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Thiiis
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Tfw you don’t tic for most of the day and then you randomly whistle or something and it’s like “What was That? Where did that come from?” And then you remember you have the disorder
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Being visibly developmentally disabled
I've seen some posts going around about being visibly developmentally disabled and I wanted to add my two cents. I think this story sums up a lot about how we are treated.
When I was about 7 or 8, I was in a toy store with my parents. I found a toy piano on a shelf and started playing with it. I have always been very good with music and soon I was playing a melody I'd heard somewhere. I was rocking back and forth and making noises to cope with the environment and because I was happy, and I was also drooling because at that age I was only sometimes able to control it.
So this lady and her two sons come around the corner. They see me, sitting on the floor, rocking, grunting, and drooling, and they look horrified. I heard her whisper something to her two sons, and all I caught was the word "autism." They all look at me and are disgusted, and the lady quickly ushers her boys away as if I'm contagious. This was years and years ago and I still remember how ashamed I felt, even though I didn't know how they could tell I was different. I didn't even know what autism was, but the way the lady said it I could tell it was a bad thing.
They didn't see me as a kid who was good at music having fun with a toy, they saw me as one of THOSE kids, those kids who need to be kept at home away from the normal kids.
Of course, this is a mild example of how developmentally disabled people can be treated, as we are not only ostracized, but also violated, brutalized by police, and even murdered. Being visibly developmentally disabled is tough and I'm glad there's a community on here who understands.
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hello fellow autistic lesbians 🌈💜
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Reminder that Ticcing is not stimming. If someone with a tic disorder or Tourette’s says that your echolalia stims are triggering a painful tic: you should stop doing them around that person; do it in another place.
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I wanted to share this blog post from Jess Thom (aka Touretteshero) on the topic of the current conversation around changing the name of Tourette Syndrome. It summed up my thoughts on the situation perfectly.
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I hate when you feel the tic coming on. The way it builds against your neck, presses into your ribs. Sometimes your insides seem to shiver with the cold and refuse to shiver properly on the outside.
I hate when it's right there, so you pause and wait, and it doesn't come as fast as you want. So your left feeling extremely uncomfortable and looking moderately stupid to anyone who doesn't know why you've been humming irritably and staring at the sink for two minutes.
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Not to mention autistic social struggles ≠ introverted
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I've met people who seem genuinely confused as to why other people don't act exactly like them. It's like they can't grasp the fact that they aren't the default.
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I prefer disorder because of this: even though autism could be a "state of health," to me, a "condition characterised by functional impairment" makes more sense.
I feel disorder describes it better
Source:
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Geniuenly like. So many people claim support disability. But then say something completely untrue
Y’all support autism? So what about when the person has intellectual disability or need help walk talk eat bath use bathroom? Does your support end when you see someone with higher needs?? Someone who actually genuinely won’t survive without support from others n that support is sometimes having other people do everything for them.
Y’all support depression? What about when the person can’t bring themself to get out of bed for days on end? What about when that person goes days weeks months without cleaning self because can’t get up even though need to?
Yall support schizo-spec disorders & psychosis? What about what the person get violent because of their delusions n hallucinations? The ones know are fake but still can’t help but believe in? The ones genuinely believe in their delusions/ hallucinations? What about the ones don’t don’t get violent to self n other because of the disorder? Those that just sit scared about the hallucinations n delusions. The ones that won’t leave their room/ house out of fear of their delusions/ hallucinations?
Y’all support those with physical disabilities? What about the housebound bedbound ones? The ones need gait trainers walkers wheelchairs? What about the ones who full time users? Or the ones that need power chairs to independently move around? What about the ones crying screaming throwing up from their pain?
What about the disabled that always have a horrible attitude because tired of yhr disrespect? Tired of having to explain everything about them to everyone even if personal? Tired being told get over it n just educate others?
The disabled ones tired telling people not use certain terms. Tired of being spoken over n for without being thought about or asked. Tired of hearing their communication isn’t valid for ‘xyz’
Y’all support but act very picky about who deserves support and who’s not worthy of it. It’s not support if you pickin n choosing
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Trying to figure something out about myself; please reblog this for a larger sample size.
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Having been undiagnosed for a very long time and told that all my problems were my fault, me being over dramatic/exagerating, or a personal flaw of mine is crazy.
Like I was on a race track with sports cars while saddled with a plastic tricycle and nobody even bothered to tell me I was any different than my competitors.
I don't suck at racing, my vehicle sucks. And anyway. I'm probably doing a ton more effort than any of the other drivers cause I actually gotta peddle my damn tricycle. They tell me if I 'try harder' or wasn't so 'weak' than I might actually stand a chance against them. I'd stand a chance if my body wasn't a fucking train wreck of problems.
The gaslighting is top tier, I gotta tell ya.
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The ghosts in my house when they hear me shouting COOORN down the hallway:
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I have Tourette's/some tic disorder, and some of my tics are to say "You're beautiful" and I love you out loud. I usually whisper my vocal tics and they trigger most often when I'm alone.
I had the realization that the ghosts in my house probably feel flattered by me, until I also remembered some of my other tics are to say things like "I fucking hate you" and "you fucking idiot"
The ghosts in my house get mixed signals. Sorry ghosts :(
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Something that I first applied to working with children, and have applied in a limited form to working with adults: you don't need to tell someone when they read your instructions wrong. Sometimes it's enough to point out what they did right and then whatever they didn't do? You ask them to do it in more precise words, and you make it sound like it's a new request. Remarkable how fast things get done this way.
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autism is so fucking hated, you arent allowed to be high functioning because youre "faking it", you arent allowed to be low functioning because youre "faking it" and all of us are expected to just try harder and "stop acting stupid" (which is extra insidious when intellectual disabilities are so commonly comorbid with autism)
oh you need some help with getting things done? grow up
oh you need someone to remind you to shower/take meds/etc? grow up
oh youre nonverbal/nonspeaking or lose speech at times? just Talk
oh you Cant Eat unless its This Specific Food? grow up
oh you dont understand when something is dangerous? stop being stupid
oh you need lots of help with bADLs? youre a leech. do it yourself
oh you need a caregiver in order to keep yourself alive? youre so dramatic, everyone else manages just fine without one, why cant you?
oh you can get around for the most part in day-to-day life but need extra support in some areas? youre just exaggerating, youre not really autistic
autistic people are literally never allowed to just exist in society. we are always expected to prove something, whether thats being autistic or being human beings that deserve respect
youre either not autistic enough or too autistic for allistics and its really fucking annoying. autism is a real disability and those of us who are autistic live with it every single day. it can be extremely disabling or it can be a bit of a nuisance or it could be both or somwhere in between or fluctuate depending on the day
stop shaming autistic people for being autistic in a way you dont like or arent used to seeing. that goes for everyone, other autistic people included
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