#ugh I don’t like wiriting that i feel like a fraud cuz im not disabled “enough”

[dumbasswithapen]

can we just listen to Disabled people when they say what accommodations they need??? Like it really isn’t that hard to just take someone’s word on what is best for their own body! Whether it’s more or less or different than what you deem they need it really isn’t your place to say!!!

Sometimes, people need more than they show! Especially if they’re used to being in pain all the time, then they won’t always display that discomfort.

Sometimes the accommodations someone needs are different than what you assume. A friend who struggles with noise sensitivity may ask for you to turn on a different type of music, instead of turning it down, and if that is what they express they need you don’t have to say “oh no I can just turn it down!” and ignore them saying that that isn’t necessary because your idea of noise sensitivity is different than their own experiences and needs.

And sometimes people need less than you try to provide! Or simply don’t want that accommodation at the time! And here’s the crazy part: this applies even if what they say to do could hurt them. Obviously this isn’t a rule for every situation*, but for some it absolutely is. If your friend wants to tag along for, say, a hike, and they have joint pain it isn’t your place to add in “oh no but they can’t do [the hike]! They’ll be in pain! We have to do something else to accommodate them!” If that person expressed a desire to go, especially if offered other options prior that wouldn’t hurt them, let them live. Let them do the thing that puts them in pain, because Disabled people don’t always want to be shoved into a little box of safety. Absolutely sometimes they do, and some might always want to, but if they don’t, then let them make their own choices for their body. Just as anyone else does. You go out and get drunk, even if it gives you a hangover. You go skating even if you’re shit at it and scratch up your knees a bunch. Just because someone is Disabled doesn’t mean that they can’t do the same thing and do that fun thing that hurts them.

I don’t know if I’m displaying my point how I want, so here’s my own example: I am allergic to the cold. Anything below 60 degrees (f) I get hives. Any water cooler than a fucking warm shower I get hives. My joints don’t do great when it’s cold out. This does not mean that when I say I want to go swimming, you can say “oh but you can’t you’ll get hives!” Or “no you can’t do that you’ll be in pain!” Because. I know that. I know that. I know my Disability better than anyone else can, and I can ask for accommodations I need. I am not a child to be wrapped in bubble wrap so I don’t get hurt. My body is my body and I can do with it what I want, and face the consequences. Likewise, just because I said I wanted to go swimming doesn’t mean that when I don’t want to go out and muck around in the snow it is anyone’s right to say “oh but you wanted to swim earlier, so obviously it isn’t that bad for you!” Or “oh it’s fine it’s not that cold! Just wear a sweater!” Because at that time I need and want different accommodations and that should be listened to and considered accordingly, as far as it can be in that situation.

Seriously. Just listen to us. We are in our own bodies. We know ourselves. It really isn’t that hard

*a situation where this point would be null is, for example, a situation where the person has been peer pressured into doing something, or one where you know the person well and know that the endurance of pain is a self-harming behavior

#disability #disabled #information #shi rambles #ableism #accommodation #cold urticaria #chronic pain #Like I get that my mom wants the best for me but I really know myself #If I avoided getting hives I’d be avoiding swimming at all. I’d not be having cold drinks or foods. I’d be not going outside #Even if I’m complaining about being in pain it doesnt mean that I don’t want to do the thing. It just means I don’t want to be in pain. #I know that won’t change but it’s not the change that matters it’s the expression of it #idk #actually disabled #ugh I don’t like wiriting that i feel like a fraud cuz im not disabled “enough” #It’s so fucking stupid I hate my brain