#demyelination

[beaujagr]

venting about health stuff

this is long but I have barely been able to talk about how bad this is for me right now and I feel horrified all the time about how challenging and scary and confusing it all is. I need people to understand, even if it's just one or two people. I don't know what to do to deal with this and therapy is only doing so much, medication only does so much. I am in an existential terror because I don't have answers and I don't even know if I have the time to find them. I'm sorry I'm like this.

content warning: physical health, mental health, delayed & unreliable healthcare, confusing/scary symptoms, brief mention of breast dysphoria, brief mention of alcoholism, harm reduction, unplanned breast size change

I cannot find anything anywhere that says there can be a cause for lymph nodes swelling after having alcohol aside from Very Scary things and I am really just not feeling cool about having to wait literally fucking months to see a rheumatologist to address the repeated swollen lymph node issues while I'm ALSO trying to figure out why I have more lesions or something similar in my brain (next followup Monday). argh argh

how do I not freak out about this shit? I have spent the last SEVERAL years with multiple terrifying health crises, from the head injury & subsequent two years of PT, the pandemic itself & having COVID (with weird lymph side effects), effective malpractice that caused medication to almost kill me in 2020, the blood pressure/heart irregularities from August to last month, and now this shit. I am so fucking scared. :(

I keep having meltdowns because of ambiguity over tiny things (plans for the evening, scheduling, etc.) because I feel like I am in a quagmire of ambiguity, within the US healthcare system that is totally not dedicated to my care - I have some decent doctors, but it's a fucking mess financially, structurally, systemically - and about what the fuck is going on with my body and brain. I am struggling bad.

I want to do fun things! Enjoy my life! I'm 35 and I'm sitting here trying to figure out how I'm going to fill out an advance care directive because every time I've been supposed to do one I have fucking panics and can't do it because I don't want to have to yet again encounter whether I get to live or die as a daily fucking concern. It's hard enough being trans & disabled in the US, I don't know how much more I can take.

I've reached the point of pretty notable depression, my insomnia is probs the worst it's ever been (it's hard to get more than a few hours of sleep even with sleeping medicine or melatonin or any other method of getting better sleep I've tried), & the state I'm in is affecting every part of my life in a devastating way at this point. Even with insurance, I don't even know if we can afford treatment if I end up needing it.

I'm trying to survive all of this but it's so hard to live when I feel like every day is a wild card of whether it's going to be lifelong deteriorating illness, too rapid a death, or *spins wheel* unexplained symptoms & suffering for the foreseeable future? Every bitcosts money, & makes it less likely I'll ever be able to live somewhere safe & healthy for me with my partners.

So if I'm... not fun? not happy? This is why.

I'm sharing all this because I'm scared and hurting and I don't know if or when I'll have answers or what those answers will be. I don't think people understand why I am struggling so much & so messed up all the time. I feel like Shroedinger's cat. I'm dying but not dying but no one knows which or what they'll find when they open the box, least of all me, & I feel like I'm invisible while I'm experiencing it. I'm sorry.:( p.s. I really don't drink much - harm reduction has worked for me, I'm pretty careful, and I haven't been drunk since December 2015. For holidays & the occasional dinner or shower/bath time I'll have like, a drink or two? Today I had a single rum & coke, with John's approval on the rum measurement, and my arm has a swollen lymph node, I hurt everywhere, & my boobs are so swollen my bra barely fits. I like my boobs *at normal size*, but this sucks.

#healthcare #physical health #disability #mental illness #us healthcare #meningioma #lymph nodes #demyelination #lesions #health struggles #depression #mental health #sad #dysphoria #nonbinarymasc #transmasc #breast dysphoria #alcohol #addiction recovery #harm reduction

[umirr79jf]

Breasty sluts enjoy some monster ramrods at a messy sex party Tgirls Jonelle and Sasha in hot anal sex and coc sucking Genshin Impact EULA x JEAN SWEET LESBIANS IN THE BATH (3D HENTAI) Big Titty MILFS Cumshot Compilation Mi novia la flaca bonita montandome Sleep girl friend sister Muslim dad Local Working Girl Sexy tattoo artist rides hard dick shemale Busty beautiful blonde babe roxy pearl solo girl masturbation Paja Mendocina para putita

#scovel #bicentennially #phytotopographical #unopiatic #habitancies #childbeds #McNelly #halogenous #presuitably #glycoproteid #Dictyotales #becrown #protectionists #demyelination #a-wreak #saffroned #synosteology #unpracticability #uppluck #mopane

[cljordan-imperium]

CJ is sick...my immune system has declared war...shots have been fired...steroids are being deployed... wie ein Modder- Igel fühlen

Ich fühl mich wie gematschte Bananen

Ich fühl mich scheiße

And gifts for my German besties for accurate descriptions of how I feel @saltysupercomputer @dreaminggoblin @writingmaidenwarrior

And I'm not contagious, so they're safe

#chronic condition #autoimmine disease #Chronic inflammatory demyelinating polyneuropathy #chronic pain #chronic illness #i hate my immune system #CJ is sickly #writeblr #writeblr community #writeblr connect

[coffee-n-bagels-comic-universe]

God, what a journey. I have CIDP.

On the 8th of May I was told that my official diagnosis is 'CIDP' (Chronic Inflammatory Demyelinating Polyneuropathy) I have gone from the introverted but all-out goth willing to wear that blue dress into a hospital (first pic) to (with a fresh haircut) the dying to be out of the house, sill goth, geek (last pic)

I say this not to beg for sympathy but to say I'm officially disabled and finally at a comfortable point to say that, I am weird, I am Autistic, and I'm practically wheelchair-bound.

I am a rare case, most CIDP cases aren't in their early 20s with no prior illnesses before this happens to them, but I am lucky enough to live in the UK and have free healthcare, I can complain about wait times in A&E, or the slow way hospitals communicate, but I'm writing this to say that you should look out for yourself, cause you never know what will happen.

#my face #i am disabled #chronic illness #cidp #immune system #Chronic Inflammatory Demyelinating Polyneuropathy

[luminouscinders]

So I started the new archon quest and got slapped right out the gate. I have some Feelings about it.

#genshin impact #tighnari #collei #genshin impact spoilers #just to be safe I guess? #but yeah that conversation was a ride and a half for me in particular #like hey here’s collei’s illness #its something that affects your mobility slowly over time and ultimately paralyzes you if not managed #and i was like hey what the fuck #hardened scales vs demyelination but like eh close enough #my art #low effort but technically

[ween-o-hall]

Hello to all of my lovely followers and any other wonderful people that come across this post!!

This is the farthest thing from my usual posting that I ever do, but I’m trying to reach as many people as I can.

I was just recently diagnosed with Multiple Sclerosis and am still suffering long term effects from the spinal tap I received which is making living practically impossible anymore.

My best friend finally convinced me to allow them to set up a GoFundMe in order to hopefully help me keep up with my bills and taking care of my animals until I can get my issues with my head taken care of and am able to get back to working, and I figured here would be a great place for me to reach out to more people in hopes of getting more help through all of this.

Thank you so much to anyone that is able to donate during this time, words cannot begin to express my gratitude for your help 🥺❤️

#ms #multiple sclerosis #demyelinating disease #autoimmine disease #spinal tap #spinal headache #gofundme #healing #donations #chronically ill #chronic illness #chronic fatigue #chronic pain #halloween #autumn #fall #horror #halloween blog #spooky #all hallows eve #lumbar puncture #neurological conditions #nerve pain #cats #cats of tumblr #kitties #reblog #repost

[meatcrimes]

After almost four years of no increase in symptoms / addition of new symptoms, i’ve had a persistent tingling and numbness in my last three toes on my right foot for several days, indicative of fibular nerve fraying.

just when i get so used to a condition i almost forget i have it, some new fuck shit happens.

#t #another kid in lonely town #ms #demyelination disease #chronic illness

[woodsy-hoe]

guess i’ve entered my crying in the hospital bathroom era 💅🏻✨

#it’s never fun when your doctor basically says you’re the worst case they’ve ever seen at your age & that the care plan you were on isn’t it #like i’ve basically wasted a whole year on the wrong med and my scans show more lesions and demyelination 🙃🙃 #kinda just want to fucking croak right about now and save myself the endless medical and financial burdens that come with MS like #anyways thanks for coming to my tedtalk i could use some cheering up if you see this lmao <33 #becca speaks

[jsanruibal]

Síndromes desmielinizantes agudos(SDA)

Las enfermedades desmielinizantes del sistema nervioso central (SNC) tienen un amplio espectro de presentación y ocupan un capítulo muy importante dentro de la patología neurológica en el adulto joven.

Las enfermedades desmielinizantes del sistema nervioso central (SNC) tienen un amplio espectrode presentación y ocupan un capítulo muy importante dentro de la patología neurológicaen el adulto joven. En los últimos años los episodios agudos de desmielinización delSNC con una topografía concreta han sido denominados Síndromes desmielinizantes aislados(SDA) haciendo referencia a un primer episodio…

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#Demyelinating Diseases #Esclerosis Múltiple #Multiple sclerosis #síndrome desmielinizante agudo #SDA

[feretra]

it really floors me how doctors won’t prescribe medications that will make or break a person’s ability to function in their daily lives because they think they’re pharmacists and not doctors and considering I’m on a literal fucking cocktail of about 14 drugs first thing in the morning to be able to even function moderately without pain and actually need every single last one of them

and that’s not even a guarantee most days

#ooc #[ I hate humanity ] #[ me being so sick is one of the reasons I struggle with getting into high fantasy shit ] #[ “oh what would you be if you were in this universe?” { #[ i would be dead janet so whatever the dead option is ] #[ “I’m sure a healer could have fixed it ] #[ I don’t think the group healer can fix rapid onset childhood nerve demyelination disease aka gbs but okay ]

[joebustillos]

JBB's DRP for 11/29/2: Grateful Life Lessons

JBB’s DRP for 11/29/2: Grateful Life Lessons

For the next couple weeks I will be posting the Gratitude Journal prompts that are being given to my students and my response post. I can only image how different the words “life lesson” must mean to a middle school student versus the experiences of a sixty-something teacher. I’ve mentioned this more than a couple times but in 2012 I was diagnosed with an auto-immune illness CIDP (Chronic…

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#Chronic Inflammatory Demyelinating Polyneuropathy #CIDP #health #health issues #intentional living #JBB&039;s Daily Reflection Prompt #life lessons #recovery #writing prompts

[sandyron456]

8th Nov 2022  Chronic Inflammatory Demyelinating Polyneuropathy   Market SWOT Analysis, Future Growth, Major Key Players, Opportunity and Forecast 2030

Autoimmune diseases are on the rise, and chronic inflammatory demyelinating polyneuropathy (CIDP) is no exception. Although CIDP is a rare disease, it has been growing in prevalence.

#Chronic Inflammatory Demyelinating Polyneuropathy Market

[strawberrypaw]

uhhhmm....

#i gotta stop reading medical articles when i know i cant afford to go to a doctor to be told if im wrong or right #theyre real sourced and credited articles btw im not on like... webmd or something lmao #i just want to know why this deformity is giving me so much grief NOW right after i got covid #its been like that my whole life!! it looks real freaky on an x-ray and that was obviously pointed to as the source of the pain im in #but the human body is weird and i've always kind of been aware and proud of how much core muscle ive got for someone my size #ive never had any kind of back troubles in my life before this. my body grew around it to compensate just fine before covid???? #anywayyy apparently its fairly widely reported that covid can cause demyelinating diseases #so it causes a deterioration of myelin (the stuff that surrounds and protects the nerves in ur spinal cord and brain) #which then makes your nerves send fake pain signals. and. lots of other freaky stuff like muscle weakness and numbness #which i have all of #it could definitely just be that my stupid loose vertebra is floating around and punching my nerves and thats whats causing it but #i just feel like there should have been. idk. some kind of similar pain before getting sick... #i find it hard to believe that ive had this deformity for 25 years and it never caused any pain before i got covid #like i mean its THERE obviously and looks scary but. i really do think my body grew around and adjusted to it just fine.... #idk im done now i wrote it down its out of my brain i'll push the thought back into the corner for now bye bye #mau

[medicomunicare]

Too much abnormal protein makes the neurons Syk: once in a while a kinase turns from perpetrator into a patron

Too much abnormal protein makes the neurons Syk: once in a while a kinase turns from perpetrator into a patron

Unfortunately, medicine currently lacks effective treatments to target the root causes of most neurodegenerative diseases, such as Alzheimer’s, Parkinson’s or ALS. UVA Health researchers have discovered a cellular protein in the brain orchestrates the immune system’s responses to Alzheimer’s and multiple sclerosis (MS), potentially enabling doctors to enhance the body’s ability to fight those and…

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#Alzheimer #beta-amyloid #demyelinization #immune system #microglìa #multiple sclerosis #neurodegeneration #protein kinase #protein misfolding

[industry-reports-data]

Chronic inflammatory demyelinating polyneuropathy cidp Market Share, Size Global Regional Analysis, Key Findings, Industry Demand, Key Players and Forecasts to 2029

The report covers comprehensive data on emerging trends, market drivers, growth opportunities, and restraints that can change the market dynamics of the industry. It provides an in-depth analysis of the Chronic inflammatory demyelinating polyneuropathy cidp Market segments which include product types, applications, and competitor analysis. The report also includes a detailed study of key companies to provide insights into business strategies, company summary, trading summary, business strategy and planning, SWOT analysis and current developments adopted by various players in order to sustain competition in this highly competitive environment.

Chronic inflammatory demyelinating polyneuropathy cidp Market is envisaged to record an expansion at the CAGR of 6.1% over the forecast period, 2022 – 2027.

Read the full report:

The study objectives of this report are:

-An overview of the global market for Chronic inflammatory demyelinating polyneuropathy cidp Market and related technologies. -Analyses of global market trends, with data, and projections of compound annual growth rates (CAGRs) through 2022-2027. -Identifications of new market opportunities and targeted promotional plans for Global Chronic inflammatory demyelinating polyneuropathy cidp Market.

-Discussion of research and development, and the demand for new products and new applications.

#Chronic inflammatory demyelinating polyneuropathy cidp Market Opportunity #Chronic inflammatory demyelinating polyneuropathy cidp Market Size #Chronic inflammatory demyelinating polyneuropathy cidp Market Growth #Chronic inflammatory demyelinating polyneuropathy cidp Market Research

[samidha28jain]

Chronic inflammatory demyelinating polyneuropathy is defined as a neurological disorder in which the body immune system attacks myelin which is an important part of the nervous system. It happens when the body immune system cannot differentiate between the body’s own cell and foreign cell and instead start destroying the healthy cells of the body. This can cause pain, impaired ability, loss of sensation, chronic fatigue and other problems, Different treatments can be used to treat this disease such as intravenous immunoglobulin, plasmapheresis, physiotherapy and others.

#Chronic inflammatory demyelinating