#SJIA

[graysongoal]

Not all juvenile arthritis types are autoimmune (as one photo the Arthritis Foundation shared today claims). Systemic JIA, also called Still's Disease, is actually autoinflammatory. That means the dysfunction is in the innate immune system, not the adaptive immune system, signaling possible genetic issues.

There has been a growing debate in the last decade about removing SJIA from the major three JIA types due to its different nature, something that might help push more research and treatments in the right direction.

This is also the type of arthritis that I have had for nearly 30 years now, the one that has nearly killed me a few times, and the one that took my best friend and fellow activist Laura Jayne Kenyon from us in 2012.

That's right - complications from arthritis can be deadly. That's especially true for this specific condition. It can be hard to get under control. Even when you do, Macrophage Activation Syndrome (MAS) can pop up at any time, bringing a host of complications including organ failure and death. MAS is notoriously hard to control and requires quick moves, making the odds of surviving even lower.

Even without MAS, the organ complications are rough. I've had arthritis attack my eyes, my GI system, my chest and heart, and more.

So, when I talk about having arthritis, know that this isn't just bone pain or joint swelling.

#juvenile arthritis #sjia #stills disease #systemic juvenile idiopathic arthritis #autoinflammatory #world juvenile arthritis day

[jiateen]

Why am I fighting so hard for a future I never even stood a chance at getting?

#jia #invisible illness #chronic illness #ra #sjia

[spooniestrong]

In recognition of World AUTOimmune & AUTOinflammatory Day today, know that AiArthritis diseases are full-body diseases triggered by the immune system - conditions like #RA #PsA #Lupus #SpA #spondy #spondyloarthritis #Stills #Sjogrens #JIA #JRA #AOSD #sJIA #SLE #rheum

#spooniestrong #spoonie #may #world autoimmune and autoinflammatory day

[nicejewishgirl]

Since I’ve been pretty bedridden (and VERY unresponsive to treatment), I’ve decided to continue researching my disease to the best of my abilities. The best paper has come out of University of Padova in Italy! I am crafting a message to the authors of the study to see what they have to say to my questions but also get their input on my mom and my Still’s. Our story / case studies really bolster their claims (between my mom’s acute respiratory distress syndrome, my chronic inflammatory anemia, how we respond to treatments and so much more) in this paper. My mom grew up near Vicenza so I kinda think it would be cool to see if we could go to Italy for the newer purposes treatments for sJIA/Still’s disease.

#I also would have interest in Japan due to their breakthroughs w/ Stills #as they are responsible for the yamagachi criteria for diagnosis!! #stills disease #systemic juvenile idiopathic arthritis

[damngoclam11]

Thuốc Tocira 400mg Tocilizumab trị viêm khớp dạng thấp mua ở đâu

Thông tin Thuốc Tocira 400mg

Thành phần hoạt chất: Tocilizumab 400mg.

Dạng bào chế: Dung dịch tiêm

Quy cách: Hộp 1 ống dung dịch tiêm 20ml.

Nhà sản xuất: Hetero HealthCare – Ấn Đ

Chỉ định, chống chỉ định của Thuốc Tocira 400mg

Chỉ định:

Nó được sử dụng để điều trị cho người trưởng thành mắc bệnh viêm khớp dạng thấp (RA) ở mức hoạt động vừa phải, những người không có phản ứng đủ tốt với một hoặc nhiều loại thuốc chống viêm khớp và thay đổi cấu trúc xương (DMARD). Ngoài ra, nó cũng được chỉ định cho việc điều trị bệnh viêm khớp tự phát đa khớp ở trẻ vị thành niên (PJIA) và bệnh viêm khớp tự phát ở trẻ vị thành niên (SJIA) ở các bệnh nhân từ 2 tuổi trở lên.

Chống chỉ định:

Không thích hợp cho người có quá mẫn với thành phần hoạt chất hoặc bất kỳ chất hỗ trợ nào. Không nên sử dụng trong trường hợp có nhiễm trùng nặng đang diễn ra.

Dược lực học của thuốc Tocira 400mg

Sự giảm của protein phản ứng C (CRP) đã được ghi nhận từ tuần thứ hai. Có những thay đổi đáng kể trong các chỉ số dược lực học (bao gồm giảm yếu tố dạng thấp, tốc độ lắng hồng cầu (ESR), amyloid huyết thanh A và tăng huyết sắc tố), tuy nhiên, cải thiện lớn nhất được quan sát thấy khi sử dụng liều 8 mg/kg tocilizumab. Các thay đổi dược lực học tương tự cũng đã được ghi nhận ở bệnh nhân trẻ vị thành niên mắc bệnh viêm khớp tự phát đa khớp đang hoạt động và ở bệnh nhân trẻ vị thành niên mắc bệnh viêm khớp tự phát đang hoạt động.

Động lực họchttps://thuockedon24h.com/thuoc-tocira-400mg-tocilizumab-tri-viem-khop-dang-thap-mua-o-dau/

[medicalscout]

Stills Disease

There are two types of Still’s disease: systemic juvenile idiopathic arthritis (sJIA) and adult-onset Still’s disease (AOSD). Both types of Still’s disease are thought to be caused by an overactive immune system, but the exact cause is not yet fully understood.READMORE

#Stills Disease #Stills Disease Symptoms #Stills Disease Treatment #Stills Disease Causes #Stills Disease Diagnosis

[martblogs]

Dry Block Thermostat Market Research Report 2022 to 2028: Industry Trends, Regional Wise Outlook, Growth Projections and Opportunities

This report provides a comprehensive analysis of current Global Dry Block Thermostat Market based on segmented types and downstream applications. Major product development trends are discussed  under major downstream segment scenario. This report also focuses on major driving factors and inhibitors that affect the market and competitive landscape. Global and regional leading players in the Dry Block Thermostat industry are profiled in a detailed way, with sales data and market share info. This report also includes global and regional market size and forecast, drill-down to top 20 economies.

 According to this survey, the global Dry Block Thermostat market is estimated to have reached $ xx million in 2020, and projected to grow at a CAGR of xx% to $ xx million by 2028.

 Get Sample Report @ https://martresearch.com/contact/request-sample/2/63135

Covid-19 pandemic has impacted the supply and demand status for many industries along the supply chain. Global Dry Block Thermostat Market Status and Forecast 2022-2028 report makes a brilliant attempt to unveil key opportunities available in the global Dry Block Thermostat market under the covid-19 impact to help readers in achieving a better market position. No matter the client is industry insider, potential entrant or investor, the report will provide useful data and information.

 The Global Dry Block Thermostat Market has been exhibited in detail in the following chapters

Chapter 1 displays the basic product introduction and market overview.

Chapter 2 provides the competition landscape of global Dry Block Thermostat industry.

Chapter 3 provides the market analysis by type and by region

Chapter 4 provides the market analysis by application and by region

 Segmented by Type

l Refrigeration Type

l Constant Temperature Type

 Segmented by Application

l Enzyme Preparation Reaction

l Serum Inactivation Test

l RH Blood Sample Study

l Cross-match Test

l Other

 Get Enquiry And Buying @ https://martresearch.com/contact/enquiry/2/63135

 Segmented by Country

   North America

       United States

       Canada

       Mexico

   Europe

       Germany

       France

       UK

       Italy

       Russia

       Spain

��  Asia Pacific

       China

       Japan

       Korea

       Southeast Asia

       India

       Australasia

   Central & South America

       Brazil

       Argentina

       Colombia

   Middle East & Africa

       Iran

       Israel

       Turkey

       South Africa

       Saudi Arabia

 Get Discount Report @ https://martresearch.com/contact/discount/2/63135

 Key manufacturers included in this survey

l Stuart

l SHEYANYIQI

l Shanghai LeewenScientific Instrument Co.,Ltd

l Ruicheng Instrument Co., Ltd

l Ningbo SJIA Instrument Co., Ltd

l MIULAB

l IKA

l Hangzhou Maofeng Instrument Co., Ltd

l Hangzhou Allsheng Instruments Co.,Ltd

l Haimen Kylin-Bell Lab Instruments Co.,Ltd

l Hach

l Grant Instruments

l Changzhou MAIKENUO Instrument Co., Ltd

l BOECO

l Biosan

 Contact Us:-

[phone]

 [email protected]

 [email protected]

#Dry Block Thermostat Market #Dry #Dry Block Thermostat

[raqueldelengua]

🌟Nuestra #Navidad2022🌟 🫶🏽Porque la Navidad, como la vida, se compone de muchos pequeños momentos. Algunos fáciles, otros difíciles y unos poquitos felices. 💝Capturando estos últimos que son los tesoros que quedarán en el recuerdo y que ayudan a construir infancias sanas y felices. #losreyessonlasmadres #lanavidadlaconstruyenlasmujeres #mamilovesyouboth #momlovesyousomuch #mamidefamilianumerosa #mamiluchadora #laigualdadcomienzaencasa #RachelsDiary by #RaqueldeLengua https://www.instagram.com/p/CnHSkr-sjiA/?igshid=NGJjMDIxMWI=

#navidad2022🌟 #losreyessonlasmadres #lanavidadlaconstruyenlasmujeres #mamilovesyouboth #momlovesyousomuch #mamidefamilianumerosa #mamiluchadora #laigualdadcomienzaencasa #rachelsdiary #raqueldelengua

[navalvessels]

Genentech’s Actemra gets FDA breakthrough therapy status for scleroderma

Roche Gathering auxiliary Genentech has gotten advancement treatment assignment from the US Food and Medication Organization (FDA) for its Actemra (tocilizumab) to treat patients with systemic sclerosis (scleroderma).

Roche Gathering auxiliary Genentech has gotten advancement treatment assignment from the US Food and Medication Organization (FDA) for its Actemra (tocilizumab) to treat patients with systemic sclerosis (scleroderma). For more regional insights into the Systemic Sclerosis clinical trials market, download a free report sample

Systemic sclerosis is an uncommon and ongoing problem, which is described by vein irregularities and degenerative changes, as well as scarring in the skin, joints and inward organs.

Actemra is professed to be the primary acculturated interleukin-6 (IL-6) receptor adversary that is supported to treat grown-up patients with modestly to seriously dynamic rheumatoid joint inflammation (RA).

What's more, Actemra is utilized as an IV detailing for patients with dynamic polyarticular adolescent idiopathic joint inflammation (PJIA) or systemic adolescent idiopathic joint pain (SJIA) two years old and more seasoned.

Genentech worldwide item improvement head and boss clinical official Dr Sandra Horning said: "The advancement of Actemra in

Systemic Sclerosis Clinical Trial addresses our obligation to serious rheumatic sicknesses.

"This leading edge treatment assignment highlights the neglected need in systemic sclerosis and the capability of Actemra to assist patients with this weakening immune system issue."

The leading edge treatment status was given in light of the company's multi week information from the Stage II faSScinate study.

As per the firm, the essential endpoint of progress in skin thickening at 24 weeks was not met as surveyed by the Rodnan skin score, while in the second piece of the review there was proceeded with progress in skin thickening between weeks 24 and 48.

The organization began multicentre, randomized, twofold visually impaired and fake treatment controlled Stage III trial (NCT02453256), in view of the Stage II outcomes and the neglected need in patients with systemic sclerosis.

#Systemic Sclerosis Clinical Trial

[your-dietician]

Girl, 14, Denied Autoimmune Medication Due to Arizona's Near-Total Abortion Ban

New Post has been published on https://medianwire.com/girl-14-denied-autoimmune-medication-due-to-arizonas-near-total-abortion-ban/

Girl, 14, Denied Autoimmune Medication Due to Arizona's Near-Total Abortion Ban

After the Supreme Court overturned Roe v. Wade, a 14-year-old child with rheumatoid arthritis was initially denied medication essential to her quality of life because she was of “child-bearing age” and could become pregnant, her mother and doctor told TODAY. After confronting the pharmacist, the mom said the prescription was filled 24 hours later.

Kaitlin Preble, 34, has lost count of how many times her daughter, Emma Thompson, has been poked, prodded and hospitalized.

“When she was 3, she was diagnosed with systemic polyarticular juvenile idiopathic arthritis,” Preble, who lives in Arizona, told TODAY. “As a baby, she never crawled because she didn’t want to be on her knees — she went straight to walking. When she was 2, she started limping and telling me her foot hurt.”

Juvenile idiopathic arthritis is an autoimmune or autoinflammatory disease in which the body’s immune system attacks the joints and causes pain and inflammation, according to the Arthritis Foundation. A reported 10 to 20% of children with JIA have systemic juvenile idiopathic arthritis — “a rare but serious condition” in which the immune system attacks not just the joints but organs, including the liver, lungs and heart, per the foundation.

“Polyarticular” SJIA means that the body’s immune system attacks five or more joints in the body, according to Stanford Medicine. The disease can occur at any time in childhood, but most commonly starts at 2 years of age, and the cause is unknown, according to the Arthritis Foundation.

After 10 years of clinical trials, exams, lengthy hospitalizations and various experiments with dosages of the medication methotrexate — a drug prescribed to treat some cancers, arthritis and a number of autoimmune diseases, according to the National Library of Medicine — doctors finally developed a successful treatment plan and found an effective methotrexate dosage that allows Emma to walk, attend school in person, live relatively pain-free and “be the most normal,” Preble said.

On Sept. 25, when Preble attempted to fulfill her daughter’s methotrexate prescription, all of that was threatened.

‘I said she will suffer without this medication’

When Preble went online to see if all of her daughter’s medications had been filled at a local Walgreens, she received a notification that the methotrexate was denied.

“All it said was: ‘Please call doctor for more information,'” Preble explained. The mom called her daughter’s rheumatologist, Dr. Debra Power, and left a message with a nurse. Afraid for her daughter’s health and unable to sleep, the next day Preble drove to the pharmacy to get some answers and try make sure her daughter didn’t have to miss any doses of her much-needed medication.

“I asked them why the methotrexate was denied. The pharmacy techs, both looking at the computer, said they weren’t really sure,” Preble said. “Then the pharmacist, from the back, said she denied it yesterday.”

Preble told the technicians she believed she knew what was going on: After Roe v. Wade was overturned, Arizona enacted a total abortion ban in all cases except to save the life of the pregnant person, a law that dates back to 1864, according to the American Civil Liberties Union. Methotrexate can cause severe birth defects and is sometimes used off-label to end ectopic pregnancies and treat miscarriage, according to the National Birth Defects Prevention Study and the American College of Obstetricians and Gynecologists.

(An appeals court has since blocked the anti-abortion law. Abortions are now legal in Arizona up to 15 weeks gestation until at least Nov. 17, the earliest the case will be decided.)

The tech went back to talk to the pharmacist, and I heard the pharmacist say, ‘Well, she’s 14 years old.’

mom, kaitlin preble

“The tech went back to talk to the pharmacist, and I heard the pharmacist say, ‘Well, she’s 14 years old,'” Preble said, adding that because her daughter was considered “child-bearing age” the pharmacist had denied the medication. “The tech asked the pharmacist if she had looked at Emma’s history, and said, ‘If you look, you can see she’s been on this medication for years.”

After some back and forth, the tech returned, gave Preble what she said was an “I’m so sorry look,” and filled the prescription. Preble said she overheard the pharmacist change her mind after reviewing Emma’s patient history at the prompting of the pharmacy tech. Emma did not have to miss any doses of her medication.

TODAY reached out to Walgreens for comment. A spokesperson provided TODAY with a written statement reading, in part, that privacy laws prohibit them from discussing “individual patients.”

“Laws in several states may require a pharmacist to take additional steps prior to dispensing certain medications. These laws apply to all pharmacies, including Walgreens, and often put pharmacists in a difficult position,” the statement continued. “Our pharmacists will continue to comply with all applicable laws and regulations and work closely with prescribers as necessary, to fill lawful, clinically appropriate, prescriptions.”

‘I was shaking and in tears’

Preble was distraught during the discussion between the technician and the pharmacist.

“I was shaking and in tears,” she said. “I got really sick. I felt like I was having an anxiety attack. My daughter went from not being able to walk or play outside with other kids to where she is now. To think that it all could be taken away? That’s like trying to kidnap my child from me.”

My daughter went from not being able to walk or play outside with other kids to where she is now. To think that it all could be taken away? That’s like trying to kidnap my child from me.

kaitlin preble

Preble recounted all the suffering her daughter endured before she started taking methotrexate at the proper dosage. She said her joints and organs would flare up to the point that she couldn’t walk; she couldn’t swallow correctly and would throw up; she had severe acid reflex and hematomas on her intestines. Preble also said Emma’s bladder was impacted, so she would get severe UTIs and kidney infections; she had hypertension in her eyes; her lungs were impacted, and she had severe asthma.

Emma was forced to go to school at home, from third grade to just last year, according to Preble. At one point, the child almost died after she contracted the flu, her mom said.

“All of this has severely affected her mental health,” Preble said. “We’re doing therapy now, but there have been times throughout her young childhood life when she has said, ‘I don’t want to do this anymore mom.’ That is the scariest thing for me.”

‘The only word I can use to describe this situation is disgusting’

Even now, after her daughter was able to obtain the medication she needs, Preble can’t shake the trauma of what happened when it was first denied.

“It makes me feel crazy inside. It doesn’t make any sense to me, for anybody to be able to tell you what you can or can’t do with your body or that you can’t have a medication that’s going to save your quality of life,” the mom said. “Why would they even think that that’s OK, ever? I cannot wrap my mind around it. The only word I can use to describe this situation is disgusting.”

Power, Emma’s doctor, is just as disgusted, she told TODAY. When Roe v. Wade was overturned, Power warned her patients that they may encounter issues getting certain medications. Still, Power said she never imagined in her 20 years practicing rheumatology that a pediatric patient would be impacted, adding that she never received a notification from the pharmacy that Emma’s prescription had been denied. Asked whether Power was notified, Walgreens refused to discuss Emma’s case due to privacy laws restricting the release of medical information.

I’m angry and I’m frustrated that we can’t provide the standard of care that we are taught to give our patients.

debra power, rheumatologist

“I’m angry, and I’m frustrated that we can’t provide the standard of care that we are taught to give our patients,” Power told TODAY. “Do the people making laws, do they have medical backgrounds to understand what they’re forcing upon people? It’s very scary for my patient and her mother to think about anything changing because for the first time in a long time (Emma) is in a good position.”

Other patients like Emma have faced similar situations in which their methotrexate prescriptions have been denied. Earlier this year, an article published in the medical journal BMJ stated that patients “are reporting trouble accessing drugs for autoimmune diseases” after some states banned “abortion-inducing drugs.”

In June, the Arthritis Foundation issued a statement which read in part that “some anti-abortion laws hold the threat of legal action against health care providers who prescribe or provide these medications, making it more difficult for patients to receive them.”

My patient was denied necessary medication that allows her to go to school, grow as she should and develop mentally and physically over a fictitious fetus.

Debra power, rheumatologist

 The statement also noted that “much higher dosages of methotrexate are used for abortion than for arthritis,” adding that “a rheumatoid arthritis patient may get a maximum dose of 25 mg per week, whereas abortion requires three times that dose.”

“My patient was denied necessary medication that allows her to go to school, grow as she should and develop mentally and physically over a fictitious fetus,” Power said. “And what’s even more crazy: The amount of methotrexate she would need to hoard in order to use it for an abortion would be three months’ worth of the monthly prescription I write. She takes two pills once a week. If she took all eight pills at once, it would not cause the termination of a pregnancy — and she was still denied anyway.”

Preble knows that she may very well face issues filling her daughter’s medication again in the future. She said she’s prepared if that day ever comes.

“I was a young mom, so I know what it’s like to be that mom who is scared to stand up to people,” Preble added. “But you need to advocate for your kids, no matter what. You know your kid better than anybody else.”

Read full article here

[graysongoal]

Y'all! Savvy Cooperative is looking for 10-17 yr olds diagnosed with JIA, RA, PsA, Psoriasis, AS, Crohn's, UC, Uveitis, or HS to participate in an in-person study for just over an hour. 

#savvy #savvy coop #patient #patients #arthritis #juvenile arthritis #sjia

[nbcnews05]

NBA Leader: 24.7 PPG Jul 17, 2022 - A Hope and A Future - Paul McIlwraith https://www.youtube.com/watch?v=4gu6CJ-SjiA&utm_source=dlvr.it&utm_medium=tumblr https://www.kia.com

[blogger3231]

[yarddigger42]

Yailin La Mas Viral

Yailin La Mas Viral is an incredibly popular Spanish singer. She has a lot of fans and is known for many songs. Her fans have come to love her singing style, and she has become quite the social media sensation. Although she does not reveal her exact age, her popularity is increasing day by day. Her Instagram page has over 1.5 million followers and a lot of positive feedback. This song demonstrates her great talent, but what does she look like? Yailin La Mas Viral is a popular name in the world today. She is a highly recognized musical artist, and her hits include La Piri and Quimico UltraMega. In addition to breaking records, she also has a relationship with a famous Brazilian rapper named Rafael Saldanha. In this interview, she discusses her latest work with a fan. She also shares how she found fame. She hopes to inspire others with her music. Despite the fact that the disease is viral, the cause is unclear. It is thought to be caused by abnormalities in the immune system. Infections are thought to be a major trigger. However, in many cases, MAS is triggered by certain drugs, including biologics and NSAIDs. Gene mutations may also play a role. The symptoms of MAS vary greatly depending on the patient, but there are some important clues to help the doctor diagnose the disease. One of the most important characteristics of HLH is the genetic makeup of the patients. The genetic background of a patient also plays a role. In some cases, an infection causes a cytotoxic defect in the cells. Other forms of HLH may be caused by underlying inflammation. Regardless of the trigger, the inflammatory state of the patient is a major factor in the development of MAS. Furthermore, most MAS episodes occur during the active disease phase. MAS can cause the patient to experience a variety of symptoms. Learn More of these symptoms may include a high-pitched fever, mucous membranes and bruising. Acute MAS can also affect multiple organs. Severe cases may suffer from a lower consciousness, respiratory distress, and hypotension. The most common signs of the disease are pulmonary infiltrates and a decreased level of consciousness. A recent large-scale survey in the Dominican Republic found that 1/3 of the patients with HLH had a MAS episode. The most common episodes of MAS occur in the active phase of the disease. The most commonly observed MAS episodes occur at the onset and later phases of the disease. In the majority of cases, HLH is a result of a combination of genetic and environmental factors. The viral infection, meanwhile, can be caused by a virulent infection. The frequency of MAS episodes in sJIA patients with HLH is estimated to be one in every six patients. The earliest episode of HLH occurs in patients with sJIA. Infections with an acute infection may cause a MAS episode in an otherwise healthy patient. This disease has a high incidence of MAS. The patient's HLH will have a higher chance of developing the syndrome, but it will not cause any of these symptoms. The symptoms of HLH in sJIA are characterized by a combination of fever, severe gastro-intestinal involvement, and chronic infection. During the active phase, HLH can occur. In patients with HLH, a recurrence of HLH is not unusual. The clinical features of the disease are similar to those of patients without HLH. In these patients, the viral infection, however, may be more persistent. The clinical syndrome of HLH is usually accompanied by sJIA. The symptoms of MAS in HLH patients are similar to those in patients with sJIA without a mutation. Nevertheless, some mutations increase the risk of recurrence in the case of HLH. In a recent large multinational study, a patient with HLH had a recurrence of HLH in more than 30% of cases. Infections in the body are caused by a lack of immune system cells. The innate immune system responds to invading organisms by launching a generalized immune response. In contrast, the adaptive immune system uses specific antibodies to attack a particular type of infection. Both types of immune cells cooperate in the fight against infectious cells. The innate and the adaptive immune systems are crucial for the normal functioning of the body.

#Mas Viral #masviral.net #Learn More

[statestool81]

The musical artist and singer Yailin La Mas Viral is well-known throughout the Dominican Republic. The band is famous for their songs, which have been translated into several languages. They are considered one of the most influential artists in the country. Their latest album "The Last Time I Saw You" has topped the charts and has gained a large fan base. However, there is some controversy over the authenticity of the songs, as the artist has not released a statement on this.

In a recent large multinational study, it was discovered that MAS was associated with a high inflammatory state. Most cases of MAS occur during the active phase of the disease, which is often characterized by high inflammatory status. While Mas Viral has been identified, it is likely that a viral infection caused the condition. Whether this is a result of a virus or another factor, MAS is a devastating disease. The MAS clinical syndrome develops against the background of a chronically inflammatory disease. The MAS virus is a common infection in sJIA. Infection can initiate some MAS, including the first episode of HLH. The underlying inflammatory state of the patient also plays an important role in triggering the disease. Most episodes of MAS occur during the active disease phase. Nevertheless, the cause of HLH remains a mystery.

#Mas Viral #masviral.net #Learn More

[jiateen]

“ It’s ludicrous! Is this how my life is going to be? Are injuries from merely existing going to start appearing out of thin air now more frequently? How am I going to live? How am I going to take care of myself? I can’t be who I want to be because I’m trapped inside this stupid body!! I can’t even be alive let alone be as active as I want! I can’t even give blood! ”

#excerpts from my journal #jia #jra #juvenile rheumatoid arthritis #juvenile inflammatory arthritis #juvenile idiopathic arthritis #invisible illness #arthritis #chronic pain #chronic illness #sjia