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#and now i have a dermatology referral too
donnerpartyofone · 10 months
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I can't believe I'm about to do this. I mean don't get too excited, it's not interesting, I'm just forced to talk about it because that's the only power I have in this stupid situation.
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A couple weeks ago I was prescribed this new asthma medication, even though my problem is almost definitely from muscular-skeletal pressure but nobody can figure that out yet, so for now I just have this inhaler so I'm not constantly suffocating. The first time I took it at the recommended dosage I had a bad panic attack that took me out for an entire day. I reduced the dosage so I didn't feel dangerously insane anymore, but it still causes my fucking rosacea to go completely out of control, which is not really something I can just ignore; it drives me crazy that insurance companies just treat rosacea like it's some fancy cosmetic issue, as if it doesn't affect your entire life when your skin is visibly deteriorating at an escalating rate, but that's another story... So anyway I have a giant bag of medications that either didn't work at all or actively harmed me (my typical experience with everything) that I haven't disposed of yet, so I dug around in there for a tube of Rhofade that like I don't even know how I got it because it's the premiere celebrity-endorsed thing and it's psychotically expensive, but anyway I decided to give it another shot because I'm desperate. First couple days it worked great. I thought all my problems were solved, except that I'd have to find a way to keep paying for it. Then it seemed not so great for a couple days. Then things started to get pretty rocky. I wondered if it had to do with not being careful enough in the sun or what, but I started to worry about the medication, so I did something that will sound insane, but oh well.
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Months ago I complained to my GP that I was having a hard time finding a "real dermatologist" in the city, as opposed to a salesperson for predatory beauty treatments. I've been treated pretty badly by a variety of dermos over 15 years, I often had the feeling that I was neglected because I had a medical concern as opposed to like an expensive anti-aging concern or something. Sometimes a dermo advertises themselves as a medical professional, but when you get there you realize they're a glorified beautician and you're fucked. I went to a well-reviewed practice that's now called The Dermatology Specialists several times, and every time there was a mad rush to get rid of me. The actual head of the clinic saw me a couple times, and both times he came running at me with a needle without telling me what he was doing, to try to lance a mole that I wasn't there to discuss. One of these was right over my eye and you can imagine how scary this was. I eventually realized I didn't have to take that shit and swore him off. Years later when I decided to look for a dermo in my new neighborhood, I made an appointment at a "new" place that I realized too late was the same guy; he had rebranded and expanded his thing into a giant chain that's all over the city, like half or more of the dermos in my searches are attached to his practice and it's not always obvious until the appointment is made. Fuck. I thought, maybe things will be different at this location, I'm seeing a new person and I'm the only one in the waiting room, seems pretty chill. I actually had to get a mole removed that time. I sat down with the new doctor who frantically explained what she was going to do to me before saying "OK BYE!!!" and racing out the door, which she had almost closed all the way behind her before she remembered that she still had to actually do the procedure. I couldn't believe I'd fallen for this clinic's bullshit yet again!
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So that's when I talked to my GP and she wrote me a referral for what I took to be a real doctor. His office was clean, simple, and unpretentious. When I got there, an exiting patient was thanking the doctor profusely for something, like from the depths of his soul. We sat down together and he calmly denounced all the lasers and other expensive snake oil that had been upsold to me over the years. He told me to scale back to just a basic Aveeno face wash and moisturizer, and I was so relieved that he wasn't some greedy hipster asshole...however. He also told me that the active ingredient in Afrin, an OTC decongestant nasal spray, has the same effects as the top of the line rosacea medication Rhofade, and many of his patients have success just applying it to their skin. I was so impressed that he wasn't trying to sell me anything, and that he was empowering me to just take care of my own shit at home, that I believed him.
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So flashing forward to the past week: I use this new inhaler that I need if I want to breathe, my face blows up like a bomb, I try Rhofade and it seems to make things worse...and then I buy some Afrin and put it on. It pretty much burned my face off my skull. My skin was purple and my face completely changed shape for more than 24 hours. I thought, at least I have this cold pack that's made for faces, for swelling from dental surgery and shit (it was recommended to me by my TMJ specialist who is also fucking with me right now but that's another story). I applied it, and it made everything a thousand times worse than it had ever been. I had to cancel all my plans. I took Tylenol, antihistamines, drank tons of water, whatever I thought would help. A colloidal oatmeal-based moisturizer kind of did something for me, but not remotely enough. It's a couple days later, now, and I'm still not completely over it, and I'm having random intense and painful flareups. I've never had exactly this problem before. And by the way "just using a moisturizer" has not helped anything at all this entire time, even though it's the advice I always get (sometimes VERY rudely) no matter what I say. Dry skin is not my problem, someone could tell just from touching it. Just being mindful of the sun and trigger foods and shit is not the answer. I know there's something else going on and like nobody cares to find out.
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So anyway I'm having a followup appointment with my GP to explain all this...and in the meantime I'm going back to the fucking snake oil clinic. I just absolutely need something for right now, I don't know if it will be an antibiotic or what. I've spent years looking for a real medical dermatologist and I know I'm not going to just find one overnight, so I'm subjecting myself to more humiliation at the most convenient place, and I'll deserve whatever I get I guess. At least my appointment is with a guy I haven't seen before. Cross your fingers for me that he doesn't give me something else that just melts my face off of my face.
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nityarawal · 1 year
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I completed all dental work last week!
I saw eye Dr Monday for several hours. He ran many tests and could only propose surgery to plug tear ducts for 6 months to stop bugs coming out!
Some kind of fungus us still going after 90 day cleanse- continuing herbs & natural Dr's protocall- but I need my assets to move forward now with my kids. 
I've tried many social workers, 100's of attys & law enforcement/Courts totally failed my family. 
I'm sick of their gross Dr's & officers chasing us and sexually assaulting me & my family.
Please settle with ex. 
Dr. Natalya & Dr. Cash have tried for 3 months to get me a referral to Infectious diseases and Dermatology. 
We feel IEHP & Medical system has failed in medical emergencies and do to foul play they cost my health in tick as well as covid germ warfare. .
This place below will take medical & iehp but insurance companies & drs fail to cooperate. Blue Shield & Triple A have Stirling men complicit hurting my mommy friends & I. Airbnb & real estate brokers are in on ponzi scams with sex Stings at courts. 
This is a state/County emergency. 
Dr. Scott Partlow says he took a bribe on my court case through corrupt system and boys clubs. He sold Elizabeth Rojo to hospital on a 72 hour hold because she wouldn't sleep with him and was escaping her Abusers. He threatened to slander me too because I didn't want him to touch me and he violated me.
We need to close these de-licensed Dr's down. 
If a Dr. or cop loses licenses its for good reason. 
Dr. Sunil Rawal needs to be delicensed and deported for ponzi scam against my family.
Please have all criminal's money's donated to my charities so I can attend to mothers correctly. 
Pimping pregnant woman to Trafficking Dr's and hospitals on foul play is unacceptable.
Dr. Scott Partlow was trafficked by his father Bruce Paltrow and his Jewish dad trafficked by neo- nazis. Darin David Joye should be sponsored by George Harrison if he's their Illegitimate brother- not my family and bribes from attys! 
Only way to stop cycle of Germ war & gigolos is to de-bug and deport all parasites at court. 
Our tax dollars shouldn't be paying for all these celebrity Illegitimate brats to hustle my country. 
We need full reperations from UK & America NOW! 
All kids returned. 
No Britney & I don't agree to pimp our sons out to University of Hawaii. 
It's bad enough they prostitutes my brother & threaten to rape our kids constantly! No thankyou! 
Thanks!
Nitya Huntley Rawal
https://www.yelp.com/biz/advanced-dermatology-and-skin-cancer-specialists-palm-springs-palm-springs
Need x rays sent to [email protected] fire Judith and Alexi for foul play at Cathedral City & medical malpractice. We know they took bribes to cancel appointments 3 days in a row. Need full reperations on insurance. 
Close office. Is Dr. Sina OK or is he in a conservatorship?
Thanks!
Nitya Rawal 
Need you to file this with IRS so they stop stealing from me and harassing family. I need a refund on tax returns. You sold me out on bribes and promise money that never came! I'm not paying for 18 months wrongful rental car arrest or rapes from government. You need to fix this now or LNC bank and Wells Fargo needs to refund for all rents, legal fees and utilities since 2016 violent scam! 
On Thu, Mar 2, 2023, 3:44 PM nitya rawal <[email protected]> wrote:
Hi message Mr. Stapleton & Mathew Robert's daily. No one confirmed or called back about your Dr's appointment today. I asked Christopher to cancel it. 
I'm seeing my dentist about these parasites you gave me & am leaving state this weekend with my kids.
We can't risk anymore violence from your mentally incompetent defense team. Do your homework & send in my files. You don't need anymore data or DNA from my family. You've violated us with extreme racism on Gag orders. No. I won't be quiet about your violence or sexual assaults and I will leave to a stare that's closing your defense down if you can't perform today. Sandiego, Riverside & LA are parasitic con artists scamming our people.
Thanks!
Nitya
Friendly reminder: Nitya's Western Dental appt is on 03/03/2023 at 03:00PM at Cathedral City 69160 Ramon Rd,92234. Covid screening reqd. Reply STOP to opt out.
Rest of spirochete video & thread is posted on Twitter for legal/medical/court team:
https://twitter.com/nityalakshmi108/status/1631323994514399232?t=d6Y5hVEduOcUstUCZO-N8w&s=19
---------- Forwarded message ---------
From: Vanessa Navarette <[email protected]>
Date: Thu, Mar 2, 2023, 12:53 PM
Subject:
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pigeonfancier · 2 years
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TBC is done! My giant comic project is also done, and I'm both pleased and a little distressed: what am I going to do with my time now? Finish up my dozens of older projects? That's not very me.
I thought the ending would feel very bittersweet - I've been in a bit of a distressed kind of Mood about the game lately, not helped by the community's reaction to the ending - but no, I'm actually fairly satisfied with it, and I'm pleased that a great deal of the ending was ultimately left ambiguous. It leaves room for everyone to come to what conclusions they want, and with stories, that always feels the best.
In health news: I attended my dermatology visit, which was very stressful going in, and significantly less so coming out. The doctor apparently saw my chart, and got very excited, because autoimmunal pancreatitis is rare, and he thought that I must have it from IGG4, if I was having skin issues. So he brought in his entire gaggle of medical ducklings..
.. and then got disappointed to realise that I do not have IGG4 symptoms, which is a surprise to me, haha. Pancreatitis is so hard to research! I know I have autoimmunal, but I did not realise there was even a difference between hereditary and IGG4-based pancreatitis in the first place. He still used it as an opportunity to drill his students on pancreatitis, though, which was fun, and educational to me as well, haha.
He also gave me a referral to a pancreatric specialist with his network, too, which is nice: I went to Cleveland to get seen by one of the state's Top Specialists, per google and my GP, and said specialist was very thrown over the fact I didn't have substance-based pancreatitis. Very thrown, and kind of judgemental! Meanwhile, this doctor's first words after interrogating me on pancreatitis for his students were: "oh, you must get people thinking you abuse alcohol a lot, huh?"
It's very nice to have a doctor.. not assume I am lying, or immediately jumping to negative conclusions, lol. Very nice, and unfortunately, very rare! But his network actually handles autoimmunal and hereditary pancreatitis, and I am so relieved that there is potentially an end to sight in dealing with this. He seemed very certain there were multiple treatment options involving pills, rather than surgery, for it. I'm crossing my fingers!
Also crossing my fingers that, for all that I'm pleased over him inexplicably hyperfocusing in on my pancreatitis, he is not entirely correct on his diagnosis of my skin issue? He looked over the dark spots, asked a lot about family history and my grandfather's mysterious abdominal surgeries, and then immediately said, oh, this is almost undoubtedly Peutz-Jeghers Syndrome, and I probably just hadn't noticed any of the symptoms in the past, because pancreatitis is a good way to mask it, but my bizarre lip spots are pretty indicative of it. So go to the gastro he was referring me to, get the pancreatitis checked, and get testing for the PJS, so it can be treated!
And in the meanwhile, don't freak out! :)
Because, as he lovingly informed his ducklings, patients always look these things up on their phones and then spend the next three months freaking the fuck out.
And who am I, but a stereotype?
I'm not letting mysef froth over it too much, haha, or at least, I'm trying not to! Darcel and I do have markers for it, per Promethease, but that isn't necessarily reliable, and it's certainly not a diagnosis of anything. Still, I keep eyeing that, and then eyeing Cleveland Clinic's cheery note that "the lifetime risk of developing any sort of cancer is estimated to be as high as 93 percent", and midkey frothing. I would really just like to be healthy! I do not want to have to memorise how to spell fucked up German disorders! Going into an appointment to ensure I do not have cancer, and getting told "you don't have cancer! but eventually you might! :)" is not my favorite activity!
But if I do have it, whatever, lol. This shit is what preventative care is for, I suppose, and if I have to make time to go and get checked out regularly, I'll make do. The health complications and risks seem as if they primarily come down to not having preventative care, which is something I can work with.
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nikoinnicu · 3 years
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10-2-21
Niko had some much better attempts at breastfeeding today. It’s so hard because we want him not to expend more energy than he is consuming and conserve it to grow, but he is so keen. The tongue tie snip has definitely improved things.
He has got my cold - or he gave it to me.... but he is snotty and croaky bless him. But he was nice and alert and up for excellent cuddles today. He doesn’t seem too phased by it. A new way to get him to sneeze out his snotty nose is to squirt breast milk up it 😳 Basically breast milk cures everything: dry skin, snotty nose, gammy eye, mild rash, broken skin, sore bum the works! Good job I have a freezer full!
Niko’s haemangioma is getting bigger (as expected) I haven’t really noticed as we see him everyday but the doctors have. So they have sent a picture to dermatology and hope to start his beta blockers which will hopefully halt the growth.
One thing I am in awe of is how quickly everything gets organised. Tongue tie: assessed and snipped in one day. Dermatology referral - instant! It’s refreshing to see!
We have a review with his named consultant tomorrow at 12, hopefully we can find out a plan for him over the next month.
Lots of people have been asking us when he is coming home, and if he will make his due date. The answer is no he won’t - It was a good goal at the beginning to give a scope of time but now it has become more important to just ensure the little man comes home when he is ripe and ready! As soon as we know it’ll be on the blog because I will be sooooooooo excited!😊
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lucysweatslove · 4 years
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Day 23 // No prize that could hold sway or justify my giving away my center
Title lyrics taken from “Jambi” by Tool.
So let’s just start with this: every single time I watch or read anything related to medicine, I’m inspired. They light fires under me- and in my heart. 
I’m currently watching Pandemic (yes, amid the Wuhan coronavirus “scare”), and all I can think is I want to DO that. I want to do whatever I can to help heal the human suffering caused by disease, either pathogenic or idiopathic. If that means suiting up in excessive PPE to intubate- I want to do that.
A few nights ago, Rob asked me why I don’t start at his company as a consultant or get my CPA. I would be making so much more and right away- and I wouldn’t have to pay hundreds of thousands of dollars for additional education. Math is a huge strong suit of mine, but it’s not my passion. It’s not my center. Medicine is- and it’s not because of the money. No amount of money (or conversely, debt) would dissuade me away from it.
I live in Montana, which is what I would consider underserved. We don’t have a large number of specialty providers, and in some cases, specialities can take over a year for a referral (looking directly at you, rheumatology). Can you imagine- you get a referral to a speciality through your primary care, which is needed under Medicaid, but by the time they’re able to see you, that referral is no longer valid? Do I like Montana? Nope. It’s cold and miserable most of the year. Do I want to live here for the rest of my life? Yes, if it means I get to serve the people who live here. 
I see these people each day, and I see the worry in their eyes, and this is only freakin’ dermatology. No offense to derm folk- I love derm too- but derm is literally the easiest freakin’ specialty I’ve witnessed. We don’t often deal with anything systemic or life-threatening; it’s rashes, psoriasis, hair loss, acne, itching, and most often non-invasive, easily controlled skin cancers. 
But we’re accessible. The clinic does such a good job at patient access, and when an “emergency” comes in to triage, we all work around our days to fit them in.  And while we aren’t other specialities and thus can’t treat a wide variety of diseases, we are still a doctor’s office.
And so we see the patients who struggle to get into other specialties. 
And all I want is to help.
I’ve been thinking a lot about what my “next steps” should be. I tried reaching out to this MS program and to an old professor, but they’re all so busy and receive so many emails, my correspondence just gets lost. I’m too old to be traditional (almost 5 years out of undergrad, and I just don’t know what to do. It took me so long to decide what I wanted to do, and now I’m worried I’ve missed my opportunity. I had hoped to go directly into an MD or a PhD, but as I’ve been out for so long and my school record is average (for the programs), I think I should go for the MS.
Anyway.
Something that has hit me hard is that in order to treat and care for the unwell, I need to be well myself. My physical health needs to be as strong as I can get it so I have a better chance at fighting off whatever I might come in contact with while treating patients. It just makes me want to fight that much harder in workouts especially. 
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swampgallows · 4 years
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i’m so fucking frustrated because i have to go see the stupid fucking case worker AGAIN tomorrow, and i dont know why i have to meet with her twice more despite already seeing her three fucking times. apparently the first two intakes didn’t count? so our last appointment was technically my first “visit” and i still have no fucking idea why i have to meet with her. I JUST WANT TO SEE A THERAPIST. i dont want to talk to a stupid fucking case worker, i want to see somebody with a fucking license to advise me that doesnt just tell me “oh think more positively” and “just try to get a job”. im extremely fucking pissed off i cant even verbalize how frustrated i am because i want to just scream in her face. im so fucking tired of this. i’m just trying to speak to someone who has actual fucking education and understanding of what im going through instead of a fucking receptionist. i know social workers have to do shit too but i dont know why i cant receive the healthcare i am asking for and wanting to pay for. my insurance keeps sending me to this shithole from the county and i have to walk through a fucking metal detector like i’m a fucking criminal. 
i just feel like she’s totally fucking off base with what i’m asking for and she looks at me like i’m some kind of problem child when it’s more like an equivalent of me trying to make an appt with dermatology or gyno and them refusing to give me a referral. “oh no you have to talk to general practice at least three times before we send you to someone of actual importance” kinda bullshit. why is it like this??? and my fucking health insurance still can’t give me a transparent itemized reasoning as to why i have to arbitrarily talk to this bitch for 3 meetings. she said she’d schedule an appt with a psychiatrist but ALL HES GONNA DO IS HAWK DRUGS AT ME. I DONT WANT TO BE MEDICATED FOR A PROBLEM THAT ISNT EVEN DIAGNOSED. I WANT TO FUCKING GET THERAPY. I WANT INDIVIDUAL THERAPY. WHY THE FUCK IS THIS SO HARD.
why can stupid spoiled housewives immediately get an hour on the couch but i have to jump through all of these hoops? how the fuck is anyone else getting therapy? is it because youre all under 26 and so youre on your mommy’s health insurance??? i dont understand why i keep getting passed back and forth between my actual health insurance and this fucking sewer. i’m not a fucking miscreant, i’m not a criminal, i havent DONE anything wrong, i dont know why i’m being treated like this. im just trying to get help. i’m just trying to get medical help. it’s like ive walked into the ER and theyve put me in a holding cell and tell me i have to stay there for X amount of hours before they’ll help me. WHY? if my arm is bleeding out and i’m telling you i need help, why are you punishing me for it??? im just trying to get a therapist... i’m just trying to find someone i feel i can trust. why the fuck am i being treated like this???? i’m driven to the point of helpless tears. and they just sit there and stare at me. im being treated like a fucking animal. 
all i did was call up my health insurance to get help and told them i wanted to get therapy. now over a year and a half later i’m still not getting therapy and i’m still being sent through this useless ringer of being forced to divulge sensitive information to people i dont know and dont trust in hopes that it will get me back through to my fucking insurance. and my insurance is like “oh sorry our hands are tied” and wont even tell me why. i’m “too severe” but “stable” for the county. but im still stuck in county. this shit is literally driving me further crazy. it is so fucking dehumanzing
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lanasbiggestfan · 2 years
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how to: ACCUTANE / ISOTRETINOIN UK - NHS
HOW TO GET PRESCRIBED QUICKLY/ASAP - for people struggling mentally with acne
Hi - thought I would make this post to help out anyone struggling with acne in the UK who is desperate to start accutane quickly (on the NHS i.e. free / much cheaper than private).
As we know NHS waiting times are ridiculous atm - I was told I wouldn't get my dermatology appt for 3-4 months!!! I went crazy because having to deal with this acne for much longer would be too hard to deal with. (this was in December)
Anyway, first of all you need to go to your GP and ask for a referral to a dermatologist. They will refer you and you should receive a letter in the post (if you don't receive it after a while RING THEM ). After I received my letter which stated my referral was being processed, you are supposed to receive another letter. Mine didn't arrive for AGES and so I called them up. sometimes you get really unhelpful people but if you find a helpful person (REMEMBER THEIR NAME). You should receive a reference number/code in the post. Ok so now if your referral is accepted / approved - you should call and ask to be put on a waiting list for cancellations (emphasise your mental health). You can then call basically everyday and ask if there are any cancellation appointments available. I found it most effective to ask for a specific helpful and nice person I had spoken to before, so ask for that person, you will be put through to them and then you can ask them about cancellations.
I ended up getting a next day appointment!!!! and started in January rather than March - couldn't be more greatful.
Really hope this helps someone (best of luck).
also if you can - start taking BC as soon as possible because you have to take it for a month before you can start.
submitted by /u/Significant_Load_266 [link] [comments] from Acne https://ift.tt/34mEUXp
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New Post has been published on https://fitnesshealthyoga.com/utah-researchers-identify-potential-treatment-for-pancreatic-cancer/
Utah researchers identify potential treatment for pancreatic cancer
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SALT LAKE CITY — Gordon Chamberlain was told in October that he’d be lucky to live another four months.
The 66-year-old said he “never saw it coming,” but late-stage pancreatic cancer was going to get the best of him.
“My energy levels were low, if I had any energy at all, and I was not able to walk very far or do very much,” said Chamberlain, of Murray.
The side effects of rigorous chemotherapy turned out to be too much.
His cancer had already spread to his liver and his lungs, as is the fear with pancreatic cancer. But an experimental treatment may be slowing it down and prolonging Chamberlain’s life.
“I was excited because it gave me an option, when, otherwise, there wasn’t any,” he said Monday, nearly five months after his four-month prognosis. “And I feel better physically, have more energy and my appetite has returned.”
He said his quality of life is better, too.
All thanks to a relatively recent discovery made by Huntsman Cancer Institute‘s Dr. Conan Kinsey, a physician-scientist who has been studying pancreatic tumors, as well as treating people with the disease.
“It’s a very, very lethal disease, to say the least,” he said, adding that just 8 percent of patients diagnosed with pancreatic cancer survive five years. “It’s one of the worst of any of the cancers that we diagnose and treat.”
His latest on the potentially effective treatment for pancreatic cancer appeared in Monday’s issue of the journal, Nature Medicine.
Kinsey discovered through experimentation that the use of two pills — trametinib plus hydroxychloroquine — that are already available from two different classes of drugs, could potentially impact the process of abnormal cell division and growth caused by a genetic mutation that leads to pancreatic cancer, and increase a patient’s lifespan.
Martin McMahon, a cancer researcher at the Huntsman Cancer Institute and professor of dermatology at the University of Utah, left, Gordon Chamberlain and Chamberlain’s doctor, Conan Kinsey, a physician-scientist at the institute, talk about a new treatment for pancreatic cancer and the opening of a clinical trial while visiting at the institute in Salt Lake City on Monday, March 4, 2019. Chamberlain is taking part in the study. (Photo: Scott G Winterton, KSL)
The first patient to ever receive the cocktail of medications lived eight months longer than he was going to with chemotherapy and other treatment.
“It doesn’t sound like a lot, but I understand the majority of that time was good quality time,” Kinsey said. “He was able to hike and do what he loved to do.”
The patient ended up dying from his advanced disease, but was able to do it in the comfort of his home and surrounded by his family, as opposed to being in the hospital.
“For someone with pancreas cancer, but also someone who has received extensive chemotherapy, seeing a response like this is quite remarkable,” said Martin McMahon, a cancer researcher at Huntsman Cancer Institute and professor of dermatology at the University of Utah. He said the treatment options are already limited for pancreatic cancer, as there’s been no significant advancement in decades.
Unfortunately, symptoms don’t show up until it is too late to treat or to remove a tumor in the pancreas, which is why it ends up being so deadly, McMahon said.
The American Cancer Society predicts the disease will kill about 80 percent of the 56,770 American’s who will be diagnosed with it this year.
So, while Chamberlain is taking it all with a grain of salt, since the treatment is experimental, he is just happy to be alive.
“It gave me quite a bit of hope, and, as it all goes along, it is buying time, but it has also given me a higher quality of life than what the chemotherapy did,” he said. “In gaining time, there are so many other treatments coming down the line … who knows what the future holds?”
Still, with the medications, which produce very little side effects, Chamberlain was told he could live up to a year longer, maybe even five.
“My outlook has changed a great deal,” he said, adding that he now lives by the adage “Growing old is a privilege denied to many, so thank God for every day you have.”
He wants to spend some time in the Florida Keys, go to Hawaii a few more times and maybe even be alive when they launch people into outer space. He’d also like to witness the northern lights in Alaska.
For now, he is just “enjoying time with my wife and all of our kids.” Their combined 10 children and 15 grandchildren are also grateful he’s still around.
Kinsey and McMahon are hoping to enroll more patients in a clinical trial to further test the medications and their theory, but also, through the process, be able to determine some of the risk factors that might lead to pancreatic cancer so that better screening for the fatal disease can be done in the future.
“This is a gradual process,” McMahon said, adding that their discovery provides a foundation for themselves and other researchers to turn this therapy into something even more effective. The two believe the medications taken together might also be helpful in treating the 25 percent of cancers that begin with the same type of mutations in the KRAS gene, including lung, colorectal and melanoma.
They are grateful for people like the first patient who consented to the treatment and showed them that it could work, but also for Chamberlain and others who have the “courage,” McMahon said, to go through it.
“If you look at progress in cancer treatment, it relies on the courage of individuals to take on experimental therapies that may not provide them any benefit, but may help patients in subsequent years,” he said. “That is a remarkable thing.”
But, McMahon cautions, cancer treatments don’t always produce the same results.
“The fact we had one patient respond really, really well to our therapy does not mean that all patients with pancreatic cancer will respond in the same way,” he said. “And that is something we need to figure out.”
The clinical trial, which is already underway, will take on three pancreatic cancer patients at a time at Huntsman, eventually enrolling a few hundred patients at different cancer centers in the country, including at Huntsman, the University of California, San Francisco, and at Columbia University in New York, which are working together on developing this therapeutic technique.
But, McMahon said they’ll have no trouble getting the numbers they need, and have already had referrals.
“There is no shortage of patients, sadly, with pancreas cancer,” he said, adding that the level of advocacy for pancreatic cancer is not as high as it is with other cancers because people who get it die so quickly.
“When you see one patient respond, it’s obviously great for that patient, but cancer is a tough disease, and pancreatic cancer is an especially difficult disease to treat,” he said.
The Huntsman-led research, which acknowledges the courage of its first patient, is bolstered by a separate study published in the same issue of Nature Medicine by researchers at University of North Carolina’s Lineberger Comprehensive Cancer Center. The two teams collaborated on their findings and can likely make a bigger impact.
The local research, which went from concept to patient in just 20 months, is supported by charitable donations from Utah-based Qualtrics’ “5 for the Fight” organization, the Huntsman Cancer Foundation, the National Cancer Institute and others. It is one of many studies and clinical trials conducted at the innovative Huntsman center.
“I’m in good hands,” Chamberlain said. “I couldn’t be in better.”
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heleftnowwhat · 5 years
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I haven’t written in a while. I have had some repeat doggy clients so I wanted to wait for a new one to write about.
OMG, I just had a my tiniest guest today. Diego is a 10 week old, 3lb Beagle/Chihuahua mix. This was his first visit and he did very well. I assumed that he would play for an hour and sleep for an hour and I was correct. I took him out every 60-90 mins to go potty, which he did. All and all, a great first visit. I believe that he will be coming back, YAY!!
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 Like I said, I have had some repeat clients….here they are…
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Also, A friend and I went back to PA for a weekend in Sept. We joined my sister’s team, to walk and to raise money and awareness of Melanoma. It was fun and very successful. I am excited to say that my sister has had her 12th and final treatment and all looks good now. She is so strong. This is her story…..
My Melanoma Madness Family history: none Number of full skin checks I had through my life: zero Melanoma type: Acral Lentiginous (subungual) the most common in Asian, Hispanic and African American races. Of which I am not. This type of melanoma makes up less than 5% of all melanomas. Melanoma is the deadliest form of skin cancer. Timeline: Years and years ago I got a mole on the cuticle line of my left big toe. It was fine. Appeared normal. I thought it odd to get a mole on my toe, but I was not concerned. Fast forward to sometime in late 2017-ish I notice I have what I think is a blood blister. It’s near or on or around the “mole”. So I google blood blister on toe. Because who googles toe cancer??? I go several months until having it looked at.
May 2018: I’m in my 3 month diabetes check appointment with my Doc and at the end of appointment, I ask him to look at my toe. He glances at it and tells me it’s ugly and I should cover it for a week and if it doesn’t improve I should go see a podiatrist. Ok!!! Sounds easy. So I do what he tells me and it seems to start to dry up so I don’t go to the podiatrist.
September 17th 2018: Ok, I give!!! Made an appointment with the podiatrist because it seemed to get worse again. I go in, sit down and show him my “blood blister”. Instantly he tells me it is a wart. Oh! I ask if warts oozed and bled. He shook his head and told me no and that he wanted to biopsy it to see what kind of wart it was so he knew what type of antibiotic he may need to prescribe. OUCH. That kind of hurt. But ok! The results will be in in 7-10 days. Thanks doc. So, because I’m impatient, I go buy a wart freezing kit and try to freeze the little bitch off. HOLY CRAP. OUCH IS AN UNDERSTATEMENT. And it obviously wasn’t even worth the pain. Tic tock…. tic tock September 28th (10 business days later): I call the office to ask about results. I am told there are none. Sometimes these things could take up to a month they say. Of course, I argued that and said that the doctor told me 7 to 10 business days. They shrug and say they hope it’ll be in next week. HOPE?????? Mind you, I struggle with anxiety and unknown things are huge a trigger for me. Ok. Sigh.
October 5th 2018: Ring ring. Hi, this is Stephanie Heart. Calling to see if results are in. Nope. What the hell????? Ok. This is science. Deep breaths. October 17th 2018: Cell phone rings. I’m in middle of something and can’t answer my phone. Voice mail says: “ hello this message is for Dr. B…, this is so-and-so from the pathology lab in Maryland and I need to speak with you directly about one of your patient’s biopsies” UMMMMM….. what the hell? Now I’m freaked out. So of course I call back and leave a message. No response. Text— no response. Call doctors office and leave urgent message with answering service. Call doctors office again first thing in morning and start pushing. Hard. Turns out the initial abnormal results were in a couple weeks ago and lab was doing further testing. WHICH NOONE INFORMED ME OF. The lab certainly broke some rules by accidentally calling me directly. They say they will have doctor call me. 15 min later he does. Tells me same story. Says he is trying to get in touch with pathology lab and will get the results for me and I can pick them up in office tomorrow. Ok. Fine. Instantly google cancer on toe, because why else would a lab be trying to reach the doc?
October 18th (my cancerversary, I guess) I arrive at the office and go to desk and say I’m here to see the doctor about my results. They tell me he gave us this for you and hand me a sealed envelope. Um. Alright. I leave office and am in lobby. Remember, I’m impatient. So I open envelope while alone in the lobby. And all I see is MALIGNANT MELANOMA and I am alone. Frozen. Oh. Also a note with a referral to a dermatologist. That bastard let me read that alone. Ok. Now it’s a search and destroy mission. I immediately call this dermatologist and fax over results while I am on the phone. While scheduling the appointment with the receptionist, she asked me to hold on and out of nowhere this doctor gets on the phone. He tells me that he would gladly see me, however, he would be telling me immediately to get to a surgeon at Fox Chase Cancer Center and gave me the name. He told me that this was a deep tumor and it would have to be removed. Holy shit. This is serious. Like WAY serious. My fingers instantly started dialing the number to the doctor he referred me to. They were amazing on the phone while I cried and they got me set up for an appointment with the chief of surgery in less than a week. Begin massive anxiety attacks. Google. Bing. Explorer. Knowledge is power.
October 25th, 2018 Appointment with surgeon. The guy who saved my life. Tells me that the depth on the report puts me at a stage 2. Which means they remove it and then do a sentinel lymph node biopsy to check the nearest lymph node to see if it spread. But only 20% chance it would have. And then he tells me that to remove it, they have to amputate the top half of my big toe. Wait. WHAT??? Alligator tears begin flowing. Sends me on my way to schedule surgery.
November 2, 2018 Surgery day. Maybe after today I won’t have cancer anymore. Ativan on board I head to the hospital with my army. Long day of waiting and tests. Blood work. They do the injection for sentinel lymph node biopsy. Waiting and scans. Then it’s time to head back. I don’t remember any of it. Wake up. Foot is wrapped and I have a nerve block. They said they were sure they got clean margins. So as long as lymph node comes back clean, I would be cancer free! Remember only 20% chance of the lymph node being malignant. They send me home same day with healing instructions and tell me results will be in in 7-10 days. I’ve heard this before. Anxiety is in high overdrive. My family and friends took amazing care of me. But in the midst of this I told the boyfriend to take a hike. Zero empathy and he couldnt understand my fuss. It was only a toe. Not even a whole toe. It wasn’t like it was a boob or a lung. I’m sorry…. you’re out of my circle now. Piss off.
1 week later: Still no results. Tic tock. All I can think of is just getting back to work and I did. I work from home so was able to do some work and elevate.
About 12 days post op: Guess who is in the 20%???? Of course I am. Worst news I could have gotten. I now have stage 3 melanoma. Stage 3. Are you kidding me? You have to be. Now what? Time to have a PET scan of my entire body to see if it has spread anywhere. This would place me at stage 4. Thank goodness, it had not spread. I remain stage 3, but now I have to face a year of immunotherapy treatment with CT scans, skin checks, MRIs, ultrasounds and a slew of other tests every 3 months or so.
November 28 First meeting with medical oncologist. He details the plan of action to do everything we can to make sure the beast stays away. Melanoma is really sneaky and can just show up anytime anywhere. Sigh. A lifetime of anxiety. There is no cure. We set up the treatment plan.
December 5,2018 Treatment day. Lab work first to see if my body can handle it. Meet with oncologist again. Then head to the infusion room. Walk in and there are a ton of cancer patients in their chairs hooked up to IVs. Not gonna lie. It was scary and I couldn’t believe I was there. They begin the infusion after mixing the medicine. They have to wait for doc approval for this as they bill my insurance company $115,000 a month for this drug. Yes, the comma is in the right place. Infusion begins. And ends just as fast. Only about 30 min. And they send me home. Almost instantly, my entire body is hot and so itchy. A normal side effect. Any type of “itis” is. I’ll take that over chemo though. The itch continued for 2 months. My first 2 treatments.
Wash rinse repeat. I just completed my 6th of 12 treatments. I’ve had some scans and skin checks in between. So far…. I am FREE of cancer. We call this NED. No evidence of disease. And we celebrate this.
A few things I have learned: Not all melanoma comes from the sun, but most does. Mine didn’t. I am now susceptible to any and all skin cancers as well as having an increased risk of developing other types. I must be diligent with protecting myself from the sun. When in doubt, get it checked. Schedule yearly dermatology appointments. ADVOCATE for yourself for fast treatment and diagnosis. You are never too busy to take care of your health. In times of crisis you really learn who your true circle of people are. Mine is huge and I am truly blessed.
I am so thankful for the care I have received and continue to receive from everyone at Fox Chase Cancer Center. They literally have saved my life.
I still struggle with anxiety and depression and some pain and swelling. But I’m managing it by staying informed and positive and laughing at things. That’s how I deal. Gotta laugh. My side effects haven’t been horrible from treatment. I hope that my story can help at least one person to get help if needed. Early detection is KEY to surviving melanoma.
I am a melanoma warrior. A survivor. And I plan on keeping it that way.
GET CHECKED PEOPLE!!!
Doggy Guest #30 Diego and more I haven't written in a while. I have had some repeat doggy clients so I wanted to wait for a new one to write about.
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messy-little-soul · 5 years
Text
March 23 2019
I told Dr. McDonald firstly about the great news of my brain AVM being obliterated, she was happy as I was as we both knew that radiation works over time and we were informed it would take 3 to 5 years until it would be obliterated. I showed her a short clip of Dr. Jabion the radiation oncologist explaining the only thing we are working on is the brain edema and necrosis now and that’s the reason as to why both my legs are weak and I wake up with excruciating knee pains and struggle with depression and anxiety. The inflammation is on those areas of the brain. I asked if she could make a referral to go back to physical therapy to try to get my strength back on my legs. As I told her that I can't even walk up a flight of stairs as I need assistance to even get into a car. She agreed and sent a referral to Good Shephard Physical Therapy. Next I informed her of getting approved for the experimental treatment of Avastin infusion used to treat cancer patients. I gave her the date of treatment and informed her the two possible outcomes of how long the infusions might take place. The only problem I'm having is trying to find a way to get there as family members have already maxed out their sick days so still working on that. I informed her on how dermatology appointment went and was glad I wasn't put in any pills just creams and facial wash to begin with, and with a plan in place to minimize scarring after stopping steroids. We then stop about my heart rate being too high, heart palpitations, heart burn and that falling where I was feeling weak and my brothers dog "woke" me back to my senses. We both think its a side effect of steroids. But was told to keep on monitoring it. Lastly she ask how I felt mentally as I am at that mark where steroids hit you hard with emotions when tapering off. And honestly just being showered with a bunch of good news has helped and with the support of many people has help tremendously.
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mdvisualize · 6 years
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3 Ways Automation & Combination Is Disrupting the HIT Status Quo
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In the history of healthcare information technology (HIT), there is clear evidence that technology systems have been designed to provide individual solutions, instead of considering a provider’s workflow holistically. In the late 1980’s and early 1990’s, practice management (PM) systems offered medical practices the opportunity to automate their day-to-day operations. Then the electronic health record (EHR) became mainstream in the late 1990’s and early 2000’s, to electronically store patient health information in a single location. Meaningful use pushed the concept of EHR further, but unfortunately, EHR was not connected to back-office PM systems, preventing data flow. EHRs were adopted to allow physicians to document care they provide as required by the constantly changing regulations, with no consideration of workflow optimization. Next came patient engagement products, also created separately from both PM and EHR, adding another disconnected layer of technology for practices to manage.
Breaking down the technology silos
Over the years, I have seen how a lack of integrated HIT workflow has increased frustration for independent medical practices and their patients. It’s tough for providers to be productive, retain patients and grow their revenue when they’ve had to rely on technology that was neither fully integrated within the office workflow nor designed with their needs in mind. Many practices still manually enter data into multiple applications, and I’ve heard their complaints about wasted time and the increased risk of human error.
This situation isn’t necessarily the fault of the providers. I’ve encountered many medical practices that have tried to make better use of technology, only to be stuck with cookie-cutter templates, unable to customize notes based on their practice size or specialty, and little or no training on the new systems. The result?  Practices are underutilizing healthcare technology, impacting their ability to provide coordinated, efficient care. And on the business side, there is often little or no return on their technology investment.
What providers need is complete automation of everything that could be automated in clinical, patient and billing systems. When providers don’t need to spend so much time documenting what they have done for regulatory and billing purposes, they can increase their time with patients. Reduced time spent on signing-in to separate platform units also increases the office non-clinical staff’s efficiency. In the end, both practices and patients benefit.
1. Shortened receivables cycles help the bottom line
Integrated systems can also disrupt the HIT status quo when it comes to the business side of a medical practice. Using a central billing office approach tied to other systems, multi-provider practices can simplify billing tasks, and increase their overall control of billing and collections operations. OOA administrator Amanda Foutch says that an integrated accounts receivable module has enabled the practice to change the way in which its billing is done for the better.  “Charges are turned over to our patient balances more quickly, and we now have a checklist that makes us more accountable,” Ms. Foutch points out. “Accounts receivable days have gone down from 45-to-50 days to the 30s.”
2. Patient empowerment takes center stage in tech design
Yet another way a unified workflow approach changes the traditional HIT mindset is by focusing on the patient. With the increasing consumerism of healthcare decision-making, patients are demanding an automated, coordinated process for all interactions with their provider(s) that takes advantage of the technologies they use every day, including mobile phones and tablets.
Integrated patient engagement solutions empower patients along the continuum of their healthcare experience, pre-visit to post-visit, with features such as self-scheduling, online access to consent forms and personal information, and communications with their providers via a user-friendly patient portal. And by engaging patients with this end-to-end lifecycle approach, practices can increase patient satisfaction rates, patient retention and referrals.
For example, online patient scheduling systems are gaining traction as a way to help providers improve their patients’ interaction with the practice.
“We wanted something that was easy to use for the patients and staff, straightforward, less expensive than our current solution, available to all our providers, and that would offer greater transparency to patients, particularly on which insurances we take,” notes Jared Boundy, MHA, director of operations for Washington-based Dermatology Arts. “We also felt that it needed to integrate with the other systems we already had in place. It had to be adaptable, too, as we didn’t want to pay an arm and a leg every time we added a provider or a location.”
3. Disruptive technologies are necessary to move forward
Consumerism, regulatory pressures and structural shifts in healthcare are necessitating the implementation of these disruptive technologies. The HIT status quo will no longer suffice, for patients or practices. In eliminating the siloed approach of traditional practice software by fully integrating cloud-based scheduling, smart charting, billing, flexible reporting and easy-to-use patient relationship management tools, medical practices are successfully providing value-based healthcare on any device from any location. And this is just the beginning of where the new “disruption” will take them.
Arman Samani is the Chief Technology & Product Officer of AdvancedMD, a provider of cloud-based solutions for independent medical practices based in South Jordan, Utah.
Source
https://hitconsultant.net/2018/07/30/hit-status-quo/?utm_source=feedburner&utm_medium=feed&utm_campaign=Feed%3A+HitConsultant+%28HIT+Consultant+Media%29
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lohngoron · 6 years
Text
Chris Cruttenden: HIMSS18 Interview with Safety Net Connect
We learned more about eConsult and Care Coordination Connect System.
Chris shared his biggest takeaway from HIMSS18.
Chris participated in our signature Paubox Lightening Round.
The mother of all healthcare conferences, HIMSS Annual, went down this week at the Venetian in Las Vegas. At least 40,000 people descended upon the Sands Expo Center to network, learn and probably do a bit of gambling.
Chris Cruttenden, Safety Net Connect President
youtube
We setup an impromptu interview center outside Palazzo Ballroom L.
My friend Chris Cruttenden, President of Safety Net Connect, stopped by to catch up.
Here’s the transcript from our conversation:
Hoala Greevy: Howzit! This is Hoala Greevy, Founder CEO of Paubox. We’re here at HIMSS18, in Las Vegas and I’m here with my friend Chris Cruttenden, President of Safety Net Connect. Without further ado, let’s get started.
Chris, can you tell me more about what your company does and what problems you guys solve?
Chris Cruttenden: We solve two problems in healthcare. One is the communication problem between primary care physicians and specialists. We’ve created a system we refer to as eConsult and it helps coordinate the care and do away with the need for inappropriate referrals.
The second system that we provide is what we call Care Coordination Connect System, where we help deal with patients that when they’re discharged from a hospital, [we] get them the appropriate care and transitions of care through our systems.
Hoala Greevy: What would be an example of an inappropriate referral?
Chris Cruttenden: Typically in some of the systems, the physician is fairly busy, they still use some archaic systems like a fax. Somebody would come in and be complaining about a rash on their arm and he’s like, “Oh I don’t know, you need to see the dermatologist.” He’d give it to the nurse, the nurse would fax it over, get an auth, they would go have to see the dermatologist.
In our system, they would take a picture, ask a question, “Can I resolve this here or do I need to send them to the dermatologist?” We ask them questions like, “Have they changed the soap, have they been hiking in a place where maybe they got poison oak?” Through the process of education elimination, probably that patient would get help and not need to do an extra visit at the dermatologist.
Hoala Greevy: For the second set of services you folks provide, can you tell us more about this safety net concept, because I was very unfamiliar with it.
Chris Cruttenden: When we first got into the business, we found there was so much low-hanging fruit and county health systems where we could do a lot of good. We’ve basically focused on just the safety net population, which is in California, Medi-Cal or indigent programs which is basically county-run programs that deal with people that are uninsured, homeless people, and whatnot.
We created basically everything that high-tier people get with private insurance, we created an electronic system that allows them to have appropriate care coordination, services, efficient referrals, and when they show up at the myriad of different places, their information follows them. Which is really nice.
Hoala Greevy: That’s cool man. So what does your ideal customer look like, is it a county?
Chris Cruttenden: Yes, we we love county health programs, public health programs, we like working with those systems.
Typically, we love to go into a system where they have a backlog of referrals. We can bring in eConsult and change the workflow. We reduce inappropriate referrals by around 50% on some of the specialties. We reduce the backlog sometimes for a GI visit, it’s it’s you know, 180 days. We get access to the specialist down to two days and then we actually turn it into a system where they actually schedule the appointment within the appropriate time, whether it’s 30 days or 45 days. We’ve eliminated basically backlogs for specialty visits.
Hoala Greevy: How big is your team and where you guys located?
Chris Cruttenden: We’re 20 plus people, we’re located in Newport Beach. We also have an office in Texas and then we have some affiliate offices. [We have] partners, one in Chicago and one in Connecticut.
Hoala Greevy: Wow. All over. That’s cool. So what’s your what’s your biggest takeaway from HIMSS18 so far?
Chris Cruttenden: It seems to be a lot of hype about AI and blockchain. The takeaway on blockchain is it is not ready for primetime, at least in healthcare. It is far, far, far from ready.
The AI stuff was extremely interesting and I think it’s going to create some efficiencies, especially in specialty care- radiology, dermatology, anything in a visual aspect where you can, retinopathy, where you can basically look at the images and have it learn which is a bad image versus a good image.
Hoala Greevy: Chris, where do you see the industry going in the future?
Chris Cruttenden: I don’t want to give away too many secrets! I’m just kidding. But basically there’s gonna be some consolidation as far as what we’re seeing with the EMRs, smaller healthcare software plays. Seems like care coordination is evolving and I think analytics supporting the real-time care coordination is really going to change how people get health care and interact with it. All these mobile devices are really doing big change too. Patients are more hooked in than they’ve ever been before.
Hoala Greevy: Yeah. Optimistic for the future?
Chris Cruttenden: Oh yeah! I do think technology is gonna solve some of the issues that are facing us that politicians cannot solve. But we can solve it.
Hoala Greevy: Okay we’re gonna do the lightning round with Chris Cruttenden. Ready?
Chris Cruttenden: Yeah.
Hoala Greevy: Favorite Hawaiian food?
Chris Cruttenden: Poke.
Hoala Greevy: Yeah! Right on. How many times have you seen the movie, The Big Lebowski?
Chris Cruttenden: Two times.
Hoala Greevy: Two times!? I thought you gonna say too many. You ever been kayak fishing?
Chris Cruttenden:I have not been kayak fishing, no.
Hoala Greevy: Okay we gotta get that going. What book or books are you reading now?
Chris Cruttenden: One of my favorite books is the Art of the Start by Guy Kawasaki. He has an updated version and I always print out some of the pages and tape them on my desk.
Hoala Greevy: No kidding!
Chris Cruttenden: Love it. Because I do a lot of presentations. Love it.
Hoala Greevy: I know someone who knows him. I will make sure he hears about that.
Chris Cruttenden: OK.
Hoala Greevy: That’s cool. I don’t know I’m directly though, but I can get to him.
When’s the last time you sent a fax?
Chris Cruttenden: Believe it or not, I had to send one a couple weeks ago for, like a soccer thing. Nothing to do with health care.
Hoala Greevy: favorite karaoke jam, go-to song?
Chris Cruttenden: Stone Temple Pilots, Vaseline.
Hoala Greevy: Oh that’s a good one. Okay last question, who would win in the Octagon- a silverback gorilla or a polar bear?
Chris Cruttenden: I’m gonna go with polar bear.
Hoala Greevy:Team Polar Bear all the way! I mean c’mon, it’s not even a question. Right on Chris, thanks a lot man!
HIMSS18
Are you at #HIMSS18 today? Want to be interviewed? Come meet us outside Palazzo Room L from 10am – 12pm. We have 3 tripods, 3 HD cameras, 2 wireless mics, and great questions to ask! @PauboxHQ pic.twitter.com/dMEUSHM4lq
— Hoala Greevy (@HoalaGreevy) March 7, 2018
The HIMSS Annual Conference & Exhibition brings together 40,000+ health IT professionals, clinicians, executives and vendors from around the world. Exceptional education, world-class speakers, cutting-edge health IT products and powerful networking are hallmarks of this industry-leading conference.
The post Chris Cruttenden: HIMSS18 Interview with Safety Net Connect appeared first on Paubox.
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studyblxg · 6 years
Text
Chris Cruttenden: HIMSS18 Interview with Safety Net Connect
We learned more about eConsult and Care Coordination Connect System.
Chris shared his biggest takeaway from HIMSS18.
Chris participated in our signature Paubox Lightening Round.
The mother of all healthcare conferences, HIMSS Annual, went down this week at the Venetian in Las Vegas. At least 40,000 people descended upon the Sands Expo Center to network, learn and probably do a bit of gambling.
Chris Cruttenden, Safety Net Connect President
youtube
We setup an impromptu interview center outside Palazzo Ballroom L.
My friend Chris Cruttenden, President of Safety Net Connect, stopped by to catch up.
Here’s the transcript from our conversation:
Hoala Greevy: Howzit! This is Hoala Greevy, Founder CEO of Paubox. We’re here at HIMSS18, in Las Vegas and I’m here with my friend Chris Cruttenden, President of Safety Net Connect. Without further ado, let’s get started.
Chris, can you tell me more about what your company does and what problems you guys solve?
Chris Cruttenden: We solve two problems in healthcare. One is the communication problem between primary care physicians and specialists. We’ve created a system we refer to as eConsult and it helps coordinate the care and do away with the need for inappropriate referrals.
The second system that we provide is what we call Care Coordination Connect System, where we help deal with patients that when they’re discharged from a hospital, [we] get them the appropriate care and transitions of care through our systems.
Hoala Greevy: What would be an example of an inappropriate referral?
Chris Cruttenden: Typically in some of the systems, the physician is fairly busy, they still use some archaic systems like a fax. Somebody would come in and be complaining about a rash on their arm and he’s like, “Oh I don’t know, you need to see the dermatologist.” He’d give it to the nurse, the nurse would fax it over, get an auth, they would go have to see the dermatologist.
In our system, they would take a picture, ask a question, “Can I resolve this here or do I need to send them to the dermatologist?” We ask them questions like, “Have they changed the soap, have they been hiking in a place where maybe they got poison oak?” Through the process of education elimination, probably that patient would get help and not need to do an extra visit at the dermatologist.
Hoala Greevy: For the second set of services you folks provide, can you tell us more about this safety net concept, because I was very unfamiliar with it.
Chris Cruttenden: When we first got into the business, we found there was so much low-hanging fruit and county health systems where we could do a lot of good. We’ve basically focused on just the safety net population, which is in California, Medi-Cal or indigent programs which is basically county-run programs that deal with people that are uninsured, homeless people, and whatnot.
We created basically everything that high-tier people get with private insurance, we created an electronic system that allows them to have appropriate care coordination, services, efficient referrals, and when they show up at the myriad of different places, their information follows them. Which is really nice.
Hoala Greevy: That’s cool man. So what does your ideal customer look like, is it a county?
Chris Cruttenden: Yes, we we love county health programs, public health programs, we like working with those systems.
Typically, we love to go into a system where they have a backlog of referrals. We can bring in eConsult and change the workflow. We reduce inappropriate referrals by around 50% on some of the specialties. We reduce the backlog sometimes for a GI visit, it’s it’s you know, 180 days. We get access to the specialist down to two days and then we actually turn it into a system where they actually schedule the appointment within the appropriate time, whether it’s 30 days or 45 days. We’ve eliminated basically backlogs for specialty visits.
Hoala Greevy: How big is your team and where you guys located?
Chris Cruttenden: We’re 20 plus people, we’re located in Newport Beach. We also have an office in Texas and then we have some affiliate offices. [We have] partners, one in Chicago and one in Connecticut.
Hoala Greevy: Wow. All over. That’s cool. So what’s your what’s your biggest takeaway from HIMSS18 so far?
Chris Cruttenden: It seems to be a lot of hype about AI and blockchain. The takeaway on blockchain is it is not ready for primetime, at least in healthcare. It is far, far, far from ready.
The AI stuff was extremely interesting and I think it’s going to create some efficiencies, especially in specialty care- radiology, dermatology, anything in a visual aspect where you can, retinopathy, where you can basically look at the images and have it learn which is a bad image versus a good image.
Chris Cruttenden: Chris, where do you see the industry going in the future?
Chris Cruttenden: I don’t want to give away too many secrets! I’m just kidding. But basically there’s gonna be some consolidation as far as what we’re seeing with the EMRs, smaller healthcare software plays. Seems like care coordination is evolving and I think analytics supporting the real-time care coordination is really going to change how people get health care and interact with it. All these mobile devices are really doing big change too. Patients are more hooked in than they’ve ever been before.
Hoala Greevy: Yeah. Optimistic for the future?
Chris Cruttenden: Oh yeah! I do think technology is gonna solve some of the issues that are facing us that politicians cannot solve. But we can solve it.
Hoala Greevy: Okay we’re gonna do the lightning round with Chris Cruttenden. Ready?
Chris Cruttenden: Yeah.
Hoala Greevy: Favorite Hawaiian food?
Chris Cruttenden: Poke.
Hoala Greevy: Yeah! Right on. How many times have you seen the movie, The Big Lebowski?
Chris Cruttenden: Two times.
Hoala Greevy:Two times!? I thought you gonna say too many. You ever been kayak fishing?
Chris Cruttenden:I have not been kayak fishing, no.
Hoala Greevy: Okay we gotta get that going. What book or books are you reading now?
Chris Cruttenden: One of my favorite books is the Art of the Start by Guy Kawasaki. He has an updated version and I always print out some of the pages and tape them on my desk.
Hoala Greevy: No kidding!
Chris Cruttenden: Love it. Because I do a lot of presentations. Love it.
Hoala Greevy: I know someone who knows him. I will make sure he hears about that.
Chris Cruttenden: OK.
Hoala Greevy: That’s cool. I don’t know I’m directly though, but I can get to him.
When’s the last time you sent a fax?
Chris Cruttenden: Believe it or not, I had to send one a couple weeks ago for, like a soccer thing. Nothing to do with health care.
Hoala Greevy: favorite karaoke jam, go-to song?
Chris Cruttenden: Stone Temple Pilots, Vaseline.
Hoala Greevy: Oh that’s a good one. Okay last question, who would win in the Octagon- a silverback gorilla or a polar bear?
Chris Cruttenden: I’m gonna go with polar bear.
Hoala Greevy:Team Polar Bear all the way! I mean c’mon, it’s not even a question. Right on Chris, thanks a lot man!
HIMSS18
Are you at #HIMSS18 today? Want to be interviewed? Come meet us outside Palazzo Room L from 10am – 12pm. We have 3 tripods, 3 HD cameras, 2 wireless mics, and great questions to ask! @PauboxHQ pic.twitter.com/dMEUSHM4lq
— Hoala Greevy (@HoalaGreevy) March 7, 2018
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The HIMSS Annual Conference & Exhibition brings together 40,000+ health IT professionals, clinicians, executives and vendors from around the world. Exceptional education, world-class speakers, cutting-edge health IT products and powerful networking are hallmarks of this industry-leading conference.
The post Chris Cruttenden: HIMSS18 Interview with Safety Net Connect appeared first on Paubox.
Source: https://www.paubox.com/blog/chris-cruttenden-himss18-safety-net-connect/
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Hypnosis is a state of human consciousness
Overview Hypnosis is a medium or modality through which you may become more alert to and focused on your own thoughts and feelings. But it's not all that different from being absorbed in thought or reading a book. With hypnosis, you are far more open to suggestion, at least to suggestions compatible with what you are motivated to achieve. It is a form of intense receptive concentration. Accordingly, hypnosis often is used to modify behavior and overcome phobias and bad habits—it can help you make changes that you've been unable to make otherwise. There's no definitive explanation for exactly how and why it works, and experts debate what's involved when you are in a hypnotic state. What seems to happen is that hypnosis allows us to maximize our motivation. More research is being conducted to understand how hypnosis works. Questions notwithstanding, hypnosis seems to be effective for many people. In fact, a National Institutes of Health (NIH) panel has endorsed its use for the relief of various types of chronic pain. As a relaxation technique, hypnosis can help reduce your stress. It also can be a useful tool to help relieve phobias, lessen anxiety, break addictions and ease symptoms of conditions such as asthma or allergy. Using hypnosis can help patients control nausea and vomiting from cancer medications and morning sickness, reduce bleeding during surgery, steady the heartbeat and bring down blood pressure. But not everyone lost sight of the potential. Around the 1840s, James Braid, MD, an English ophthalmologist, coined the term "hypnosis." (It's really something of a misnomer; it comes from hypnos, the Greek word for sleep.) Thanks in part to Braid, interest in hypnotherapy was rekindled. Freud used it early on but eventually rejected it, and the practice again fell out of favor. The history of hypnosis is a long and interesting one. Many ancient cultures—including the Sumerians, Greeks, Druids and Native Americans—induced trancelike states. Modern hypnosis dates to the 18th century, and it started with a man many now consider a charlatan. Austrian physician Franz Anton Mesmer tried to cure patients by transferring "magnetism," as he called it, from his body to his patients (after putting them in a trance). His theories were quickly discarded, and he was labeled a quack. (His name gave rise to the term "mesmerize.") Unfortunately, he helped create the inaccurate notion that hypnosis was somehow fraudulent. In earlier times, hypnosis was practiced with an authoritative style, but eventually, a more permissive, interactive method evolved. Today, hypnosis is used by many health care professionals, including nurses, anesthesiologists, dentists, surgeons and psychotherapists, who are trained to use hypnosis in their specialties. It's also used to boost creativity, enhance confidence andself-esteem and improve study skills. Diagnosis Hypnosis, a medium or modality through which you may become more alert to your own thoughts and feelings, can be appropriate for a number of health conditions, especially ones with emotional or psychological components. While the success rate varies, many health care professionals recommend considering hypnosis for the following: Asthma: Studies suggest that hypnosis may be one useful tool in managing asthma, especially when there are emotional and psychological factors involved. Burns: Hypnosis can reduce the pain associated with burns and is particularly useful when narcotic pain relievers are either inappropriate or ineffective. The American Society of Clinical Hypnosis (ASCH) takes hypnosis a step further, maintaining that hypnosis can not only ease the pain but, when used early enough, may reduce inflammation and promote healing. Childbirth: Hypnosis can ease the stress and pain of childbirth. The ASCH says that for some women, hypnosis can work as the sole analgesic for childbirth. It not only eliminates the risk posed by drugs, but it may reduce labor time by two to four hours. (It can be used in conjunction with natural childbirth approaches.) Chronic pain: A National Institutes of Health (NIH) panel concluded that there was evidence that hypnosis is effective in alleviating some kinds of pain associated with various cancers. The panel also stated that hypnosis can be a part of the treatment program for other conditions, including inflammatory conditions of the mouth, temporomandibular (TMJ) disorders and headaches. It's also used to relieve the chronic pain associated with multiple sclerosis, arthritis, rheumatoid arthritis and back problems. Dermatological problems: Hypnosis has been used for a variety of skin conditions, including warts, itching, acne, dermatitis, eczema, herpes simplex, psoriasis and rosacea. Its use can speed healing. A study in the Archives of Dermatology concluded that in certain patients, it can decrease or eliminate symptoms and, in some cases, cure the condition—or at least send it into remission. Gastrointestinal disorders: The use of hypnosis has been successfully used to treat various gastrointestinal problems, including ulcers, colitis, Crohn's disease and irritable bowel syndrome (IBS). A study presented to the American Gastroenterological Association indicated that hypnosis seems to relax the autonomic nervous system, which controls movement in the digestive tract. Hemophilia: Individuals suffering from hemophilia, a rare blood disorder, often can be taught to use self-hypnosis to control vascular flow and to eliminate the need for a blood transfusion. Insomnia: Hypnosis, like meditation, biofeedback and other techniques to promote relaxation and reduce stress, is often used to help treat sleep disorders. Medical/dental visits: Some physicians and dentists use hypnotic changes to relax patients and reduce pain during medical and dental procedures. In the hospital setting, it can help reduce anxiety and enhance healing. According to the ASCH, hypnosis, in rare circumstances, has been used as the sole anesthetic for surgery. But this is not a typical application. Perhaps of more significance to most of us is a study in the British medical journal Lancet indicating that hypnosis reduces anxiety associated with surgery, postoperative surgical pain and complications. Nausea/morning sickness: For some pregnant women, hypnosis can relieve the nausea and vomiting associated with morning sickness. It can also help reduce the nausea associated with various cancer treatments. Smoking: Hypnosis is sometimes used to help people quit smoking. A study in theInternational Journal of Clinical and Experimental Hypnosis found that smokers who underwent hypnosis fared better than did smokers who attempted to quit on their own; however, hypnosis didn't seem to be more effective than other smoking cessation treatments. Other behavioral modifications: Hypnosis may be used for concentration difficulties, test anxiety and learning disorders. It also may be used in treating sexual dysfunction and athletic performance. Other habit disorders: Hypnosis is used for other addictive behaviors and habit disorders too, including bruxism (teeth grinding) and nail biting. It has generally not been found useful in working with drug and alcohol addictions. Stress and anxiety: As a relaxation technique, hypnosis reduces stress and anxiety and helps cure phobias. It also can sometimes help you and the therapist come to a better understanding of what's causing the anxiety or phobia. Trauma: Hypnosis may help with psychotherapy in treating trauma from incest, rape and abuse. Weight loss: Hypnosis seems to help with low-to-moderate weight loss, but generally only when combined with some sort of behavioral weight-management program. Not everyone can be hypnotized. Susceptibility varies, and about 10 percent of us can't be hypnotized at all. For most uses, however, it's not essential that you be highly hypnotizable to achieve results. Hypnosis may not be for you if you have certain psychological conditions—particularly those caused by chemical imbalances in the brain. If you suffer from psychosis, severe depression (or another organic psychiatric condition) or antisocial personality disorder, you should probably not attempt hypnosis. These conditions require different forms of treatment; hypnosis is not considered an appropriate treatment option. Treatment It's important to remember that hypnosis, a medium through which you may become more alert to your own thoughts and feelings, is a not a treatment or a therapy by itself. It can help relieve symptoms, reduce pain and even sometimes speed healing. It's also been effective in changing unhealthy behavior. If, however, you are considering hypnosis for a medical condition, you need to consult with your health care professional, who will most likely recommend that you also continue your regular treatments. If you are seeking relief for a medical condition, you probably want to find a health care professional—such as a physician, nurse, psychiatrist, psychologist or social worker— who is trained and experienced not only in hypnosis but also with your particular symptom or ailment. Always seek people who have had the maximum training possible in the area in which you are seeking help. Remember, it is your mind they will be working with. Finding a qualified hypnotherapist isn't that hard. Many health care professionals licensed in other fields practice hypnosis, so chances are good that your health care professional can give you a referral. Two major organizations that are recognized as having high professional standards are The American Society of Clinical Hypnosis (ASCH) and The Society of Clinical and Experimental Hypnosis (SCEH). Both can provide the names of qualified practitioners in your area: Licensing and governmental regulation vary by jurisdiction. Training requirements vary as well. The ASCH holds members to the following standards: ASCH certification requires at least a master’s degree in a health care discipline considered appropriate by the society; licensure/certification in the state of practice; membership in a professional society consistent with degree; 40 hours of post-professional-degree workshop training; 20 hours of individualized training and consultation with an ASCH-approved consultant; and two years using hypnosis in clinical practice. Recognition as an approved consultant necessitates all of the requirements for ASCH plus at least 60 hours of post-degree education and training; five years of practice in clinical hypnosis; and five years of membership in the ASCH, SCEH or an equivalent organization. The First Session Most practitioners spend the first session or part of the first session getting to know you, making an assessment of how hypnosis can help you and generally explaining what hypnosis is all about. It's important that you use this time, before beginning therapy, to determine whether you have a good rapport with the therapist. The therapist will go through the process with you, answering questions and letting you know what to expect. Together, you will discuss what suggestions will be made while you are hypnotized. The therapist may also run a few preliminary tests to determine your ability to be hypnotized. You must be willing to be hypnotized, or it won't work. When therapy begins, you'll sit, recline or lie comfortably. The room will be quiet, with gentle lighting. The process begins with what is called induction—that is, being brought into a hypnotic state. To accomplish this, the therapist may use one of several induction techniques that serve to focus your attention. Many of us have seen depictions in movies or TV of hypnotherapists swinging a pocket watch, but today it is more common for a therapist to ask the subject to stare at a small, stationary object—such as a colored thumbtack on the wall. Most therapists use suggestions for relaxation, calm and well-being. Your therapist may ask you to count backward from a certain number. Or perhaps, the therapist will simply direct you to relax, breathe deeply and listen. However it is done, the point is to ease you into a trancelike state in which you are extremely focused and, often, deeply relaxed. Induction can take a few seconds or several minutes. What does it feel like? It's a very subjective experience that varies depending on the degree of hypnotizability. Some people say it feels like an altered state of consciousness. Others disagree, simply saying they feel focused, calm and relaxed. According to the American Psychotherapy and Medical Hypnosis Association (APMHA), hypnosis is a naturally occurring phenomenon that we go into and out of constantly—for example, while watching an interesting program on TV, reading a book, driving a car or daydreaming. In fact, most people describe the experience as very pleasant. Being hypnotized is not the same as sleep, becoming unconscious or "passing out," and it's not like an anesthetic. You do not lose control over your mind or your feelings. You do not weaken or surrender your will to any other person. In fact, your willpower may be strengthened with hypnosis, according to the Australian Society of Hypnosis. Once you are focused, the therapist may, during this or later sessions, make suggestions relating to your particular condition; most likely, the therapist will use mental imagery and visualization exercises. Some of these suggestions may be posthypnotic suggestions: This means that you receive a directive to follow at some later point. You may not remember receiving the suggestion, but if it's something you want to do, you'll carry it out—without necessarily knowing the source of the instruction. At the end of the session, the therapist will teach or guide you to enter and exit the state of hypnosis. This should be done before the end of the session. You may feel drowsy when you finish the session. You might feel very relaxed or have a strong sense of well-being. If you are seeking pain relief, you may notice less pain. Or you may not feel any immediate change. And you may not remember what transpired during the session—this is called posthypnotic amnesia. A session can last up to 90 minutes. The number of visits you make depends on what you hope to accomplish. You and the therapist will discuss the details in the first session. The cost of hypnosis varies depending on where you live. Most insurance companies will cover 50 to 80 percent of the therapy, especially if your therapist is a licensed health care professional (and you should only be seeing a licensed health care professional). During your sessions, the therapist will probably teach you about self-hypnosis. (You can learn this technique from tapes, but most experts advise learning from a qualified therapist.) Self-hypnosis sessions take 30 to 40 seconds to a few minutes and can be done daily. Sometimes, five to 15 minutes or longer may be more therapeutic depending on the problem. Your hypnotherapist will teach you the proper technique. But the basics are simple: You will sit or lie in a comfortable place and focus intensely. Using imagery, relaxation and breathing techniques, you will bring yourself to a hypnotic state. Once there, you will tell yourself what you need to hear—or listen to a tape with that message. Facts to Know There's no definitive scientific explanation for how hypnosis works; research continues into why it's effective. The term "hypnosis" was coined in the 19th century and comes from hypnos, the Greek word for sleep. However, being hypnotized is not the same as sleep, becoming unconscious or "passing out," and it's not like an anesthetic. Not everyone can be hypnotized. Susceptibility varies, and about 10 percent of us can't be hypnotized at all. Hypnosis may not be for you if you have certain psychological conditions— particularly those caused by chemical imbalances in the brain. If you suffer from psychosis, severe depression or another organic psychiatric problem, other treatment options will be recommended and are more appropriate. It's a good idea to spend some time with the professional to determine whether you will work well together. This can be accomplished either by phone—before coming in for your first visit—or by the end of the first session. If you're uncomfortable in the first session, trust your instincts and don't return. Sessions with a hypnotherapist can last from 45 to 90 minutes—most are around an hour. For medical problems, hypnosis should be used in addition to medical diagnosis and appropriate treatments. Key Q&A I want to quit smoking. Will hypnosis help?It may, if you are highly motivated. Studies indicate that it works better than trying to go it alone and as well as any other approach. The problem is that all smoking cessation treatments have low long-term success rates. (Of course, some experts say that for the smoker who really wants to quit, the success rate is 100 percent.) A hypnotherapist I saw comes highly recommended. But I just don't feel comfortable around him. Is that reason enough to find another one?Indeed it is. With hypnotherapy, you have to trust your instinct. No matter how good your practitioner is, you need to have confidence in your therapist. Keep looking for one with whom you can feel comfortable. I'm intelligent and strong willed. Does that mean I can't be hypnotized?Intelligence isn't a barrier to being hypnotized. Being strong willed may mean that you won't be easily hypnotized, but it doesn't mean it's impossible. Motivation and the ability to concentrate are the most important components to successful hypnotization. Can hypnosis be used to block a memory?This happens only rarely. Spontaneous memory blocks usually occur when they are associated with some sort of trauma, not treatment. With highly hypnotizable patients, memories can be blocked, but it's usually a short-term effect. Read the full article
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enzaime-blog · 6 years
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personal history of several diagnoses of skin cancer
New Story has been published on https://enzaime.com/personal-history-several-diagnoses-skin-cancer/
personal history of several diagnoses of skin cancer
Squamous Cell Carcinoma
In 2007, when he was in his late sixties, Michael Sours discovered a lump on the right side of his neck while taking a shower. He waited a few days to see if the lump would disappear, but it did not. With a personal history of several diagnoses of skin cancer, Michael took his health care seriously and scheduled an appointment with an otolaryngologist (ear, nose and throat doctor). The physician performed a biopsy and removed the enlarged lymph node. The results were alarming – Michael was diagnosed with squamous cell carcinoma.
“When I found the lump on my neck, I didn’t wait too long,” explains Michael, who feels you can’t wait to see if it progresses. “This stuff can spread, and spread fast. Don’t be afraid to see a doctor and get something checked out. By putting it off, it can only get worse,”
After receiving the diagnosis report, he asked for a referral to a specialist to help understand the cause of his cancer. Michael met with Miriam N. Lango, MD, a head and neck oncologist at Fox Chase Cancer Center. “I was very impressed when I met Dr. Lango,” Michael says. “She is very professional, honest, compassionate and smart.”
“Dr. Lango recommended a radical dissection. She also removed several of my lymph nodes to prevent the possible spread of future cancer and to try and detect the source,” he says. Dr. Lango suggested Michael also see Clifford S. Perlis, MD, MBE, Director, Mohs Micrographic Surgery and Dermatology at Fox Chase, for a second opinion.
Mohs surgery is a highly specialized treatment for skin cancer using microscopic examination of all tissues removed surgically, as well as detailed mapping techniques to allow a surgeon to track and remove all of the roots and extensions of the skin cancer. Mohs surgery is most effective in treating skin cancers with growth patterns that have a high risk of recurrence or are located in cosmetically sensitive areas, such as the face, nose, ears and eyelids.
“I really liked the collaborative environment at Fox Chase,” Michael says. “It’s nice knowing that doctors respect each other and work well together. Dr. Perlis was professional and never rushed me during appointments. He’s very nice and caring.”
During the last few years, Dr. Perlis has performed Moh’s surgery for Michael on several occasions. “I find him to be a very competent and a well-trained surgeon,” he adds.
He now sees his medical team at Fox Chase twice a year. “The whole process – from the first appointment through surgery and my follow-up appointments – have been very good.  I have peace of mind knowing that I picked a hospital that specialized in cancer care,” Michael says.
Michael turned 73 in 2015 and continues to work as an independent sales representative in the leather goods industry. He and his wife, Sandra, have a son and a daughter. Together, they enjoy dining out, spending time with his friends and family, and frequenting New Hope and Lambertville.
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dhofberg · 6 years
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Day two Doc Mobile
I'm sorry I deleted yesterday's post, or "caused it to disappear ". Because I tried to get up to date with the history of the organization and a little bit of what has transpired in the Moría refugee camp since Michael and I were here in 2016.
The camps are no longer places where people come from boats crossing the Aegean and spend 12-72 hours before continuing on to Athens and other parts in Europe if they were allowed anywhere.
When the EU began to close borders, the camps also closed their gates for a while to people wanting to leave, essentially turning them into detention centers. Now they are "semi- permeable, meaning people are free to come and go most of the time, but it is run now by the Greek police ( rather than NGOs like UNHCR, IRC), who can and do sometimes decide to shut it down, for instance if people are fighting or destroying property. Many people, including about 200 unaccompanied minors are living there for many months, with more chance of deportation than migration to Europe.
Our " clinic" Doc Mobile sprung out of a need for care for transients when refugees amassed in Idomeni, the border between Greece and Macedonia on the way to other European countries. A couple of German fellows thought it would be a good idea to have mobile clinics in vans that could move to where they were needed. They are funded by donations, staffed by all volunteers. Apparently there are two of these vans in Athens and Thessaloniki, but actually there isn't a vehicle in Lesvos at this time. We actually didn't know until we arrived that Michael and I are currently THE doctors for the clinic. There is apparently electronic communication with some consultants, but this has to happen after clinic hours, not urgently as there is really no time to do this while we are seeing patients. Currently we are trying to enlist some help from colleagues at home for some updating on pediatric and dermatology issues.
A little bit about the people we are trying to help:
Of course it is good to leave Syria or Iraq where your homes and families are being bombed, but the next steps after that first horrible crossing of the sea, are also frightening and uncertain. Will you find your family members (cell phones help and many if not most have them), will you be allowed to leave Lesvos and go to Athens, will you ever get out of the refugee camp in Athens and go to Greece or will you be deported. Single women traveling alone have been subjected to sexual assault by smugglers in Turkey. Ten year olds traumatized by bombings or murders in Syria, and now suffering from bed wetting, panic attacks. PTSD is as common as you might expect in this population. As the weather gets cold, everyone gets a cold, but with poor nutritional status, sleeping in a tent on the ground ( or without a tent), these coughs keep everyone awake at night and parents worrying about their children, and some babies may have died of pneumonia. Head lice of course. Asthma. Headaches, all the normal things people get but without the most basic treatments available like rest, a hot shower, steam, nasal irrigation, Tylenol.
Last night we were sent a video of a fight taking place in Moría between Kurdish and Palestinian people. It was filmed by Aziz, our Arabic translator who lives there. We were forewarned then about injuries we might see today, and in fact we did.
I sent a young man to the hospital today as he most surely fractured his radius and also possibly humerus when he was running to get his family out of the fray in camp and fell on concrete. Tomorrow I will perhaps be able to find out if he was seen, treated, imaged. Yesterday we sent a family to the hospital with a baby who had had a seizure, and after the translator dropped them off the hospital discharged them because they had no Arabic translator. I also sent a woman with an acute abdomen ( appendicitis I predict), to hospital yesterday, but I still have not heard what happened to her there.
So I have been saying "clinic" because in fact there was not a spiffy little tricked out van ( that came from my imagination I guess). Above are some pictures of the transformation of a ply wood shed into a functioning three room facility with a waiting room about 10x10, and the other half divided into to exam rooms. There is an awesome and motley bunch of volunteer construction workers doing this, led by Gavin, a British one-armed carpenter, a doctor disguised as a carpenter, and a few others. They just come around asking what we want, where should the shelves go, etc. Tomorrow they are finishing the plumbing and electricity, so today clinic was in a tent with a floor of broken lumber covered with rugs, and will probably also be in there tomorrow.
We have lots of miscellaneous medicines, and Belen, our young energetic nurse from Madrid is keeping them all sorted and labeled and helps us look them up on the internet as they all have names and directions in Greek or German. We have an even more energetic Finnish- American retired ER nurse, who is helping to organize who needs to be seen next, and getting a few vitals. She and her two sisters and a niece are all here working with refugees in different settings, one working on a project to turn the material from the inside of spent life jackets into insulated sleeping pads.
To summarize our two days of work so far, I will just say that last night we were so overwhelmed with information about what we were seeing and what needed to be done, we could barely speak. We didn't eat or drink much water or ever get to the bathroom for most of the day. Today we took a new look at what we can and cannot do ( clearly there will be no referrals to specialists, physical therapy, advanced imaging, except in the most urgent or dire cases), and know that when we look up any current practice guidelines in UpTo Date, we will be looking at " resource poor populations ". I'm hoping some of my colleagues can help me with some treatments for bed wetting, while I know that there is little I can do about the trauma these kids have been through. Tomorrow we will learn about Mental Health services on the Island, and also a women's clinic.
I know this is long, I hope not too much more than you wanted to read. It feels good to write to all who support this kind of work, and I doubt that anyone who doesn't will bother to read it.
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