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#writing disabled characters
cripplecharacters · 1 month
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Where to Start Your Research When Writing a Disabled Character
[large text: Where to Start Your Research When Writing a Disabled Character]
So you have decided that you want to make a disabled character! Awesome. But what's next? What information should you decide on at the early phrase of making the character?
This post will only talk about the disability part of the character creation process. Obviously, a disabled character needs a personality, interests, and backstory as every other one. But by including their disability early in the process, you can actually get it to have a deeper effect on the character - disability shouldn't be their whole life, but it should impact it. That's what disabilities do.
If you don't know what disability you would want to give them in the first place;
[large text: If you don't know what disability you would want to give them in the first place;]
Start broad. Is it sensory, mobility related, cognitive, developmental, autoimmune, neurodegenerative; maybe multiple of these, or maybe something else completely? Pick one and see what disabilities it encompasses; see if anything works for your character. Or...
If you have a specific symptom or aid in mind, see what could cause them. Don't assume or guess; not every wheelchair user is vaguely paralyzed below the waist with no other symptoms, not everyone with extensive scarring got it via physical trauma. Or...
Consider which disabilities are common in real life. Cerebral palsy, muscular dystrophy, stroke, cataracts, diabetes, intellectual disability, neuropathy, multiple sclerosis, epilepsy, thyroid disorders, autism, dwarfism, arthritis, cancers, brain damage, just to name a few.
Decide what specific type of condition they will have. If you're thinking about them having albinism, will it be ocular, oculocutaneous, or one of the rare syndrome-types? If you want to give them spinal muscular atrophy, which of the many possible onsets will they have? If they have Ehlers-Danlos Syndrome, which one out of the 13 different types do they have? Is their amputation below, or above the knee (it's a major difference)? Not all conditions will have subtypes, but it's worth looking into to not be surprised later. This will help you with further research.
If you're really struggling with figuring out what exact disability would make sense for your character, you can send an ask. Just make sure that you have tried the above and put actual specifics in your ask to give us something to work with. You can also check out our "disabled character ideas" tag.
Here are some ideas for a character using crutches.
Here are some ideas for a character with a facial difference (obligatory link: what is a facial difference?).
If you already know what disability your character is going to have;
[large text: If you already know what disability your character is going to have;]
Start by reading about the onset and cause of the condition. It could be acquired, congenital, progressive, potentially multiple of these. They could be caused by an illness, trauma, or something else entirely. Is your character a congenital amputee, or is it acquired? If acquired - how recently? Has it been a week, or 10 years? What caused them to become disabled - did they have meningitis, or was it an accident? Again, check what your options are - there are going to be more diverse than you expect.
Read about the symptoms. Do not assume or guess what they are. You will almost definitely discover something new. Example: a lot of people making a character with albinism don't realize that it has other symptoms than just lack of melanin, like nystagmus, visual impairment, and photophobia. Decide what your character experiences, to what degree, how frequently, and what do they do (or don't do) to deal with it.
Don't give your character only the most "acceptable" symptoms of their disability and ignore everything else. Example: many writers will omit the topic of incontinence in their para- and tetraplegic characters, even though it's extremely common. Don't shy away from aspects of disability that aren't romanticized.
Don't just... make them abled "because magic". If they're Deaf, don't give them some ability that will make them into an essentially hearing person. Don't give your blind character some "cheat" so that they can see, give them a cane. Don't give an amputee prosthetics that work better than meat limbs. To have a disabled character you need to have a character that's actually disabled. There's no way around it.
Think about complications your character could experience within the story. If your character wears their prosthetic a lot, they might start to experience skin breakdown or pain. Someone who uses a wheelchair a lot has a risk of pressure sores. Glowing and Flickering Fantasy Item might cause problems for someone photophobic or photosensitive. What do they do when that happens, or how do they prevent that from happening?
Look out for comorbidities. It's rare for disabled people to only have one medical condition and nothing else. Disabilities like to show up in pairs. Or dozens.
If relevant, consider mobility aids, assistive devices, and disability aids. Wheelchairs, canes, rollators, braces, AAC, walkers, nasal cannulas, crutches, white canes, feeding tubes, braillers, ostomy bags, insulin pumps, service dogs, trach tubes, hearing aids, orthoses, splints... the list is basically endless, and there's a lot of everyday things that might count as a disability aid as well - even just a hat could be one for someone whose disability requires them to stay out of the sun. Make sure that it's actually based on symptoms, not just your assumptions - most blind people don't wear sunglasses, not all people with SCI use a wheelchair, upper limb prosthetics aren't nearly as useful as you think. Decide which ones your character could have, how often they would use them, and if they switch between different aids.
Basically all of the above aids will have subtypes or variants. There is a lot of options. Does your character use an active manual wheelchair, a powerchair, or a generic hospital wheelchair? Are they using high-, or low-tech AAC? What would be available to them? Does it change over the course of their story, or their life in general?
If relevant, think about what treatment your character might receive. Do they need medication? Physical therapy? Occupational therapy? Orientation and mobility training? Speech therapy? Do they have access to it, and why or why not?
What is your character's support system? Do they have a carer; if yes, then what do they help your character with and what kind of relationship do they have? Is your character happy about it or not at all?
How did their life change after becoming disabled? If your character goes from being an extreme athlete to suddenly being a full-time wheelchair user, it will have an effect - are they going to stop doing sports at all, are they going to just do extreme wheelchair sports now, or are they going to try out wheelchair table tennis instead? Do they know and respect their new limitations? Did they have to get a different job or had to make their house accessible? Do they have support in this transition, or are they on their own - do they wish they had that support?
What about *other* characters? Your character isn't going to be the only disabled person in existence. Do they know other disabled people? Do they have a community? If your character manages their disability with something that's only available to them, what about all the other people with the same disability?
What is the society that your character lives in like? Is the architecture accessible? How do they treat disabled people? Are abled characters knowledgeable about disabilities? How many people speak the local sign language(s)? Are accessible bathrooms common, or does your character have to go home every few hours? Is there access to prosthetists and ocularists, or what do they do when their prosthetic leg or eye requires the routine check-up?
Know the tropes. If a burn survivor character is an evil mask-wearer, if a powerchair user is a constantly rude and ungrateful to everyone villain, if an amputee is a genius mechanic who fixes their own prosthetics, you have A Trope. Not all tropes are made equal; some are actively harmful to real people, while others are just annoying or boring by the nature of having been done to death. During the character creation process, research what tropes might apply and just try to trace your logic. Does your blind character see the future because it's a common superpower in their world, or are you doing the ancient "Blind Seer" trope?
Remember, that not all of the above questions will come up in your writing, but to know which ones won't you need to know the answers to them first. Even if you don't decide to explicitly name your character's condition, you will be aware of what they might function like. You will be able to add more depth to your character if you decide that they have T6 spina bifida, rather than if you made them into an ambiguous wheelchair user with ambiguous symptoms and ambiguous needs. Embrace research as part of your process and your characters will be better representation, sure, but they will also make more sense and seem more like actual people; same with the world that they are a part of.
This post exists to help you establish the basics of your character's disability so that you can do research on your own and answer some of the most common ("what are symptoms of x?") questions by yourself. If you have these things already established, it will also be easier for us to answer any possible questions you might have - e.g. "what would a character with complete high-level paraplegia do in a world where the modern kind of wheelchair has not been invented yet?" is much more concise than just "how do I write a character with paralysis?" - I think it's more helpful for askers as well; a vague answer won't be much help, I think.
I hope that this post is helpful!
Mod Sasza
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godlesshasideas · 4 months
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Write more characters with physical disabilities. Write more characters with mental disabilities. Write characters with neurodivergence (more than one specific type too). Write characters with mobility aids. Write characters who have good and bad health days. Write characters who are chronically in pain, but don't express it every second. Write characters who were born with a disability. Write characters who developed one. Write characters who have adapted to the world around them because the world won't adapt for them. Write about their strengths and weaknesses due to their disability. Write about accessibility. Write about inaccessibility. Make it realistic.
Don't make the disability magically disappear or be cured (or at least be mindful of how you write that). Don't make it their entire personality but also don't skip over it. Don't use stereotypes (and that's not just with disabilities). Don't make the character actively hate their disability; they're allowed to be upset but most people with disabilities have learned to accept it as part of their life and accept it as part of their identity.
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whumpinggrounds · 1 year
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Writing Deaf Characters
I am making this a series now so pls drop requests if there is something you’re curious about!
Disclaimer: This is all based on personal experience and research, all of which relate to the American Deaf experience. It’s not perfect, nor is it representative of a global experience of d/Deafness. If you plan to write a d/Deaf or hard of hearing character, please do your own research! This is intended to give people a few ideas about where to start.
Vocab
Deaf = Refers to the cultural experience of being deaf and immersed in Deaf communities.
deaf = Inability to hear some or all sound.
Profoundly deaf = Inability to hear almost all or all sound.
d/Deafblind = Inability to hear some or all sound and as well as having some level (usually high) of visual impairment. 
Hard of hearing or HOH = A person whose inability to hear may not rise to the level of deafness or profound deafness, or simply may not identify with the term.
Deaf of deaf = A Deaf child born to Deaf parents.
CODA = Child Of Deaf Adults. This refers to hearing children, not d/Deaf children.
Manualism = Refers to the belief that d/Deaf children should be taught only sign language and should not be taught or expected to learn to speak.
Oralism = Refers to the belief that d/Deaf children should be taught only to speak and should be discouraged from learning or using sign language.
Bilingual-bicultural or bi-bi education = A school of thought that combines oral and manual education for d/Deaf children.
Mainstreaming = The belief that d/Deaf children should be educated in the same schools and classrooms as hearing students. (More widely refers to the belief that disabled students in general should be educated in the same schools and classrooms as nondisabled students.)
Deaf gain = The Deaf community’s answer to the term “hearing loss.” Rather than losing hearing, a person is said to be gaining Deafness.
Cochlear implant/CI = A medical device implanted into the inner ear which (debatably) produces sensation that is (somewhat) analogous to hearing.
American Sign Language or ASL = An American system of communication consisting of hand shapes, hand movements, body language, facial expressions, and occasionally, vocalizations.
Signed Exact English or SEE = A manner of communicating that directly translates English words into signed equivalents.
Home sign(s) = Signed communication that is specific to the signer’s home or community, which may not exist or be recognized in the wider world.
Identity First Language or IFL = A system in which someone is described first by an identifier that they choose and feel strongly connected to. Examples include describing someone as an Autistic woman, a disabled individual, or a Deaf man.
Key Elements of Deaf History
Can’t emphasize this enough - this is a VERY abbreviated list! It is also not in order. Sorry. That being said:
For a long time in America, Deaf children were not educated, nor was it considered possible to educate them. When this did change, American deaf children were educated in institutions, where they lived full-time. These children were often taken from their families young, and some never regained contact with their families. Some died and were buried at these institutions, all without their families’ knowledge.
In the early 20th century, oralism became popular among American deaf schools. This mode of teaching required lip reading and speech, no matter how difficult this was for students, and punished those who used or attempted to use sign language. Pure oralism is now widely considered inappropriate, outdated, and offensive.
Hopefully you’ve gleaned this from the above points, but d/Deaf schooling, education, and the hearing world’s involvement are a very sensitive subject. Proceed with caution. It’s unlikely your d/Deaf character would have a neutral relationship with schooling.
Helen Keller is probably the most famous deafblind person in America. In her time, she was also known for being a socio-political activist, a socialist, and a vaudeville actress. There are dozens of other famous d/Deaf people who are a quick Google search away. Give your Deaf character Deaf heroes, please.
The Americans with Disabilities Act, or ADA, was passed in 1991, and represented a landmark victory for disabled activists in America. Among its provisions were closed captioning for Deaf individuals, ASL interpreters for public services, and the right for d/Deaf children to attend accessible, accommodating public schools. The ADA is a HUGE deal. It’s also not perfect.
In 1961, cochlear implants were invented. I was going to write more about cochlear implants here, but it’s too long. New section.
Cochlear Implants
Massively massively massively controversial in the Deaf community. Always have been, potentially always will be. For people who strongly identify with Deafness and the Deaf community, CIs are an attack on their identity, their personhood, and their community’s right to exist. 
Do not allow people to “hear.” The input that a person receives from CI can, with physical therapy, training, and time, be understood and processed in a similar way to sound. This does not mean it would be recognizable to a hearing person as sound. It is often described by people who have them as being metallic, buzzy, or robotic. YouTube is a great resource for sound references.
In order for a cochlear implant to be effective, a personal will have to participate in years of training and therapy to correct process, understand, and interpret the feedback given by the CI. This is not negotiable. Even if your character just lost their hearing in an accident last week, a CI will not allow them to instantaneously regain that hearing. Nothing that currently exists in the real world will do that.
CIs, to be most effective, are almost always implanted when the recipient is very young. This decision is often made by hearing parents. This, again, is massively controversial, as Deaf activists argue that it violates the child’s bodily autonomy and is inherently anti-Deaf.
A cochlear implant, once placed, irreparably destroys any residual hearing that the recipient may have had. This is because it penetrates the inner ear in order to function. This residual hearing cannot be regained, even if the cochlear implant is not used.
Deaf people do choose to get cochlear implants of their own accord. Many d/Deaf people are very happy with their cochlear implants! It is still a highly charged choice in light of the political history surrounding d/Deafness and hearing.
Notes About American Sign Language
ASL is not a signed version of English. It is a distinct language, with its own vocabulary, slang, and grammar. Just a sentence would not be constructed the same way in Russian, Spanish, or Tagalog, a sentence in ASL would not be a direct translation of its English equivalent.
Deaf people have historically lower rates of literacy. This is not due to a lack of intelligence; it is because ASL and English are two different languages. ASL has no written equivalent. In order to be able to read or write, d/Deaf children must learn an entirely different language. This means that it is not realistic to always be able to communicate with d/Deaf people through writing.
As ASL is a visual language, many signs started out as very literal gestures. This means that many older signs are continuously being phased out as they or their roots are recognized as stereotypical or offensive. Please be careful in researching signs. I recommend Handspeak or Signing Savvy for accurate, relatively up-to-date information.
Many online “teachers” do not have credentials to teach ASL, and especially due to the prevalence of “baby sign,” home signs, invented signs, or false information spreads unchecked. If you see multiple different signs advertised for the same English word, please be diligent in checking your sources.
Not every English word has a distinct signed equivalent, and not every sign has an English equivalent.
SEE is almost never used by Deaf people. It’s rarely used and is generally thought of as a “lesser” version of both English and ASL.
ASL is a complete, complex, nuanced language. A character would not switch into SEE for a technical conversation or really any reason. Complex ideas, technical terms, and even poetry can all be expressed in American Sign Language.
Just like in English, there are some signs that are only considered appropriate for certain people to use. For example, the sign for “Black” when referring to a Black person has a modified version that is only used by Black signers. This does not mean it is a slur or the equivalent of a slur. It is a sign reserved for Black signers referring to other Black people.
Things to Consider/Avoid/Be Aware Of
I hesitate to tell anyone to avoid anything, because I don’t think I have that authority. That being said:
The Deaf community has a complicated history and relationship with cochlear implants and the concept of being “cured.” What message are you sending when you write a story in which a d/Deaf character is “cured” of their d/Deafness?
Generally speaking, d/Deaf people do not identify with the “disabled” label. Each person has their own preferences, and those preferences should always be respected. Your character(s) may choose differently than their real life community, but you should put thought into why that is.
Generally speaking, d/Deaf people use IFL. This means that a majority of d/Deaf people in America would describe themselves as d/Deaf people, rather than people with deafness, people with hearing loss, people that are hard of hearing, etc.
Okay I lied I’m going to tell you what to do here: Do not use words like mute, deaf-mute, or dumb when describing d/Deaf people. Hearing impaired is also not ideal but is considered outdated, rather than outright offensive.
The best lip readers are judged to be able to catch 30% of the words people say. How realistic is it to have a character that relies 100% on lipreading? What do you gain when you write a character that lipreads, and what do you lose?
Yes, Deaf people can drive. I don’t know why so many people wonder about this. It’s okay if you didn’t know, but please don’t come into my ask box about it.
Assistive Devices/Aids
Cochlear implants ^ see above
Interpreters. Will have gone to school for years, might have specific training for certain environments or technical terms, etc. For instance, an interpreter that works with Deaf people that have mental illnesses would be fully fluent in ASL as well as having requisite mental health training in order to interpret for them. Interpreters could be a whole other post actually, but I won’t tackle that now.
Closed captions. Self-explanatory.
Alarm clocks, fire alarms, and doorbells that use light instead of sound. This is sometimes a typical flashing light, but particularly fire alarms in predominantly d/Deaf spaces can be overwhelmingly bright. Bright like you’ve never seen before. Bright enough to wake someone from a dead sleep.
Some assistive devices also use sensation - alarms that actually shake bedframes exist and are the best choice for some people!
Service dogs - can alert people to sounds like the above - fire alarms, doorbells, knocking, etc.
Hearing aids. Generally not controversial in the way that CIs are. Only effective if people have residual hearing. Do not really expand the range of sounds people can hear, just amplify sounds in that range. Very, very expensive.
Microphones. If a d/Deaf or HOH person is in a crowd/lecture setting, the speaker will want to use a microphone. If this is a frequent occurrence, the microphone may be linked to a small personal speaker or earbud used by the d/Deaf or HOH person.
TTY: Much less frequent now that everyone can text and email, but stands for Text Telephone Device and was/is a way to send written communication over a telephone line. The message is sent, the phone rings, and a robot voice reads the message. Obviously, this is not effective for d/Deaf people communicating with other d/Deaf people, but it was often used to communicate with hearing people/hearing establishments, as when setting up appointments.
Media About/Including Deafness
No media is perfect and unproblematic, but here are somethings I have seen that I can verify do at least a pretty good job -
CODA is a movie that features Deaf actors, ASL, and a story about growing up, family, and independence vs. interdependence. 
The Sound of Metal is a movie that features ASL and a story about identity, recovery, and hearing loss/Deaf gain.
A Quiet Place is a movie features ASL and Deaf actors, although Deafness itself is not necessarily integral to the story.
BUG: Deaf Identity and Internal Revolution by Christopher Heuer is a collection of essays by a Deaf man that discuss a wide range of topics. This book is not always up to modern standards of political correctness.
Train Go Sorry by Leah Hager Cohen is a memoir by the granddaughter of a Deaf man, which discusses the intersections of the hearing and Deaf worlds.
Far From the Tree by Andrew Solomon is a research book about the effect of horizontal identity on parent/child relationships and features a chapter on d/Deafness. This is a good look at how d/Deafness can impact familial relationships. Some aspects of the book are outdated, and it was written by a hearing author, albeit one who extensively interviewed Deaf and hearing parents of Deaf children.
If you made it this far, congratulations! Thank you so much for taking the time to read through my lil/not so lil primer :) If you have any questions, comments, concerns, or feedback, please feel free to hit me up! If you have any requests for a diagnosis or a disability you’d like me to write about next, I’d love to hear it. Happy writing!
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can-of-pringles · 3 months
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Recently I watched this tiktok about writing disabled characters and one of the tips was that your character's disability needs to have a plot point/purpose in the story.
As someone who's disabled, let me explain why I don't agree.
Now obviously if you want to add that plot aspect go ahead (within reason and respectfully) but I don't think it should be required.
Because it's not accurate. In real life, there's not a plot point/purpose of me being disabled. It's simply just how I exist. My disabilities don't serve a purpose. It's just how I am.
And I think that implying that disabilities need to serve a purpose goes down that slippery slope of "your disability is only acceptable if it benefits something somehow" or "this disabled person is only valid because their disability can help others in some way, be exploited maybe"
You wouldn't say this about any other trait. Or at least perhaps you shouldn't. People who have certain traits or other aspects of them are literally just existing, not to serve a plot point.
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rjalker · 1 year
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Giving this part its own post.
Another tip: Let your fucking characters become disabled over the course of the story! If they get their fucking leg chopped off, even if it gets magically fucking reattached, there should be fucking evidence that they lost the fucking leg in the first place! Pain! Reduced sensation! Trouble moving it! Anything to fucking show that the injury fucking happened! Otherwise you just fucking did that to them for no point but to cause cheap, meaningless drama! That's just shit fucking writing!
I don't care if there's magical healing in your universe. I don't care if it's a Super Scifi Future and your character is a robot. (Yes, I am looking directly at The Murderbot Diaries!)
Getting a brand new fucking arm attached after the first one got blown or ripped off should still have physical fucking symptoms! The character noting that it's a different weight from before and constantly being distracted by this! The new arm has faster or slower reactivity to its attempts to move it! Having to learn anew how to do basic shit with a whole new system! Having to try and work with technology that's not actually compatible!!
If your characters receive massive injuries, let those fucking injuries have permanent effects. Stop fucking acting like being disabled is the worst fucking fate imaginable.
And if you don't want your characters' massive traumatic injuries to result in them being permanently disabled........don't fucking have them sustain massive life altering injuries. It's that fucking simple.
By handwaving this shit away and magically fixing everything back to normal, not only are you being ableist as fuck, you're just being an absolutely shitty, lazy writer.
Let your fucking characters become disabled over the course of the story. Your fucking audience will thank you for giving a shit about not only continuity and stakes, but disabled people.
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askablindperson · 1 month
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Hello, I am a writer who wants to write about a character with Lebers Congenital Amaurosis, and I’ve been struggling to find resources or descriptions on what vision is like for people with that condition. If you’re okay with it, could you describe what vision is like for you? Thank you and have a wonderful day! And sorry if you’ve already been asked this a million times.
Hi! Thank you for asking, and I would be glad to answer. I know what you mean, too. LCA is still somewhat common in the blind community, but I have also found quite a lack of resources to explain how it works to other folks. LCA is rarely included in any of those blindness simulation filters, either, though those also aren’t perfect representations.
A quick disclaimer: most of what I will share here is based on my own personal experience as well as the other blind people with LCA I have personally met in the trends I have observed in the community. I’m not a medical professional though, and I really don’t know that much about how these things pan out statistically Speaking.
First, one thing you should know is that LCA is progressive. It tends to be very slow and steady about it, and it took me 10 years to notice that I had had a significant change in vision which I only fully noticed in the last few months, but it is progressive, so it will inevitably get worse over a person’s lifetime. It just might take its sweet time getting there, and you won’t notice any overnight changes. at least not in the folks I’ve known, or in myself, or in most of the literature I’ve seen discussing it. There may be outliers though that I am less aware of.
The other thing I will say is that most of the other blind folks I have known with LCA actually have significantly less vision than I do, usually being born with little more than light perception and often losing what’s left of that light perception within their first few years of childhood. so a lot of them are totally blind as adults, or still only have light and shadow perception.
As for mine, at least in my experience, I seem to be somewhat of an outlier in LCA, in that I’m quite a high partial case. I believe I’ve been at least legally blind since birth, meaning my visual acuity was at least 20/200 or worse with some visual field issues also, but I’ve always had quite a lot more residual vision than most of the other folks with LCA I have met personally. Not all of them though. When I was a young child, my visual acuity was probably around the 20/200 Marc, but now at 27, my better eye is at about 20/650 and the worst eye is somewhere in the ballpark of 20/5000. Don’t ask me how they can even measure it when it gets that severe lol.
In practical terms, the way I have always described my vision is that it’s a lot like looking through a fogged up mirror when you get out of the shower, a foggy window in the winter, or the super blurred out background in a movie. You can make out plenty of shapes and colors and lights, and you can get a vague sense of what a lot of objects might be, but there is no detail and it’s extremely blurred out. if you happen to wear glasses, I often say that it’s like a lot of folks without their glasses on, but amped up to 11, and that’s even WITH my glasses. Without them, it’s even blurrier, though I don’t really wear glasses much anymore.
That description is in reference to my better eye, mind you. The worst one is so much worse that I can rarely make out actual objects with it or even silhouettes of people. It’s still colorful and everything, but the blurriness is significantly worse to the point that the eye isn’t really useful.
For me personally, as I have gotten older, my central vision has actually deteriorated a little bit faster than my peripheral vision, so I can ironically see a little clearer out of the corners of my eyes then I can looking straight ahead. I don’t know how common this is amongst folks with LCA, especially since most of the folks I know only have light and shadow perception where it’s harder to measure that, But that’s how it is for mine. It wasn’t like that as a child, I would have considered my central and peripheral vision to be fairly similar most of my life, but in the last 10 years, my central vision is noticeably worse now than my peripheral. if I look at a ceiling light through the corner of my eye, and then shift my eye so I’m looking at that same ceiling light to the center of my eye, it is instantly blurrier, like a little foggy film was put over it.
Also, at least for me, I have quite a few blind spots in my vision that impact my overall visual field. Contrary to what those vision loss simulation filters will have you believe though, those are not represented by black spots or white spots in real life. They’re just gone. Think of it sort of like Photoshopping somebody out of a picture. If they are standing in your blind spot, it’s not that there’s a blob over top of them, it’s as if that section of the picture was just cut out, and the two halves around it smashed together as if that part was never there. It’s just missing.
In actuality, everybody has a blind spot, even people with no vision problems whatsoever, so you may be able to get a better understanding of this by researching the general Blindspot that everyone has. I just have more of them because pieces of my retina have completely deteriorated and died off from my disorder.
The discussion of central versus peripheral vision and the blind spots applies to both of my eyes, but like above, just a lot more severe in the eye that’s worse. It’s not quite to the point where it only has light and shadow perception, but it’ll probably get there in the next 10 years or so. I’ve never leaned very heavily on that eye because it’s always been the much weaker one, but these days it is a little bit funny to see just how wildly different the exam for my right eye is compared to my left eye nowadays.
Lastly though, that does finish up the description of what my vision actually looks like, but I do want to leave you with one final note of consideration, which is not to focus overly hard on exactly what your character sees when writing them. At the end of the day, most of us who have been blind our entire lives don’t really go about our days actively paying attention to exactly what we can see and what we can’t, or thinking about what things look like through our eyes at that moment in time. We’re just living our lives with the vision we have, because we were born this way so it’s our normal, and sometimes focusing on it too much in the writing can cloud the characterization more than it helps.
All of that said, I do hope that this provides a useful framework. Mostly, my vision is just ridiculously blurry and really only gets a tiny bit less blurry with glasses, with a few holes punched here and there for good measure lol. To be honest, when I’m spending time with other blind people, we don’t actually usually spend all that much time describing exactly what each other’s vision looks like to each other or anything—it’s usually not exactly the most interesting thing we want to talk about—so I don’t know how common my specific details are to others with LCA. But that’s pretty much the long and short of my personal experience, and hopefully it can be useful when understanding your character.
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clownrecess · 10 months
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Hi, I write stories sometimes, and was considering writing a character who uses AAC. I hope you don't mind me asking a question. So, someone talking with AAC isn't the exact same grammar as someone talking without that, right? You tend to leave out, like, unimportant words, and kind of imply words like "the" or "to". In writing a character using AAC, should I write their dialogue exactly how they said it, or should I add in the implied smaller words? I hope I have a correct understanding and that this ask makes sense!
It depends on the person! I'd say study your character. Do they seem like someone who has enough spoons to use grammatically correct sentences? Or do they have lower spoons, and prefer to type simpler?
Personally, I use proper grammar unless I am upset or have very low spoons. In that case I type more like this: "Jules favorite character. Is relate." rather than "Jules is my favorite character. I can relate to her a lot."
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evilwriter37 · 4 months
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I swear I don't mean for this to come off as rude! If it ends up being something rude, I apologize so so so so so much!
You post about your chronic illness, and I want to ask about how I would represent chronic illness in a character? (Without most of the lore, Vanitas from Kingdom Hearts only had half of a [metaphysical, kinda like a soul but souls are separate] heart and is said in the novel [I wanna say, I know it's said somewhere] to constantly be in pain or near-constantly be in pain because of it)
I don't know how to go about it, I don't trust Google to give me a good answer, and you're the only person on Tumblr I've really interacted with who could help me.
Again, I'm so sorry if this ends up being something rude. I'm not trying to be rude if I am.
Oh, don’t worry, my friend!! This isn’t rude at all! I’m really appreciative when people come to me asking about specific illnesses/experiences. It’s one reason I talk about mine a lot.
As for writing chronic pain? I’ve definitely got some tips for that.
Let it drain your character. They won’t have the same energy levels as characters without chronic pain. It’s just not possible.
On occasion, let it stop your character. A lot of abled people say “don’t let your disability stop you” and I’m convinced they don’t know what disabled means. It 100%, absolutely does stop us from doing things. So yeah, let it stop your character from achieving certain goals, even if they’re just little ones.
Your character will have good days and bad days, good moments or bad moments. As a chronic pain patient, I can wake up one day and have my baseline pain level and feel kind of “okay”, but then there are other days where I wake up in agony. However, this kind of thing can change on a dime. A bad pain day can start in the middle of a good pain day, or vice versa. Chronic pain can be unpredictable sometimes.
However, there are situations where chronic pain is predictable. For example, I know that walking around a mall would make me unable to move hours later. So, naturally, that’s not something I do. There are situations that will exacerbate pain. Have your character, (if they’re well versed in their own chronic pain) know what these situations are.
Finally? It’s okay for the chronic pain to take up a lot of the character. People tell me I’m not my disability, but it’s something I have to deal with on the daily, minute by minute. It’s part of my identity whether I want it to be or not. So, let it be part of the character’s identity. They don’t have to be accepting or at peace with this, but it’s something that happens.
I really hope this helps! Thank you for coming to me and feel free to ask anymore questions! I don’t mind at all!
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a-little-revolution · 2 years
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to celebrate open anon!! do you have any kind of wishlist of how you’d personally like to see little people portrayed in media??
Hello!! Goodness, I do indeed!!
I'd love to see a little person fall in love (and have it reciprocated), particularly as a coming of age story - highschool me would have lovvvvved to see representation of a body like mine being healthily romanticized.
A period piece staring a little person would be amazing as well - they could be in an accurate field such as a seamstress, midwife, blacksmith, etc. or detail our history of enslavement. (They could even do it as a spin off of Game of Thrones or The Last Kingdom)
I'd especially love to see little people of multi minority, in interabled relationships. I've been at a point with my media consumption where it isn't enough to simply see a token disabled/little character. They need to have more to them and they need to be in a rich, diverse community. Diversity doesn't live in a bubble, and disabled people attract other disabled people. Along with queer people, trans people, neurodivergent people, etc. Show complex characters in your writing, and build complex communities because we're out there.
And mostly I just want to see more characters with dwarfism across all genres of media - ones that are taken seriously. There's hardly any good representation for little people out there, and it greatly affects the community. I can trace back so many of my struggles in life with people's perception of my disability, which could have been so easily turned on it's head if I had better representation.
Hope this helps, and thank you so much for this ask :) xoxo - elliot (they/them)
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sharenadraculea · 21 days
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Writing Tips: Autistic characters and their Safe Food
Disclaimer at the start: this here is mostly based on my own experiences and some stuff online written by other autistic people
So, first off, what is a Safe Food? A lot of autistic people struggle with food, especially due to sensory sensitivities. A Safe Food is a food that can be eaten at pretty much all times without distress. Depending on the person they might eat their Safe Food just like once a week or it might literally be all they can eat. A person might have multiple Safe Foods (I have three, one of has variations) or just one.
I often see the cliche that every autistic persons safe food is dino nuggets or plain pasta, which is just not true and it‘s kind of annoying me to see this reflected in stories, so here is some advice to avoid this a bit!
First off, decide wether the character in question is a sensory seeker or sensory avoidant in regards to food specifically. A sensory seeker well seeks out strong sensory input, like food that is very spicy, sweet or salty or food that‘s very crunchy or a lot of diffrent textures and tastes mixed in one dish (this is what I am). Someone who is sensory avoident on the contrary would prefer plain foods, without tastes and textures mixing.
This can be enough to know in a lot of cases, but if you would like to go into further detail, you can also think about things like the following: -Does your character prefer salty, sweet, spicy or bitter food? -Chewy vs soft vs chrunchy food? -Hot vs cold food? -Certain foods they absolutly won‘t eat? -Textures that just ick them out? -Do they have additional intolerances/allergies?
Something very importang with safe foods is that they are always the same. This is why many autistic people struggle with fruit, a apple tastes diffrent every time. Because of this a lot of peoples safe food is highly processed, like dino nuggets or pasta. The only reason why I can have a specific veggie dish as one of my safe foods is because I cook it myself, so I can always use the same ingredients in the same amount, and I use a ton of spices. (I should also note that I at the moment don‘t struggle as much with food as many other autistic people do)
It should also be noted that safe foods often change throughout a persons life time. This can be because a food becomes unsafe, for example due to trauma/bad experiences or a changed recipe, or just randomly. This can happen very quickly or over the course of multiple weeks.
Some other things to keep in mind/think about: -Safe Foods are often hyperspecific, like a certain brand of a food, and the cooking process usually needs to always be the same -Can the character in question cook for themself or do their caregivers cook for them? -Do they mealprep or not? (A reheated food might not be tolerated) -A lot of people stockpile their safe food -A safe food might need to be taken along while traveling -How many other foods can they eat? (At some point you enter ARFID-teretory, which is a whole other beast) -Do they have other issues that may make eating more complicated? (For example I have coordination and fine motor issues, that make eating with a fork or fork and knife more difficult) -Safe drinks also exist! -A Safe Food can be literally any food
There are definetly more things, these are just the ones that came to my mind! I hope this is helpfull!
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cripplecharacters · 7 months
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Media Representation and Writing Characters with Facial Differences
[Large Text: Media Representation and Writing Characters with Facial Differences]
A writing (?) guide (?) consisting of an explanation of what facial differences are, some basics about the community of people with facial differences, a terminology guide that is extremely subjective, a very long explanation of the real-life effects of misrepresentation of facial differences, a subjective guide on why most tropes surrounding facial differences are awful and unoriginal, and the part that people actually want to see (I hope at least) AKA "types of characters I do actually want to see". As always, this post is meant for people who have no experience with the subject, and not in any way an attempt to tell writers with facial differences on what to do in their own writing.
What Does "Facial Difference" Mean?
[Large Text: What Does "Facial Difference" Mean?]
"Facial Difference" (FD for short) is an umbrella term for any kind of scar, mark, or condition that makes your face visibly different. This encompasses anything from not having parts of the face or having less of them (e.g. anophthalmia, anotia, hemifacial microsomia), having "more" to the face (e.g. tumors, neurofibromatosis), conditions affecting how the face moves (e.g. facial paralysis, ptosis, cranial nerve diseases), ocular differences (e.g. hypertelorism, nystagmus, strabismus), conditions affecting the colors of the face (e.g. rosacea, vitiligo, pigmentation conditions in general), a "look" that signals a specific disability (e.g. Down Syndrome) and approximately a million more things - scars, burn marks, craniofacial conditions, ichthyosis, cancers, and a lot more.
Despite popular opinion (popular ignorance would be more accurate because no one knows about it in the first place but opinion sounds better-) people with Facial Differences have both a movement (Face Equality) and a specific word for the oppression we experience (Disfiguremisia). There is even the Face Equality Week that happens every year in May! This is a real thing that has been happening, and we are generally going unnoticed, even in the "representation matters" circles, the body positivity movement, disability spaces, and so on. There is an alliance of organizations dedicated to this called Face Equality International, who can help you learn about the real-world community and movement! They even have sections specifically about media representation, which is foreshadowing for how important this topic is to the community and for how long the "explaining the issues of representation" part of this post is.
And of course, if you have a facial difference/disfigurement, you can do whatever the hell you want when writing! Call your characters how you call yourself, subvert the tropes you want. I don't want to preach to people who already know all of this firsthand. This post is meant to explain some things to people who don't have experience with having FD.
Terminology
[Large Text: Terminology]
There is a lot of words to describe people with FD. Some of them are alright, most of them are awful.
Please keep in mind that all of these terms (maybe except for the... last one...) are used by real life people. This isn't me saying "you can't say that about yourself" (more power to you!) but rather to educate able-bodied people that some words they refer to use with aren't as neutral as they think (at least not to everyone).
"[person] with a facial difference" - generally the most polite and widely accepted way to refer to us. That's what is generally used in the Face Equality movement, sometimes alongside the next term which is...
"[person] who has a disfigurement" - an alright term that is sometimes used interchangeably with the one above. However, most things that involves the term "disfigurement" to me sound kinda medicalized and/or like lawyer speech. It's not offensive, but just generally used in more official ways etc. Has the potential to make you sound like a medical report or a legislature sometimes. lol.
"A disfigured [person]" - starting to steer into the "uhh" territory. Describing a whole person as disfigured is, to me, just plain weird. I get that some communities push for the identity first language, but this just isn't it most of the time. Could be way worse, could be slightly better.
"[person] who has a deformity" - "deformity" is such a negatively charged word that I don't understand how people (without FD) still use it thinking it's neutral. This sounds awkwardly medicalized in a "case study from the 80s" way which is definitely not a good thing.
"A deformed [person]" - pretty much the jackpot of bad terminology, the term deformed, the calling of an entire person by it, it has everything I hate about writers describing people like me. The only one that I think is even more awful is...
"Horribly/gnarly/nasty/monstrous deformity/scar/[name of the specific condition]" - again, I'm impressed by what some people think is neutral wording. If you're searching a thesaurus for synonyms of "scary" to describe your character, I think it's time to just stop writing them. This is about using ableist terminology, sure, but I just can't imagine that someone calling their character that actually will represent FD well. It shows the negative bias and attitude of the writer.
However, there is also one pretty awesome and simple way to describe them!
Say what they have specifically. Really. Assuming you know what condition your character has (which... you should) it should be very easy. "She has Treacher-Collins Syndrome." "Xyr forehead has a port wine stain on it." "They can't fully open one of their eyes." It's clear and lets your readers know what you mean. You don't always have to throw around euphemisms to describe someone not having a nose.
Tropes and Current State of Representation
[Large Text: Tropes and Current State of Representation]
If you have read basically any of my previous posts about FD then you probably know what I'm about to say in this section. Still worth a read though? I hope. Warning that this is long, but you probably expected that already.
One thing I will note at the start is that I'm aware that a lot of writers were already turned off from this post just because of the terminology section. I know that artists love describing people like me as ugly deformed monsters! It's literally a tale as old as antiquity, and that's how overdone and stale it is. Visibly disabled = ugly. I get it, I heard it a thousand times before, I hear it majority of the time someone is excited to tell me about how horrible and gross their OC's scar is. But now some guy (me) from that group is telling you to like, maybe stop calling your disgustingly deformed character that!
I want to make it very clear that FD representation in media is not treated like a real thing that's worth anyone's time, even by the most "representation is so important!" writers. I guess it's too inconvenient to unpack the amount of baggage and uncomfortable implications this would cause. It's too good of a device in writing; everyone knows that if a guy with a scar shows up that it means he's evil, the easiest way to make a villain visually interesting is to make them a burn survivor, and if you need a tragic backstory for a serial killer just give them a congenital disability that caused literally everyone in the world to treat them horribly, so of course they started killing people. It's such a good moral signifier that literally every book and tale has done - pretty is good, ugly is bad. Dichotomy is so helpful. What is less helpful in the real world is that what is considered "ugly" is generally very tightly bound to what visibly disabled people look like. Ugly Laws weren't just like, coincidentally including disabled people and disability activists aren't still forced to speak out against being put in those "Ugliest People" lists by accident. This is all to say that facial differences are considered to be "ugly" completely uncontested, and you probably have this bias too, as the vast majority of people do. The whole "the character is ugly, then they become evil, if they're evil, they become ugly"... you need to be conscious to not do that. Don't make them evil if they're visibly disabled because it will always end up being the same old trope, no matter how many weird excuses and in-universe explanations you give. I want to put it in people's heads that you are writing about a community of people who are technically visible in real life, but have no large voices that the general public would listen to when it comes to how we are seen. The general public relies on media to tell them that.
Putting people with FD in your books or your art seems to suddenly be intimidating for a lot of artists when they realize that not only is facial difference a real thing, but people who have it can see what you write or draw (and your other readers will take some things out of what you write, subconsciously). When an author is faced with the fact that maybe they are doing harm with their writing, they either: suddenly don't want to do that anymore at all, or say: "I don't care! I'm going to be very innovative and make my very evil OC be deformed!" which is kinda funny to me that people actually seem to think it's edgy and cool to repeat the most tired Hollywood tropes but that's the best we can get I guess lol...
The attitudes that people have around the topic of facial difference and the whole "media impacts reality" are very interesting to me in general. On one hand, when I tell someone that I was bullied or ostracized because of my disabilities, no one is ever surprised. On the other hand, everyone is for some reason uncomfortable when I say that this doesn't just... appear out of thin air. People are taught from childhood that facial differences and the people who have them are scary, untrustworthy, or literal monsters. Media is a major factor in that. Like, looking back at it, it makes sense that my parents told me not to stare at other kids because they would get scared. After all, I looked like a kindergarten version of the bad guy from some kid's book. Other kids were able-bodied and looked like the good guy, I was visibly disabled and looked like the bad guy. That's the lesson kids get from media on how people with visible disabilities are: evil, scary, not to be interacted with. So they avoided me because of that while I had adults telling me to not even look in their direction. Dichotomy is so helpful, right?
And this doesn't magically stop at children. When I post a self-portrait or a selfie, I usually deal with multiple grown people comparing me to sometimes an animal, usually a specific character from a movie, sometimes even making my face into a meme right away. But if people don't generally see people with facial differences on the daily, then how are there so many specific reactions and so many similar problems that we go through? If it's so rare, then how are people so quick to tell me the character I remind them the most of- Yeah, media. It's always media. It's almost funny how everything circles back to one thing.
I want you, the author, to understand the impact of misrepresentation of facial difference. If you feel uncomfortable because you have done these tropes before, good! That's a sign of growth. If you want to help instead of harm, you need to get over your (subconscious) biases for a minute and think about how a person with the same condition as your character would feel like reading about them. Maybe you are even currently realizing that that one OC with scars is just five harmful tropes glued together. Maybe you are going to reblog this and tell me in the tags that somehow your character decided to be like that, as if they have free will instead of being written by a biased human being. Or, as I said earlier, a lot of people will be annoyed by this post and keep doing their thing. Which is like... whatever, I guess ?? There are a dozen huge movies and TV shows every year that do this. It's so basic and normalized that whatever reach this post will have will change very little. I have been signaled "we don't care what you think about how we portray people like you" my entire life, I'm frankly more surprised when people do actually claim to care. You can, practically speaking, do whatever because the FD community is fully ignored by uh, everyone, and even if I'm disappointed or annoyed I'm just one man and I know (from experience) that most people won't have my back on this topic. It's too ingrained in our culture at this point to challenge it, I suppose. I mean, there have been multiple media campaigns telling writers to treat us as people, and they had practically zero impact on the writing community. But even with my absurdly pessimistic view on this subject, I still decided to write all this. Sure, there are no signs of the industry changing and the writing community doesn't seem to care much, but I still naively hope that maybe the right person will read this and at some point in the future I will be watching or reading about a character that looks like me and actually have a good time, and even more naively that maybe people will gain some amount of awareness of the damage that has been and still is happening to people with FD through media, so that the next time they see that the villain has facial scars for no reason they will think "damn, this sucks" the same way I do. And very, very naively, I hope that people who read this will start seeing us as people. Not villains, not plot devices, not monsters.
Sad part over(?), now the fun(?) part. AKA the tropes! Yay.
"Dramatic Reveal of The Deformity".
Use of the word "deformity" very much on purpose here. This is arguably the most common trope when it comes to FD, and it's always awful. At the very best it links FD with trauma and talks in a Very Sad Voice about how having a FD is the worst thing imaginable, I guess (think a "X did this to me... now I'm Deformed For Life..." type of scene) and at worst it does the classic revealing that the main villain actually was a burn survivor under his mask, because of course he was. In media, people with FD are evil. If they're not, then it's because someone very evil did it to them (the most evil thing of all - causing someone to have a facial difference. the horror!). It can't be a thing unrelated to someone's morality, there's gotta be evil somewhere around it. There is literally nothing good about this trope. Showing FD as something to hide? Check. Dramatizing FD? Check. Placing the way someone's face looks as the worst thing possible? Check. General treating FD as some kind of circus attraction to stare at with your mouth open? Check!
"Wearing a Mask*."
I made a whole post about this one actually, that's how much it annoys me. Putting your character with FD in a mask is so overdone, lazy, and boring I'm not even offended as much as I thought I would. It's like... really? Again? For the millionth time, the character with FD is forced to hide their disability? Is the author scared..? What is the point of giving your character a visible difference if all you're doing is hiding it? And yes, I know that your character chose to do that for reasons that you as a writer somehow can't control. It's always so strange how it's the character that's in control and the writer is in the passenger seat when it comes to annoying tropes.
Found yourself already waist-deep into this trope? Take a look at this post I made.
*"mask" here refers to anything that covers the character's facial difference (e.g. eye covering, surgical mask, whatever. It's about hiding it and not a technical definition of "what is a mask").
"Good Guy has the Tiniest Scar You Can Imagine, but Don't Worry! The Villain is Deformed As Hell."
A genre on its own. In the rare instance that a positive character has a facial difference, they have a curiously limited choice - you can have:
the thinnest, definitely-very-realistic straight line going through the eye (the eye is always either perfectly okay or milky for reasons the author couldn't tell you),
the same exact line but going horizontally across the nose,
and if you're feeling spicy you can put it around the mouth,
regardless of location, just make sure it doesn't look like an actual scar (certainly not a keloid or hypertrophic one) and is instead a straight line done with a red or white crayon. Interestingly, villains have unlocked more options which stem from scars, craniofacial conditions, burn marks, cleft lips, ptosis, colobomas, anisocoria, tumors, facial paralysis, to pretty much everything that's not infantilized, like Down Syndrome. These are always either realistic or extremely bloody. I sound like a broken record by now, but no, your morality has nothing to do with your physical appearance and being evil doesn't make a visible disability get more visible. Shocker. And don't get me started on...
"The Villain turned Evil Because They Have Scars."
Ah, how nice. Disabled people are evil because they're disabled, truly a timeless classic for able-bodied writers whose worst fear in life is being disabled. In case that needs to be said, having a facial difference doesn't turn you evil, doesn't make you become a serial killer, doesn't make you violent, doesn't turn you into an assassin with a tragic backstory seeking revenge for ruining their life. If anything, having a FD makes it more likely for other people to be violent towards you. Speaking from experience.
"The Villain Just Has Scars."
An impressive attempt at cutting out the middleman of "clumsily and definitely not ableist-icly explaining why getting a scar made them evil" and not even bothering with a tragic backstory or anything. They are evil, so of course they have a facial difference. What were you thinking?
"Facial Difference is a Plot Point."
As anyone who's read like A Book will tell you, the only way to get a facial difference is to be in a very dramatic fight or an extremely tragic accident who will become a plot point and thus the facial difference is now Heavily Emotionally Charged and a symbol of The Event/The Tragedy. If you look at media, congenital FD isn't a thing, illness-related FD doesn't exist and boring domestic accident or a fall causing FD has never been seen. It has to be dramatic and tragic or else there's no point in them having it. A true "why are they [minority]" moment, if you will.
"Character gets a FD but then Gets Magically Cured Because They're Good."
Truly one of the tropes that make me want to rip my hair out. Curing your character with FD sucks just as much as curing a disabled or neurodivergent character. Who is this even for? That's not how real life works. This is some actual Bible shit, that's how old this trope is. The only thing you're doing here is making people think that those who do have FD just aren't "good enough". Every time I see it, I wonder what the author would think of the congenital disorder I have. According to this kind of in-universe rules, was I born evil and just never got good? or ??
"Character with FD has Self-Esteem Issues and Hates Their Face."
I admittedly mocked all the previous tropes because they're absurd, ridiculous, offensive, boring, all of the above, and have zero basis in reality. This one however... ouch, right in my own tragic backstory. This is unfortunately a very real experience that a lot of people with FD go through. I even have a hunch there wouldn't be as many if the general public didn't think of us as monsters, but I digress. Yes, a lot of us have or had self-esteem problems, and a lot of us wished that we wouldn't have to go through all the BS we were put through because of it. Thankfully for you, you don't have to write about it! Seriously. You don't need to. As one million people have said before me, "maybe don't write about things you haven't experienced" and I agree here. I have yet to see an able-bodied author get anything about this right. Instead of the deeply personal, complex experience that involves both you, everything around you and the very perception of what others think of you that this is, somehow writers keep giving the tired "character crying and sobbing because they're "ugly" now", because the author thinks we're ugly. Or maybe they're sad because all the other characters with facial differences are evil, and they didn't have the time to prepare their evil monologue for when they inevitably become evil in the sequel? Who knows.
"The Author Doesn't Know."
I'm not sure if a trope can be the lack of something like this, but the author not knowing what their character actually has going on medically is common to a ridiculous extent - this applies to all kinds of disabled characters as well. You don't need to name-drop the Latin term for whatever your character has, but you need know what it is behind the scenes. You need to know the symptoms. You need to know the onset and the treatment or lack of it. Please do your medical research.
Things I Want to See More of in Characters with Facial Differences
[Large Text: Things I Want to See More of in Characters with Facial Differences]
The thing you might have noticed is that I want Facial Differences and People with Facial Differences to be presented as normal. Not killers, not SCP anomaly whatever, not monsters. I'm aware that the term is tired, but I absolutely want Facial Differences normalized as much as possible.
I want to see more characters with facial differences...
who have friends that don't bully or make fun of them because of their appearance.
who have support from their family.
who know other people with facial differences - even if they're just background characters, or mentioned in passing. Marginalized people tend to gravitate towards each other, people with FD aren't an exception to this.
who are queer.
who aren't only skinny white cis dudes in general.
who are disabled in other ways! A lot of us are Blind, Deaf, both, unable to speak, intellectually disabled, having issues with mobility, and a million other comorbidities.
who are fantastical in some way - preferably not the "secretly a monster" way. But a mermaid with CdLS or an elf with neurofibromatosis? That's cool as hell.
who are allowed to be cute or fashionable.
who have jobs that aren't "stereotypical bad evil guy jobs". Give me a retail worker with a cleft lip or a chef with Down Syndrome!
who are reoccurring characters that just happen to have a FD.
who are those stock/generic characters that aren't typically associated with FD. Hero's mom has septicemia scars? Cool! The popular cheerleader at school has alopecia? Awesome! The bartender of the place the heroes secretly meet up at has Möbius Syndrome? Goes hard! The kid that the MC used to hang out with before they moved somewhere else has Crouzon Syndrome? Great!
who have their FD be visible.
who aren't ashamed of their FD.
who are feeling very neutral about their face.
who are proud of how they look.
who got their FD in a very boring way or were just born with it (and maybe make up very silly, obviously not real ways of how it happened when annoying people ask them. Think "oh, I was fighting a shark").
who have facial differences other than small scars.
who's angst is fully unrelated to their FD. I love me an angsty teen character! Even more if they are angsty about their crush, or basically anything that's not their disability.
who have a significant other who doesn't do the whole "I love you despite your looks" thing. It just kinda sucks. Sorry. I would hate if someone said this to me.
who are children and aren't implied to be "cursed" or "demonic".
in genres that aren't just horror or thriller. RomCom or slice of life, anyone?
who aren't evil.
I want to see stories with multiple characters with facial differences. I have nerve damage and facial asymmetry, and I am friends or mutuals with people with Williams Syndrome, Bell's palsy, Down Syndrome, neurofibromatosis, facial atrophy, ptosis... and a lot of other things. Your character would have (or, would probably want) some connection to their community. We aren't rare!
And, I want stories with the whole spectrum of facial differences shown. Of course you can't represent the whole spectrum, but you can still aim for at least a few. Don't give every single character with FD the same scar-through-eye + eyepatch combo. It's not unrealistic to have a range in your writing. Here is a list of facial differences you might want to check out for inspiration. Don't be scared to give them something rare - no matter how uncommon, people still have it. My specific condition is allegedly extremely rare - I still want representation!
Closing Remarks
[Large Text: Closing Remarks]
Facial difference and the media is a topic that plagued me for the past almost two decades and won't stop ever, I think. It's a very unique relationship of a group of people who just aren't allowed to get into the industry and an industry that clearly hates them, loves to use their image, and defines how people see them all at once. There's this almost overrepresentation that is consistently awful and damaging to an absurd degree. Most people know more villains with FD than actual people. Certainly doesn't feel great to be one of the aforementioned actual peoples. But I hope that this will change - the negative portrayals that are plaguing the FD community will slowly fade out and a newer wave of portrayals will come in, hopefully this time realizing that we are real people and care about us a bit more.
The thing with facial difference is that it's pretty much impossible to make a specific guide of what it's like and what to do in context of writing because it's an incredible vast category that includes conditions that are very different from each other. That's why this post was more focused on "why you should care in the first place" (sorry for the clickbait) rather than being a straightforward guide that would still be very lacking even if 20 different people were collaborating on it. I really, really encourage everyone who got through this rather long post to do their research on what they plan to write about, be conscious of their own biases, don't pull inspiration from movies because they're all hellholes full of tropes and just sit down for a minute, think of the real-world people with facial differences, and read what we have to say. I know that drawing a guy with a line across his eye is more fun than realizing you're low-key scared of or uncomfortable around the real-world equivalent, but sometimes you have to get over yourself and try to be a better person. Caring about the people you write about is, dare I say, essential. That will certainly make your writing of us better :-) (smiley face with a nose)
If you have any specific questions, feel free to send an ask
Mod Sasza
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godlesshasideas · 4 months
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Writing About Disabilities: ADHD
Here we go again.
When writing about anything you are not personally familiar with, research is your best friend. Don't use this post as a catch all and think it's all you need to write characters with ADHD. This is far from all the information about it, but it's a starting point.
Here's some basic information that I have found and I've also included some of my own experience since I have ADHD, which is at the bottom of this post. (Just as a note I won't always do things I have personal experience with. These are just the ones I feel comfortable sharing first.)
Information regarding ADHD
As most people know, ADHD stands for Attention-Deficit/Hyperactivity Disorder. It's a neurological disorder that impacts many various things but mainly an individual's focus (both ability and where that focus is). Many people with ADHD usually are focused on something but they don't have control of where that focus is. The biggest example of this is in school settings (which often leads kids to be diagnosed) where they're in the classroom and even though they hear the teacher giving instructions they can't help but focus on what's happening outside or the posters on the wall, etc.
There are various types of ADHD and they have been updated by the DSM. It was once separated as ADHD and ADD, which pretty much meant you had A or B, which doesn't really work neurodivergence because every brain works differently and everyone has their own experience (it's a spectrum). There are now three types and they luckily aren't as cut and dry: Predominantly Inattentive, Predominantly Hyperactive-Impulsive, and Combined Presentation. It's also important to note that presentations can change over time but it's always just ADHD. Source: CDC
Some more in-depth information:
Attention-Deficit/Hyperactivity Disorder | NIMH
Living with ADHD | Coping Strategies | ADDitude
Data and Statistics About ADHD | CDC
Things to Consider about the character you're writing:
When was your character diagnosed? Also, how did they go about this diagnosis process? While this may seem like some simple questions, the answer does contribute to your character's story and identity. Was it part of their K-12 years? If so, what part? Was it when they got to college? Were they never diagnosed until a friend/family member pointed it out to them? Are they still undiagnosed? You should look into the experiences people have shared online about their diagnosis because it may be helpful for creating your character.
Do they have other forms of neurodivergence? Many neurodivergent people have more than one diagnosis in neurodivergence. For example, there's a lot of overlap with ADHD and Autism. So much so, that there's a unofficial term for it: AuDHD. This term is unofficial in the sense that it was developed by the community for the community rather than medical professionals. If your character has multiple diagnoses, how do those diagnoses interact with each other?
*Also, be aware of statistics. It's been proven over and over again that women or AFAB people are less likely to receive a diagnosis for ADHD (they're more likely to be diagnosis with anxiety, depression or OCD; all of which can be contributed to ADHD)
My Experience with ADHD
I decided to create a section to share my experience just because of how much it's apart of my daily life. I've obviously had ADHD all my life but I wasn't diagnosed until my first/second year of high school. The reason for this is because I was "good in school" and wasn't "jumping off the walls". I was good in school because I was hyperfixated on academics and academia. I wasn't jumping off the walls with energy because I was constantly masking, because now as I have gotten older and more comfortable, those high energy symptoms are more apparent.
I didn't take ADHD medication for a very long time because I thought I was managing just fine. I actually requested medication a few months back (before my third year of university). Turns out I was not managing just fine. I was constantly procrastinating and leaving things to the last minute. I was relying on the pressure of a looming deadline. I was also in a constant state of executive dysfunction when that deadline wasn't there (like with household chores). Imagine my surprise when I'm suddenly able to work on tasks without pressure of a deadline or pressure of failure.
As a funny little note, whenever I spoke to healthcare professionals and I told them I had ADHD or they saw it in my chart, they would be shocked/surprised by the fact I was unmedicated. Another funny note, when I spoke with my psychiatrist about being put on an ADHD medication, he was like "I was wondering when this would happen" like sir??? lmao
**Once again, always do more research. Do not use this post as all you need. Anytime you write something or create a character that has something you aren't familiar with, you need to take the time to learn about it. Research Research Research!
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whumpinggrounds · 1 year
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Overused Disability Tropes
Woohoo here we go. I expect this one to be a bit more controversial because I am using specific media as examples. I would really prefer if, when critiquing this post, you avoid defending specific media, and focus instead on what’s actually being said/represented about disabled communities. If you feel I’ve done a really grave injustice, you can come into my askbox/DMs/replies to talk to me about it, but I might not answer.
One more time: I am not interested in getting into a debate about whether something is a good show/movie/book/whatever. I’m not telling you it’s bad, or that you shouldn’t enjoy it! People can like whatever they want; I am only here to critique messaging. Do not yell at me about this.
Newest caveat aside, let’s get into it!
Inspiration Porn
Without a doubt, our biggest category! Term coined in 2012 by badass activist Stella Young, but the trope has been around for literal centuries. There are a few different kinds that I will talk about.
Disabled character/person is automatically noble/good because of their disability. A very early example would be A Christmas Carol’s Tiny Tim, or, arguably, Quasimodo from The Hunchback of Notre Dame. Real life examples include the Jerry Lewis MDA telethon, or children’s hospital ads that exploit sad-eyed kids with visible illness or disability.
Having a disability does not automatically make you a kind/angelic/noble person. This many not seem harmful, and may even seem positive, but in reality, it is condescending, inaccurate, and sets bizarre standards for how disabled people should behave.
This portrayal is often intended to elicit pity from abled audiences, which is also problematic.
In these portrayals, disability is not something to be proud of or identify with, only something to be suffered through.
Disabled character person does something relatively mundane and we all need to celebrate that. This is less common in writing, but happens in the real world when people do things like post pictures of disabled people at the gym captioned “What’s your excuse?”
This is condescending, and implies that anything disabled people are capable of, abled people are automatically capable of.
Makes it seem like it’s an incredible feat for a disabled person to accomplish tasks.
Uses people’s actual lives and actual disabilities as a reminder of “how good abled life is.”
The “Supercrip” stereotype is a specific kind of inspiration porn in which disabled people are shown to be capable of amazing things, “in spite of” their disability.
The Paralympics have been criticized for this, with people saying that advertisements and understandings of the Paralympics frame the athletes as inspiring not because they are talented or accomplished, but because their talents and accomplishments are seen as “so unlikely.”
Other examples include the way we discuss famous figures like Stephen Hawking, Alan Turing, or even Beethoven. Movies like The Theory of Everything and The Imitation Game frame the subjects’ diagnoses, whether actual or posited, as limitations that they had to miraculously break through in order to accomplish what they did. Discussions of Beethoven’s deafness focus on how incredible it was that he was able to overcome it and be a musician despite what is framed as a tragic acquisition of deafness.
The pity/heroism trap is a concise way of defining inspiration porn. If the media you’re creating or consuming inspires these emotions, and only these emotions, around disability, that is a representation that is centered on the feelings and perceptions of abled people. It’s reductive, it’s ableist, and it’s massively overdone.
Disabled Villains
To be clear, disabled people can and should be villains in fiction. The problem comes when disabled people are either objects of pity/saintly heroes, or villains, and there is no complexity to those representations. When there is so little disabled rep out there (less than 3.5% of characters in current media), having a disabled villain contributes to the othering of disability, as well as the idea that disability can make someone evil. There are also a few circumstances in which particular disabilities are used to represent evil, and I’ll talk about how that’s problematic. 
Mentally ill villains are colossally overdone, particularly given that mentally ill people are more likely to be the victims of violence than perpetrators of it.  This is true of all mental illness, including “”���scary””” things like personality disorders or disorders on the schizoaffective spectrum. Mental illness is stigmatized enough without media framing mentally ill people as inherently bad or more suspectible to evil. This prejudice is known as sanism.
Explicit fictional examples of this include the Joker, or Kevin Wendell Crumb in Split.
People can also be coded as mentally ill without it being explicitly stated, and that’s also problematic and sanist. In the Marvel movie Doctor Strange and the Multiverse of Madness, Wanda’s appearance and behavior are coded as mentally ill. This is used to make her “creepy.” Horror movies do this a lot - mental illness does not render someone creepy, and should not be used as a tool in this way.
Visible disability or difference to indicate evil is another common, incredibly offensive, and way overdone trope. This is mostly commonly done through facial difference, and the examples are endless. These portrayals equate disability or disfigurement with ugliness, and that ugliness with evil. It renders the disabled villain in question an outcast, undesirable, and uses their disability or difference to dehumanize these characters and separate them from others. This is incredibly prevalent and incredibly painful for people with visible disability or facial difference.
An example of visible disability indicating evil is Darth Vader’s prosthetics and vastly changed physical appearance that happen exactly in time with his switch to the dark side. In contrast, when Luke needs a prosthetic, it is lifelike and does not visually separate him from the rest of humanity/the light.
Dr. Who’s John Lumic is another example of the “Evil Cripple” trope.
Examples of facial difference indicating evil range from just about every James Bond movie, to Scar in the Lion King, Dr. Isabel Maru in Wonder Woman, Taskmaster in Black Widow, Captain Hook in Peter Pan, and even Doofenschmirtz-2 in Phineas and Ferb the Movie. Just because some of the portrayals are silly (looking at you, Phineas and Ferb) doesn’t make the coding of facially scarred villains any less hurtful.  
A slightly different, but related phenomenon I’ll include here is the idea of the disability con. This is when a character fakes a disability for personal gain. This represents disabled people as potential fakers, and advances the idea that disabled people get special privileges that abled people can and should co-opt for their own reasons. 
In The Usual Suspects, criminal mastermind Verbal Clint fakes disability to avoid suspicion and take advantage of others. In Arrested Development, a lawyer fakes blindness in order to gain the sympathy and pity of the jury.
In much more complex examples such as Sharp Objects, a mother with Munchausen by proxy fakes her daughter’s illness in order to receive attention and pity. Portrayals like this make Munchausen or MBP seem more common than it is, and introduce the idea that parents may be lying or coaching their children to lie about necessary medical treatment.
Disability as Morality
Sometimes, the disabled character themselves is a moral lesson, like Auggie in Wonder. Sheerly through existing, Auggie “teaches” his classmates about kindness, the evils of bullying, and not judging a book by its cover. This also fits well under inspiration porn. This is problematic, because the disabled character is defined in terms of how they advance the other characters’ morality and depth.
In the “Disabled for a Day” trope, an otherwise abled character experiences a temporary disability, learns a moral lesson, and is restored to full ability by the end of the episode/book/movie. Once again, disability is used as a plot device, rather than a complex experience, along with more permanent disability being rejected as impossible for heroes or main characters.
Examples include an episode of M*A*S*H where Hawkeye is temporarily blinded, an episode of Law and Order: SVU where Elliott Stabler is temporarily blinded, and an episode of Criminal Minds where Agent Hotchner experiences temporary hearing loss.
Real life examples include sensitivity trainings where participants are asked to wear a blindfold, headphones, or use a wheelchair for a given amount of time. This does not impart the lived experience of disability. It should not be used as a teaching tool. 
Disabled people as inherently pure. This is related to inspiration porn and disabled people as noble, but is different in that it is usually appears in combination with developmental, cognitive, or intellectual disabilities. These characters are framed as sweet, “simple,” and a reminder to other characters to be cheerful, happy, or grateful.
Examples include Forrest Gump, Rain Man, I Am Sam, and What’s Eating Gilbert Grape.
No matter what the stereotypes of a given diagnosis are (yes, I’m thinking of the automatic cheerfulness associated with Down Syndrome), disabled people have personalities. They are capable of being sad, angry, sarcastic, irritable, annoying - any number of things beyond good/sweet/pure. It is reductive to act otherwise.
Disability as Surreal
Less common than some of the others, but still worth thinking about!
Disabled characters are framed as mystical, magical, or other than human, a condition that is either created by or indicated through their disability status. This is especially common with little people.
“Disability superpower” is when a character compensates for, or is uniquely able to have a superpower because of, their disability. Common tropes include the Blind Seer, Blind Weapon Master, Genius Cripple and Super Wheel Chair.
Examples include Pam from Supernatural, Charles Xavier from X-Men, or the grandpa in Spy Kids.
Disability as Undesirable
Last and least favorite category here. Let’s go.
Disabled people as asexual or not sexually desirable. Disabled people can be asexual, obviously. When every portrayal is asexual, that’s a big problem. It frames disabled people as sexually undesirable or implies that it is impossible for people with disabilities to have rewarding, mutually satisfying sexual relationships.
Examples include The Fault in Our Stars or Artie in Glee.
Abandoned due to disability. Hate this trope. Often equates disability with weakness. Don’t want to talk about it. It’s all right there in the title. Don’t do it.
Examples: Quasimodo in Hunchback of Notre Dame, several kittens in the Warrior Cat series, several episodes of Law and Order: SVU, Bojack Horseman, and Vikings.
Discussed in 300 and Wolf of Wall Street.
Ancient cultures and animal nature are often cited as reasoning for this trope/practice. This is not founded in fact. Many ancient civilizations, including Sparta, cared for disabled people. Many animals care for disabled young. These examples should not be used to justify modern human society.
Disabled characters are ostracized for disability. Whether they act “““normal”““ or odd, characters with visible or merely detectable disabilities are treated differently.
Examples include pretty much every piece of media I’ve said so far. This is particularly prevalent for people with visible physical disabilities or neurodivergence. Also particularly prevalent for characters with albinism.
This is not necessarily an inaccurate portrayal - disabled people face a lot of discrimination and ableism. It is, however, very, very common.
Bury your disabled. What it says on the label.
Examples: Animorphs, Harry Potter and the Deathly Hallows, American Horror Story, Criminal Minds, Dr. Who, Star Trek, The Wire.
Mercy killing is a subtrope of the above but disgusting enough that it deserves its own aside. I may make a separate post about this at some point because this post is kind of exhausting and depressing me.
Examples: Me Before You, Killing Eve, Star Trek: The Next Generation, Of Mice and Men, and Million Dollar Baby.
Disability-negating superpowers imply that disability is undesirable by solving it supernaturally instead of actually portraying it, and giving their character powers instead.
Examples include (arguably) Toph from Avatar: the Last Airbender, Captain America: The First Avenger, The Legend of Korra, Dr. Strange, and Daredevil.
Overcoming disability portrays disability as a hindrance and something that can be defeated through technology and/or willpower.
Fictional examples include WALL-E, Kill Bill, The Goonies, The Dark Knight Trilogy, Heidi, The Secret Garden, The Inheritance Cycle, Agents of S.H.I.E.L.D, The Big Bang Theory, Dr. Strangelove, Sherlock, The Witcher.
Real life examples include videos of wheelchair users standing from their chair to walk down the aisle at a wedding, or d/Deaf children “hearing” for the first time through cochlear implants.
What Does This Mean for Your Writing?
First of all, congratulations for making it this far!
Now, as I have said again and again, I’m not going to tell you what to write. I’ll ask some questions to hopefully help guide your process.
What tropes might you be playing into when writing disabled characters? Why do you find these tropes compelling, or worth writing about? How prevalent are these tropes? How harmful are they? What messages do they send to actual disabled people?
Just because they are common tropes does not mean they are universally awful. Cool fantasy or futuristic workarounds are not necessarily bad rep. Showing the ugly realities of ableism is not necessarily bad rep. It’s just a very, very common representation of disability, and it’s worth thinking about why it’s so common, and why you’re writing it.
As always, conduct your own research, know your own characters and story, and make your own decisions. If you have questions, concerns, or comments, please hit me up! Add your own information! This is not monolithic whatsoever.
Happy writing!
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the-mountain-flower · 3 months
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A fantasy worldbuilding thing I made that would also make sense in Urban Fantasy & I might use it more often:
Context: One of my fantasy characters has a bag that can magically hold more than its physical volume on the inside (ik it's rlly common but that's bc it's damn convenient in fantasy settings & I have them exist in all of my fantasy worlds lol), and the character who has that bag is also an ambulatory wheelchair user who also uses a cane depending on what she needs. In a fantasy adventure setting, it made perfect sense that she can put these in her magic bag.
Then I noticed the difficulty that would be getting it through the bag's opening (especially for the wheelchair). So I made it so that she could shrink and enlarge her mobility aids for easy storage when she isn't using them (like shrinking smn to put in a bag of holding in D&D).
And I realized that would be AMAZING for an urban fantasy setting!! Is your ambulatory-mobility-aid-user-character travelling without collapsible/travel-size mobility aids? Or just going somewhere and worrying about needing a different kind of aid than they were using when they left? Magic shrink & enlarge, bring them all with you! Dealing with inaccessible architecture, getting the wheelchair over the turnstile will be much easier & less annoying. The big one that made me realize this would be perfect for urban fantasy: they wouldn't need to worry about airports fucking up their wheelchair (for those who don't know, traveling by plane with a wheelchair can be a nightmare bc it's very likely the staff will end up breaking the rules & therefore breaking the chair).
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rjalker · 9 months
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Let your characters be disabled without giving them a super power to "make up for it".
Your blind character does not have to have empathic powers or super hearing, so that you claim they "aren't really blind".
Your autistic character does not need to magically know how to read ancient rotting books that no one else can decipher through the power of....guessing? Inferring from context? And then pretending like this is magical and amazing.
Your characters with dyslexia do not need to be Super Duper Smart and so much better at memorizing music than other people and have people constantly tell them how Super Intelligent they are.
Your disabled characters do not need to be better at things than all of their abled peers to "make up for" the fact that they're disabled. And yes. These are all real examples of this obnoxious shit from the same author. [Facepalm].
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concerningwolves · 2 months
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Hi! I don't know if you do fandom related things or not, so idk how much you know about a series called The Owl House (if not, then I'm terribly sorry for wasting your time sending you this ask)
I'm writing a TOH oc who is a half-witch that's supposed to be autistic, have underdeveloped magic, as well as being able to perform two types of magic (one related to illusions and another based off of controlling anything related to animals)
Also, just to clarify, by "underdeveloped magic", I'm mainly thinking about that because my character is supposed to be half witch and half grimwalker, so I was thinking of possibly making her have an organ that witches have in the show where they produce magic from, but maybe having it produce weaker magic in comparison to other kids her grade (she's about 12 years old), but idk if all of this could relate to any real disabilities that exist
Are there things that I should look into to better understand what I can do to have this make more sense? If so, what exactly do you think would best fit for this character?
Hi! No need to apologise; it's always worth asking :]
All I know about TOH has been gleaned through Tumblr osmosis, so I can't really comment on anything specifically related to the series' storyworld/lore. Regarding the autistic representation, it sounds like you've got a plausible in-world reason for your character's magic to be weaker that isn't related to her being autistic, which is good.
In the case of a fantasy disability like this (and I think it's absolutely fair to call it a disability, even if there's no real-world parallel), it's always good to ask yourself questions like:
How does this affect my character's day to day life? – i.e., are there activities which require magic that she can't do as easily?
What sort of accommodations would those effects require? – in what ways can other people make things easier or more accessible for your character?
What kind of social awareness is there of the disability (and of disability in general)? – disabilities and disabled people don't exist in a vacuum, and there has always been awareness and varying levels of acceptance of disabilities within societies. Thinking about this will inform how your character is treated, and how they feel about their own disability.
(and on a similar note: Do institutional and systemic ableism exist? If not, why? How has your society gotten around that, and how do they embrace and support disabled existence?)
Is this character the only person with the disability? Are there other disabled characters at all? – There's a lot of solidarity between disabled communities and I always like to encourage authors to consider this in their worldbuilding. Where quick and global communication exists (like the internet or some fantasy/sci-fi equivalent, or some other magical means of communication), people like to connect with people like them. Even if someone irl has a rare condition which makes it difficult for them to find or access their community, there will still be value in more general support groups (either online or in person), because of the way some disabled experiences intersect and overlap.
How does your character feel about their disability? – it's important to think about this in relation to all the other factors above, instead of assuming that internalised ableism is the norm. How a person feels about their disability if often complex, and can fluctuate based on different situations – e.g., a character might feel proud of the things they've learned from having to work with their disability, but still struggle with feeling alienated because of their disability. (This is doubly true when you're multiply disabled, or have something like autism which can have positive, negative and neutral aspects).
Hopefully this will give you something to work with, even if I couldn't help with TOH-specific stuff.
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