its actually super fucking lonely not knowing anyone else with the same illness i have. ive only met one other person with it irl and were not friends we dont talk. i havent met anyone online with it (to my knowledge) and its so so fuckin ostracizing. ive got my fair share of supportive friends who can understand what i go through but no one who truly gets it. its exhausting.
in these following days, on where japanese racecourses are free to enter. i have to translate some of the racecourses so you don't want to get confused when to visit. hope it helps
yooo fellow arthritic.... technically im not properly diagnosed yet and a lot of the "markers" of arthritis are coming up negative but i do have textbook symptoms (and also some kind of weird internal shit goin on with my feet and finger joints? idk what the english word for it is) and they are kicking my ass full time especially bc the pain gets 10x worse when i actively use the hurty parts. 👍
I hope you can get diagnosed eventually :( getting diagnosed and being capable of getting prescriptions for anti-inflammatory medecine and shit has SAVED my ass from being perpetually sore all the time. Also I feel you, untreated arthritis is so much worse when those joints are active all the time. I just had an appointment with my rheumatologist today discussing how badly it hurts to simply stand up in one spot for too long, actually.
It's an absolute nuisance, that's for sure 😭 nothing like chronic pain to make a day great /s
I’ve made a excel chart about my joint pain to help me know the answers to tell my rheumatologist when I see him next week. My mother is perplexed and says not to show him the chart I’ve made (it’s color-coded!!!!) because then “he’ll send you to a different type of doctor,” but I am genuinely puzzled as to how I am meant to consolidate 3 months of data in my head otherwise????
slams head againts wall dear god why does the rain have to make me hirt so much i love the rain why am i in pain from it please cant i just enjoy something for once
With the amount of implants and hardware I have holding my skeleton together a person could conclude that I was in a very bad accident. Coincidentally the only accident I've been part of was being born.
I think I’ve been in mourning for years and I never even realized it. Mourning what was my idea of my ideal self. Mourning a future I’ll never have. Mourning the person I’ll never become. This is what they don’t understand— the grief. The heartache of the ‘what if’s’ and ‘could have been’s’— the detrimental spiral. There is no solution. No cure. There is only a feeling of helplessness. Desultory acceptance.