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lizacstuff · 1 year
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That feeling when it hits you that you have the family you’ve always dreamed of...
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ah-comoebom-amar · 10 months
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crippled-peeper · 5 months
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mocking me for apparently living alone and “not having roommates or carers” when I’m on year 3 of trying to get on SSI and my family LITERALLY TRIED TO MURDER ME and MADE ME HOMELESS is so incomprehensibly fucking disgusting and evil and insane I fucking hate this site and I fucking hate EDSer status quo throaters in my fucking inbox whining and complaining hysterically that I don’t look like I get “enough” help for what I claim to be wrong with me. How fucking self-obsessed and stupid and cunty do you have to be to act like “you don’t get enough help” is some fucking massive own and “proof” I’m not rly that disabled
✨FUCK YOU STUPID PRIVILEGED CUNTS✨
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uniquelysamantha · 4 months
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What The Hell Is EDS?
Why You Should Care...
You can’t know me without knowing my journey with EDS. My journey helped me become the woman I am today. The woman I was at 8 and the child I was yesterday.
So What Is It?
EDS stands for Ehlers-Danlos Syndrome. It’s a collection of connective tissue disorders. EDSers are born with faulty collagen. (And no, collagen supplements can’t change faulty collagen to healthy collagen.) Unfortunately collagen is needed to hold the body together. There are several types of EDS, some being moderately common and some extremely rare. Each type has certain symptoms that are different from other types, but a few symptoms are present across the spectrum. I could write a paper about EDS, a long paper. Instead, I’m going to tell you about my experiences.
First, let me get one thing out of the way right at the beginning. I have two types of EDS, which is supposed to be impossible, but bear with me. I inherited Classical EDS from my mom. It was obvious from the beginning. I also inherited Hypermobile EDS from my dad. That was only diagnosed later. Here’s the absolute crazy thing. Neither of my parents knew they had EDS. My parents, like so many other EDSers, had symptoms, but doctors couldn’t figure it out. So, yeah, it’s crazy that two people with different types of EDS meet, and pass on that faulty gene to all three children in the family. So, before other EDSers say anything about how it’s not possible to have two types, my two types EDS have been confirmed by four different geneticists.
Ok now that that’s out of way . . .
When I was born, my left foot was twisted completely backwards. According to my parents, my health and development issues never got “better.” My mom had been around babies all of her life. She knew what babies were supposed to be able to do around certain ages. From the very beginning, she tried to tell the doctors that something was wrong with me. I couldn’t hold my head up when most babies do. I couldn’t sit up when most babies do. Forget crawling and walking on time. All through this, my parents struggled with my severely fragile skin. It was bruised most of the time and would tear at the smallest bump. There was clearly something wrong with my health, but the doctors didn’t understand what.
At the age of 18 months I was still not walking well. That left foot was floppy and didn’t want to stay in place. I was shipped off to an orthopedic surgeon to see what could be done. This was the most important doctor in my life. He was the first one to suggest to my parents that I might have Ehlers-Danlos Syndrome. He didn’t want to make the official diagnosis because he didn’t think he had the qualifications to do so. So he shipped me off to the Shriner’s Hospital for Children. It was a very high ranking doctor that finally told my parents that I have Classical EDS, then called Type I.
Unfortunately, even the doctors didn’t know much about it and had never heard of someone being diagnosed so young. We left the Shriner’s Hospital For Children with more questions than answers. This was in 1973.
Cigarette Paper Skin . . .
As a child, my paper thin skin caused a ton of problems. Any fall would warrant a trip to the ER for stitches. Unfortunately because the doctors in the ER didn’t know anything about Ehlers-Danlos, they spent hours stitching me up, only to have them later pull through my skin, causing extremely slow healing and giant scars. I have tons of scars, from my head to my toes. Some are bright purple and some have stretched so much that they spread across my whole leg.
Rubber Man Joints ?
When I was about eight my joints started to painfully sublux and dislocate for no reason. The doctors didn’t understand how I could dislocate my knee during my sleep. My ankles were so weak that stepping on a pebble could cause a sprain or subluxation. I was on crutches 18 times before I even reached the age of 18.
My feet were just as unstable. They were terribly weak and I needed special shoes from the very beginning. Actually all of my joints were unstable. I could barely hold a pencil or a heavy book. My elbows and shoulders hurt when I tried to pick myself up off of the floor. I only became aware that most people’s knees didn’t hurt every day when I was about 10.
Ugh Surgeries . . .
To date, I’ve had 40 (I’m currently 51.) Some surgeries have been routine, like my tonsils and appendix. Most of my surgeries have been orthopedic and even experimental for a young EDSer. My feet have been cut up so much that I have more metal than bone in some areas. And, most of these surgeries failed within in years if not months. I’ve also had several reconstructive surgeries to try to put things back where they go.
I had a bilateral knee reconstruction from a terrible fall I had. I still have nightmares about it. More recently, I’ve had three surgeries on my left knee to reconnect my quad tendon to the bone. Again a terrible fall. Because of that stupid quad tendon, my knee can’t hold me upright any longer.
Wait, There’s More . . .
EDS is not just skin and joints though. Slow healing is a big part of every type. When a doctor says he’ll take the stitches out in seven days, it ends up being 14. I get sick if I’m around anyone who sneezes or coughs. I’ve had Scarlet Fever, several bouts of pneumonia, fevers over 103, bronchitis twice a year like clockwork, and enough viruses for hundreds of people.
Then I have other related issues. My heart and lungs are weak. I had to have a hysterectomy when I was only 24. I can’t even look at spicy food without my GERD yelling at me. I have mild hearing loss because there are bones in the ear, which can sublux too. My eyes are tricky because they change prescription a few times a year.
Displaced . . .
At the ripe old age of 43, I moved into the local nursing home because I just couldn’t take care of myself. Some days I’m fine, but other days I can’t move my neck without shooting pain. It’s very hard to eat or sit up when your neck is subluxed. Forget trying to cook for myself. I now use a wheelchair full time. I actually don’t mind because walking was not only painful, but dangerous. I had the chance of falling with every step, every tiny step. Yes, I’m limited a bit to go places because of my chair, but heck, I couldn’t do stairs when I walked anyway.
Evolution . . .
As my Ehlers-Danlos has progressed, I’ve had to give up a lot of things that I love. I can’t sew or knit anymore. I really shouldn’t be around most animals anymore because of their unpredictability. I can’t even hold a fork and spoon correctly. I haven’t cut my own food in years. I can’t chew gum or eat apples without cutting them up because my jaw dislocates. I can’t hold books to read. Thank goodness for ebooks! My back and knees are painful every minute, of every day, of every week, of every month, of every year.
So, Anyway . . .
Even with all of my physical issues, I’m actually content most of the time. I know my limits and stay within them while creatively adapting activities to have a great quality of life. I write, read on my tablet, research curious little things, even learned a way to knot keychains and small wall hangings. I still love people, and I still create, and I still learn. Those things are important to me.
Uniquely Samantha . . .
My life journey is mine. It’s made me as unique as your journey made you
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olko71 · 4 months
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New Post has been published on All about business online
New Post has been published on https://yaroreviews.info/2023/12/strike-that-disrupted-eurotunnel-and-eurostar-ends
Strike that disrupted Eurotunnel and Eurostar ends
PA Media
By Nick Edser & Katy Austin
BBC News
Eurotunnel has confirmed that a “last-minute strike” by French workers which halted trains during the day on Thursday is over and there will be a progressive return to services.
But while drive-on LeShuttle trains were set to resume during the evening, Eurostar said passenger services would resume on Friday.
Currently, all Eurostar trains to and from London are cancelled.
The disruption emerged as people travel for Christmas over the next few days.
Eurotunnel said it had reached an agreement with trade unions and apologised for disruption to LeShuttle, which transports vehicles through the Channel Tunnel.
“Eurotunnel welcomes this agreement and reiterates its apologies to all LeShuttle customers as well as Eurostar passengers and rail freight operators whose traffic has been impacted by this strike,” Eurotunnel said in a statement.
It added it would not be selling new tickets for travel on Friday. Instead, it will focus on those who have already have tickets.
Eurostar said it would resume a normal timetable out of London, Paris and Brussels on Friday.
It will put on two extra trains each day until Christmas Day to help deal with passengers who could not travel on Thursday.
Affected customers have also been offered refunds, it added.
French transport minister Clement Beaune tweeted: “Lifting of the blockade of the Channel Tunnel. Traffic can resume #Eurostar #Getlink
“I salute the spirit of responsibility of all those involved.”
Some 30 Eurostar trains scheduled in London, Paris and Brussels were cancelled on Thursday, Eurostar said.
Separately, there are no trains from London Euston station on Thursday because of damaged overhead power cables between Milton Keynes and Watford Junction.
As a result, Euston station is currently closed to incoming passengers. Network Rail engineers are currently assessing the damage to the cables using drones.
Bonuses row
Services through the Channel Tunnel were suspended after a range of Eurotunnel staff – from those who run the trains to those who manage and maintain the infrastructure – walked out at short notice.
Eurostar, which runs high-speed passenger trains on the route, said earlier: “Customers affected will receive direct communication about their journey and can exchange their tickets free of charge or claim a refund.
“We are closely monitoring the situation as it evolves, and any further updates will be communicated as soon as possible.”
Reuters
Eurotunnel said earlier it was putting people on ferries while services were suspended, due to an arrangement with ferry companies.
Unions called the strike at 11:00 GMT before ending it in the evening. Under French union law, they could run the strike for as long as they wanted to.
Staff were offered discretionary bonus of a €1,000 (£867) bonus, but the unions’ request is for three times that much.
It is not known at this time what deal the union accepted.
‘No communications’
Chris Tirifahy-McCabe and his wife were planning to travel to Brussels by Eurostar to visit family. He’s currently stuck at St Pancras and is trying to make alternative travel arrangements, along with hundreds of others.
“All Eurostar services have been suspended until further notice,” he told the BBC. “There are around 500 people stuck past security waiting.”
“It’s an unexpected strike and that’s all they’re saying. There’s been no real communications”
“No one knows whether to leave or stay,” he added.
Transport networks are gearing up for one of the busiest periods of the year, with many travelling to visit family and friends.
Travel in some parts of the UK has already been disrupted by strong winds from Storm Pia.
British Airways says it had to adjust its flight schedule on Thursday as a result of air traffic control restrictions put in place in response to the storm.
Rail operator TransPennine Express issued “do not travel” advice to customers for its services to and from Edinburgh before 15:00.
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Travel chaos as strike and storm hits Christmas getaway
12 hours ago
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tvnerds · 3 years
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Serkan + Eda + Kiraz + Alp
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gallifrey04 · 3 years
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stydiaeverafter · 3 years
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Bolat Family Bedtime Moments 
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xamala · 2 years
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onceuponablob · 3 years
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No. No, don't do that. The one thing I hate the most is starting a sentence and not finishing it.
— Sen Çal Kapımı, Episode 4, 10 & 41
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alicekepley · 3 years
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Sen Çal Kapımı 50. Bölüm Fragmanı
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lizacstuff · 2 years
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Bolat family time
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habitxgolde · 3 years
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Something has changed🥺✨
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indiestyles-blog · 3 years
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rosethorn108 · 3 years
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Serkan and his little cherry
love the sass in this family 
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his daughter’s impatient just like him
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his cute hold my finger
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hugs
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olko71 · 10 months
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New Post has been published on All about business online
New Post has been published on http://yaroreviews.info/2023/06/interest-rates-bank-of-england-governor-admits-rise-painful-for-many
Interest rates: Bank of England governor admits rise painful for many
Getty Images
By Daniel Thomas, Nick Edser & Faisal Islam
Business reporters and economics editor, BBC News
Interest rates have risen by more than expected in a shock move as the Bank of England battles to slow soaring prices.
The Bank raised rates to 5% from 4.5%, the highest level in 15 years. Most analysts had expected a smaller rise.
“I understand the difficulty and the pain that causes for many people,” Bank of England governor Andrew Bailey said.
The move will lead to higher repayments for people with loans and many mortgage holders, but it should benefit savers if the rise is passed on.
Mr Bailey said that if the Bank did not raise rates now, “it could be worse later”.
“Many people with mortgages or loans will be understandably worried about what this means for them… but inflation is still too high and we’ve got to deal with it,” he added.
He warned that to get inflation lower, wage rises “cannot continue” at the rate they have been.
But he denied the Bank was trying to cause a fresh slump by putting up rates so sharply.
Nevertheless, mortgage rates have soared over the last year and a half:
The average two-year fixed residential mortgage now stands at 6.19% while the five-year rate is 5.82%. In June last year, those rates were closer to 3%.
Those on a typical tracker mortgage will pay about £47 more a month. Those on standard variable rate (SVR) mortgages face a £30 jump
Since December 2021, that is an increase in monthly repayments of £465 on a tracker and £297 on an SVR.
Borrowing costs are also likely to rise. Currently the average annual interest rate is 21.86% on bank overdrafts and 20.13% on credit cards.
The dramatic move comes as the Bank tries to show it is in control of inflation, the annual rate at which prices go up, which was much higher than expected in May and far above levels seen in other countries.
Prime Minister Rishi Sunak is also under pressure to tackle the problem, having vowed to halve inflation by the end of the year.
On Thursday he said the job “has got harder” but added he was “totally 100% on it”.
“Rooting out inflation is not easy. It requires difficult decisions,” he added.
He added that people’s weekly shop had “gone up far too much” and the government would make sure supermarkets behaved “responsibly and fairly”.
In a letter to Mr Bailey, Chancellor Jeremy Hunt said he would meet regulators next week to discuss how it can make sure falls in wholesale costs are passed onto customers. It comes after supermarkets have been accused of making too much money from rising food prices.
However, they have denied profiteering, with the British Retail Consortium saying stores are working to keep prices “as low as possible”.
Shadow chancellor Rachel Reeves said families would be “desperately worried about what today’s interest rate rise might mean for them”.
Latest reaction to the interest rate rise
How the interest rate rise affects you
Five tips for saving money on your mortgage
‘I have to find £400 more each month’
Ewan Cameron bought a flat in London two years ago and has just managed to secure a new fixed-rate mortgage deal, but not before he had two mortgage offers pulled.
He has now got to find an extra £400 a month to pay for his home, and is considering renting out the spare room to help pay for it.
‘I moved abroad to save but still can’t afford a mortgage’
In theory raising interest rates makes it more expensive to borrow money, meaning people have less to spend. This makes it harder for firms to raise prices.
However, the process also drags on the UK economy, which is struggling to grow. Higher rates are also forcing mortgage lenders – who are affected by the Bank’s decisions – to put up their own rates.
Matt Smith, a mortgage expert at property portal Rightmove, said the rate rise would not be “much of a shock” to lenders.
He said the Bank had opted for a large hike in part to reassure the financial markets – though it remained to be seen whether it would work.
“If today’s news does provide some reassurance, then we’d hope to see some stability return to the mortgage market which will help those looking to take out a mortgage this year to plan ahead,” he said.
There have been calls for the government to step in and help homeowners, but Mr Hunt and Mr Sunak have so far dismissed suggestions that ministers could intervene.
However, Mr Hunt is set to meet with banks on Friday as pleas grow for more to be done.
Labour has also said it would not intervene. But it has said the government should force banks to help homeowners struggling with mortgage payments, for instance by allowing them to switch to interest-only payments for a temporary period.
Consumer champion Martin Lewis has warned “a mortgage ticking time bomb is now exploding”.
The Bank’s Monetary Policy Committee (MPC), which sets UK rates, voted 7-2 in favour of a half percentage point rise – its biggest hike since February.
Two members of the committee voted to keep rates on hold.
In a letter to Mr Hunt, Mr Bailey said that overall inflation was still set to fall “significantly” during the course of the year as energy prices come down.
But he added that the Bank would continue to monitor inflation closely, and would raise rates further if necessary.
Interest rates remain the Bank’s primary tool to lower inflation, despite debate over their effectiveness.
The Bank said it was “continuing to monitor closely the impact” of the significant increase in the Bank rate so far.
It added that given the number of people yet to come off fixed-rate mortgage deals, the full impact of recent rate rises would “not be felt for some time”.
What do I do if I can’t afford to pay my debts?
It is important that you do talk about financial difficulties before finding yourself in a spiral of debt. The earlier, the better.
If you think you cannot pay your debts or are finding dealing with them overwhelming, seek support straight away. You are not alone and there is help available.
A trained debt adviser can talk you through the options available.
What help and options are available to people struggling with debt repayments?
Related Topics
Personal finance
UK economy
Bank of England
More on this story
How the interest rate rise affects you
3 hours ago
Five ways to save money on your mortgage
43 minutes ago
‘I saved £50,000 but still can’t afford a mortgage’
1 hour ago
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