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cripplecharacters · 1 month

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Where to Start Your Research When Writing a Disabled Character

[large text: Where to Start Your Research When Writing a Disabled Character]

So you have decided that you want to make a disabled character! Awesome. But what's next? What information should you decide on at the early phrase of making the character?

This post will only talk about the disability part of the character creation process. Obviously, a disabled character needs a personality, interests, and backstory as every other one. But by including their disability early in the process, you can actually get it to have a deeper effect on the character - disability shouldn't be their whole life, but it should impact it. That's what disabilities do.

If you don't know what disability you would want to give them in the first place;

[large text: If you don't know what disability you would want to give them in the first place;]

Start broad. Is it sensory, mobility related, cognitive, developmental, autoimmune, neurodegenerative; maybe multiple of these, or maybe something else completely? Pick one and see what disabilities it encompasses; see if anything works for your character. Or...

If you have a specific symptom or aid in mind, see what could cause them. Don't assume or guess; not every wheelchair user is vaguely paralyzed below the waist with no other symptoms, not everyone with extensive scarring got it via physical trauma. Or...

Consider which disabilities are common in real life. Cerebral palsy, muscular dystrophy, stroke, cataracts, diabetes, intellectual disability, neuropathy, multiple sclerosis, epilepsy, thyroid disorders, autism, dwarfism, arthritis, cancers, brain damage, just to name a few.

Decide what specific type of condition they will have. If you're thinking about them having albinism, will it be ocular, oculocutaneous, or one of the rare syndrome-types? If you want to give them spinal muscular atrophy, which of the many possible onsets will they have? If they have Ehlers-Danlos Syndrome, which one out of the 13 different types do they have? Is their amputation below, or above the knee (it's a major difference)? Not all conditions will have subtypes, but it's worth looking into to not be surprised later. This will help you with further research.

If you're really struggling with figuring out what exact disability would make sense for your character, you can send an ask. Just make sure that you have tried the above and put actual specifics in your ask to give us something to work with. You can also check out our "disabled character ideas" tag.

Here are some ideas for a character using crutches.

Here are some ideas for a character with a facial difference (obligatory link: what is a facial difference?).

If you already know what disability your character is going to have;

[large text: If you already know what disability your character is going to have;]

Start by reading about the onset and cause of the condition. It could be acquired, congenital, progressive, potentially multiple of these. They could be caused by an illness, trauma, or something else entirely. Is your character a congenital amputee, or is it acquired? If acquired - how recently? Has it been a week, or 10 years? What caused them to become disabled - did they have meningitis, or was it an accident? Again, check what your options are - there are going to be more diverse than you expect.

Read about the symptoms. Do not assume or guess what they are. You will almost definitely discover something new. Example: a lot of people making a character with albinism don't realize that it has other symptoms than just lack of melanin, like nystagmus, visual impairment, and photophobia. Decide what your character experiences, to what degree, how frequently, and what do they do (or don't do) to deal with it.

Don't give your character only the most "acceptable" symptoms of their disability and ignore everything else. Example: many writers will omit the topic of incontinence in their para- and tetraplegic characters, even though it's extremely common. Don't shy away from aspects of disability that aren't romanticized.

Don't just... make them abled "because magic". If they're Deaf, don't give them some ability that will make them into an essentially hearing person. Don't give your blind character some "cheat" so that they can see, give them a cane. Don't give an amputee prosthetics that work better than meat limbs. To have a disabled character you need to have a character that's actually disabled. There's no way around it.

Think about complications your character could experience within the story. If your character wears their prosthetic a lot, they might start to experience skin breakdown or pain. Someone who uses a wheelchair a lot has a risk of pressure sores. Glowing and Flickering Fantasy Item might cause problems for someone photophobic or photosensitive. What do they do when that happens, or how do they prevent that from happening?

Look out for comorbidities. It's rare for disabled people to only have one medical condition and nothing else. Disabilities like to show up in pairs. Or dozens.

If relevant, consider mobility aids, assistive devices, and disability aids. Wheelchairs, canes, rollators, braces, AAC, walkers, nasal cannulas, crutches, white canes, feeding tubes, braillers, ostomy bags, insulin pumps, service dogs, trach tubes, hearing aids, orthoses, splints... the list is basically endless, and there's a lot of everyday things that might count as a disability aid as well - even just a hat could be one for someone whose disability requires them to stay out of the sun. Make sure that it's actually based on symptoms, not just your assumptions - most blind people don't wear sunglasses, not all people with SCI use a wheelchair, upper limb prosthetics aren't nearly as useful as you think. Decide which ones your character could have, how often they would use them, and if they switch between different aids.

Basically all of the above aids will have subtypes or variants. There is a lot of options. Does your character use an active manual wheelchair, a powerchair, or a generic hospital wheelchair? Are they using high-, or low-tech AAC? What would be available to them? Does it change over the course of their story, or their life in general?

If relevant, think about what treatment your character might receive. Do they need medication? Physical therapy? Occupational therapy? Orientation and mobility training? Speech therapy? Do they have access to it, and why or why not?

What is your character's support system? Do they have a carer; if yes, then what do they help your character with and what kind of relationship do they have? Is your character happy about it or not at all?

How did their life change after becoming disabled? If your character goes from being an extreme athlete to suddenly being a full-time wheelchair user, it will have an effect - are they going to stop doing sports at all, are they going to just do extreme wheelchair sports now, or are they going to try out wheelchair table tennis instead? Do they know and respect their new limitations? Did they have to get a different job or had to make their house accessible? Do they have support in this transition, or are they on their own - do they wish they had that support?

What about *other* characters? Your character isn't going to be the only disabled person in existence. Do they know other disabled people? Do they have a community? If your character manages their disability with something that's only available to them, what about all the other people with the same disability?

What is the society that your character lives in like? Is the architecture accessible? How do they treat disabled people? Are abled characters knowledgeable about disabilities? How many people speak the local sign language(s)? Are accessible bathrooms common, or does your character have to go home every few hours? Is there access to prosthetists and ocularists, or what do they do when their prosthetic leg or eye requires the routine check-up?

Know the tropes. If a burn survivor character is an evil mask-wearer, if a powerchair user is a constantly rude and ungrateful to everyone villain, if an amputee is a genius mechanic who fixes their own prosthetics, you have A Trope. Not all tropes are made equal; some are actively harmful to real people, while others are just annoying or boring by the nature of having been done to death. During the character creation process, research what tropes might apply and just try to trace your logic. Does your blind character see the future because it's a common superpower in their world, or are you doing the ancient "Blind Seer" trope?

Remember, that not all of the above questions will come up in your writing, but to know which ones won't you need to know the answers to them first. Even if you don't decide to explicitly name your character's condition, you will be aware of what they might function like. You will be able to add more depth to your character if you decide that they have T6 spina bifida, rather than if you made them into an ambiguous wheelchair user with ambiguous symptoms and ambiguous needs. Embrace research as part of your process and your characters will be better representation, sure, but they will also make more sense and seem more like actual people; same with the world that they are a part of.

This post exists to help you establish the basics of your character's disability so that you can do research on your own and answer some of the most common ("what are symptoms of x?") questions by yourself. If you have these things already established, it will also be easier for us to answer any possible questions you might have - e.g. "what would a character with complete high-level paraplegia do in a world where the modern kind of wheelchair has not been invented yet?" is much more concise than just "how do I write a character with paralysis?" - I think it's more helpful for askers as well; a vague answer won't be much help, I think.

I hope that this post is helpful!

Mod Sasza

#mod sasza #writing reference #writing advice #writing resources #writeblr #writing disabled characters #writing resource #long post #writing tips #writing guide

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cripplecharacters · 15 days

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Navigation: Helpful Posts

[large text: Navigation: Helpful Posts]

Complication of posts from CrippleCharacters, as well as other blogs providing advice on writing disabled characters!

This list will continue to be updated with new posts.

Last update: 23/04/2024

Character Making Basics and Ideas

[large text: Character Making Basics and Ideas]

How to Start Doing Research When Writing a Disabled Character Ideas: crutch users Ideas: facial differences Ideas: rollator users Ideas: little people Ideas: intellectual disability General Ideas

How to Describe XYZ?

[large text: How to Describe XYZ?]

Blindness Tropes: the "Blank Look" Describing Characters with Facial Differences as Pretty First Description: when to mention the Facial Difference How Often Should You Mention Mobility Aids? Dialogue and Speech Disorders Sign Language in Dialogue

How to Draw XYZ?

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Tips for Drawing Characters with Facial Differences Drawing Blind Characters Drawing Amputees

General

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Writing a Newly Disabled Character Writing a Visibly Different Character Including Disabled Communities Disabled Characters in Historical Fiction Coming up with Fictional Disabilities Tokenism Discussion Disability and Superpowers Curing and "Fixing" Disabled Characters Is It Realistic to Have Multiple Disabled Characters? "Jaws Effect": how media affect the real world Worldbuilding with Accessibility in Mind How to Let Readers Figure Out the Character's Disability

General Tropes

[large text: General Tropes]

"Super-Crip": Magic and Disability I Did a Trope but It's Too Late - What You Should Do - made with the mask trope in mind, but could be applied more widely Magical Cure - made with blindness in mind Including Healing Magic without Disability Erasure

Mobility Aids

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General Overview Overview, but with More Options - not writing advice, educational Magic Mobility Aids Tips on Writing Wheelchair Users "But Mobility Aids Wouldn't Exist in my Fantasy World"

Amputation/Limb Difference

[large text: Amputation/Limb Difference]

Constructing Characters with Limb Differences: Discussing Fetishization Do Amputees Always Wear Prosthetics? Does a Character with Amputation Need a Prosthetic? Does a Character with Upper Limb Amputation Need a Prosthetic? Designing a Prosthetic Arm Making a Character with Upper Limb Amputation Genius Amputee Mechanic: Discussing the DIY Prosthetic Trope Causes of Amputation

Blindness

[large text: Blindness]

Making a Blind Character: what to add, what to avoid Designing a Blind Character: Discussing the Eye Covering Trope What to Give Your Blind Character Blindness Tropes: Daredevil, milky eyes, and blindness-negating magic The Blind Prophet Trope Guide Animals: Dogs, Horses, and Their Fictional Equivalents Blind Characters with Superpowers Portraying Photophobia in Pre-modern Times Characters with Albinism Fetishization of Albinism DeafBlind Character not Wanting to be Blind

Deaf and Hard of Hearing (HoH) Characters

[large text: Deaf and Hard of Hearing (HoH) Characters]

Creating Deaf/HoH Characters Writing D/deaf/HoH Characters Tips on Writing Deaf Characters Visual Indicators of a Person being Deaf Tips on Writing about Hearing Aids

Facial Difference (FD)

[large text: Facial Difference (FD)]

Introduction to Facial Difference: basics, tropes, what I want to see Constructing a Character with an FD: Discussing Disfiguremisia and the "Mask Trope" Does My Character Need a Prosthetic Eye?: alternatives What Would Happen to A Character with a Scar Through the Eye? Personal Opinion on the Scar Through the Eye Trope How Scars Affect the Character, and How the Character Affects the Scar (in the technical sense)

Other

[large text: Other]

Introduction to Writing Intellectually Disabled Characters: basics, tropes, how it actually works Down Syndrome and Historical Fiction Writing Characters with Tourette's Syndrome Introduction to Writing Characters with Speech Disorders Writing Little People (characters with dwarfism) Writing and Drawing Burn Survivors: basics and resources Caring for a Burn Scar: the everyday things Writing Characters with ASPD Dwarfism and Fantasy Stories Stereotypes around Characters with Dwarfism Writing a Character with Russel-Silver Syndrome

Making Your Content Accessible to Disabled Readers

[large text: Making Your Content Accessible to Disabled Readers]

Image Descriptions Tutorial Writing Image Descriptions for People Who Can't Write Them "But how do blind people even use alt text" How to Tag Your Posts (Tumblr)

Recommended Blogs

[large text: Recommended Blogs]

@blindbeta @cy-cyborg @a-little-revolution @mimzy-writing-online

#mod sasza #long post #navigation

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cripplecharacters · 7 months

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Media Representation and Writing Characters with Facial Differences

[Large Text: Media Representation and Writing Characters with Facial Differences]

A writing (?) guide (?) consisting of an explanation of what facial differences are, some basics about the community of people with facial differences, a terminology guide that is extremely subjective, a very long explanation of the real-life effects of misrepresentation of facial differences, a subjective guide on why most tropes surrounding facial differences are awful and unoriginal, and the part that people actually want to see (I hope at least) AKA "types of characters I do actually want to see". As always, this post is meant for people who have no experience with the subject, and not in any way an attempt to tell writers with facial differences on what to do in their own writing.

What Does "Facial Difference" Mean?

[Large Text: What Does "Facial Difference" Mean?]

"Facial Difference" (FD for short) is an umbrella term for any kind of scar, mark, or condition that makes your face visibly different. This encompasses anything from not having parts of the face or having less of them (e.g. anophthalmia, anotia, hemifacial microsomia), having "more" to the face (e.g. tumors, neurofibromatosis), conditions affecting how the face moves (e.g. facial paralysis, ptosis, cranial nerve diseases), ocular differences (e.g. hypertelorism, nystagmus, strabismus), conditions affecting the colors of the face (e.g. rosacea, vitiligo, pigmentation conditions in general), a "look" that signals a specific disability (e.g. Down Syndrome) and approximately a million more things - scars, burn marks, craniofacial conditions, ichthyosis, cancers, and a lot more.

Despite popular opinion (popular ignorance would be more accurate because no one knows about it in the first place but opinion sounds better-) people with Facial Differences have both a movement (Face Equality) and a specific word for the oppression we experience (Disfiguremisia). There is even the Face Equality Week that happens every year in May! This is a real thing that has been happening, and we are generally going unnoticed, even in the "representation matters" circles, the body positivity movement, disability spaces, and so on. There is an alliance of organizations dedicated to this called Face Equality International, who can help you learn about the real-world community and movement! They even have sections specifically about media representation, which is foreshadowing for how important this topic is to the community and for how long the "explaining the issues of representation" part of this post is.

And of course, if you have a facial difference/disfigurement, you can do whatever the hell you want when writing! Call your characters how you call yourself, subvert the tropes you want. I don't want to preach to people who already know all of this firsthand. This post is meant to explain some things to people who don't have experience with having FD.

Terminology

[Large Text: Terminology]

There is a lot of words to describe people with FD. Some of them are alright, most of them are awful.

Please keep in mind that all of these terms (maybe except for the... last one...) are used by real life people. This isn't me saying "you can't say that about yourself" (more power to you!) but rather to educate able-bodied people that some words they refer to use with aren't as neutral as they think (at least not to everyone).

"[person] with a facial difference" - generally the most polite and widely accepted way to refer to us. That's what is generally used in the Face Equality movement, sometimes alongside the next term which is...

"[person] who has a disfigurement" - an alright term that is sometimes used interchangeably with the one above. However, most things that involves the term "disfigurement" to me sound kinda medicalized and/or like lawyer speech. It's not offensive, but just generally used in more official ways etc. Has the potential to make you sound like a medical report or a legislature sometimes. lol.

"A disfigured [person]" - starting to steer into the "uhh" territory. Describing a whole person as disfigured is, to me, just plain weird. I get that some communities push for the identity first language, but this just isn't it most of the time. Could be way worse, could be slightly better.

"[person] who has a deformity" - "deformity" is such a negatively charged word that I don't understand how people (without FD) still use it thinking it's neutral. This sounds awkwardly medicalized in a "case study from the 80s" way which is definitely not a good thing.

"A deformed [person]" - pretty much the jackpot of bad terminology, the term deformed, the calling of an entire person by it, it has everything I hate about writers describing people like me. The only one that I think is even more awful is...

"Horribly/gnarly/nasty/monstrous deformity/scar/[name of the specific condition]" - again, I'm impressed by what some people think is neutral wording. If you're searching a thesaurus for synonyms of "scary" to describe your character, I think it's time to just stop writing them. This is about using ableist terminology, sure, but I just can't imagine that someone calling their character that actually will represent FD well. It shows the negative bias and attitude of the writer.

However, there is also one pretty awesome and simple way to describe them!

Say what they have specifically. Really. Assuming you know what condition your character has (which... you should) it should be very easy. "She has Treacher-Collins Syndrome." "Xyr forehead has a port wine stain on it." "They can't fully open one of their eyes." It's clear and lets your readers know what you mean. You don't always have to throw around euphemisms to describe someone not having a nose.

Tropes and Current State of Representation

[Large Text: Tropes and Current State of Representation]

If you have read basically any of my previous posts about FD then you probably know what I'm about to say in this section. Still worth a read though? I hope. Warning that this is long, but you probably expected that already.

One thing I will note at the start is that I'm aware that a lot of writers were already turned off from this post just because of the terminology section. I know that artists love describing people like me as ugly deformed monsters! It's literally a tale as old as antiquity, and that's how overdone and stale it is. Visibly disabled = ugly. I get it, I heard it a thousand times before, I hear it majority of the time someone is excited to tell me about how horrible and gross their OC's scar is. But now some guy (me) from that group is telling you to like, maybe stop calling your disgustingly deformed character that!

I want to make it very clear that FD representation in media is not treated like a real thing that's worth anyone's time, even by the most "representation is so important!" writers. I guess it's too inconvenient to unpack the amount of baggage and uncomfortable implications this would cause. It's too good of a device in writing; everyone knows that if a guy with a scar shows up that it means he's evil, the easiest way to make a villain visually interesting is to make them a burn survivor, and if you need a tragic backstory for a serial killer just give them a congenital disability that caused literally everyone in the world to treat them horribly, so of course they started killing people. It's such a good moral signifier that literally every book and tale has done - pretty is good, ugly is bad. Dichotomy is so helpful. What is less helpful in the real world is that what is considered "ugly" is generally very tightly bound to what visibly disabled people look like. Ugly Laws weren't just like, coincidentally including disabled people and disability activists aren't still forced to speak out against being put in those "Ugliest People" lists by accident. This is all to say that facial differences are considered to be "ugly" completely uncontested, and you probably have this bias too, as the vast majority of people do. The whole "the character is ugly, then they become evil, if they're evil, they become ugly"... you need to be conscious to not do that. Don't make them evil if they're visibly disabled because it will always end up being the same old trope, no matter how many weird excuses and in-universe explanations you give. I want to put it in people's heads that you are writing about a community of people who are technically visible in real life, but have no large voices that the general public would listen to when it comes to how we are seen. The general public relies on media to tell them that.

Putting people with FD in your books or your art seems to suddenly be intimidating for a lot of artists when they realize that not only is facial difference a real thing, but people who have it can see what you write or draw (and your other readers will take some things out of what you write, subconsciously). When an author is faced with the fact that maybe they are doing harm with their writing, they either: suddenly don't want to do that anymore at all, or say: "I don't care! I'm going to be very innovative and make my very evil OC be deformed!" which is kinda funny to me that people actually seem to think it's edgy and cool to repeat the most tired Hollywood tropes but that's the best we can get I guess lol...

The attitudes that people have around the topic of facial difference and the whole "media impacts reality" are very interesting to me in general. On one hand, when I tell someone that I was bullied or ostracized because of my disabilities, no one is ever surprised. On the other hand, everyone is for some reason uncomfortable when I say that this doesn't just... appear out of thin air. People are taught from childhood that facial differences and the people who have them are scary, untrustworthy, or literal monsters. Media is a major factor in that. Like, looking back at it, it makes sense that my parents told me not to stare at other kids because they would get scared. After all, I looked like a kindergarten version of the bad guy from some kid's book. Other kids were able-bodied and looked like the good guy, I was visibly disabled and looked like the bad guy. That's the lesson kids get from media on how people with visible disabilities are: evil, scary, not to be interacted with. So they avoided me because of that while I had adults telling me to not even look in their direction. Dichotomy is so helpful, right?

And this doesn't magically stop at children. When I post a self-portrait or a selfie, I usually deal with multiple grown people comparing me to sometimes an animal, usually a specific character from a movie, sometimes even making my face into a meme right away. But if people don't generally see people with facial differences on the daily, then how are there so many specific reactions and so many similar problems that we go through? If it's so rare, then how are people so quick to tell me the character I remind them the most of- Yeah, media. It's always media. It's almost funny how everything circles back to one thing.

I want you, the author, to understand the impact of misrepresentation of facial difference. If you feel uncomfortable because you have done these tropes before, good! That's a sign of growth. If you want to help instead of harm, you need to get over your (subconscious) biases for a minute and think about how a person with the same condition as your character would feel like reading about them. Maybe you are even currently realizing that that one OC with scars is just five harmful tropes glued together. Maybe you are going to reblog this and tell me in the tags that somehow your character decided to be like that, as if they have free will instead of being written by a biased human being. Or, as I said earlier, a lot of people will be annoyed by this post and keep doing their thing. Which is like... whatever, I guess ?? There are a dozen huge movies and TV shows every year that do this. It's so basic and normalized that whatever reach this post will have will change very little. I have been signaled "we don't care what you think about how we portray people like you" my entire life, I'm frankly more surprised when people do actually claim to care. You can, practically speaking, do whatever because the FD community is fully ignored by uh, everyone, and even if I'm disappointed or annoyed I'm just one man and I know (from experience) that most people won't have my back on this topic. It's too ingrained in our culture at this point to challenge it, I suppose. I mean, there have been multiple media campaigns telling writers to treat us as people, and they had practically zero impact on the writing community. But even with my absurdly pessimistic view on this subject, I still decided to write all this. Sure, there are no signs of the industry changing and the writing community doesn't seem to care much, but I still naively hope that maybe the right person will read this and at some point in the future I will be watching or reading about a character that looks like me and actually have a good time, and even more naively that maybe people will gain some amount of awareness of the damage that has been and still is happening to people with FD through media, so that the next time they see that the villain has facial scars for no reason they will think "damn, this sucks" the same way I do. And very, very naively, I hope that people who read this will start seeing us as people. Not villains, not plot devices, not monsters.

Sad part over(?), now the fun(?) part. AKA the tropes! Yay.

"Dramatic Reveal of The Deformity".

Use of the word "deformity" very much on purpose here. This is arguably the most common trope when it comes to FD, and it's always awful. At the very best it links FD with trauma and talks in a Very Sad Voice about how having a FD is the worst thing imaginable, I guess (think a "X did this to me... now I'm Deformed For Life..." type of scene) and at worst it does the classic revealing that the main villain actually was a burn survivor under his mask, because of course he was. In media, people with FD are evil. If they're not, then it's because someone very evil did it to them (the most evil thing of all - causing someone to have a facial difference. the horror!). It can't be a thing unrelated to someone's morality, there's gotta be evil somewhere around it. There is literally nothing good about this trope. Showing FD as something to hide? Check. Dramatizing FD? Check. Placing the way someone's face looks as the worst thing possible? Check. General treating FD as some kind of circus attraction to stare at with your mouth open? Check!

"Wearing a Mask*."

I made a whole post about this one actually, that's how much it annoys me. Putting your character with FD in a mask is so overdone, lazy, and boring I'm not even offended as much as I thought I would. It's like... really? Again? For the millionth time, the character with FD is forced to hide their disability? Is the author scared..? What is the point of giving your character a visible difference if all you're doing is hiding it? And yes, I know that your character chose to do that for reasons that you as a writer somehow can't control. It's always so strange how it's the character that's in control and the writer is in the passenger seat when it comes to annoying tropes.

Found yourself already waist-deep into this trope? Take a look at this post I made.

*"mask" here refers to anything that covers the character's facial difference (e.g. eye covering, surgical mask, whatever. It's about hiding it and not a technical definition of "what is a mask").

"Good Guy has the Tiniest Scar You Can Imagine, but Don't Worry! The Villain is Deformed As Hell."

A genre on its own. In the rare instance that a positive character has a facial difference, they have a curiously limited choice - you can have:

the thinnest, definitely-very-realistic straight line going through the eye (the eye is always either perfectly okay or milky for reasons the author couldn't tell you),

the same exact line but going horizontally across the nose,

and if you're feeling spicy you can put it around the mouth,

regardless of location, just make sure it doesn't look like an actual scar (certainly not a keloid or hypertrophic one) and is instead a straight line done with a red or white crayon. Interestingly, villains have unlocked more options which stem from scars, craniofacial conditions, burn marks, cleft lips, ptosis, colobomas, anisocoria, tumors, facial paralysis, to pretty much everything that's not infantilized, like Down Syndrome. These are always either realistic or extremely bloody. I sound like a broken record by now, but no, your morality has nothing to do with your physical appearance and being evil doesn't make a visible disability get more visible. Shocker. And don't get me started on...

"The Villain turned Evil Because They Have Scars."

Ah, how nice. Disabled people are evil because they're disabled, truly a timeless classic for able-bodied writers whose worst fear in life is being disabled. In case that needs to be said, having a facial difference doesn't turn you evil, doesn't make you become a serial killer, doesn't make you violent, doesn't turn you into an assassin with a tragic backstory seeking revenge for ruining their life. If anything, having a FD makes it more likely for other people to be violent towards you. Speaking from experience.

"The Villain Just Has Scars."

An impressive attempt at cutting out the middleman of "clumsily and definitely not ableist-icly explaining why getting a scar made them evil" and not even bothering with a tragic backstory or anything. They are evil, so of course they have a facial difference. What were you thinking?

"Facial Difference is a Plot Point."

As anyone who's read like A Book will tell you, the only way to get a facial difference is to be in a very dramatic fight or an extremely tragic accident who will become a plot point and thus the facial difference is now Heavily Emotionally Charged and a symbol of The Event/The Tragedy. If you look at media, congenital FD isn't a thing, illness-related FD doesn't exist and boring domestic accident or a fall causing FD has never been seen. It has to be dramatic and tragic or else there's no point in them having it. A true "why are they [minority]" moment, if you will.

"Character gets a FD but then Gets Magically Cured Because They're Good."

Truly one of the tropes that make me want to rip my hair out. Curing your character with FD sucks just as much as curing a disabled or neurodivergent character. Who is this even for? That's not how real life works. This is some actual Bible shit, that's how old this trope is. The only thing you're doing here is making people think that those who do have FD just aren't "good enough". Every time I see it, I wonder what the author would think of the congenital disorder I have. According to this kind of in-universe rules, was I born evil and just never got good? or ??

"Character with FD has Self-Esteem Issues and Hates Their Face."

I admittedly mocked all the previous tropes because they're absurd, ridiculous, offensive, boring, all of the above, and have zero basis in reality. This one however... ouch, right in my own tragic backstory. This is unfortunately a very real experience that a lot of people with FD go through. I even have a hunch there wouldn't be as many if the general public didn't think of us as monsters, but I digress. Yes, a lot of us have or had self-esteem problems, and a lot of us wished that we wouldn't have to go through all the BS we were put through because of it. Thankfully for you, you don't have to write about it! Seriously. You don't need to. As one million people have said before me, "maybe don't write about things you haven't experienced" and I agree here. I have yet to see an able-bodied author get anything about this right. Instead of the deeply personal, complex experience that involves both you, everything around you and the very perception of what others think of you that this is, somehow writers keep giving the tired "character crying and sobbing because they're "ugly" now", because the author thinks we're ugly. Or maybe they're sad because all the other characters with facial differences are evil, and they didn't have the time to prepare their evil monologue for when they inevitably become evil in the sequel? Who knows.

"The Author Doesn't Know."

I'm not sure if a trope can be the lack of something like this, but the author not knowing what their character actually has going on medically is common to a ridiculous extent - this applies to all kinds of disabled characters as well. You don't need to name-drop the Latin term for whatever your character has, but you need know what it is behind the scenes. You need to know the symptoms. You need to know the onset and the treatment or lack of it. Please do your medical research.

Things I Want to See More of in Characters with Facial Differences

[Large Text: Things I Want to See More of in Characters with Facial Differences]

The thing you might have noticed is that I want Facial Differences and People with Facial Differences to be presented as normal. Not killers, not SCP anomaly whatever, not monsters. I'm aware that the term is tired, but I absolutely want Facial Differences normalized as much as possible.

I want to see more characters with facial differences...

who have friends that don't bully or make fun of them because of their appearance.

who have support from their family.

who know other people with facial differences - even if they're just background characters, or mentioned in passing. Marginalized people tend to gravitate towards each other, people with FD aren't an exception to this.

who are queer.

who aren't only skinny white cis dudes in general.

who are disabled in other ways! A lot of us are Blind, Deaf, both, unable to speak, intellectually disabled, having issues with mobility, and a million other comorbidities.

who are fantastical in some way - preferably not the "secretly a monster" way. But a mermaid with CdLS or an elf with neurofibromatosis? That's cool as hell.

who are allowed to be cute or fashionable.

who have jobs that aren't "stereotypical bad evil guy jobs". Give me a retail worker with a cleft lip or a chef with Down Syndrome!

who are reoccurring characters that just happen to have a FD.

who are those stock/generic characters that aren't typically associated with FD. Hero's mom has septicemia scars? Cool! The popular cheerleader at school has alopecia? Awesome! The bartender of the place the heroes secretly meet up at has Möbius Syndrome? Goes hard! The kid that the MC used to hang out with before they moved somewhere else has Crouzon Syndrome? Great!

who have their FD be visible.

who aren't ashamed of their FD.

who are feeling very neutral about their face.

who are proud of how they look.

who got their FD in a very boring way or were just born with it (and maybe make up very silly, obviously not real ways of how it happened when annoying people ask them. Think "oh, I was fighting a shark").

who have facial differences other than small scars.

who's angst is fully unrelated to their FD. I love me an angsty teen character! Even more if they are angsty about their crush, or basically anything that's not their disability.

who have a significant other who doesn't do the whole "I love you despite your looks" thing. It just kinda sucks. Sorry. I would hate if someone said this to me.

who are children and aren't implied to be "cursed" or "demonic".

in genres that aren't just horror or thriller. RomCom or slice of life, anyone?

who aren't evil.

I want to see stories with multiple characters with facial differences. I have nerve damage and facial asymmetry, and I am friends or mutuals with people with Williams Syndrome, Bell's palsy, Down Syndrome, neurofibromatosis, facial atrophy, ptosis... and a lot of other things. Your character would have (or, would probably want) some connection to their community. We aren't rare!

And, I want stories with the whole spectrum of facial differences shown. Of course you can't represent the whole spectrum, but you can still aim for at least a few. Don't give every single character with FD the same scar-through-eye + eyepatch combo. It's not unrealistic to have a range in your writing. Here is a list of facial differences you might want to check out for inspiration. Don't be scared to give them something rare - no matter how uncommon, people still have it. My specific condition is allegedly extremely rare - I still want representation!

Closing Remarks

[Large Text: Closing Remarks]

Facial difference and the media is a topic that plagued me for the past almost two decades and won't stop ever, I think. It's a very unique relationship of a group of people who just aren't allowed to get into the industry and an industry that clearly hates them, loves to use their image, and defines how people see them all at once. There's this almost overrepresentation that is consistently awful and damaging to an absurd degree. Most people know more villains with FD than actual people. Certainly doesn't feel great to be one of the aforementioned actual peoples. But I hope that this will change - the negative portrayals that are plaguing the FD community will slowly fade out and a newer wave of portrayals will come in, hopefully this time realizing that we are real people and care about us a bit more.

The thing with facial difference is that it's pretty much impossible to make a specific guide of what it's like and what to do in context of writing because it's an incredible vast category that includes conditions that are very different from each other. That's why this post was more focused on "why you should care in the first place" (sorry for the clickbait) rather than being a straightforward guide that would still be very lacking even if 20 different people were collaborating on it. I really, really encourage everyone who got through this rather long post to do their research on what they plan to write about, be conscious of their own biases, don't pull inspiration from movies because they're all hellholes full of tropes and just sit down for a minute, think of the real-world people with facial differences, and read what we have to say. I know that drawing a guy with a line across his eye is more fun than realizing you're low-key scared of or uncomfortable around the real-world equivalent, but sometimes you have to get over yourself and try to be a better person. Caring about the people you write about is, dare I say, essential. That will certainly make your writing of us better :-) (smiley face with a nose)

If you have any specific questions, feel free to send an ask

Mod Sasza

#mod sasza #face difference #writing advice #writing ref #writeblr #writing disabled characters #long post #writing reference #writing resources #writing guide #writing resource #writing tips #writing help #burn survivor representation

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cripplecharacters · 1 month

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The Mask Trope, and Disfiguremisia in Media

[large text: The Mask Trope, and Disfiguremisia in Media]

If you followed this blog for more than like a week, you're probably familiar with “the mask trope” or at least with me complaining about it over and over in perpetuity. But why is it bad and why can't this dude shut up about it?

Let's start with who this trope applies to: characters with facial differences. There is some overlap with blind characters as well; think of the blindfold that is forced on a blind character for no reason. Here is a great explanation of it in this context by blindbeta. It's an excellent post in general, even if your character isn't blind or low vision you should read at least the last few paragraphs.

Here's a good ol’ tired link to what a facial difference is, but to put it simply:

If you have a character, who is a burn survivor or has scars, who wears a mask, this is exactly this trope.

The concept applies to other facial differences as well, but scars and burns are 99% of the representation and “representation” we get, so I'll be using these somewhat interchangeably here.

The mask can be exactly what you think, but it refers to any facial covering that doesn't have a medical purpose. So for example, a CPAP mask doesn't count for this trope, but a Magic Porcelain Mask absolutely does. Bandages do as well. If it covers the part of the face that is “different”, it can be a mask in the context used here.

Eye patches are on thin ice because while they do serve a medical purpose in real life, in 99.9% of media they are used for the same purpose as a mask. It's purely aesthetic.

With that out of the way, let's get into why this trope sucks and find its roots. Because every trope is just a symptom of something, really.

Roughly in order of the least to most important reasons...

Why It Sucks

[large text: Why It Sucks]

It's overdone. As in — boring. You made your character visibly different, and now they're no longer that. What is the point? Just don't give them the damn scar if you're going to hide it.

Zero connection with reality. No one does this. I don't even know how to elaborate on this. This doesn't represent anyone because no one does this.

Disability erasure. For the majority of characters with facial differences, their scars or burns somehow don't disable them physically, so the only thing left is the visible part… aaand the mask takes care of it too. Again, what's the point? If you want to make your disabled character abled, then just have them be abled. What is the point of "curing" them other than to make it completely pointless?

Making your readers with facial differences feel straight up bad. I'm gonna be honest! This hurts to see when it's all you get, over and over. Imagine there's this thing that everyone bullied you about, everyone still stares at, that is with you 24/7. Imagine you wanted to see something where people like you aren't treated like a freakshow. Somewhat unrealistic, but imagine that. That kind of world would only exist in fiction, right? So let's look into fiction- oh, none of the positive (or at least not "child-murderer evil") characters look like me. I mean they do, but they don't. They're forced to hide the one thing that connects us. I don't want to hide myself. I don't want to be told over and over that this is what people like me should do. That this is what other people expect so much that it's basically the default way a person with a facial difference can exist. I don't want this.

Perpetuating disfiguremisia.

"Quick" Disfiguremisia Talk

[large text: "Quick" Disfiguremisia Talk]

It's quick when compared to my average facial difference discussion post, bear with me please.

Disfiguremisia; portmanteau of disfigure from “disfigurement” and -misia, Greek for hatred.

Also known as discrimination of those mythical horrifically deformed people.

It shows up in fiction all the time; in-universe and in-narrative. Mask trope is one of the most common* representations of it, and it's also a trope that is gaining traction more and more, both in visual art and writing. This is a trope I particularly hate, because it's a blatant symptom of disfiguremisia. It's not hidden and it doesn't try to be. It's a painful remainder that I do not want nor need.

*most common is easily “evil disfigured villain”, just look at any horror media. But that's for another post, if ever.

When you put your character in a mask, it sends a clear message: in your story, facial differences aren't welcome. The world is hostile. Other characters are hostile. The author is, quite possibly, hostile. Maybe consciously, but almost always not, they just don't think that disfiguremisia means anything because it's the default setting. No one wants to see you because your face makes you gross and unsightly. If you have a burn; good luck, but we think you're too ugly to have a face. Have a scar? Too bad, now you don't. Get hidden.

Everything here is a decision that was made by the author. You are the one who makes the world. You are the person who decides if being disabled is acceptable or not there. The story doesn't have a mind of its own, you chose to make it disfiguremisic.

It doesn't have to be.

Questions to Ask Yourself

[large text: Questions to Ask Yourself]

Since I started talking about facial differences on this blog, I have noticed a very specific trend in how facial differences are treated when compared to other disabilities. A lot of writers and artists are interested in worldbuilding where accessibility is considered, where disabled people are accepted, where neurodivergence is seen as an important part of the human experience, not something “other”. This is amazing, genuinely.

Yet, absolutely no one seems to be interested in a world that is anything but cruel to facial differences. There's no escapist fantasies for us.

You see this over and over, at some point it feels like the same story with different names attached.

The only way a character with a facial difference can exist is to hide it. Otherwise, they are shamed by society. Seen as something gross. I noticed that it really doesn't matter who the character is, facial difference is this great equalizer. Both ancient deities and talking forest cats get treated as the same brand of disgusting thing as long as they're scarred, as long as they had something explode in their face, as long as they've been cursed. They can be accomplished, they can be a badass, they can be the leader of the world, they can kill a dragon, but they cannot, under any circumstances, be allowed to peacefully exist with a facial difference. They have to hide it in the literal sense, or be made to feel that they should. Constantly ashamed, embarrassed that they dare to have a face.

Question one to ask yourself: why is disfiguremisia a part of your story?

I'm part of a few minority groups. I'm an immigrant, I'm disabled, I'm queer. I get enough shit in real life for this so I like to take a break once in a while. I love stories where transphobia isn't a thing. Where xenophobia doesn't come up. But my whole life, I can't seem to find stories that don't spew out disfiguremisia in one way or the other at the first possible opportunity.

Why is disfiguremisia a default part of your worldbuilding? Why can't it be left out? Why in societies with scarred saviors and warriors is there such intense disgust for them? Why can't anyone even just question why this is the state of the world?

Why is disfiguremisia normal in your story?

Question two: do you know enough about disfiguremisia to write about it?

Ask yourself, really. Do you? Writers sometimes ask if or how to portray ableism when they themselves aren't disabled, but no one bothers to wonder if maybe they aren't knowledgeable enough to make half their story about their POV character experiencing disfiguremisia. How much do you know, and from where? Have you read Mikaela Moody or any other advocates’ work around disfiguremisia? Do you understand the way it intersects; with being a trans woman, with being Black? What is your education on this topic?

And for USAmericans... do you know what "Ugly Laws" are, and when they ended?

Question three: what does your story associate with facial difference — and why?

If I had to guess; “shame”, “embarrassment”, “violence”, "disgust", “intimidation”, “trauma”, “guilt”, “evil”, “curse”, “discomfort”, “fear”, or similar would show up.

Why doesn't it associate it with positive concepts? Why not “hope” or “love” or “pride” or “community”? Why not “soft” or “delicate”? Dare I say, “beauty” or “innocence”? Why not “blessing”? “Acceptance”?

Why not “normal”?

Question four: why did you make the character the way they are?

Have you considered that there are other things than “horrifically burned for some moral failing” or “most traumatic scenario put to paper”? Why is it always “a tough character with a history of violence” and never “a Disfigured princess”? Why not “a loving parent” or “a fashionable girl”, instead of “the most unkind person you ever met” and “total badass who doesn’t care about anything - other than how scary their facial difference is to these poor ableds”? Don’t endlessly associate us with brutality and suffering. We aren’t violent or manipulative or physically strong or brash or bloodthirsty by default. We can be soft, and frail and gentle and kind - and we can still be proud and unashamed.

Question five: why is your character just… fine with all this?

Can’t they make a community with other people with facial differences and do something about this? Demand the right to exist as disabled and not have to hide their literal face? Why are they cool with being dehumanized and treated with such hatred? Especially if they fall into the "not so soft and kind" category that I just talked about, it seems obvious to me that they would be incredibly and loudly pissed off about being discriminated against over and over... Why can't your character, who is a subject of disfiguremisia, realize that maybe it's disfiguremisia that's the problem, and try to fix it?

Question six: why is your character wearing a mask?

Usually, there's no reason. Most of the time the author hasn't considered that there even should be one, the character just wears a mask because that's what people with facial differences do in their mind. Most writers aren't interested in this kind of research or even considering it as a thing they should do. The community is unimportant to them, it's not like we are real people who read books. They think they understand, because to them it's not complex, it's not nuanced. It's ugly = bad. Why would you need a reason?

For cases where the reason is stated, I promise, I have heard of every single one. To quote, "to spare others from looking at them". I have read, "content warning: he has burn scars under the mask, he absolutely hates taking it off!", emphasis not mine. Because "he hates the way his skin looks", because "they care for their appearance a lot" (facial differences make you ugly, remember?). My favorite: "only has scars and the mask when he's a villain, not as a hero", just to subtly drive the point home. This isn't the extreme end of the spectrum. Now, imagine being a reader with a facial difference. This is your representation, sitting next to Freddy Krueger and Voldemort.

How do you feel?

F.A.Q. [frequently asked questions]

[large text: F.A.Q. [frequently asked questions]]

As in, answers and “answers” to common arguments or concerns.

“Actually they want to hide their facial difference” - your character doesn’t have free will. You want them to hide it. Again; why.

“They are hiding it to be more inconspicuous!” - I get that there are elves in their world, but there’s no universe where wearing a mask with eye cutouts on the street is less noticeable than having a scar. Facial differences aren’t open wounds sprinkling with blood, in case that's not clear.

“It’s for other people's comfort” - why are other characters disfiguremisic to this extent? Are they forcing all minorities to stay hidden and out of sight too? That’s a horrible society to exist in.

“They are wearing it for Actual Practical Reason” - cool! I hope that this means you have other characters with facial differences that don’t wear it for any reason.

"It's the character's artistic expression" - I sure hope that there are abled characters with the same kind of expression then.

“They’re ashamed of their face” - and they never have any character development that would make that go away? That's just bad writing. Why are they ashamed in the first place? Why is shame the default stance to have about your own face in your story? I get that you think we should be ashamed and do these ridiculous things, but in real life we just live with it.

"Now that you say that it is kinda messed up but I'm too far into the story please help" - here you go.

“[some variation of My Character is evil so it's fine/a killer so it fits/just too disgusting to show their disability” - this is the one of the only cases where I’m fine with disability erasure, actually. Please don’t make them have a facial difference. This is the type of harm that real life activists spend years and decades undoing. Disfiguremisia from horror movies released in the 70s is still relevant. It still affects people today.

"But [in-universe explanation why disfiguremisia is cool and fine actually]" - this changes nothing.

Closing Remarks

[large text: Closing Remarks]

I hope that this post explains my thoughts on facial difference representation better. It's a complicated topic, I get it. I'm also aware that this post might come off as harsh (?) but disfiguremisia shouldn't be treated lightly, it shouldn't be a prop. It's real world discrimination with a big chunk of its origins coming out of popular media.

With the asks that have been sent regarding facial differences, I realized that I probably haven't explained what the actual problems are well enough. It's not about some technical definition, or about weird in-universe explanations. It's about categorizing us as some apparently fundamentally different entity that can't possibly be kind and happy, about disfiguremisia so ingrained into our culture that it's apparently impossible to make a world without it; discrimination so deep that it can't be excised, only worked around. But you can get rid of it. You can just not have it there in the first place. Disfiguremisia isn't a fundamental part of how the world works; getting rid of it won't cause it to collapse. Don't portray discrimination as an integral, unquestionable part of the world that has to stay no matter what; whether it's ableism, transphobia, or Islamophobia or anything else. A world without discrimination can exist. If you can't imagine a world without disfiguremisia in fiction... that's bad. Sad, mostly. To me, at least.

Remember, that your readers aren't going to look at Character with a Scar #14673 and think "now I'm going to research how real life people with facial differences live." They won't, there's no inclination for them to do so. If you don't give them a reason, they won't magically start thinking critically about facial differences and disfiguremisia. People like their biases and they like to think that they understand.

And, even if you're explaining it over and over ;-) (winky face) there will still be people who are going to be actively resistant to giving a shit. To try and get the ones who are capable of caring about us, you, as the author, need to first understand disfiguremisia, study Face Equality, think of me as a human being with human emotions who doesn't want to see people like me treated like garbage in every piece of media I look at. There's a place and time for that media, and if you don't actually understand disfiguremisia, you will only perpetuate it; not "subvert" it, not "comment" on it.

I hope this helps :-) (smile emoji. for good measure)

Mod Sasza

#mod sasza #disfiguremisia #face difference #mask trope #writing trope #writing resource #writing reference #writing resources #writing advice #writeblr #writing tips #long post #burn survivor representation

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cripplecharacters · 14 days

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Do you know any good sources for burn scar care?

I’m writing a character who was burned in a spaceship crash. The story is set several years after the fact, and I want to incorporate that detail into the story. What would a burn scar care routine look like?

Hi!

I generally recommend medical websites for this kind of stuff. There are tons of information readily available online, especially about things as common as a burn injury. Phoenix Society for Burn Survivors or MSKTC can be helpful for you!

While caring for a burn scar will be different for everyone (there's many types, degrees, plus just individual differences between burn survivors themselves) some of the things that you can include;

Burnt skin doesn't produce its own oils, so it gets dry. It needs to be moisturized, oil-based products (think coconut or grape seed oil) are often used. The heavier the lotion, the fewer times a day it needs to be applied.

Massaging a scar, especially when it's relatively new. It can be a massage, but stretching or just putting pressure on it is part of that too. It helps the skin from becoming extremely sensitive. Initially you do it delicately, but after the scars are matured it's fine (or recommended even) to put some force into it. This loosens them up.

Itching is a huge issue. Both massaging and moisturizing help with that, but if it's still causing problems then there are medications that could provide some relief.

Protecting the skin from the sun. All year, including cloudy weather. Sunblock, big hats, sunglasses if needed, all that. This applies to people with darker skin as well because the skin loses its pigment after a burn (it can sometimes come back but it's definitely not a guarantee).

Avoiding the heat. A lot of burn survivors will have problems with temperature regulation because burns damage the sweat glands, so they overheat faster. There's nothing burn-specific here, same protocol as for avoiding a heatstroke - drink water and keep out of the sun.

Wearing softer and looser clothing. Rough and tight clothes can cause blisters, and that is a Problem. Inappropriate materials could also induce more itching.

Taking pain meds. Chronic pain is common, so your character might need medication.

I definitely wouldn't say that this is an exhaustive list, but I think it's a good start! If you need more details, I think the resources linked above should work.

I'm glad to see people interested in burn scars being a disability that requires a lot of care rather than seeing it as a solely visual thing! Makes it much more authentic :-)

I hope this helps!

mod Sasza

#anonymous #mod sasza #burn survivor representation

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cripplecharacters · 1 year

Text

Writing Intellectually Disabled Characters

[large text: writing intellectually disabled characters]

Something that very rarely comes up in disability media representation are intellectually disabled characters. There is very little positive representation in media in general (and basically none in media meant specifically for adults or in YA). I hope this post can maybe help someone interested in writing disabled characters understand the topic better and create something nice. This is just a collection of thoughts of only one person with mild ID (me) and I don't claim to speak for the whole community as its just my view. This post is meant to explain how some parts of ID work and make people aware of what ID is.

This post is absolutely not meant for self diagnosis (I promise you would realize before seeing a Tumblr post about it. it's a major disorder that gets most people thrown into special education).

Before: What is (and isn't) intellectual disability?

ID is a single, life-long neurodevelopment condition that affects IQ and causes problems with reasoning, problem‑solving, remembering and planning things, abstract thinking and learning. There is often delay or absence of development milestones like walking (and other kinds of movement), language and self care skills (eating, going to the bathroom, washing, getting dressed etc). Different people will struggle with different things to different degrees. I am, for example, still fully unable to do certain movements and had a lot of delay in self-care, but I had significantly less language-related delay than most of people with ID I know. Usually the more severe a person's ID is the more delay they will have.

Intellectual disability is one single condition and it doesn't make sense to call it "intellectual disabilities" (plural) or "an intellectual disability". It would be like saying "they have a Down Syndrome" or "he has autisms". The correct way would be "she has intellectual disability" or "ze is intellectually disabled".

Around 1-3% of people in the world have intellectual disability and most have mild ID (as opposed to moderate, severe, or profound). It can exist on its own without any identifiable condition or it can be a part of syndrome. There is over a thousand (ranging from very common to extremely rare) conditions that can cause ID but some of the most common are;

Down Syndrome,

Fragile X Syndrome,

Fetal Alcohol Syndrome,

Autism,

Edwards Syndrome,

DiGeorge Syndrome,

Microcephaly.

Not every condition always causes ID and you can have one of the above conditions without having ID as long as it's not necessary diagnostic criteria to be met. For example around 30% of autistic people have ID, meaning that the rest 70% doesn't. It just means that it's comorbid often enough to be counted as a major cause but still, autistic ≠ intellectually disabled most of the time.

A lot of things that cause intellectual disability also come with facial differences, epilepsy, mobility-related disabilities, sensory disabilities, and limb differences. A lot, but not all, intellectually disabled people go to special education schools.

Intellectual disability isn't the same as brain damage. Brain damage can occur at any point of a person's life while ID always starts in or before childhood.

"Can My Character Be [Blank]?"

[large text: "Can my character be [blank]?"]

The difficulty with writing characters with intellectual disability is that unlike some other things you can give your character, ID will very directly impacts how your character thinks and behaves - you can't make the whole character and then just slap the ID label on them.

Intellectually disabled people are extremely diverse in terms of personality, ability, verbality, mobility... And you need to consider those things early because deciding that your character is nonverbal and unable to use AAC might be an issue if you're already in the middle of writing a dialogue scene.

For broader context, a person with ID might be fully verbal - though they would still probably struggle with grammar, what some words mean, or with general understanding of spoken/written language to some degree. Or they could also be non-verbal. While some non-verbal ID people use AAC, it's not something that works for everyone and some people rely on completely language-less communication only. There is also the middle ground of people who are able to speak, but only in short sentences, or in a way that's not fully understandable to people who don't know them. Some might speak in second or third person.

Depending on the severity of your character's disability they will need help with different tasks. For example, I'm mildly affected and only need help with "complex" tasks like shopping or taxes or appointments, but someone who is profoundly affected will probably need 24/7 care. It's not infantilization to have your character receive the help that they need. Disabled people who get help with bathing or eating aren't "being treated like children", they just have higher support needs than me or you. In the same vein, your character isn't "mentally two years old" or "essentially a toddler", they are a twenty-, or sixteen-, or fourty five-year old who has intellectual disability. Mental age isn't real. Intellectually disabled people can drink, have sex, smoke, swear, and a bunch of other things. A thirty year old disabled person is an adult, not a child!

An important thing is that a person with ID has generally bad understanding of cause-and-effect and might not make connections between things that people without ID just instinctively understand. For example, someone could see that their coat is in a different place than they left it, but wouldn't be able to deduce that then it means that someone else moved it or it wouldn’t even occur to them as a thing that was caused by something. I think every (or at least most) ID person struggles with this to some extent. The more severe someone's disability is the less they will be able to connect usually (for example someone with profound ID might not be able to understand the connection between the light switch and the light turning off and on).

People with mild intellectual disability have the least severe problems in functioning and some are able to live independently, have a job, have kids, stuff like that.

What Tropes Should You Avoid?

[large text: what tropes should you avoid?]

The comic relief/punching bag;

The predator/stalker;

The "you could change this character into a sick dog and there wouldn't be much difference";

...and a lot more but these are the most prevalent in my experience.

Most ID characters are either grossly villainized (more often if they have also physical disabilities or facial differences) or extremely dehumanized or ridiculed, or all of the above. It's rarely actually *mentioned* for a character to be intellectually disabled, but negative "representation" usually is very clear that this who they're attempting to portray. The portrayal of a whole group of people as primarily either violent predators, pitiful tragedies or nothing more than a joke is damaging and you probably shouldn't do that. It's been done too many times already.

When those tropes aren't used the ID character is still usually at the very most a side character to the main (usually abled) character. They don't have hobbies, favorite foods, movies or music they like, love interests, friends or pets of their own and are very lucky if the author bothered to give them a last name. Of course it's not a requirement to have all of these but when there is *no* characterization in majority of disabled characters, it shows. They also usually die in some tragic way, often sacrificing themselves for the main character or just disappear in some off-the-screen circumstances. Either way, they aren't really characters, they're more like cardboard cutouts of what a character should be - the audience has no way to care for them because the author has put no care into making the character interesting or likable at all. Usually their whole and only personality and character trait is that they have intellectual disability and it's often based on what the author thinks ID is without actually doing any research.

What Terms to Use and Not Use

[large text: What Terms to Use and Not Use]

Words like: "intellectually disabled" or "with/have intellectual disability" are terms used by people with ID and generally OK to use from how much I know. I believe more people use the latter (person first language) for themselves but i know people who use both. I use the first more often but I don't mind the second. Some people have strong preference with one over the other and that needs to be respected.

Terms like:

"cursed with intellectual disability"

"mentally [R-slur]"

"moron"

"idiot"

"feeble-minded"

"imbecile"

is considered at least derogatory by most people and I don't recommend using it in your writing. The last 5 terms directly come from outdated medical terminology specifically regarding ID and aren't just "rude", they're ableist and historically connected to eugenics in the most direct way they could be. To me personally they're highly offensive and I wouldn't want to read something that referred to its character with ID with those terms.

(Note: there are, in real life, people with ID that refer to themselves with the above... but this is still just a writing guide. Unless you belong to the group i just mentioned I would advise against writing that, especially if this post is your entire research so far.)

Things I Want to See More of in Characters with Intellectual Disability

[large text: Things I Want to See More of in Characters with Intellectual Disability]

[format borrowed from WWC]

I want to see more characters with intellectual disability that...

aren’t only white boys.

are LGBT+.

are adults.

are allowed to be angry without being demonized, and sad without being infantilized.

are not described as "mentally X years old".

are respected by others.

aren't "secretly smart" or “emotionally smart”.

are able to live independently with some help.

aren't able to live independently at all and aren't mocked for that.

are in romantic relationships or have crushes (interabled... or not!).

are non-verbal or semi-verbal.

use mobility aids and/or AAC.

have hobbies they enjoy.

have caregivers.

have disabilities related to their ID.

have disabilities completely unrelated to their ID.

have friends and family who like and support them.

go on cool adventures.

are in different genres: fantasy, romComs, action, slice of life... all of them.

have their own storylines.

aren't treated as disposable.

don't die or disappear at the first possible opportunity.

...and I want to see stories that have multiple intellectually disabled characters.

I hope that this list will give someone inspiration to go and make their first OC with intellectual disability ! This is just a basic overview to motivate writers to do their own research rather than a “all-knowing post explaining everything regarding ID”. I definitely don't know everything especially about the parts of ID that I just don't experience (or not as much as others). This is only meant to be an introduction for people who don't really know what ID is or where to even start.

Talk to people with intellectual disability (you can send ask here but there are also a lot of other people on Tumblr who have ID and I know at least some have previously answered asks as well if you want someone else's opinion!), watch/read interviews with people who have ID (to start - link1, link2, both have captions) and try to rethink what you think about intellectual disability. Because it's really not that rare like a lot of people seem to think. Please listen to us when we speak.

Good luck writing and thank you for reading :-) (smile emoji)

mod Sasza

#mod sasza #writing intellectually disabled characters #neurodivergency #terminology #long post #writing advice #writing disabled characters #writeblr #writing reference #writing disability #writing tips #writing resources #writing help #intellectual disability representation

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cripplecharacters · 9 months

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How should you write/draw burn survivors? I know this isn't a drawing blog but I don't know of one that I could ask this question to.

Hello!

I'm not a burn survivor myself, so I'll mostly talk about facial differences/visible disability in general and link some stuff made by burn survivors.

First thing, I think it's important to remember that being a burn survivor changes a lot of things - not only appearance. Very important part is the psychological one, but I'm not a burn survivor so I will just let the resources linked below speak.

From the physical aspect, burns can also come with: chronic pain, limited range of motion due to scarring, tightened skin, problems with regulating temperature, itching, skin irritation, and even different nutritional needs during the initial healing process.

There is also specific everyday care associated with burns - something you basically never see in fiction. That could be things like occupational therapy, physical therapy, skincare (like heavy moisturizing and scar massaging), wearing sunblock, wearing splints, or stretching to prevent contractures or tightness.

There are also different types of burns and they (unsurprisingly) differ from each other - for example, electrical burns have a much higher rate of amputation than any other type. Chemical burns can cause eye issues. A burn caused by a fire in a closed space might result in a brain injury due to the lack of oxygen. A much larger portion of people than you (probably) assume have survived burn injuries as small children, and if they were young enough they might not even remember the event at all, unlike older people who might be very affected by the trauma.

Experiences of a person with 80% body surface burns, a person with quadruple amputations from an electrical burn, a person with a facial burn, and a person burnt very recently will be different from someone who has a 5% body surface 2nd degree burn in a spot that’s usually hidden, who has lived with their burn for a decade - despite them all being burn survivors.

When it comes to more thorough research, I recommend going through Phoenix Society’s and Face Equality International’s websites to learn more about both real burn survivor’s perspectives, and face equality as a social justice topic. I think the 3rd link (see below) puts it very well when talking about burn survivors being represented in fiction:

“Most likely, these characters were not created by someone with lived experience. The result is an increasingly garbled game of telephone [...] To avoid contributing to this false narrative, embrace research as part of the process. Explore interviews, first-person accounts, and articles from reliable sources.”

I personally think that the links below should be mandatory reading for writing not only burn survivors, not only people with facial differences, but visibly disabled people in general - because the treatment we get is often so similar the advice still holds up just fine. And if you don't plan on writing any of these, you should still read them to see how prevalent of a problem ableism in media is.

Lise Deguire's Hey Hollywood - scars don't make you evil.

Face Equality International's International Media Standard on Disfigurement.

Niki Averton's Tips for Writing about Burn Survivors.

The main sentiment that you will read from basically any first-hand source is that if you're writing the burn survivor to be either:

evil (just throw the whole character away. please.)

a guy with the "World's Saddest Most Tragic Backstory Ever and It's So Sad and Tragic" (because he revealed he has a scar.)

a helpless victim who is there to be The Helpless Victim

...then you're already doing it wrong and need to make some major changes.

From our blog's reblogs and posts, you might want to look at tips for writing a visibly different/disabled character and tips on drawing people with facial differences. Neither are specific to burn survivors but cover the topic of visible disability and facial differences.

Now for tips on drawing burn survivors (that weren't included in the last link);

Reference real people. 99.9% drawings of burn survivors seem to go through the same "increasingly garbled game of telephone" that Niki Averton mentions with how burn survivors are written, in that the newer the drawing, the less in common it has with how real people with burns look like because people reference from each other and none of them ever think to actually check if their depiction is accurate. If you just google "burn survivor" you will very quickly notice that burn survivors don't have that damn red overlay layer put on top of their skin. It just doesn't look like that, and basic research (aka Google Images search) will tell you that - and still, people color a hand with bright red and think that's how it looks like (it doesn't).

In the same vein, maybe don't just draw an able-bodied person and then put some scarring on top (or maybe do exactly that. No burn scar and no burn survivor is the same, and there are people that fit what I just described... but hear me out for a second). Think about how scars interact with their features - do they have both of their ears? Do they still have all of their hair? Do they only have parts of their eyebrow? Do they have all of their fingers? Can they move the same as before their burn, or are their scars limiting their joints? How did their body react to the post-burn hypermetabolism? Lots to think about. Take into account what type and thickness of burns your character has.

Ditch the mask trope. Just ditch it. There's no need to cover your character's scar from the world unless you as the author think it requires to be hidden, is too scary to show, or other ableist trope that seems to always come up with drawings of visibly disabled people, especially burn survivors. The one exception I will mention is a transparent face orthosis/mask (TFO) that facial burn survivors might wear while awaiting a skin graft early after their injury. But as the name suggests, it's transparent and doesn't work for the awful "ohh scary facial difference better cover it up and only reveal it in some hyper dramatic scene!!" trope because you can see right through it. (I will also mention that TFOs are a very modern thing. Your medieval burn survivor wouldn't be wearing one.)

No "body horror", no "gore" tags or trigger warnings or whatever. That's a human being. If you feel the need to warn your followers before they see a disabled person existing, you're better off not drawing them.

Some last notes;

Throughout this ask I used the term "burn survivor" rather than "burn victim" because that is, to my knowledge, the general community preferred phrase. Individual opinions will differ (because no group is a monolith) but "burn survivor" is generally the safest term to use and probably the best if talking about a fictional character.

Similarly, I used "facial difference" rather than "disfigurement". Just as the above, opinions will differ on what is the best to use but I personally, as someone with facial asymmetry and a cranial nerve disorder, heavily prefer the term "facial difference" over "disfigurement". (I am in this case The Individual Opinion Differing because you can notice that in the links above, facial difference and disfigurement are used interchangeably. The general community uses both, some people have specific preferences. I'm some people.) When talking about a fictional character, "facial difference", "visible difference" and "disfigurement" are all probably fine. Just stay away from calling a person "deformed".

mod Sasza

#anonymous #mod sasza #face difference #writing advice #writeblr #writing disabled characters #writing tips #writing resources #writing guide #art reference #burn survivor representation

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cripplecharacters · 2 months

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Hey! Hope I can word this question right, and I do want to give as much details as I can. I've written a character with a facial deformity that's fallen into a couple of the more tired tropes before I knew better (wearing a mask, and the 'someone bad did this to me' - if you need the specific ones) and though she's a character I'm very attached to development wise, is there anything I can do to mitigate the harm possibly done by having her fall into said tropes? She does have a set personality and a lot of interests outside of her disability, but I still want to balance it out more if I can. Are there any subversions to tropes like those you wish you've seen more of in media?

Hi!

My preferred solution would be for the mask to go. I don't mean completely (although it would be nice, but I'm just a massive hater of this trope) but progressively within the story - maybe as your character warms up to others or becomes friends with them, she stops wearing the mask around them. Maybe she finds a community that supports her and doesn't feel the need to wear it anymore; maybe she finds someone with a similar facial difference to her and wants to embrace it. Maybe there's a younger character that looks up to her and she wants to make them feel better about their own facial difference (and show that they don't need to be ashamed of it). She doesn't need to feel confident right away, of course, but having a character progress and stop being embarrassed of their body is cool in general.

A second solution that I encourage in any story featuring characters with facial differences is to have multiple of them. So ok, your character wears a mask - but someone else with a similar difference doesn't. Perhaps there's a whole community of people similar to her (there probably would be in real life) and she is the odd one out for hiding it; maybe it makes her rethink why she covers it. It's not perfect, but significantly better than having one character with a facial difference and having them hide it.

Absolute bottom line for the mask trope is to not make it seem like it's glued to her face. People eat, drink, sleep and do a billion things where wearing a mask is inconvenient. Show/describe her face in a neutral or positive way when she doesn't have it on.

I don't think that there is a subversion to this awful trope - at this point in media representation, a subversion is when there's a positive character with FD that doesn't hide it. Or for the general mask-wearer trope, when a character wearing a mask turns out to not have a visible difference, I guess.

For having "someone bad do it (FD) to her" - this is a much less problematic trope, but a frustrating one nonetheless - I would go with the second solution again. Maybe your character has burns or a scar or nerve damage because the evilest guy in the world did it but people get facial differences in a hundred different ways. There's accidents, surgeries, illnesses, congenital conditions. Your character got hers because Evil Causes Facial Difference, but there's someone else that was born with a cleft lip and now has a similar scar to her (or had cancer; or poured boiling water on themselves by accident; etc.). Try to dilute the trope and make it just one of the possible ways that someone can get a facial difference, not make it seem like there's a 1-to-1 correlation between "cause of FD" and "evil people".

I hope this helps!

Mod Sasza

#anonymous #mod sasza #face difference #mask trope #writing advice #writing resources #writing disabled characters #writeblr

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cripplecharacters · 6 days

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Do you have any tips (or previous posts) about how to write a young person who’s first-time cane user? This one is for a character who escapes a lifetime of being experimented on, and learns in the aftermath of being rescued that this rather compromised her ability to walk well again. I’ve written characters with other mobility devices for getting around. But never canes. I myself am physically disabled but have never needed anything like these before. I’m always eager to learn.

Hi!

If your character is a first time cane user, here's some things that could happen:

She will need to learn how to walk with the cane first. When you're starting, it's easy to mess up (though it could be my dyspraxia speaking) and overfocus on how you should walk because you're just getting used to it. She could randomly stop and correct her gait, or look down a lot to check if she's still doing the motion (left arm and right leg forward, or the other way around).

She's probably gonna drop that thing a lot. Especially if she has a weaker grip in the cane hand - now, I don't have this problem (the opposite, rather) - but the overall thing is a really common occurrence for most of us. Walking and hit the smallest pebble imaginable? Cane on the ground, somehow. Tried putting it against the wall or table? It's on the ground. And then you need to reach for it... it's a struggle sometimes.

If she's not helped in picking the cane, she will spend some time figuring out what grip and height are comfortable for her. (Grip depends on personal preference, no one's preference has ever been the doorknob handle, height is generally to the person's wrist from the ground up.) I think that this could be an interesting opportunity to talk about disabled communities - maybe she's frustrated with the process and goes to an older (more experienced) cane user to help her?

If it's during the winter, her hand is gonna be freezing - and the opposite in the summer - and she might not be prepared for it. The handle can get HOT and it can be an issue. Depending on what her actual disability is, she might try switching which hand to hold it in. If she's able to do that, another character could warm up her cold hand :)

The first couple of times walking with a cane are an Experience. You feel way better, but also everyone is suddenly staring. Some people care about that, some don't. But it can be somewhat overwhelming either way.

Spatial awareness is gonna suck at first. She will bump into what feels like everything with the cane. Especially doorframes. It's always doorframes for some reason. Or mess up and have her cane slip down because she hasn't realized how close to the curb she was.

She will hit her shin. It will hurt.

She's probably going to be speedy with that thing! Getting a cane is like getting a speed boost. Without it, I have episodes where I'm extremely slow (my highest, extreme-pain speed would be slower than a person walking very casually) and with it, I'm faster than a lot of able-bodied people! It's fun and she would have fun with it.

She will not know what to do with the cane when she doesn't need it. For me, using backpacks always cause issues because I don't know how to hold it without dropping it, but I also need to swap hands, something gets stuck on the handle... it's a whole process that takes a comical amount of time at first. Same when going to the public bathroom, where are you putting it when you aren't using it...? It's a lot of trial and error and a lot of "eww, my cane just touched the dirtiest surface humanly imaginable".

In the real world, people are (overly) interested in young cane user's business and tend to stare a lot. Now, it doesn't have to be like this in your story, but it's often just an annoying part of life. Your character might feel awkward and feel like she needs to explain herself, but this goes away after some time. You just get desensitized after a while.

In the real world, people are sometimes interested and nice about it! For example, a lot of older people can be insecure about using a cane, exactly like younger people. I've heard stories about older people asking younger users where they got their cane from, how are they so confident with it, etc. Another opportunity for a disabled community moment!

I hope that my suggestions were helpful, it's been a while since I was a first-time cane user so I wrote down what I still remember, haha.

Mod Sasza

Hi!

I agree with Sasza on pretty much every point and wanted to add some things from my own experience.

It's really, really hard to hold both a cane and an umbrella at the same time. Sometimes I'll give up and get wet. Sometimes I'll give up and store the cane. She might do either of those, depending on what she hates more: being wet or walking without the cane. Or she could get a raincoat if that works for her.

Speaking of umbrellas, sometimes you need your umbrella and you need your cane and you also need a free hand. This Sucks. What I do for this sometimes (and maybe she or other people have better, smarter, more useful solutions than this) is shove my umbrella into my shirt or backpack strap or something, so the umbrella is Held Up by it. This is not very effective, and will not last long. But if I need to look up a map on my phone or adjust something on my clothes or get my keys, it can work. Sort of.

Just like mod Sasza said, people will take interest in your cane, younger and older alike. I've had people of all ages compliment my cane (it has flowers) as well as people of all ages tell me I'm too young to need a cane or ask what's wrong with me. An older woman once asked me where I got my cane as she had been wanting a 'pretty' one, and that was a nice moment.

She might develop a new awareness of mobility aid users. When you're new at using one and trying to figure it out, you're probably going to be frustrated, because it's a new skill like any other. But it might make her (like it made me) notice more people using canes. It's not that I never saw them before, but that they were more common than I ever thought, and I never would have noticed how common it was if I hadn't had to slow down and practice my skill.

Cane tips get dirty, and cane tips wear out. These both depend on where your character is using her cane (outdoors vs indoors, scratchy asphalt vs smooth wood) as well as how often. A cane with a worn-out rubber tip really sucks and is more unstable and if the cane is made of aluminum and the tip is worn out and you hit the cane the wrong way, you can damage the cane. Ask me how I know.

That's all I can think of right now that I had to learn to deal with when I started! As you can see I still don't have a solution to the rain thing and it's been like two and a half years...

- mod Sparrow

#mod sasza #maybe-its-beyond-words #canes #mod Sparrow #mobility aids

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