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chronically-autistic-dinosaur · 5 years

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This is an EXTREMELY long post, but there you have it:

With the exception of the first photo, these tests were taken in March. I took the same tests back in November and I took them even earlier than that as well. I got nearly the the same results. I score high for Aspergers. I’ve had questions and concerns for the past 5 or so years about whether or not I had ASD (certain things stuck out to me) and so I started to do some research. I did those tests, talked to some people, and looked into my childhood and realized the signs were always there. Now, I could pay almost $3000 and get my diagnosis on a piece of paper, but what’s the point of that? I’ll still get the same results on the tests. The diagnosis will just sit in my medical file and unless I plan on getting government benefits, I don’t see the point. Yes, I was diagnosed when I was 12. No, I don’t have it in writing anywhere (that I know of). My testing was done as part of a clinical trial I was in and the results of those are never made public or put in a medical record. It sucks, but that’s how those things work. My parents know my diagnosis and I know. That’s enough for me.

Yes, I hit every developmental milestone, but most of us with Aspergers do. We don’t normally have the speech and language deficits that those elsewhere on the spectrum will have. It’s why we are usually misdiagnosed/diagnosed later in life. We are more intelligent than most people. My IQ is 120 (according to all the free tests I’ve done here and the over the years). Now that’s not genius level, but it IS higher than normal. I was reading proficiently at 4 years old. By the time I was in Kindergarten, I was reading at a grade 3 level and could comprehend what I was reading. We have excellent memory recall. I can retain information a lot easier than most. I could name the capital cities of most countries (and if given a few minutes, I could still remember). I love reference books and text books and I was the same way as a child. I’ve always been smarter than my age, which is common for Aspies.

In the language category though, I DO have minor echolalia. I will mimic/repeat what people have said to me. When a customer tells me they are paying with debit (or whatever their payment method is), I will repeat what they said. I’ll repeat numbers back when someone is telling me them. I’ll repeat phrases I hear on TV or movies. It may be immediate or it may be a delayed response somewhere down the road. I use words and phrases out of context. I’ll print something or a receipt will print and I will say “perfect” or “excellent.” I heard the word somewhere and I’m now repeating it in a situation. I talk to myself. And I’m talking full on conversations. Extremely common in those with ASD. I did it as a child as well but it would have been chalked up to “oh she just has an imaginary friend.”

I have very particular interests. At the age of 5, I was reading medical dictionaries and encyclopedias. I love anything medical. I love true crime and serial killers. My favourite TV shows are either medical or crime related. In grade 2, I knew the name of every dinosaur and what period they lived in. If I’m talking to people and they don’t like either of those things, the conversation is over. I could go on and on about my interests and not get bored. This is another ASD trait.

I also inventoried my Halloween candy. I did this every year up until I stopped trick or treating. I organized my teddy bears and inventoried them as well. In fact, everything in my bedroom was inventoried. I had a massive Barbie doll collection and I would spend hours setting everything up in VERY specific spots. It would stay like that for months and the Barbies wouldn’t get played with because I didn’t want anything to get touched and wrecked.

Stimming. It’s a coping mechanism. It’s how I deal with the world around me. Stimming calms me down and can prevent a meltdown. As a child, I chewed things. I chewed my sleeves on my sweaters and the collars on my t-shirts. I sucked on my fingers/hands. I still chew. I chew on hoodie strings. I chew my nails (which I also did as a kid). I play with my hands. I bang my fists against my legs. I play with headphone wires. I also do the stereotypical autistic clapping of the hands. It’s the most obvious of my stims, but what can you do? 🤷🏻‍♀️

Sensory Processing Disorder. This is the most common sign of ASD. In fact, anyone with autism will have SPD to some degree. This was actually the first thing I started researching since a person can have SPD without being autistic. After doing my research, that wasn’t my case. I have mild-moderate SPD. I have always been a picky eater. I eat foods based off of their texture. It’s why I eat a lot of processed food. It has no texture. I don’t like sticky foods like fruit because I can’t stand having sticky hands. In fact, I can’t stand having dirty hands in general. I eat finger food with a fork and a knife for this exact reason. My food can’t touch (unless it’s a stir fry or something) I can’t have tags in my shirts. I don’t wear belts. I don’t wear tight clothing. I don’t like being touched or hugged. It’s uncomfortable. This is also common in people with ASD. As a kid, I was forced to hug because in a NT (Neurotypical) world, that’s what you do. So I learned to fake it. I get window seats on planes so the flight attendants and other passengers can’t touch me. I wear noise cancelling headphones so I can block out most of the noise outside. It can be a tad overwhelming at times. I am sensitive to bright lights, high pitched sounds and certain smells. My brain doesn’t have a filter to properly filter out all the different senses so overload is a thing and always has been. My migraines are more than likely because of sensory overload. As a child, my sensory overload may have disguised itself as something else, though.

Social Interaction. Those with ASD struggle with social skills. I can count on one hand how many friends I had in school. And I’m going from Kindergarten to Grade 12. And I no longer have regular contact with these people. I was able to copy (common for those with ASD) those around me and make friends that way. But I had no idea what I was really doing. Making friends is hard when you have ASD. I lack the social skills needed to talk to people. I was shy. I liked playing alone because it was easier than talking to people and I could be off in my own world. To this day, I still don’t like talking to people. I have to rehearse what I’m saying before I say it. I don’t like talking on the phone. I will use self serve checkouts if I only have a few items. I use the self serve kiosks at McDonalds so I don’t have to speak to an employee. I have learned to adapt in a NT world and I have a job that requires me to talk to people. But it’s repetitive. I say the same thing to each customer. If I have to deviate from that system, I’m flustered. I do not make eye contact with people. It’s unnerving. I look past people. I struggle with reading body language. I avoid most large social gatherings. I’m not trying to be anti-social. But having to deal with all the people and the noise gives me anxiety and overwhelms me. Even in school, when ever there was some event in the class, I would try and be in the back, so I wouldn’t have to interact with anyone.

Emotions. I struggle with empathy and sympathy. Not ALL those with ASD have issues with those but I do. I have a hard time feeling sorry for people or knowing what people are going through. I don’t know why people are crying sometimes. I don’t know what to do when people are crying. Even as a kid, I could hurt my siblings and it wouldn’t bother me that they were in pain. I simply didn’t care. I also don’t express my emotions correctly or know WHEN to correctly express my emotions. It’s why I threw tantrums as a child. It’s one of the reasons I saw a counselor in Grade 3.

Meltdowns. These are different then tantrums. Meltdowns happen when I get too overwhelmed with everything (sensory overload or stress) and I shut down. I CAN go non-verbal but that is extremely rare. I also suffer from shutdowns, which are milder forms of meltdowns.

Routine and Structure. Another big sign of those with ASD is routine. This is one of the the things that stuck out to me the most before I even started doing research. I always had a routine. And it couldn’t be changed or it would cause major problems for me. I have morning routine and it doesn’t matter where I am, I follow it. I have another routine for my Monday and Friday shifts. If it deviates at all, we could have a meltdown depending on how much of a deviation there is. I don’t recall much routine as a child, but I imagine it was there in some form.

Those with ASD have sleep problems. I wake up 3-4 times a night and I remember being this way even as a child. I am never tired though. 4 hours of sleep has always been sufficient for me and the research I have done on ASD and sleep shows this to be a common thing. I also have to sleep with my iPad on. I can’t have complete silence or darkness when I sleep. I can recall sleeping with my light on when I was younger.

Now how did I go so long without any of this being noticed by teachers or even my parents? Well I was born in 1989. Autism was not a big thing back then so it wouldn’t have been on the radar of anyone, really. My mom did tell me that I’ve always had behavioural issues and “strange and odd” behaviour since I was a baby/child but again, autism was not the thing it is now so there was no reason to have me tested when I was really young. Same as in school. It was chalked up to “behavioural issues” or “bad parenting.” Females are more commonly misdiagnosed or not diagnosed at all because doctors still hold the belief that only males can have ASD. Females are also better at masking their ASD traits than males. I have been masking the majority of my life. It’s how I’ve been able to keep the same job for 10 years. It’s how I managed to make the friends I did. I can appear NT even though I am not. Masking is also physically exhausting and I am trying harder to NOT mask.

Being part of an Aspergers group on Facebook and being a part of the autistic community on Tumblr has really helped me. It lets me know there are others JUST like me with the same things and that I am not alone.

“I have autism. It’s a part of who I am.”

#actuallyautistic #autism #aspergers #autistictraits

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