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Ohhhh midodrine.

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Does anyone have tips on how 2 deal w chronic fatigue nd brainfog, am suffering constantly

#actually chronically ill #chronic illness #pots syndrome #dysautonomia #brain fog #fatigue

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Something upsetting is tht sometimes it feels like my parents blame me for my limitations caused by My chronic illness, for example, ill eat nd ill feel ill so i lay down for a few hours, my dad will see me laying nd say im lazy nd dont do anything 2 help myself, like iak trying my best, i dnt choose the nausea, or if its hot out nd i start feeling ill my mom just thinks im exaggerating when ive explained to her why that happens. My mom also doesnt take my health seriously it seems bc ill b like "i cant eat tht thing, it will make me feel sick" she will b like "but i made it 4 u 🥺" nd ill b like???? but u kno wht i can nd xant eat so whyd u make me this when u kno u put stuff i cant eat in it???? she will try nd convince me its ok to eat nd it gets on my NERVES!! when im laying im called lazy nd when i try nd actually help myself shes not happy. wht do u want from meeeee

#dysautonomia #potsie #pots #pots syndrome #actually chronically ill #chronic illness #chronically ill #spoonie

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Me waking up at 3am with a heart rate of 170:

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anyone else w dysautonomia have Seasonal Sweet Spots

like right now i'm in the stretch of weeks in spring where things are just ok. barely need my wheelchair. i can go hike all willy nilly and shit right now.

but as soon as the daily high temperature starts reaching higher than 75F things will very quickly suck again

#hope this is ok to rb! #but me too rn #the weather mixed w the wind is perfect #nd i feel pretty okay #but ik once the weather gets even slightly higher #i will b a mess

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When I have an energy drink even though I know it’ll just make me sweaty and dizzy

#me literally rn drinking a monster DFKJGSKDJFH

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Most people are still surprised when I say I have ADHD. It’s not that I hide it on purpose - a lot of it is ingrained into me in order to avoid ridicule and trouble. Here are more ways I (consciously or not) hide my ADHD!

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If you get (what you may think is) seasonal depression but during the summer instead of during winter, check for symptoms of dysautonomia.

For a lot of people with dysautonomic disorders (POTS included) hot environments are hell. This goes x2 if the hot environment you’re in is humid rather than dry and things such as hot showers and saunas make you dizzy or tired (nothing worse for us than humid heat).

This happens because the extra warmth makes our blood vessels dilate even more than they already inadequately do and too dilated blood vessels may make your blood pressure low or unstable, which in turn means your upper body is deprived of enough oxygen (your blood is pooling down in your feet instead of being pushed upwards thanks to more constricted blood vessels). Most worryingly, our brains are being deprived of enough oxygen.

An oxygen deprived brain, especially if deprived of it persistently through time, causes chronic fatigue and brain fog, two symptoms often misdiagnosed as depression, since you have no energy to even think, focus or have good memory (brain fog), much less to be active, experience pleasure/enjoyment, or be motivated. It can also reduce sex drive, among many other things.

On top of that, experiencing chronic fatigue and brain fog is very likely to make you genuinely depressed, because it’s very debilitating, confusing, emotionally miserable and hard to combat.

#this is actually so interesting #bc my entire life i got this #nd i only got diagnosed w diasutomnia like #over the summer #this makrs so much sense

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No, but seriously. If whenever you get up from wherever you start to feel faint, get palpitations, get numb, get nauseous, get light-headed and/or literally feel your blood drop to your feet, check the symptoms of Postural Orthostatic Tachycardia Syndrome.

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hello fellow victims of the mental health system can i interest you in a fresh new meme

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Being used to suffering does not mean it doesn’t hurt anymore

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Is it just me?

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this user is pro self diagnosis