#weird like uses a mobility aid?? | Explore Tumblr Posts and Blogs

chronicsymptomsyndrome · 3 months

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just saw someone answer an ask with “aw why are you intimidated by me? I’m never mean! <3 well unless you’re weird lol”

sounds like every kid I went to high school with wow what a mean as fuck thing to say

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defiantcripple · 1 month

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The crippled urge to go "nice cane" to every other cane user you see

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thedisablednaturalist · 6 months

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It's awful when I'm on the job and an elderly person asks me for help bending over/picking something up especially when they ask so nicely.. I haven't been able to find a polite way to refuse. It's hard being the designated young person when you're invisibly disabled

#wrenfea.exe #bc i don't really use mobility aids in the field other than my walking sticks #and i didnt have them today #usually my coworker steps in but he wasnt here today #my back is still pretty fucked up and i cant really bend over or lift things quite yet #its also the same thing with having to give your seat up on the bus #even though you need it bc everyone around you assumes you dont #had an old lady just stand and glare at me and didnt even say anything when i asked if she wanted the seat #when i tried to explain i need to sit she just stepped closer and stared down at me it was fucking weird #like the homer simpson meme #chronic disability #chronic pain #spoonie #fibromyalgia #disability #from the field #working while disabled #invisible disability

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worms-in-my-brain · 7 months

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To my cane:

Thank you for being here.

Because of you, I can go out, even on bad days.

I don’t have to worry about planning extended outings around how long I can stand once my pain gets to a 7 or an 8.

I can be excited to walk and stand without impatiently waiting for the next moment I can sit down.

You’re an extension of me, you’re a third leg. When I’m using you, you don’t feel like something I’m holding.

I feel safe with you in my bag or in my hand, knowing that if I need you, you’re there.

So thanks. :)

#ALSO like I said mobility aides are EXTENSIONS of the person using them so DO NOT EVER touch or take them from us!#imagine if someone like g grabbed your arm and starting using it to like. idk pet a dog or something #it’s fucking weird #and an invasion of our personal space & autonomy #disability #disabled #actually disabled #mobility aid #mobility impaired #cane

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gregmarriage · 1 month

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the thing about being chronically ill, is that i currently have a cold, and i’m in bed, playing smash, but it’s not really that different from any other day

#i have weird cold brain fog etc #but otherwise it’s the same as always imao #perhaps if was one to be able to move around more and go outside like other people do all the time #but alas #what’s that like? i’ve genuinely forgotten #i’ve been bedridden for four years and i basically live in my room and the only other room i see is the bathroom #and i go outside like once a year and that’s mostly only medical reasons #i don’t count being bedridden in hospital as a change of pace in any way #if anything it’s more boring #i also genuinely don’t remember what it was like to not be ill #i’m so used to the way my body is now and this being ny new normal #that i can’t remember when i wasn’t like this #i used to be able to move around without a mobility aid?#doesn’t sound realistic #sometimes i get sad about it all #but like i’m getting sad about something i barely remember which is even more sad #anyways daily gwen ramble i guess #always fitting >#gwen rambles #gwenposting

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kirby-the-gorb · 2 years

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they sent my wife home from work ostensibly for using a cane, even though it didn't interfere with her duties as a medical resident and the whole point was she was well enough to work with the extra support. (even the most charitable interpretation, that they assumed the presence of a mobility aid meant she was too ill to work regardless of what she said, is a serious issue.) happy disability pride month I guess, kirby's fixin to start whackin.

#kirby #coronavirus #ableism #daily kirby #my art #digital #hal laboratory #nintendo #I'm pretty upset about it honestly?#like. it belies a fundamental misunderstanding of what mobility aids even are #(treating them as a symptom rather than a solution)#and it further pushes anyone who might benefit from use of an aid away from using it #because they're essentially told they have to burn the extra spoons to be able-passing or not show up at all #she could have worked today!#she wasn't an infection risk and she'd been doing a good job of pacing.#but their weird hangups cost her an extra sick day instead.#if they pull the same stunt tomorrow I will be talking to people in my capacity as a disability advocate #regardless of whether they want to listen to her.

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the-furies · 1 month

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on one hand. loottta ideas 4 sk!llshipping art rn bc system things. on the other hand we r procrastinating on drawing them bc will people be Normal,

#normal as in dont be like 'hey those two together dont make sense' we don't control who gets with who here okay #i wanna sketch a specific couple rn but im worried people r Soooooo going to be like That makes no sense abt them #and I'm like. Listen. if you just hear me Aout abt some headcanons #[read: things tht r just Tru abt them in lur system] it'd make so much ssense #but alas. Anyways #pk;m Electrochemistry🔴#also to draw them i need to teach myself how to draw mobility aids better. hmmmmmb. this is doable #actually now that i think abt it all tho outside of maybe like One pairing sk!llshipping is just. possibly a mess sorta #in that there's 24 [26? sorta?] of us so it's like mix and match hauve fun w it. what im tryig to say is that #it's not That serious and afaik again outside of One Pairing [iykyk] it's like WHO'S shipping pt with phys instrument??#who tf is shipping drama and encyclo? etc etc.#and the answer is ME MOTHERFUCKER! BC OF SYSTEM SHIT AUSUSIDJDIDIDIKZ #speaking of wr do have a sketch of shivers & concept in the works. but it was started by HL but it hasn't front3d in a whileeee #perhaps i shall finish the drawing for it bc it's a cute drawing. ok im done rambling #does any of this make sense?? like my point is theres so many of us and we're kinda rlly minor characters in the grand scheme of things #so like. gestures vaguely!! im running out of words.#anyways i judt need people 2 not be weird abt our next drawings ok? ok thank you

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mosspapi · 1 year

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Do any cane users on here also skateboard? I'm really missing it and want to try getting back into it, partially just for fun but also because I think it would be easier to get around campus that way, but idk if it's possible to do while holding a cane (because I need the cane to walk).

I know I can still safely skateboard without the cane, because I took classes specifically to learn to skate again after my parents finally admitted that my problems weren't going away, but the issue is that once I'm done/get where I'm going, if I'm not able to take the cane with me I won't be able to do anything, so it seems kinda pointless.

Obv is not super safe to not have both hands free but I don't think that would be a Huge deal? I've seen other disabled ppl skate but they haven't been cane users/limited mobility so I'm just wondering if it's an option yknow. Like would I hold the cane? Strap it to my back? Use it to push instead of my foot? Idk- if any of y'all can still do it, how? Or is it something I'll just have to give up entirely /g?

#armchair speaks #idk. maybe I should just give up trying and cut my losses but also I really don't want to lose it if I don't have to yknow #I'm in a weird mood since moving home because I no longer have the freedom I used to and am just grasping at straws to find smth I can Do #since I no longer have control over any aspect of my life aside from when I take a shit so it's like. idk #chronic illness #disability #actually disabled #mobility aid #mobility aid user #cane user #skateboarding

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hillbillyoracle · 2 years

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Same folks saying “pay your artists” complaining about cost of individualized accessibility aids. The people who spent time training for years and making them deserve paid for their skill too y’all. A lot of the people making them are disabled themselves.

There is a difference between aids made by a mega-corp and ones made by an individual.

If you look at an individualized aid and go wow that’s too expensive - that’s pretty discouraging and devalues the work. Maybe comment about how it reminds you about how we should be paying people on disability way the fuck more and not cap their savings instead. Just, food for thought.

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dont-let-me-live · 8 months

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Does cfs count in cripplepunk or am i just punk

#chronic illness #chronic pain #i have been called cripple tho #but thats because of hypermobility #spoonie #i got weird fucked up painful joints #but its not visible so i dont know #like im not using mobility aids because i cant afford them and the sidewalks are a nightmare even without them #disability

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nuclearnyx · 1 year

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people who don't use the tags to be sad and vent are so powerful lmao couldn't be me

#real talk it has been BAD lately #the POTS has gotten MUCH worse lately #for example. yesterday i had to call someone to bring me a sports drink because sitting up in bed made me almost lose consciousness #like i am DREADING leaving the house because im having minor-ish episodes at least twice a day #and the new scary part is that when i have an episode i cant speak well #i can say a few words at a time but thats it #which is scary and also frustrating because people tend to freak out and ask a lot of questions and its hard to answer #and it sucks because i know i cant do certain things when im home alone anymore #like showering (huge trigger) or cooking (also trigger sometimes) because its honestly kinda dangerous now #its very humbling to have to lie down on the floor because painting for 20 minutes triggered an attack #and a lot of the people around me arent handling it well so thats a whole OTHER set of issues #im honestly thinking of writing out a 'what to do during an episode' plan for the people in my family to make it easier #and another 'how we explain this to people' plan because everyone is giving different accounts and kinda minimizing to not scare people #which i get because it all SOUNDS very scary and we dont want people to be worrying (and frankly bothering us about it)#but if i show up to an event or whatever and have an issue or i start using a mobility aid (maybe?) they'll get weird #ANYWAYS this all sucks but also im hanging in there (and yes my doc is on top of this dont worry)#its going to be really interesting to see how things play out over the coming weeks and months

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drama-dick · 2 years

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I was watching a show and I literally forgot that most people aren’t cane or walker users asdkflgla like what do abled people do with their hands?? So awkward :/

#honestly tho it was weird bc these characters weren’t doing anything with their hands #and if I’m using a walker I’m using both or a cane at least one hand #I’ll be watching something and be like why aren’t there any mobility aid users??#unrealistic tbh #spoonie #disability #disabilities #just spoonie things #disabled #cane user #walker user #cripple problems

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jentlemahae · 2 years

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i would rather swim naked in an active volcano than go to my cousin’s grad party but okay

#90% of the ppl there dont know i use a mobility aid and i k they’re gonna be weird #and theyre such small minded ppl my god #and talking to them is exhausting bcs a) they dont speak english so i have to apply myself and make sense in italian which is difficult for #me + they are so anxious it’s exasperating i cant say anything without them getting nervous + they don’t understand anything about my #situation so all they do is judge me and look at me like im gonna die the next day #i would literally rather get hit by an airplane #ugh i hate i hate i hate #tbh i think im too used to my mom who is so chill (when u avoid certain topics of conversation)#like i told my mom i thought she should have a/orted me and she was like ok! my dad would ve booked me to see a therapist fshsj #also i can have such stimulating and interesting convos with my mom cause shes so smart #her side of the family is so smart and interesting and diverse in general while my dads side is just so …. italian and thats not a complimen #also some hs classmates will be there which UGH #i know i should be okay and i shouldnt feel embarrassed about my disability but those people literally traumatized me for years #:( my three weeks in italy will literally be hell on earth i just wanna see my grandma

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piplupod · 2 months

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of course the day i find a large yellow crate beside a dumpster that I decide to grab and bring home is the day the bus is full of ppl and i have to sit beside another person with my crate that comes up to my knees while on its short end fjdkdl

#i felt bad for the person sitting next to me but i was very good at squishing myself as small as possible fjdldl #also ppl in this town have TERRIBLE bus etiquette omfg #ppl refuse to move seats for ppl who need priority seating #and they never move their bags that they have on the seats next to them when theres no other seats available #so actually i dont feel all that bad for my seatmate bc they should've moved their bag without me asking them to fjfkdl #like. sorry but u are sitting at the front of the bus !! thats the easiest spot to sit down when u have another object to hold !!#whenever other ppl get on the bus that are carrying things or using a mobility aid I'll move seats #towards the back of the bus so they can have priority seating #and if someones getting on and theres no double seats available then i will move my bag onto my lap!!!#i feel like that's basic courtesy but fnfjsl idk maybe thats not a well known thing. or maybe ppl here are just rude as hell DBHDSKL #anyways i have obtained a large yellow crate and im amazed that nobody gave me a hard time for it #i got some weird looks as i walked thru the hospital w it but fjdkdl that was it #and im surprised the bus driver didnt say anything fjdksl i wasnt sure if it would be allowed on #and now i have a crate to store yarn in :]#and also a dumpster find which is ALWAYS a very good day bc it happens so rarely #i almost took a few bouquets home that were strewn across the sidewalk beside the dumpster but i thought that might be too weird #and also i was worried they'd be gross or dirty somehow so i had to leave those ;-;#but the crate at least can be cleaned and used !!#one hand is broken but that's okay bc i wont be using it for carrying! just prop it up sideways for stacking yarn inside!#pippen needs 2nd breakfast

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normal-with-adhd-is-a-joke · 2 years

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Filming people without their consent is a massive issue of not only privacy but ableism that's been going on for many years.

It started out with filming more visibly disabled people, like high support needs autistic people having meltdowns in public and (especially fat) disabled people literally just using mobility aids, but once that was deemed less acceptable it moved to other things. Filming people acting "weird" in public. Eating weird foods. Falling asleep in weird places. Wearing weird things. Stimming. You get the idea. It's no longer safe to be visibly weird in public and that's an issue for a lot of disabled people. I recently had to lay down on the floor of a department store because I had an ME crash while out shopping. Not only did I have to worry about the normal things like people coming up to ask me if I'm ok, I also had to worry about some video of me at my lowest point, when I'm suffering immensely, being shared around as "haha look at this weird bitch on the floor". It's upsetting. It's scary.

And then there's fakeclaiming. A fun trend where people will film us in public to "prove" there's some kind of huge epidemic of people faking disability. Spoiler alert: there is not. Most of the time the people they film are real disabled people who don't fit into the expected mold for disability, usually service dog teams or people who use mobility aids who don't "look sick". And you would think this trend would be some kind of abled nonsense, but it's not. It's often other disabled people doing the fakeclaiming. Yes, there are some times when it's obvious a service dog isn't trained properly, but other than that, it's damn near impossible to tell if someone is faking a disability, and you're much more likely to target a disabled person than a faker. I'd love to say this trend was new, but it's been going on since the days of "the people of walmart" where many of the people posted were fat mobility aid users, always with the assumption that they used it because they were too fat or lazy to move on their own. In fact, the image of a fat person in a mobility cart has become almost synonymous with "lazy". It's one of the things that drove me to get my own expensive power wheelchair, to avoid the judgmental stares in the grocery store when I was just trying to exist, to avoid the fear of public shame. Even now when I stand up from my chair to walk to the bathroom stall or reach something on a high shelf, I watch the corners of my vision for that telltale phone in the air. I feel like I'm never safe from the judgemental eye of the internet, even when I'm logged off, and I'm sure I'm not the only person who feels that way.

Tik Tok, YouTube, Instagram, these places are all great for disabled people, especially those of us without access to the outside world. But it's also become a source of great anxiety for anyone who's uncontrollably "weird", mostly disabled people. Leave us alone, I'm begging you, we just want to go to the fucking grocery store in peace and safety.

Tl;dr

Stop filming people for "acting weird" or "faking a disability" in public. It's ableist, it's invasive, it's creepy, and it's humiliating. People don't exist in public for your amusement and especially not disabled people. You don't know who is disabled and who isn't no matter how many disabled people you've known or how sure you are that the person is faking.

#actually disabled #madpunk #cripplepunk #spoonie #chronically ill #ableism tw #been meaning to write this up and the last post I rbed reminded me

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