant evening".]
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spooniestrongart · 1 year
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mitamicah · 10 months
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Happy disability pride month everybody!! ❤️💛🤍💙💚
To those who might not know Jere has been very vocal about his experience with IBD more specifically ulcerative colitis that resulted in him getting a lifesaving surgery at 19 leaving him with his two surgical scars on his stomach. Here's a few links to articles if you want to know more (x) (x). I'd also like to link the podcast interview where I first learned about his experience (starts at 11.10) since it touched me hearing him open up about for it for what sounded like the first time after he himself brought it up in such an authentic manner.
Since learning about his disability around april-may I have felt an even stronger connection to him. Although I do not have IBD myself, I just find his honestly, vulnerability and authenticity so inspiring that I could not help not to love him and and so the real brainrot began
For this reason drawing him for disability pride has been on my mind almost as long so I hope you enjoy the outcome - stay strong everybody and you are amazing just as you are, with or without disabilities
With regards, your fellow autistic Kääryle (Käärijä fan) 💚
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earlgraytay · 9 days
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...I wonder how much of the "Real Men Don't Eat Vegetables" malarkey is driven by undiagnosed Crohn's disease/IBD.
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caterpillarinacave · 1 year
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Bitches really know they can’t eat something, eat it anyway, then get surprised when they get sick. It’s me, I’m bitches.
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agentxpoe · 9 months
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I love when I’m having Symptoms™️ and I backtrack what I have/haven’t done and I’m like
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thatchronicfeeling · 10 months
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July is Disability Pride Month
Let’s celebrate by keeping disabled people ALIVE and SAFE.
Want to know how you can help?
WEAR A MASK. 
(FFP2/3 or N95 give best protection, especially the ones that fasten behind your head)
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sleazyowl · 2 years
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It's so funny when you're chronically ill and ppl tell you to "get well soon" and you're just like... Thanks, I won't.
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spooniestrong · 1 year
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Can you talk about inclusion body disease in snakes? I've heard of it here and there and tried looking into it but would really appreciate an experts info dump on it.
I have a nice big post on it here!
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221bluescarf · 2 years
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IBD problems
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