#patientperspective

[teachingrounds]

Patient Laura and her husband, Tyler, talk about what living with phenylketonuria (PKU) into adulthood is like. You can learn more at PKU.com.

#TeachingRounds #FOAMed #raredisease #genetics #patientperspective #Youtube

[joanreilly]

Efforts to make a comic about this have been holding me back, so I did a simple portrait sketch in order to shove it aside and get things moving again. The news is that damage to the temporal branch of my right facial nerve, due to my craniotomy in April, now allows me to aim judgmental/quizzical expressions at whomever I wish, all day and every day. I never could move my eyebrows independently before, so maybe that's #thepresent here. Some say the nerve may regenerate. I keep testing it hopefully, and also trying to #mindfully accept things as they are. I'm lucky to have retained as much function as I have. #symmetryisoverrated . . #graphicmedicine #comics #illustration #braintumor #patientperspective

#thepresent #braintumor #illustration #patientperspective #symmetryisoverrated #comics #graphicmedicine #mindfully

[mckenzieinstitute]

"The Physiotherapy Industry is Rife with Snake Oil" A 'personal diatribe' for your reading pleasure...credit - James Fell #PatientPerspective #FoodForThought #NotARecipe #McKenzieMDT http://bit.ly/2TYBr6G 🤔 (active link available in our bio) — view on Instagram http://bit.ly/2MMMilJ

#Instagram #IFTTT

[martellthacool]

Tweeted

A life-threatening illness puts the patient at the center of public health issues #publichealth #HealthcareForAll #patientperspective #patientvoice #patientneeds #bioethics #cysticfibrosis #65roses #organtransplant #doublelungtransplant pic.twitter.com/F2JCdFxnJ4

— SaltInMySoulBook (@Salt_In_My_Soul) March 12, 2019

#IFTTT #Twitter

[hcldr]

HCSM News

T4 Making an impact with #PatientPerspective in #MedEd, R&D tools - end users, #HealthIT & much more✨ And hopefully meeting more #hcldr peeps IRL! https://t.co/vi5A25t8YO

— Lisa Davis Budzinski (@lisadbudzinski) January 9, 2019

#HCLDR #HCSM

[pharmacyinpractice]

"Talk to the person with diabetes, but more importantly, listen to them" says Siobhan Gaffney

"Talk to the person with diabetes, but more importantly, listen to them" says type 1 diabetic patient Siobhan Gaffney #patientperspective #diabetes #pharmacy #pharmacist

How long have you had diabetes?

  43 years

  Does diabetes rule your life or do you control it?

  My diabetes used to run around my life, but at this stage of my life I like to say it co-exists with my me. Not happily all the time but it most certainly does not rule my life. I have never liked the word “control” and do not use the same terminology. Though it still used a lot by medical…

View On WordPress

[thebigdiabeteslieyou]

RT https://t.co/OqQAfF6uzQ RT @Reidy_Claire: Presenting my poster #ATTD2017 #review #patientperspective… https://t.co/6G9mcgI6hQ

RT https://t.co/OqQAfF6uzQ RT @Reidy_Claire: Presenting my poster #ATTD2017 #diabetes #review #patientperspective… http://pic.twitter.com/6G9mcgI6hQ

— bigdiabetesliereview (@bigdiabeteslier) February 22, 2017

Source: @bigdiabeteslier February 22, 2017 at 02:49PM More info Big Diabetes Lie Review

#TheBigDiabetesLie #TheBigDiabetesLieReview #BigDiabetesLie #BigDiabetesLieScam #IctmDiabetes #BigDiabetes

[teachingrounds]

This is Brantley's story about HLH.

#TeachingRounds #FOAMed #patientperspective #raredisease #hematology

[teachingrounds]

Solome receives blood exchange transfusions every five weeks to treat her sickle cell disorder. This is her #BloodStory

#TeachingRounds #FOAMed #BloodDonation #GiveBlood #PatientPerspective

[teachingrounds]

Katie (and her mother) went on Oprah to discuss what it was like growing up intersex, and the importance of support groups. 

#TeachingRounds #FOAMed #pediatrics #endocrinology #patientperspective

[teachingrounds]

"What do you think caused your addiction? How does it change your body or mind? These questions can start the conversation about the patient's explanatory model of addiction. Eliciting a patient's explanatory model can go hand in hand with understanding a patient's readiness to change and personal goals."

The biopsychosocial model of disease encourages us to share knowledge and decision-making with our patients, beginning with their understanding of their disease.

Helen E. Jack, et alia, "Asking How Our Patients Understand Addiction," American Journal of Medicine, Volume 132, Issue 3 (March 2019): 269–271.

#TeachingRounds #FOAMed #addictionmedicine #primarycare #opioids #painmedicine #patientperspective

[teachingrounds]

Q. What is pollen-food or oral allergy syndrome?

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A. Pollen-food syndrome is an IgE-mediated allergic reaction seen most commonly in adults who have environmental allergies (respiratory sensitization) and then develop swelling/itching in the mouth/throat after eating raw fruits/veggies that have proteins that cross-react with their pollen allergy. Felicia Sabartinelli shares her personal story with Oral Allergy Syndrome (OAS / Pollen Food Syndrome) and the importance of allergy education. 

#TeachingRounds #FOAMed #allergy #gastroenterology #patientperspective

[teachingrounds]

True/False: Most kids outgrow allergies to milk, egg, and/or soy by the age of 5 years.

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TRUE! Most kids, like 6-year-old Samuel Hill, who are initially allergic to milk, egg, and/or soy develop tolerance by the time they start kindergarten. 

Pro-Tip: Those with IgE-mediated wheat allergy may recover, while those with non-IgE-mediated wheat allergy (e.g. celiac disease) will not. Peanut and tree nut allergies also tend to persist.

#TeachingRounds #FOAMed #allergy #gastroenterology #patientperspective

[teachingrounds]

Jane lives in Singapore. She and her mother talk about living with MELAS.

#TeachingRounds #FOAMed #genetics #raredisease #pediatrics #patientperspective

[teachingrounds]

Pittsburgh video artist Dean Bog kicks off a week on allergies in kids with his confessional: "Life With A Deadly Peanut Allergy."

#TeachingRounds #FOAMed #pediatrics #allergy #immunology #patientperspective

[teachingrounds]

Shout out to our colleages at the Cerebrovascular Center at Swedish Hospitals in Seattle, Washington, for treating Catherine. This is her story with TIAs due to moyamoya.

#TeachingRounds #FOAMed #neurosurgery #neurology #patientperspective