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Kourtney, I love the person that you have become. You are beautiful, have an open mind, kind heart, speak from your heart, inclusive spirit, old soul for a 10yo, and bit of an unfiltered mouth. The world is yours and I can’t wait to see what you do with it, my love! #kourtneyleia #firstborn https://www.instagram.com/p/CdlE8vpLpD1/?igshid=NGJjMDIxMWI=

#kourtneyleia #firstborn

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Every day I’m feeling stronger & stronger. I finally had a port placed on Thursday due to my small veins not being able to be accessed any longer and forming blood clots in both arms. My water retention is still crazy hip down but my symptoms are slowly improving daily and that’s what my focus is on. We’re all trying our best to get through this by leaning on each other & I’m extremely grateful for our community. Thank you everyone for sending light our way.. it’s felt, accepted, and appreciated more than @myfriendscallmelu and I can say ✨💜 #teenytinytinavslupus #fwiwy #lupusawareness #lupus #lupusnephritis (at Sharp Memorial Hospital) https://www.instagram.com/p/CdTEy-NLtoL/?igshid=NGJjMDIxMWI=

#teenytinytinavslupus #fwiwy #lupusawareness #lupus #lupusnephritis

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An autoimmune disease is excruciating- it’s hard for the outside world to understand because my symptoms aren’t physical so a lot of the times, I question my own symptoms in hopes that it’ll pass. I felt great a month ago but a lupus flare hits and just like that, life is in shambles. I know I will pick myself up but for now it’s okay to fall apart. It’s okay to break down during medication time, in the wee hours of the night as my children sleep, when my rheumatologist prescribes me five additional medications then I drop and spill my entire kit. It’s going to be okay because I have my husband who will hold me and spend the next twenty mins helping me sort from start to finish, I have my kids who curl up beside me, my mom who is in constant contact, and a support system that uplifts me. But fuck, I’m struggling with being furious at the universe about having lupus as if something I did in my lifetime led to this. I know I can still be strong and feel weak simultaneously but I hate this fucking disease and how it keeps taking the floor out from under #lupus #lupusawareness #lupusaurusrex https://www.instagram.com/p/Cc5de6mrTr-U4Re9NtJz1xGm2bXFqzKmw0aqh80/?igshid=NGJjMDIxMWI=

#lupus #lupusawareness #lupusaurusrex

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#MindfullyRobotic was our #preschooltheme 🤖💟 We focused on yoga, actions of being kind, and built robots together to focus on teamwork. It was also Spirit Week so we had our “Dress to Impress” picture day and had a school dance with karaoke! It was quite the party 🎉 Our zoomers tried out flexible seating and mutually agreed they like it better on the ground 😂 We’re trying hard at #InfinityKidsAcademy to keep teaching valuable lessons while being taught by our children what’s the most important which is laughter, silliness, and friendship #familychildcare @desireenatasha @kristina_j0y (at Infinity Kids Academy) https://www.instagram.com/p/CFmfwNrA8Xp/?igshid=14jkl7n5tyi26

#mindfullyrobotic #preschooltheme #infinitykidsacademy #familychildcare

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I know for my daughter, soccer has always been her outlet and she gives 💯 at games, she needs this safe and outdoor outlet. They have been social distancing practicing for the past couple months but they need more, they deserve more. San Diego Soccer Club was also part of a study and it showed that not one transmission happened the entire time we’ve been practicing. COVID-19 is serious but so is our children’s well-being, mentally and physically. We’re asking Governor Newsom to #LETUSPLAY please 🙏🏽😂⚽️🥅

#letusplay #sandiegosoccerclub #youthsports #sandiego #youthclubsoccer #kourtneyleia #california governor gavin newsom #california #youthsoccer #soccer #sdsc #covid 19 #pandemicandsports

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So happy to read that the Lupus Foundation of America was rewarded a huge grant! As Raymond, Kourtney, Rowen, and I prepare for our Walk to End Lupus, I have some updates on my current battle.

I started seeing a nephrologist and she advised me that I do have Lupus nephritis now which means it’s affecting my kidney function. I did my kidney biopsy and 3 infusions of 1000mg of prednisone last week and just got my results back from my biopsy. Unfortunately the Lupus nephritis has affected more than 50% of my left kidney function and they also realized there’s protein leaking into my urine and blood. The next step is an extensive blood and urine panel this week and rest(impossible during a medically induced manic episode). Monday it’s the start of back to back doctors as we take the next step. My nephrologist did inform me that a round of chemo infusions will be necessary dependent on the results of my biopsy and that I will also be seeing an oncologist on Monday.

I had my moments of despair and tears asking the universe why in the world this is happening? How did things turn so quickly for me? The truth is I should have been listening more intently to my body. With an autoimmune disease, no one can physically SEE something is wrong so it’s natural not to complain about your symptoms but I could feel it from the aches in my joints, to the swelling in my body, and the loss of my hair. I have a bad habit of pushing medical issues aside and this time, it almost cost me my life. The honest truth is that 3 weeks ago, I felt very close to death. I could barely stay awake and felt so weak that I simply didn’t think I would make it. My first thoughts were of course my family.

Being a mother, a parent, instantly makes you superior- a hero. You have this sudden realization that you can AND WILL do anything in your power to keep your family safe. Having Kourtney at 23 years old changed me in so many ways. At the time I was still trying to find my place in the world but all I knew is that I wanted to do better, be better in every aspect and crossroad of life. I would consciously stop and ask myself, “if Kourts was in this very position, how would I feel? What do I need to do?“ She pushed me to make decisions that would benefit our lives from the day she was born. But with as much power comes with being a superhero parent, you quickly realize they’re also your kryptonite. I get my strength from my kids and Raymond but I want to protect them so much that they also become my weakness. Although I know no matter what, my foundation and community will always be there for me and my family. I’m so utterly grateful for all the love, support, gestures, and kind words our family and friends have sent me and Raymond when we needed it most. Now it’s time to fight and overcome this invisible but dangerous disease and I will. I started a plant based diet a couple weeks ago, I started incorporating a daily routine of natural and holistic immune boosting plan and I feel better. Some days are better than others so on the bad days, I take the passenger seat and just let it ride. On my good days, I spend time with my family as much as possible and try to get everything done that I can. It’s been a straight up struggle and although I have numerous moments when I can’t believe this is my life right now, I have to have faith that this will only make me stronger.

The silver lining is now I won’t take my time on this earth for granted and I hope you won’t either. Live your life like it’s going to end tomorrow. Surround yourself with only people who help you rise above, don’t bother with the bullshit- just let it go because the petty stuff isn’t worth it, don’t do things you don’t want to because your time is more precious than anything else, and enjoy your freakin life.

Living, learning, & loving infinitely,

Teeny Tiny TINA ♾💟🦖

#lupusaurusrex #fucklupus #autoimmunewarrior Lupus Foundation of America #livingwithlupus

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#lupusaurusrex

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Always stay positive!... even in the midst of a worldwide pandemic #covid19 -even when mother nature is punishing us for not taking better care of her #climatestrike -during a US presidential election year where our president divided our country more than ever imagined #bidenharris2020 during a time of #inequality for colored #blacklivesmatter - and during a time when women still get paid less than a man in the same job #feminists - as our innocent youth are being kidnapped and trafficked #ourrescue -STILL PEOPLE, stay positive! #teenytinytinainfinitely https://www.instagram.com/p/CFelNlbn9Gm/?igshid=1qnmbv5m52kbk

#covid19 #climatestrike #bidenharris2020 #inequality #blacklivesmatter #feminists #ourrescue #teenytinytinainfinitely

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Past couple weeks have been a blur but these are some of the things in my life that are pushing me through 💟🦖♾🏈 🤍💙⚡️ #lupusaurusrex #infinitykidsacademy (at Infinity Kids Academy) https://www.instagram.com/p/CFb1CZ3ABAr/?igshid=p64hbykwady4

#lupusaurusrex #infinitykidsacademy

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that jamba love

I am so incredibly blessed with the most amazing man. When Raymond & I refound our way back to each other, I immediately knew I was all in.

For me, it was an instant connection but then again, it always was. Raymond and I grew up in opposing high schools but we had mutual friends/acquaintances. In high school my senior year, I took a ROP class so I was able to leave during lunch to work in the customer service industry. I applied at Jamba Juice in Sorrento Valley and it was the best decision I ever made because it led me to him.

After years of flirting, dragging my ride or die with me on all our hangouts, grabbing way too many carribean passions to use as an excuse to see him (even after I had already stopped working at Jamba Juice)- we met up with our old Jamba Crew at Callahans. Callahans was a local OG Mira Mesa Brew restaurant that was known for their Wing Night Wednesdays and blueberry wheat beer.

As my excitement brewed in my stomach at the instant sight of Raymond, a smile was plastered on my face as our eyes connected. He smiled at me as he gave everyone a warm hug hello and when he placed his two feet in front of me, I looked at him preparing my racing heartbeat.. and he simply patted my back. 🤦🏽‍♀️ We laughed and I knew we were right back to where we left off. 💥

#FWIWY #delmar #harlandbeer #love #jambajuice #jambalove #callahans

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Since prednisone is flowing through my veins so heavily right now causing insomnia, i will take this moment to update my family & friends on my current battle of SLE Lupus.

Unfortunately last week i recently found out that after being diagnosed with lupus at 17 years old, 15 years ago this May (happy anniversary to me 😅)- my lupus has finally affected my kidneys, my lungs, and my blood.

I had to take a week and sit with it, digest it- but yet i still feel like i’m choking on this newest diagnosis. yes, it’s an extremely lot to take in for raymond and i to try and understand why the sudden turn, why is this happening and yes, i break down at random moments throughout the day when i let the dark, cloudy thoughts of the battle overtake my mind.

Then i spray and roll lavender all over my body and head as i make myself take deep, meaningful breaths.. i rub peppermint for my chest to fight the pluerisy and let’s be honest, the panic attack- then i take my youthlab radiance roller all over my forehead, temple, head, face until I calm down. & guess what? it works!

I was never a ✨essential oils💫 type of gal before. then i dabbled with a puny diffuser for my family child care, Infinity Kids Academy to diffuse on-guard during flu season. i definitely noticed a slight difference so if you know me- i got a doTERRA Essential Oils USA membership and now, I’M A BELIEVERRRR! *this is where you start singing justin beiber*

But seriously, essential oils are a natural way for me to calm the f*** down when all my specialists doctors are trying to piece me back together but by prescribing me more medication to ram down my throat. did i mention these new medications have side effects that’ll basically kill me faster? great idea, docs. hello, american healthcare. . . 🤦🏽‍♀️ and i haven’t yet succumbed to their evil ways (besides prednisone through an IV because it was life or death.. literally ☠️) and i do feel better- at least mentally which is all you can really hope for. let your mind guide your body- your energy, organs, your blood, your being, all of it... at least at this point in my battle, i can say that i hope and pray it’s all connected. 🤞🏾🙏🏽

Anywhoo i hope you enjoyed my little essential oils plug. i’m shameless when i’m on prednisone and when the manic behavior is flowing, i have no filter and got survival/money on my mind. a girls gotta pay her medical bills, pay extra staffing because i don’t have medical leave or disability, and of course, my #doterra membership! so yes, i’ll be charging others for shopping and shipping 🙂🛒 i have a kind soul but i’m also an entrepreneur. kourtney and rowen gotta eat, need a college fund, Netflix account, i’d like to stop listening to ads on soundcloud and amazon music, you understand! so i got zelle & venmo (@kristinalu) take your pick! 🤣 #lupusaurusrex

Back to the seriousness of this illness that’s overtaking my body so quickly and dangerously, i realized slow jams, my family and friends, humor, & hope are the only things that will get me through this without completely losing my mind. just trying to focus on the positive things in life and getting awareness of this autoimmune disease is at the top of my list. share my story through your words, repost, comment, like it, message me, research, ANYTHING! please help me find a cure for lupus. 💜🦖💪🏽

https://support.lupus.org/site/TR;jsessionid=00000000.app30108b?px=2495690&fr_id=1581&pg=personal&NONCE_TOKEN=B9499DBFCA556516AB52EC2AD7A9958A

#Spotify

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⚡️ ⚡️ ⚡️ SUPER CHARGERRRRRS! 🏈 💛 💙 CHARGE!!!! the season may look a lot different but i’m ready!! i need something positive to channel my energy into.. what better than football season?! 👊🏽 #chargers #nflfootball #accurateAFfootballseasonpic #chargerswhiteout #morelikeblackout #FWIWY #boltup #losangeleschargers @chargers (at SoFi Stadium)
https://www.instagram.com/p/CFE9TXhgbnS/?igshid=1ulclm8wwmi6l

#chargers #nflfootball #boltup #losangeleschargers