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#hypersomnolence
18thcenturythirsttrap · 3 months
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When you're having a flare-up and you have to let people down and you bloody hate doing that but you know that, realistically, you have no choice.
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xxhypersomnia · 8 months
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Today and everyday, I am representing those with the rare disorder - Idiopathic Hypersomnia.
IH causes one to be very sleepy during the day regardless of the amount of sleep received. Unfortunately, we have yet to figure out what causes IH or how to treat it. I have participated in numerous medical trials, taken trial medications in every form imaginable, and I have even been injured by medical tests gone wrong (induced sleep paralysis = broken toe). I have spent countless weekends in a hospital bed, forced to stay awake for 25+ hours in order to conduct testing so perhaps others can find relief.
How does it affect my life?
I’m exhausted all the time. I honestly don’t know what “being refreshed” feels like. I haven’t felt that since I was a child. I sometimes sleep whole days away and it affects my relationships. I can’t drink with friends because the alcohol will make me fall asleep at the bar. I have been bruised from too much time in my bed or couch. It makes it extremely hard to stay motivated at the gym. I have fallen asleep on a treadmill and while recieving tattoos. Worst of all, it affects my memory (along with another neurological disorder). Sleep is so important to our brains, it’s a time for it to recover. And my particular version of IH causes my brain to float in light sleep, hardly ever reaching REM. So my brain is never healing. I forget things, I get anxious that I’m forgetting things, and I have a hard time formulating words that I want. It hurts to know I’m smart but can’t always present myself that way.
I could go on and on about the affects it has on me, but honestly the hardest part is people who don’t think you have a disorder. “I’m tired a lot too!”
I will always and forever support invisible disabilities. It is a backwards way of thinking to think disability means wheelchair, or some other physical ailment. Just because you can’t see a disorder, doesn’t mean it’s any less real. “You’re too young to be forgetting things..” that’s one I hear A LOT. Yea, thanks for the reminder than I’m on my way to early memory loss way before my time. I can’t even remember vacations with my family. Memories that I know I love but can’t reach.
Be kind, be cautious with your words, be supportive even if you don’t know the whole story, don’t deny someone else’s reality just because it’s different than your own.
To all my loves with narcolepsy or any other invisible disability, I see you ♥️
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hiisikoloart · 1 year
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New comic! Please subscribe to spread Idiopathic Hypersomnia Awareness and to support me and my plant collection (which I swear I am really trying to keep alive guys I am no monster).
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chicorysaints · 3 months
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okay so my parents talked some sense into me and postpone my trip to knoxville to view apartments which like. makes sense and i'm glad they told me to cool my jets and not spend 9 hours in the car to go tour like 2 apartments but also. now they're trying to tell me to not move out until july 😐
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rottinnymph · 4 months
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"oh how can you sleep on the bus its so loud and uncomfortable and there's like so many people in there ohh" listen. i have sleepy bitch disorder, i can AND WILL sleep anywhere.
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00fairylights00 · 5 months
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Hypersomnolence
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Haha funny story, I was diagnosed with a sleep disorder in November after struggling with it unknowingly for give or take 18 months. Turns out I’m not crazy and falling asleep against your will multiple times a day is actually not a good or normal thing.
So permit me to write the puppet like a sap as I need this right now lol. Yes these are in fact all things I experienced but I am medicated for them now hooray!
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One task, that was all you’d managed to get through today. You felt sick and heavy, opting to sit on the cold ground before your body made you, it was a battle to stay awake as sleep attacked you again.
It was only early afternoon and you’d struggled through your one task of sweeping, you were certain everyone at the hotel thought you to be lazy, even if they’d all told you otherwise.
You’d been sick like this for a long time, long before the petrification disease or the puppet frenzy, both events having a negative effect on the way you’d usually manage your symptoms. 
And while you appreciated the sanctity you’d been spared at Hotel Krat, the nagging feeling of needing to repay Lady Antonia for her kindness was not helping your case.
You sat with your head in your hands, slipping in and out of consciousness, losing the battle again. Usually, Polendina would find you, send you to your room to rest and that would be it for the day, once you were in bed you found it hard to do much of anything else. Which you supposed was good for your body but it made your emotional well-being an absolute wreck.
Lady Antonia had asked you time and time again to be kinder to yourself, to feel accomplished of the things you could do and that you were welcome here no matter how sick you were, and she would know a thing or two about being sick.
But, you had a bad habit of being nasty to yourself, and with your sleep-related illness only seeming to get worse you couldn’t remember the last time you’d spoken kindly to yourself.
You felt like shit.
A hand at your shoulder, delicate and tender shook you but it didn’t do much to rouse you. Your vision swam uncomfortably through the gaps in your fingers, your head being too heavy to lift up. Hands grasped your wrists, pulling gently to reveal your face that was then taken into those same hands, one soft and warm, the other firm and cold.
With the weight of your head now being supported by P’s hands you could somewhat force yourself to look at him. His expression was unreadable, as always, but his presence was a balm to your spiralling thoughts.
The friendship of Geppetto’s Puppet had been good for you, P didn’t care how tired you were he was just happy to see you, he didn’t expect anything but your presence and that was something you could give freely, tired or not.
He tilted his head in question to what you assumed to be your position on the floor, slumped over rather uncomfortably.
“It just came on, I had to sit down,” you mumbled, he seemed to frown, getting down on one knee and shifting you against him to pick you up.
With you cradled to his chest, he ascended the stairs. You burrowed down against his chest, relishing in how nice it was to be looked after. 
It was almost like the trip up to your room didn’t happen, one moment you were snug to P’s chest, the next you were under your sheets and propped up against the headboard. P took it upon himself to remove his shoes and coat and sit on the opposite side of the bed to keep you company.
“Sleepy?” P asked innocently, you nodded trying desperately to suppress another yawn. 
“I-“ he started, a thoughtful look crossing his face, “-want to help. How do I help?”
He gently took your hand in his own, his thumb rubbing over your knuckles. The astounding amount of care he treated you with was sure to tear you apart in the best ways, making your exhausted mind spin.
“Just stay here with me for a bit,” You laid your head on his shoulder, “I think that’ll help.”
“Okay.”
He mimicked you, resting his head on top of yours, pulling the sheets further up your lap. Doing what he could to keep you comfortable, a concept he was still trying to grasp.
“Thank you P,” you mumbled, snuggling closer, “love you.”
He pressed a gentle kiss to your head, nose buried in your hair, “I love you too.”
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introvertistic · 11 months
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"Comorbid sleep disorders in ADHD are associated with daytime impairments in cognition (e.g., inattention). Many individuals with ADHD report daytime sleepiness that may meet criteria for hypersomnolence disorder. One quarter to one-half of individuals with ADHD report sleep difficulties; studies have shown an association of ADHD with insomnia, circadian rhythm sleep-wake disorder, sleep-disordered breathing, and restless legs syndrome."
American Psychiatric Association. (2022). Neurodevelopmental disorders. In Diagnostic and statistical manual of mental disorders (5th ed., text rev.).
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mentoillnesspolls · 1 year
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I wanted to include so many more symptoms, but I tried to keep this concise!
Sleep-Wake Disorders: Insomnia, hypersomnolence, narcolepsy, obstructive/central sleep apnea, sleep-related hypoventilation, circadian rhythm sleep-wake disorder, non-rapid eye movement disorder, nightmare disorder, rapid eye movement sleep behaviour disorder, restless leg syndrome, substance/medication-induced sleep disorder, otherwise specified/unspecified insomnia disorder, otherwise specified/unspecified hypersomnolence disorder, otherwise specified/unspecified sleep-wake disorder
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melodymorningdew · 9 months
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I have spent my life in pain, convincing myself that it isn't pain. "It's normal." I'd say to myself, because that's what everyone told me.
I have had migraines, chronic pain, and chronic fatigue since I was a child... And that's not even the end of the list.
I have been gaslighted by so many doctors and rushed out of rooms with new prescriptions in hand. I get that doctors are under a lot of pressure, but the amount of suffering I've been through, because no one listened to me, is inexcusable.
I'm in more pain and I'm more fragile than ever. Even some of my closest friends seem to just keep suggesting I find a new job to make more money. I CAN'T. No one seems to hear those words.
"Oh believe in yourself you can do anything." NO. I CAN'T and I SHOULDN'T.
I have spent my life pushing, no, SHOVING myself to do more than I should have ever done. All it did was make me sicker and speed up the process of whatever undiagnosed degenerative illness I have.
I have been diagnosed with clinical narcolepsy (aka idiopathic hypersomnolence), hyper mobility, asthma, dysautonomia, hypoglycemia, and so many other things it makes me want to sleep for a week trying to remember.
I haven't been able to hold a job since I started working at 15, but no one ever bothered to ask "well you keep limping out of here and calling in sick, do you think it might be serious?". No one ever bothered to tell me my symptoms weren't normal. All of them were explained away time and time again.
I DEMAND to know where, in these doctoral studies, were doctors instructed to dismiss their patients' concerns. This is MY body... don't you think I might know a thing or two about it?
I'm furious. I could have a fuller life right now if ANYONE had fucking LISTENED to me.
No I believed all of them for so long. Believed I was lazy and useless and dramatic and making excuses. Well guess what? They have MADE me dramatic, because otherwise no one will listen.
My pain is real, my symptoms are real, and I will scream like the hysterical woman they've made me out to be, until I am heard.
To all of the individuals over the years who tried to push me past my limits when I asked to stop, when I was in pain, when I said I was nearly blacking out, or when I said I needed to rest- you need to understand how broken that has left me. My self worth was demolished, I can't tell people "no" without panic and shame overtaking me.
"Surely I'm just making it up. Surely I'm not worthy of doctors' attention or this wheelchair." These thoughts are so deeply ingrained in my brain that they have to be surgically removed every time I go to do something for myself for once.
I have been beat over the head with the word "just" so many times I may just slap the next person who says it: "Just get a stable job, just drink water, just do yoga, just exercise, just eat right, just meditate, just stop crying, just don't be dramatic, just stop talking about your problems, JUST BE WHO WE WANT YOU TO BE AND ONLY WHO WE WANT YOU TO BE."
No. You will hear me use this word as my shield. NO. I will not be forced into sacrificing what little of myself I have left for the sake of anyone else's comfort. NO! I will NOT be silent, I will NOT be shamed, and I WILL keep fighting for myself even if every single person thinks I'm a selfish bitch because of it.
They can think we are selfish and useless and lazy all they want, but we are disabled, we are beautiful, we are valid, and we deserve an equal playing field.
I'm going to keep fighting for my own health. Few others will. And I'm going to keep fighting for others and join the others that do.
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baokim80 · 11 months
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Happy Disability Pride Month
Top
Carl (right)
Disabilities: Trauma scars, chronic allergies (bee sting), top scars, heart problems, and pacemaker user
Mental health: Coulrophobia, depression and PTSD
Sexuality: Transgender (FTM), transmasc, polygamy, and Bisexual
Kami (left)
Illnesses: Influenza types B (as a child) & A (as an adult)
Disabilities: EDS, traumatized injuries, chronic allergies (poison ivy), trauma scars, lung problems, lung conditions, asthma, POTS, chronic pain, wheelchair, and mobility aids user
Mental health: Sex Addiction, domestic abuse (physical, sexual, and emotional), personality disorder, PTSD, bipolar disorder, and Trypanophobia
Sexuality: transgender, bisexual, bigender, Demi boy, and nonbinary
Middle (right)
Kevin (right)
Disabilities: hearing problem, and half deafness
Mental health: ADHD, anxiety disorder, and selective mutism
Sexuality: ADHD and bisexual
Ed (left)
Mental health: autism
Sexuality: gay-bisexual and autistic
Middle (left)
Anna (right)
Disabilities: facial scars (but wearing makeup on face)
Mental health: emotional abuse, DID, psychotic disorder, and physical abuse
Sexuality: transgender and bisexual
Billy (left)
Disabilities: pollen allergies, diabetes, and visual impairment in one eye
Mental health: OCD, NPC, Arachnophobia, and claustrophobia
Sexuality: bisexual and asexual
Bottom
Thomas
Mental health: IAD, hypersomnolence, schizophrenia, and SPD
Sexuality: bisexual
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leebird-simmer · 1 year
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Psychopathology, Ch. 9 notes
{Note: I have no personal experience with disordered eating and I don’t know how accurate this chapter of the textbook is. If you struggle with an eating disorder or previously have, and you notice incorrect information in this post, please feel welcome to drop corrections in the comments.}
Eating disorders: psychological disorders characterized by disturbed patterns of eating and maladaptive ways of controlling body weight.
Describe the key features of anorexia nervosa.
Anorexia nervosa: an eating disorder characterized by maintenance of an abnormally low body weight, a distorted body image, and intense fears of gaining weight.
Describe the key features of bulimia nervosa.
Bulimia nervosa: an eating disorder characterized by recurrent binge eating followed by self-induced purging, accompanied by overconcern with body weight and shape.
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Describe causal factors involved in anorexia & bulimia.
- Eating disorders typically begin in adolescence and affect more females than males.
- Anorexia and bulimia are linked to preoccupations with weight control and maladaptive methods of trying to keep weight low.
- Many other factors are implicated in their development, including social pressures on young women to adhere to unrealistic standards of thinness, issues of control, underlying psychological problems, and conflict within the family, especially over issues of autonomy.
Body mass index (BMI): a standard measure that takes both body weight and height into account.
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Evaluate methods used to treat anorexia & bulimia.
Severe cases of anorexia are often treated in an inpatient setting in which a re-feeding regimen can be closely monitored. Behavior modification and other psychological interventions, including psychotherapy and family therapy, may also be helpful. Most cases of bulimia are treated on an outpatient basis, with evidence supporting the therapeutic benefits of cognitive behavioral therapy (CBT), interpersonal psychotherapy, and antidepressant medication.
Describe the key feature of binge-eating disorder and identify effective treatments for the disorder.
Binge-eating disorder (BED): an eating disorder characterized by recurrent eating binges without subsequent purging.
- People with BED tend to be older than those with anorexia or bulimia and are more likely to be obese.
- CBT and antidepressant medication have been shown to be effective in treating BED.
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Sleep-wake disorders: persistent or recurrent sleep-related problems that cause distress or impaired functioning.
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Describe the key features of insomnia disorder.
Insomnia: difficulties falling asleep, remaining asleep, or achieving restorative sleep.
- frequently associated with worrying and anxiety, especially performance anxiety associated with overconcern about not getting enough sleep
Insomnia disorder: a sleep-wake disorder characterized by chronic or persistent insomnia not caused by another psychological or physical disorder or by the effects of drugs or medications.
Describe the key features of hypersomnolence disorder.
Hypersomnolence disorder: persistent pattern of excessive sleepiness during the day.
- Despite adequate amounts of sleep, these patients feel unrefreshed upon awakening and aren’t alert during the day.
Describe the key features of narcolepsy.
Narcolepsy: a sleep disorder characterized by sudden, irresistible episodes of sleep.
- may involve genetic factors and loss of brain cells in the hypothalamus that produce a wakefulness-regulating chemical
Cataplexy: a physical condition triggered by a strong emotional reaction that involves loss of muscle tone and voluntary muscle control, which may result in a person slumping or collapsing to the floor.
Sleep paralysis: a temporary state of muscle paralysis upon awakening.
Hypnagogic hallucinations: hallucinations occurring at the threshold between wakefulness and sleep onset or shortly upon awakening.
Describe the key features of breathing-related sleep disorders.
Breathing-related sleep disorders: sleep disorders involving recurrent episodes of momentary cessation of breathing during sleep; often associated with daytime sleepiness.
Obstructive sleep apnea hypopnea syndrome: a subtype of breathing-related sleep disorders more commonly called obstructive sleep apnea. It typically involves repeated episodes during sleep of snorting or gasping for breath, pauses of breath, or abnormally shallow breathing.
Describe the key features of circadian rhythm sleep-wake disorders.
Circadian rhythm sleep-wake disorders: sleep-wake disorders characterized by a mismatch between the body’s normal sleep-wake cycle and the demands of the environment.
- more likely to occur as a result of frequent shifts in work schedule or frequent travel between time zones
Identify the major types of parasomnias and describe their key features.
Parasomnias: sleep-wake disorders involving abnormal behavior patterns associated with partial or incomplete arousals.
Sleep terrors: a sleep-wake disorder characterized by recurrent episodes of terror-induced arousals during sleep.
Sleepwalking: a sleep-wake disorder involving repeated episodes of sleepwalking.
REM sleep behavior disorder (RBD): a sleep-wake disorder characterized by vocalizing parts of a dream or thrashing about during a dream.
Nightmare disorder: a sleep-wake disorder characterized by recurrent awakenings due to frightening nightmares.
Evaluate methods used to treat sleep-wake disorders and apply your knowledge to identify more adaptive sleep habits.
A. Biological approaches
- anti-anxiety drugs are most commonly used; however, this is not always a good long term solution because of the potential for psychological and/or physical dependence on sleep aids.
B. Psychological approaches
- cognitive behavioral interventions have emerged as treatment of choice for patients with chronic insomnia
C. Healthy sleep habits
1. Establish a regular sleep-wake cycle.
2. Limit activities in bed to sleeping (as much as possible).
3. Get out of bed after 10-20 minutes if you are unable to fall asleep; take action to restore a restful state of mind.
4. Avoid daytime naps and avoid ruminating in bed.
5. Establish a regular daytime exercise schedule.
6. Avoid use of caffeinated beverages in the late afternoon & evening.
7. Replace self-defeating thoughts with helpful alternatives.
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indiares · 1 year
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What can be diagnosed through a polysomnography test?
Idiopathic hypersomnia: The test is suggested to people who have suspicions of Idiopathic hypersomnia, narcolepsy, and other hypersomnolence disorders.Circadian-rhythm issue: People with suspicions of non-24-hour sleep-wake syndrome, delayed sleep phase syndrome, and other circadian rhythm sleep-wake disorders are suggested 
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hiisikoloart · 1 year
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News are trying to name the only FDA approved Idiopathic Hypersomnia medication (Xywav) as a date rape drug again....this is the second time this has happened since the medication was approved.
Last time there was no apology, no acknowledgement that it'll literally save lives of those suffering from IH, no touch to reality that it is in fact NOT a date rape drug and people can't just ask for it from a doctor in a whim - and I doubt this time around they'll do any better.
But here are the facts anyway:
1. Getting IH diagnosis is EXTREMELY DIFFICULT and requires often months of testing after being dismissed for decades. It is especially hard to get diagnosis if you are POC, have disabilities, are AFAB, or suffer from any form of mental health issues (which unrecognized, untreated, and undiagnosed IH can and does cause).
2. PEOPLE CAN'T CHEAT IN THE TESTS. Overnight sleep test will measure if you slept enough so person can't pass MSLT (multiple sleep latency tests, ak.a NAP TEST) with right premiters by using sleep deprivation. You'll be drug tested in some point for sure if they believe you have substance issues (and if you do - you wont even get to sleep tests) so taking drugs not only shows in the data, it shows in the piss test. You'll likely need to also have a brain scan, crap ton of blood work, epilepsy tests, mental helth tests and MORE before even being cleared to the sleep tests that also check if you have apneas, restless legs, and you can't fake dreaming and falling asleep.
2.5 You also can't fake it because most people can't sleep while hooked up to thousand wires, their nose full of tube, chest tied tighter than a gift wrapping for HULK, head scratched to be full of extremely itchy and hurting tags, and while in a hospital room where you are FILMED SLEEPING. Passing 4-5 sleep tests like this, often needing to re-take the test due to stress these things causes, is hard for those who actually have IH so someone without has no hope passing.
3. Criminals don't generallt get medications - EXPENSIVE MEDICATIONS AT THAT - from doctors when they can get that shit cheaper from the streets. It would cost them thousands from pocket to be tested for all of this, just so they can theb fight doctors to get the medication, and then try to find a pharmacy that sells it foe you, just to literally pay a fluctuating sum that is in hundreds, even closer to 1grand per month without insurance.
4. Framing people with IH as rapists is inflammatory, evil, and sick - saying that people who seek IH diagnosis do it for medication is fucked up, and even more fucked up is claming people would do it to harm others!
5. That medication saves lives of those who have suffered often decades without any help; people who are hurting every day and are losing the fight against IH induced depression as IH is literally destroying their lives. It is not for date rapists, it is for us who need it - and framing it as "evil" makes it harder for us to get. In fact last time this kind of news broke, doctors refused to give the medication to people because they had read the yellow journalism surrounding it. They bought into the literal lies rather than treat people who were begging them to help. In result, people have offed themselves, feeling no hope in the system...RIP.
6. Only people who could access it through doctors are the uber rich. So tax them, put them to jail without bail and way out. Stop coddling the actors who are open about their use of substances. Focus on rape culture and dismantling it. Stop claming people who are disabled and sick are the issue when every problem and every solution is thousand steps up in the global hierachy.
7. It is not even the same compound. Anyone claming that street drug and pharmacy medication are the same are science illiterate morons. Those making this medication are trying to help us who have no help, no representation, no access - they are not trying to create an army of rapists on the streets.
And 8. Yellow Journalism is evil. It is lying. It is distorting the truth. It is creating waves of outrage for the sake of outrage. It is simoly trying to get rage reads out of people and cause them to simply draw conclusions based on their shitty conclusions.
It is beyond harmful for everyone to let it flourish as it makes people more media illiterate and creates sections of humanity who can't acces help because the illiterates will be on the way - they have the energy to do that, while we are suffering and unable to defend ourselves.
I know this was a long post, but if you can - take action against these news outlets spreading misinformation. Complain to them. Grow awareness. Help us with IH be heard. Write better, well-informed think pieces to drown out the bullshit.
I am so tired of this shit.
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svoukos · 1 year
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all ur favs have hypersomnolence sorry i dont make the rules but actually i do
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danceofillusions · 2 years
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Hypersomnolence is legitimately one of the hardest things ive ever had to deal with. Its so fucking debilitating
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chicorysaints · 2 months
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i am experiencing debilitating hypersomnolence -> depression
wow, i’m so jessica locke coded -> no depression
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