#life with lupus | Explore Tumblr Posts and Blogs

scudismystud · 25 days

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#life with lupus #chronic illness #chronic pain #heating pad is my friend #save me heating pad

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berberriescorner · 6 months

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Sooo…I had a follow up with my hematologist.

Guess who starts yet another cycle of iron infusions next week?!

This lady 🤦🏾‍♀️. I’d go into detail, but at this point who knows what the real answer is 🤷🏾‍♀️. I’m just venting lovelies. Tired of being tired. Tired of being out of breath. Tired of lupus flare ups. Sick and tired of being sick and tired.

Yes, you get used to it, but man! I want to get back to a place where I have enough energy to do the things I love. Welp I guess it’s good I ordered all those damn books lmao! Now I’ll have new reading material for my infusion appointments😆😩🥹.

Okay enough of being an emotional lil bish. Back to being a sensitive thug😆😂🤣.

How my babies doing though?!

#berberriescorner #just venting #i’m just tired #anemia sucks #iron deficiency #lupusproblems #life with lupus #systemic lupus erythematosus #lupus nephritis #lupusfighter #living with lupus #lupuswarrior

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ecoamerica · 1 month

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youtube

Watch the American Climate Leadership Awards 2024 now: https://youtu.be/bWiW4Rp8vF0?feature=shared

The American Climate Leadership Awards 2024 broadcast recording is now available on ecoAmerica's YouTube channel for viewers to be inspired by active climate leaders. Watch to find out which finalist received the $50,000 grand prize! Hosted by Vanessa Hauc and featuring Bill McKibben and Katharine Hayhoe!

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daddywarbats · 11 months

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I love how no one explains to you the implicit anxiety that comes with medication for chronic illnesses.

You're always low key worried about access to it and affording it, the side effects and the damage some of them can incur.

It's wretched.

#life with chronic illness #life with autoimmune disease #life with lupus #that chronic illness life #chronic illness #systemic lupus erythematosus #lupus #rheumatoid arthritis #fibromyalgia

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quill-pen · 1 year

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Society: "Get ready for hot girl summer!"

Me: *sitting in a steaming hot bath because cramps and lupus* Am I doing it right?

#hot girl summer is not an option for me😅#never has been #life with lupus

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my-life-now-with-lupus · 11 months

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So, it’s still here.

It’s no longer as wild.

I keep asking - are you sure?

I’m all or nothing, pacing is becoming a repetitive challenge.

Trying to achieve a balance- sacrificing, functioning, surviving, living.

Grieving for the life that you haven’t got the energy, memory, stamina, medical record for.

Things you took for granted, which now fluctuate making it difficult to make plans, to commit, to show up.

Hard to Accept that it’s difficult for others to understand when not wearing your shoes.

The invisibility, the need for validation but not wanting or seeking sympathy or attention.

I should be doing more taming,

But I want to kick it out the park.

I want the sprint finish- not the life marathon.

It’s still here.

#life with lupus #lupuslife #lupus symptoms #lupus #lupusawareness

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idontfitin · 2 years

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BEYOND OVER HAVING AUTO IMMUNE DISEASES! This pain the past couple days is becoming worse and worse… What I would give to not feel any pain right now… 😭

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whatspringdoestothecherrytrees · 2 months

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O Cruel Fate

got admitted to the hospital for meningitis.

they think it’s aseptic but they are still going to tap me to make sure it isn’t fungal.

let’s see…..

#life with lupus #lupusawareness

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thelupuslady · 1 year

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#autoimmune #lupus #lupus warrior #spoonie #fibromyalgia #lupus advocate #lupus fighter #strong #chronically ill #pots syndrome #posturaltachycardiasyndrome #postural orthostatic tachycardia syndrome #ehlers danlos awareness #ehlers danlos life #systemic lupus erythematosus

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sephirajo · 1 year

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having a fun disability day. dropping things left and right and tripped twice so far.

#life with lupus #living with lupus #the spoonie life #nerve damage inflicted on me by me

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lifewithhomer-lucy · 2 years

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What you lookin at?

#labrador #chocolatelab #dog #original photographers #chocolate #jlphotography #homer #best doggo #labradorretriever #best dog in the world #cute doggo #doggosofinstagram #dogoftheday #lupus #canis lupus #life with lupus

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spoonful116 · 10 months

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Getting diagnosed with a chronic condition is easy! Just follow these steps:

Have symptoms

Schedule doctor visit

Wait indefinitely

Repeat

#spoonie #disability #chronic disability #disabilities #spoonie life #ibs #lupus #ibd #gastroparesis #chronic uti

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ecoamerica · 1 month

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youtube

Watch the American Climate Leadership Awards 2024 now: https://youtu.be/bWiW4Rp8vF0?feature=shared

The American Climate Leadership Awards 2024 broadcast recording is now available on ecoAmerica's YouTube channel for viewers to be inspired by active climate leaders. Watch to find out which finalist received the $50,000 grand prize! Hosted by Vanessa Hauc and featuring Bill McKibben and Katharine Hayhoe!

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daddywarbats · 2 years

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Oh yay, on Satan's own fuckin TicTacs again.

#life with chronic illness #systemic lupus erythematosus #putting the systemic in sle #god i hate prednisone #life with lupus #sle #tfw flare

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quill-pen · 6 months

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Just humor me here? Please?

#life with lupus #lupus #i'm just having a rough spell okay?#humor me

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sssnapspics · 6 months

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they spotted a squirrel

#wolves #canis lupus #white wolves #wild life #wolf #arctic wolf #animals #original photographers #fave

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idontfitin · 2 years

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How many other corrupted companies are out there!? #asking for a friend.. Losing the corporations business because of who they have allowed to run it. Sweeping so much under the rug. Not believing your own employees about anything important regulars don’t want to come in anymore, sexual harassment, drug problems, HUGE sexism, bullying, discrimination like taking someone’s position away because “no one likes her”, drinking in the clock, stealing, mentally/physically/emotionally killed hundreds of employees by how things are ran. I wish corporation new what was really happening in their smaller stores because I bet you the store could be making more money than it already is…. Just need the right people to do it! Too many evil people abuse their powers in the work field and it’s disgusting! I wish something could be done. Otayyy rant over 😭

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crimeronan · 8 months

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DIDN'T REALIZE NEOPETS HAS A BUNCH OF WEARABLE MOBILITY AIDS AND AUTISM EQUIPMENT NOW..... HELLO?

#neopets #i've never been interested in dressing my neopet in my life. but i'm giving aoifelina my lupus for sure #autoimmune tag #i saw that they have lgbtq+ pride gear earlier which threw me for a similar loop #i remember when people would get frozen for saying 'i am rainbow proud' in their siggies

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