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part 1 of my video on proloquo talking about the pros and cons - this is the pros section

#disability #disabled #autism #autistic #actually autistic #actuallyautistic #developmentally disabled #developmental disability #aac app #aac user #aac #aac review #proloquo

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I might have been the anon of the thing you were referring to? I sent the ask while I was triggered into dissociation because of syscourse and sent something stupid to a big syscourse blog, but I meant it more that people who aren't endogenic are about to participate in syscourse without their existence being questioned and have an advantage in that sense, not like societal privilege or anything like that.

Hi anon! im very sorry to hear that you were in a dissociative episode and a bad place when you sent that ask. To preface this, I hold no resentment or dislike toward you. I think you just had a little bit of a bad take. I have also said some stupid stuff in syscourse before, and in my opinion it's good for you to post a bad take and get your shit rocked every now and then. Also, you are completely anonymous now just as you were then. Don't worry about any repercussions or people thinking bad on you because literally nobody knows who you are. Now, onto the post. Here's what you said that alarmed me:

"Honestly I'd also say a lot of endogenic harassment might also boil down to a trauma response. Being constantly told you don't exist weighs heavily down on a person's psyche and it's reasonable to lash out. I feel like whenever I interact at the community I hit my limit so quickly. There's a bit of a level of privilege non-endogenic systems have because they aren't the ones who's literal personhood and existence aren't constantly being questioned. Syscourse is a demeaning, awful experience."

and don't get me wrong, I totally agree with almost everything you said here. It is demeaning to constantly be told your experiences aren't real, that you must be faking, or that you must have some secret trauma you just can't remember. However, I don't agree that non-endogenic systems are privileged over endogenic ones due to not being questioned as often.

First of all, I don't think non-endogenic systems are questioned less. CDD systems are questioned constantly in system spaces and in outside spaces for basically anything. Having too high an alter count. Having too low an alter count. Having fictives, being polyfragmented, etc. Of course, I do think that the questioning of endogenic existence is an especially severe and pervasive issue in system spaces, but I really don't think there is ANYBODY at all that is immune. Not traumagenic systems, not disordered systems, not CDD systems. And this isn't even mentioning the severe medical neglect and gaslighting many CDD systems face, where they DO get their personhood and existence denied.

Another thing is that syscourse really isn't everything. There is a disturbing trend of some endogenics saying that CDDs are privileged over them, and they do mean societally and medically. When you say CDD systems have a certain level of privilege over endogenic ones, I think it's easy to take that as the word "privileged" is usually used - social advantage. Even if it isn't what you meant, it did come across that way to me.

Another thing about your argument that I thought was interesting that I did not address in my original post was that you argued that it's reasonable for endogenic systems to lash out because we are constantly denied our existence. Which I also think is... not a good take. CDD systems are also denied their existence often, and they often blame and lash out at endogenic systems because of that. that definitely does not make it reasonable, so why would it be reasonable for endogenics to do it?

anyway rant over. I hope you have a good day, take care of yourself!

#syscourse

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Pixie be AAC device user is not a young child . and . but all AAC device vocabularies exactly same as the for children . no words for relationships and more “adult “ conversations .

have not seen any AAC device vocabulary have words for any “private” body parts . can not tell caregivers about having a problem with some “ private “ body part . no pages for to talk about serious brain “trouble” either .

we people what use AAC devices are very most likely to be hurt by bad people because them people know we can not tell really what happened .

AAC device businesses need to do better. speech pathologists need to do better , and caregivers , and parents , and guardians . all need to do better .

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"the autism diagnostic criteria is based on deficits and it shouldn't be"

"the diagnostic criteria should also be based on things we're good at"

you guys do know how disorders work right? and why they're diagnosed via deficits/impairments/difficulties in functioning?

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TRAUMAGENIC AND DISORDERED SYSTEMS ARE NOT PRIVILEGED OVER ENDOGENIC AND NON-DISORDERED ONES.

they are just as often denied their identity, and denied their existence socially and medically. to say that they are privileged is simply not true.

saying this again because I just saw an ask on another blog which included the horrible take that traumagenic and disordered systems are somehow privileged over endogenic and non-disordered ones.

#syscourse

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Stimming alternatives masterpost (to replace unsafe stims) tw: for unsanitary mentions/injury mentions!

This post is specifically intended to help people with self injurious behaviors. Please be respectful,thank you.

List of Body safe stim toys for replacing pain stimming

(I will add edible alternatives to non edible things aswell,for oral stimming urges! Check back here later for updates!)

this koosh ball that you can pick at or run your fingers through,instead of pulling your own hair out!

These skintone chew beads. They come in a variety of other colors,so you can find ones to chew on in your own skincolor,instead of your own body!

This chew necklace is similar in size and shape to digits(that means your fingers!) So you can chew on it instead of yourself!

This is pretty similar to a koosh!

This is another sensory brush,except this one looks like it is more scratchy! You can use this to replace scratching urges.

silicone picking pads, for replacing dermatillomania urges!

This squishy floor tile,that looks like it has real blood inside!

this mini red putty that looks like blood!!

these spiky rings!

these spiky rollers!

#fantastic #op you are iconic for this #yes harmful stims are a thing and yaaay there's something I can do about them

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Being visibly developmentally disabled

I've seen some posts going around about being visibly developmentally disabled and I wanted to add my two cents. I think this story sums up a lot about how we are treated.

When I was about 7 or 8, I was in a toy store with my parents. I found a toy piano on a shelf and started playing with it. I have always been very good with music and soon I was playing a melody I'd heard somewhere. I was rocking back and forth and making noises to cope with the environment and because I was happy, and I was also drooling because at that age I was only sometimes able to control it.

So this lady and her two sons come around the corner. They see me, sitting on the floor, rocking, grunting, and drooling, and they look horrified. I heard her whisper something to her two sons, and all I caught was the word "autism." They all look at me and are disgusted, and the lady quickly ushers her boys away as if I'm contagious. This was years and years ago and I still remember how ashamed I felt, even though I didn't know how they could tell I was different. I didn't even know what autism was, but the way the lady said it I could tell it was a bad thing.

They didn't see me as a kid who was good at music having fun with a toy, they saw me as one of THOSE kids, those kids who need to be kept at home away from the normal kids.

Of course, this is a mild example of how developmentally disabled people can be treated, as we are not only ostracized, but also violated, brutalized by police, and even murdered. Being visibly developmentally disabled is tough and I'm glad there's a community on here who understands.

#disability #disabled #autism #autistic #actually autistic #actuallyautistic #developmentally disabled #developmental disability

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I dont expect anybody who's not a CSA survivor to understand it but when I hear about kids getting strip searched in IOF detention centers I feel the rotten broken part inside of me grow a bit bigger and I hope someday it envelops the whole world and everyone who lets this kind of thing happen rots too.

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#can't join but will absolutely boost!

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When I say “school should be disability accessible”, I don’t just mean we need handicap rails and EAs. Kids should be able to miss a day without failing out of school. You shouldn’t be dismissed from clubs because your attendance record is “spotty” (true story). I once missed an entire week of school because of a terrible, unending migraine. I was expected to keep up with my studies despite the blinding pain that came with working on my computer. When I heard my teachers say that you couldn’t miss exams, I asked what I would have to do to be excused from them. Their response? “Either get a doctor’s note an hour before the exam or death of an immediate family member.”

I cannot express how rigid this expectation was. First of all, with my condition, I wouldn’t have enough warning about my sickness to go to the doctor and request a note. For many people, this is exceptionally difficult, especially with the current shortage of medical professionals. Next, it ignores the fact that my schedule may not line with theirs because of my medical needs. Once, I had to visit a hospital a province away (which I was on the waiting list of for over a year) on the same day as an exam. I begged my mother not to take me because I was so nervous that I would be marked as an automatic fail. I was lucky enough to make it work, but that’s only because of my spectacular support system consisting of family members and wonderful doctors.

Disabilities aren’t always about needing a bus that can accommodate wheelchairs. It’s already difficult enough for many of us to maintain school attendance without the harsh punishments involved for skipping a day. We need to be able to miss school without being punished. Only than can you claim that the school is “accessible”

#yep i got kicked out of my old school for absences

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solidarity between people who want to take psychiatric meds to function and those who don’t.

What’s important is that we both have autonomy, informed consent and safe access to treatments we want, and to not be forced, coerced or pressured into those we don’t.

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genuine question because im very new to this whole conversation, i am not a system at all and I was wondering what was wrong with the term plural? Ive seen it a lot with a lot of differing opinions on it so I thought I should just ask.

You're going to get different answers depending on who you ask, so I'll give my take on it

This is the very short version: "Plural", from the very start, was developed specifically and intentionally to disconnect from MPD/DID and the medical aspects of systemhood. The pro/endo community we know today grew out of the natural multiple movement, and a lot of those same, old ideas remain ingrained in those spaces

Sometime in the late 90s, the first person to identify as a plural introduced the labels 'plural' and 'plurality' for those who experience being more than one person but are not talking about dissociative disorders. In their personal essay, they state that "'[m]ultiple,' even standing by itself, brings to mind [...] specific diagnoses created by the medical/therapeutic community. 'Plural' is a much more neutral word, more commonly heard in the context of grammar than psychiatry". [X]

Somewhere along the lines, DID got dragged, kicking and screaming, (back?) under that label because we all have "people in our heads"

So when I, a DID system, see "plural," I see a giant red flag. I expect misinformation, ableism, and a whole lot of frustration that I'd rather avoid.

I feel like the majority of pro/endos don't know the history of their community, and any pro/endo resources about that history gloss over the damage done to the DID community

I highly suggest checking out @pluraldeepdive to learn more

What plural means to pro/endos is also not what I experience. Plurality tends to reject parts language, but I heavily lean in to it. It's helped us a lot. Tired of being told I'm hurting myself, I tend to just avoid anyone who uses plural language, even though I know it's not all of them. I just don't have the patience to find out the hard way which type of pro/endo they are.

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US food & drug administration (FDA) proposing ban on electric shock devices (like ones used by places like judge rotenberg center [JRC]) for self injurious behaviors or behaviors deemed aggressive.

was banned before, then was overturned. now propose new ban.

can submit formal comment here:

which. if can, please do. show FDA that there public support for ban.

not see if say only US people can comment.

edit to add: open until may 28th 2024

put under cut, some trigger warning about badly summarized info abt these devices & JRC

readmore

these devices different from modern ECT. modern ECT done under general anesthesia. these devices. ECT not without faults but these devices not same as ECT.

while there truly are behaviors in disabilities like autism that genuine cause harm to self or others, 1) using this shock device for those behaviors without consent or try other methods or think about underlying why, still issue, 2) many times used for behaviors that. staff just don’t like. like saying no. or refuse take off coat.

there videos online.

but let just say. GED-4, used by JRC (at very minimum used, past tense. not sure what model use now, but definitely still used. & still being defended on JRC website), shock for 2 seconds, lowest setting, shock at 45mA, highest at 90. don’t know what means? me neither, but to compare, tasers 3-4 mA. n frequently see survivors say they get more than 1 shocks. people shocked by these scream. put it lightly

old stuff wrote by survivor:

often see people only talk abt autism when talk abt JRC & these devices. not just autism. those diagnosed w conduct disorders, psychiatric disorders, autism, intellectual disability, & imagine other developmental disorders too.

though. need lower support needs autistic people & late diagnose autistic people decenter themselves on this. you all not typical target demographic for this. you not most affected here.

because. going be early diagnosed & visibly disabled & higher support needs people most affected.

also. majority people in JRC BIPOC. one old statistic say 50% Black people.

majority of these. are children.

& most these ugly facts & statistics not going be on JRC website. they going make everything pretty & appealing & downplay. & defend use of shock device on website

had to look through JRC website for this. just for my sacrifice please go fill out comment for FDA. link again: https://www.federalregister.gov/documents/2024/03/26/2024-06037/banned-devices-proposal-to-ban-electrical-stimulation-devices-for-self-injurious-or-aggressive

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may i have the invite to your server? all the current ones are invalid :[

oh i didn’t realize that! here you go!

#fizzy asks

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System Term Coining bc I Can! >:)

Hi! I wanted to create a term for my role in our system! So here you have it! All systems can use this term if they wish to! ^^

Scapegoat

A Scapegoat is a type of "Protector." It refers to a headmate who takes the blame or punishment, protecting the rest of the system from facing consequences.

This role currently doesn’t have a flag and readers are welcome to create one for it!

-Tommy

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Can a pro endo fall in love with an anti endo?

Wha… what even is this ask?

Yes?

#the comments on this post are gold

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I wish every 'endo free traumagenic blog' a very realize mixed origin systems exist

#RIGHT #this is a huge issue #I feel super unwelcome in trauma spaces #but also I feel that endo spaces don't always “get” my whole experience