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hypermobilityconnect-blog · 6 years

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Bahahahaha. Can you freakin imagine???????⠀ ⠀ ⠀ Friday Fun One 😂😂😂 #hypermobility #hypermobilityspectrumdisorders #theehlersdanlossyndromes #hypermobileEDS #positivehelpforhypermobility #ehlersdanlos #loeysdietzsyndrome #loeysdietz #loeysdietzaustralia #marfansyndrome #hypermobilityconnect #spoonie #zebra #chronicillness #pots #dysautonomia #chronicpain #chronicfatigue #mybendybody #hopeforhypermobility (at Hypermobility Connect)

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sebastian-von-d-blog · 5 years

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Zwei lebende Zebrastreifen :O⁠ ⁠ ⁠ ⁠ ⁠ ⁠ ⁠ #hypermobility #spoonie #ehlersdanlos #chronicillness #marfansyndrome #loeysdietzaustralia #chronicpain #dysautonomia #chronicfatigue #loeysdietz #hypermobilityconnect #ctd #pots #loeysdietzsyndrome #eds #mybendybody #gastroparesis #edsawareness #potsie #hypermobilityspectrumdisorders #hypermobileeds #positivehelpforhypermobility #hopeforhypermobility #theehlersdanlossyndromes #hsd #jointhypermobility #loeysdietzawareness #connectivetissuedysplasia #safari #ehlersdanlossyndrome https://www.instagram.com/p/B3C9sF2ncwp/?igshid=1220a41wuxk1v

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hypermobilityconnect-blog · 6 years

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Finally getting a diagnosis can bring with it a myriad of emotions from relief to disbelief and everything in between. 😢🤔🤗😱 In this post, Liz talks about her journey to diagnosis and how she felt about it. What was YOUR journey to diagnosis like? How did you FEEL to finally get a diagnosis? Let us know in the comments! |-|-|-| #hypermobility #hypermobilityspectrumdisorders #hsd #hypermobileEDS #positivehelpforhypermobility #theehlersdanlossyndromes #ehlersdanlos #jointhypermobility #hEDS #ehlersdanlosaustralia #loeysdietz #loeysdietzaustralia #marfansyndrome #hypermobilityconnect #spoonie #zebra #chronicillness #chronicillnesswarrior #pots #dysautonomia #chronicpain #chronicfatigue #mybendybody #hopeforhypermobility #hopeful #helpful #healthy Link also in insta bio: https://www.hypermobilityconnect.com/finally-getting-diagnosis/ (at Hypermobility Connect)

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hypermobilityconnect-blog · 6 years

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Can you relate? Friday Fun One 😂😂😂 #hypermobility #hypermobilityspectrumdisorders #theehlersdanlossyndromes #hypermobileEDS #positivehelpforhypermobility #ehlersdanlos #loeysdietzsyndrome #loeysdietz #loeysdietzaustralia #marfansyndrome #hypermobilityconnect #spoonie #zebra #chronicillness #pots #dysautonomia #chronicpain #chronicfatigue #mybendybody #hopeforhypermobility (at Hypermobility Connect)

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hypermobilityconnect-blog · 6 years

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I say: Exactly what she says.⠀ ⠀ Daniell Koepke is a very wise soul.⠀ ⠀ So much truth. ⠀ ⠀ It's OK. It's OK.... It's really OK.⠀ ⠀ ⠀ 🖤🖤🖤⠀ ⠀ @daniellkoepke ⠀ #hypermobility #hypermobilityspectrumdisorders #hsd #hypermobileEDS #positivehelpforhypermobility #theehlersdanlossyndromes #ehlersdanlos #edsawareness #eds #loeysdietzsyndrome #loeysdietz #loeysdietzaustralia #marfansyndrome #hypermobilityconnect #ctd #spoonie #zebra #chronicillness #pots #potsie #dysautonomia #chronicpain #chronicfatigue #mybendybody #gastroparesis #hopeforhypermobility⠀ (at Hypermobility Connect)

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hypermobilityconnect-blog · 6 years

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Give yourself #permission.⠀⠀ ⠀⠀ 💜 Do you give yourself permission to be you - hypermobility/EDS/diagnosis and all? ⠀⠀ ⠀⠀ 💛 Do you struggle with this?⠀⠀ ⠀⠀ ⠀⠀ ⠀⠀ ⠀⠀ ⠀⠀ ⠀⠀ ⠀⠀ ⠀⠀ #hypermobility #hypermobilityspectrumdisorders #hsd #hypermobileEDS #positivehelpforhypermobility #theehlersdanlossyndromes #ehlersdanlos #edsawareness #eds #loeysdietzsyndrome #loeysdietz #loeysdietzaustralia #marfansyndrome #hypermobilityconnect #ctd #spoonie #zebra #chronicillness #pots #potsie #dysautonomia #chronicpain #chronicfatigue #mybendybody #gastroparesis #hopeforhypermobility⠀⠀ (at Hypermobility Connect)

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hypermobilityconnect-blog · 6 years

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#MotivationMonday⠀ 🔆 You never know how many people you may be a lighthouse for. ⠀ ⠀ Keep shining your light.⠀ ⠀ Keep sharing your story.⠀ ⠀ Keep being you.⠀ ⠀ Keep going. ⠀ ⠀ Because you help more people than you realise, and will ever know. ⠀ ⠀ ⠀ 🖤🖤🖤⠀ ⠀ ⠀ #hypermobility #hypermobilityspectrumdisorders #hsd #hypermobileEDS #positivehelpforhypermobility #theehlersdanlossyndromes #ehlersdanlos #edsawareness #eds #loeysdietzsyndrome #loeysdietz #loeysdietzaustralia #marfansyndrome #hypermobilityconnect #ctd #spoonie #zebra #chronicillness #pots #potsie #dysautonomia #chronicpain #chronicfatigue #mybendybody #gastroparesis #hopeforhypermobility⠀ (at Hypermobility Connect)

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hypermobilityconnect-blog · 6 years

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Key Turner⠀ ⠀ Using keys can be a real struggle for some people. The forearm supination (turning) and the grip strength can be a big problem, but just the stability of the wrist and hand can also be a massive issue for people with hypermobility. The key turner is great because it gives you something bulkier to hold onto, instead of that tiny little, thin key, making it easier to grip and therefore use less force.⠀ ⠀ ✅ This product is great for people with:⠀ - poor lateral prehension (key grip) strength⠀ - decreased hand strength⠀ - wrist instability or pain or post-operative⠀ ⠀ ❌ Downside:⠀ - they usually only fit 3-4 keys, so if you’re like me and have too many, it may not work for you⠀ - they are bulkier than keys alone (pro is that they’re easier to find).⠀ ⠀ 💻 You can find it: Online or at your Independent Living store⠀ ⠀ ⠀ ⠀ ⠀ ⠀ #HypermobilityHelpSeries #GeneralAids⠀ #hypermobility #hypermobilityspectrumdisorders #hsd #hypermobileEDS #positivehelpforhypermobility #theehlersdanlossyndromes #ehlersdanlos #edsawareness #eds #loeysdietzsyndrome #loeysdietz #loeysdietzaustralia #marfansyndrome #hypermobilityconnect #ctd #spoonie #zebra #chronicillness #pots #potsie #dysautonomia #chronicpain #chronicfatigue #mybendybody #gastroparesis #hopeforhypermobility⠀ (at Hypermobility Connect)

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