mamas-still-doing-it-all

[mamas-still-doing-it-all]

I just keep going. No matter what… even when I don’t know how I do it. I take this pain everywhere I go, all the way up with me and all of my successes.

#spoonie #stills #sjia #lupus #autoimmine disease #hlh #awareness #hlhs #raredisease #chronic illness

[mamas-still-doing-it-all]

I wish an invisible illness was invisible to the person who has it too.

#spoonie #stills #sjia #lupus #autoimmine disease #hlh #awareness #hlhs #raredisease #chronic illness

[mamas-still-doing-it-all]

Trying to avoid a flare is like trying to avoid life. Impossible

#spoonie #stills #sjia #lupus #autoimmine disease #hlh #awareness #raredisease #hlhs #chronic illness

[mamas-still-doing-it-all]

As the volunteer editor for EJF, I am proud to announce that EJF has now been recognized as a non-profit. EJF aims to raise awareness for HLH, Stills Disease and all rare diseases.

#hlh #sjia #stills #lupus #spoonie #hlhs #autoimmine disease #raredisease #awareness

[mamas-still-doing-it-all]

Trying to keep up with the non spoonies of the world is exhausting

#spoonie #chronic illness #stills disease #chronic pain #spoonie problems #mamas still doing it all

[mamas-still-doing-it-all]

Pain, stress and life... not sure how I do this but I do it well

#spoonie #chronic illness #stills disease #chronic pain #spoonie problems

[mamas-still-doing-it-all]

To all the spoonies awaiting the new year... we made it through 2020. That is a huge accomplishment.

#spoonie #chronic illness #stills disease #chronic pain #spoonie problems #spoonie life #spoonie blogging #mamas still doing it all #chronc illness #smile

[mamas-still-doing-it-all]

As a spoonie trying to make it through the war on drugs with the pain meds I actually need is hell

#spoonie #chronic illness #stills disease #chronic pain #spoonie problems #spoonie life #spoonie blogging #mamas still doing it all #chronc illness

[mamas-still-doing-it-all]

Some days I can’t wait for morning, for a fresh start... but I just can’t sleep.

#spoonie #chronic illness #stills disease #chronic pain #spoonie problems #spoonie life #spoonie blogging #mamas still doing it all #chronc illness

[mamas-still-doing-it-all]

If there is something that makes you smile, do it as much as you can. And if there is someone who makes them smile, spend as much time as you can with them. Just smile as much as you can because as spoonies some days it’s hard to find anything to smile about.

#spoonie #chronic illness #stills disease #chronic pain #spoonie problems #spoonie life #spoonie blogging #mamas still doing it all #chronc illness #smile

[mamas-still-doing-it-all]

As a spoonie it’s okay to be kind to yourself. Especially at this time of year. You have nothing to prove to anyone.

#spoonie #chronic illness #stills disease #chronic pain #spoonie problems #spoonie life #spoonie blogging #mamas still doing it all #chronc illness #smile

[mamas-still-doing-it-all]

As a spoonie you have to put yourself first... always. Your life may depend on it.

#spoonie #chronic illness #stills disease #chronic pain #spoonie problems #spoonie life #spoonie blogging #mamas still doing it all #chronc illness

[mamas-still-doing-it-all]

You are amazing.... whatever your struggle is you’re getting through it. It’s that special spoonie power only other spoonies really understand.

#spoonie #chronic illness #stills disease #chronic pain #spoonie problems #spoonie life #spoonie blogging #mamas still doing it all #chronc illness

[mamas-still-doing-it-all]

Wear a mask... even if you can survive corona... why would you want to increase your chances of catching it.

[mamas-still-doing-it-all]

As a spoonie, sometimes you have to choose between your health and someone in your life.

#spoonie #chronic illness #stills disease #chronic pain #spoonie problems #spoonie life #spoonie blogging #mamas still doing it all #chronc illness #smile

[mamas-still-doing-it-all]

Keep going... no matter what just keep moving, I promise you’ll get there.

#spoonie #chronic illness #stills disease #chronic pain #spoonie problems #spoonie life #spoonie blogging #mamas still doing it all #smile #chronc illness

[mamas-still-doing-it-all]

#spoonie #chronic illness #stills disease #chronic pain #spoonie problems #mamas still doing it all #chronc illness #smile #spoonie life #spoonie blogging