thatfibrolife

[thatfibrolife]

#cw weight #cw fat

[thatfibrolife]

My friend explained the spoon theory to our DM and he was like “ohhh so it’s like when you’re out of spell slots and you need to take a long rest to regain them all” and now I keep thinking of myself as being out of spell slots instead of out of spoons

#chronic illness

[thatfibrolife]

i hate that this is on “bad two sentence horror” because its actually good

[thatfibrolife]

Having a vagina honestly sucks bc it's like you have to do fucking alchemy just to prevent yourself from getting sick. You've got an intricate ecosystem of microorganisms down there that you're dependent on for your own well-being and they can be set off by the tiniest fucking thing

Keeping your pubes too short can cause yeast infections, but letting them get too long can also cause yeast infections. Washing the area with specialized soap can help prevent yeast infections, but it can also cause them. Your periods can cause yeast infections, and so can the medicine you take to stop your periods. Having sex can cause yeast infections, especially if the person you're having sex with is diabetic (???). Being diabetic can cause yeast infections. Wearing the wrong clothes or eating the wrong things can cause yeast infections. Not getting enough fucking sleep can cause yeast infections. The list is neverending

Luckily, yeast infections are fairly easy to treat with OTC medicine that you can find at any Walmart. BUT! Even if all of your symptoms indicate that you have a yeast infection, you have to take a test first to confirm that it's a yeast infection (they do not sell the tests at Walmart) bc you might actually have the opposite of a yeast infection (bacterial vaginosis) which has the exact same symptoms as a yeast infection but is caused by an imbalance of different microorganisms. And if you use yeast infection medicine to treat a bacterial infection it will light your pussy on fire. So if you have a bacterial infection, you must instead visit your local witch doctor (gynecologist) and get prescribed special potions (antibiotics) to treat it

Antibiotics can also cause yeast infections

[thatfibrolife]

chronic fatigue is such a bitch because it's not super obvious at first. it creeps up on you some days, but other days, that's just the entire day. you start your day exhausted as hell, and like yeah, you're aware that you're tired, but you blame yourself for feeling this way. it's always your fault somehow. then comes the end of the day and you realize that it was your chronic fatigue, and you blame yourself for beating yourself up all day long. you can't win

[thatfibrolife]

you need to get it out of your mind that psychosomatic illness is just “making up symptoms” when it’s actually much more like your body is being actively poisoned by chemicals released from your brain

[thatfibrolife]

heyyyyy reminder for other cane users.

don't forget that cane tips need to be replaced.

i've been using my cane for almost two years on a near daily basis and i JUST switched out the tip and

[image IDs in alt text]

the new tip versus the old tip. i'm not sure how clear it is but, YEAH, there's like. half a millimeter of tread left on the old tip, if that

the replacement was LITERALLY 2 dollars. i bought two to justify the four dollar shipping but. TWO BUCKS.

i had noticed that i was having slipping issues on linoleum recently, but i did not realize how bad the issue had gotten until the new tips came so. PLEASE check your cane treads and if they're notably worn out PLEASE get yourself a new tip they're SO cheap and the grip i get on the new one is INSANE

please don't forget to replace your cane tips!

#chronic illness

[thatfibrolife]

cooking while chronically ill

baking with arthritis or other chronic hand pain

living with chronic migraines

adhd meal plan

chronic pain tips

getting yourself to eat

#chronic illness #chronic pain #spoonie #disability

[thatfibrolife]

When I was younger and more abled, I was so fucking on board with the fantasy genre’s subversion of traditional femininity. We weren’t just fainting maidens locked up in towers; we could do anything men could do, be as strong or as physical or as violent. I got into western martial arts and learned to fight with a rapier, fell in love with the longsword.

But since I’ve gotten too disabled to fight anymore, I… find myself coming back to that maiden in a tower. It’s that funny thing, where subverting femininity is powerful for the people who have always been forced into it… but for the people who have always been excluded, the powerful thing can be embracing it.

As I’m disabled, as I say to groups of friends, “I can’t walk that far,” as I’m in too much pain to keep partying, I find myself worrying: I’m boring, too quiet, too stationary, irrelevant. The message sent to the disabled is: You’re out of the narrative, you’re secondary, you’re a burden.

The remarkable thing about the maiden in her tower is not her immobility; it’s common for disabled people to be abandoned, set adrift, waiting at bus stops or watching out the windows, forgotten in institutions or stranded in our houses. The remarkable thing is that she’s like a beacon, turning her tower into a lighthouse; people want to come to her, she’s important, she inspires through her appearance and words and craftwork.  In medieval romances she gives gifts, write letters, sends messengers, and summons lovers; she plays chess, commissions ballads, composes music, commands knights. She is her household’s moral centre in a castle under siege. She is a castle unto herself, and the integrity of her body matters.

That can be so revolutionary to those of us stuck in our towers who fall prey to thinking: Nobody would want to visit; nobody would want to listen; nobody would want to stay.

#chronic illness

[thatfibrolife]

"walkable cities" would be cool sure but, lets not forget other accessible features like wheelchair ramps and ya know

more benches and general places to sit because some people like me can't stand long without pain? . Is it really an accessible city if it only is "walkable" and caters to abled people? I don't think so. People seem to forget this fact when talking about the walkable cities talk I've noticed ..The disappearance of more and more benches to the point now to where there really are none (at least where I live unless its a park) is very disturbing.

#I have been saying this #disability #disabled #chronic pain

[thatfibrolife]

Adding a clickable link

Help a college student out by taking a short survey?

I'm working on a research paper for my English class, and what I'm looking at is the effects of the Opioid Epidemic response on patients with chronic pain. Basically, looking at things like stigma, access to care, and patient-provider relationships. Also, trying to get some data on the fact that the CDC unveiled some new guidelines for providers in Nov 2022, and I'd like to know if people have felt any changes from that yet or not.

So, I'd love if anyone who experiences chronic pain, whether you live in the U.S. or not, or are treated for it or not, if you could take this survey so I could hear your opinions and really get a feel for how things are for all of you, I would appreciate it so much. <3

And whether or not you meet the criteria for the survey, if you could boost this, please please do! The more data points I have, the clearer a picture I'll get.

The survey is here: https://forms.gle/9sQGDHwCZ5oUvgXH7

#chronic pain #chronic illness #spoonie

[thatfibrolife]

[thatfibrolife]

It's tough being used to feeling incredible amounts of pain that when it becomes worse or more frequent you don't even mention it

And bc it's been going on for so long, when you finally do figure out it's not normal or start actually trying to talk about it the people around you get Very confused about why 'all of a sudden' you're being impacted so heavily and are now actively disabled. Like, actually this isn't new I've just spent years teetering on the edge without realizing how abnormal it is due to a variety of reasons I won't get into on tumblr dot com :')

I don't know how to describe the experience other than I feel a lot like a cat in pain, like you can read it in my body language, but my face says little to nothing and I'm not saying much at all about it until it is too much to bear.

#chronic pain #chronic illness #fibromyalgia

[thatfibrolife]

That weird feeling when someone older than you talks about their back hurting and says “don’t get old.”

And you are in your 20s with chronic pain 👀

#chronic pain #chronic fatigue #fibromyalgia

[thatfibrolife]

it’s okay to do things that make your symptoms worse (as long as you’ll stay safe)

every once in a while you need to eat something yummy. or go on a walk. or a trip to the zoo. take a hot shower. cry your eyes out. dance. listen to music. draw for way to long. write. laugh. sit in a cafe with a friend. paint your nails. dye your hair. go on a run. pet a cat

sometimes you need to do things that are cathartic or make yourself feel alive. sometimes you need the reminder of why you’re fighting so hard to stay alive

this is your reminder that just because it makes your symptoms worse, it isn’t always the wrong thing to do. there can be value in these actions

#chronically ill #chronic illness #chronic pain #fibromyalgia #spoonie

[thatfibrolife]

Needed my own reminder for my stubborn ass.

#spoonie

[thatfibrolife]

Yesterday the 12th of May was Fibromyalgia awareness day. I'm a little late uploading it, but spreading awareness is being done nonetheless. Lots of love for my chronic pain people!! <3

#fibromyalgia