Missy or Melissa, President of the Mothers of Ginormous Children Club, Rare Disease Survivor (IIH), Weirdo, Theatre Person, Lite Geek, with a huge Orphan Black Fangirl thrown in.
People with low spoons, someone just recommended this cookbook to me, so I thought I'd pass it on.
I always look at cookbooks for people who have no energy/time to do elaborate meal preparations, and roll my eyes. Like, you want me to stay on my feet for long enough to prepare 15 different ingredients from scratch, and use 5 different pots and pans, when I have chronic fatigue and no dishwasher?
These people seem to get it, though. It's very simple in places. It's basically the cookbook for people who think, 'I'm really bored of those same five low-spoons meals I eat, but I can't think of anything else to cook that won't exhaust me'.
Disability will have you thinking shit like “I’m not even that disabled. I can manage as long as I limit myself to very specific careers, never go shopping for more than an hour or two at a time, keep my plans open so I can cancel and stay in if need be, and only go out a few nights per week at the most”
I assure you that I am a fully functional human with a backstory and everything.
Yesterday, in r/losangeles, someone asked folks to share their weirdest celebrity encounter. In response to that, someone asked me to flip the thread and share my weirdest fan encounter.
Yesterday, in r/losangeles, someone asked folks to share their weirdest celebrity encounter. This comes up about every three months, and regular posters in that subreddit know that it’s only a matter of time before the entire thread is horrifying, shocking, come-on-that-never-happened tales starring Andy Dick. Like, every single time. And the stories are always different, though basically the…
Just in case nobody's heard of this before... this is the pain cycle. The idea is that chronic pain feeds on itself and starts a vicious cycle.
You hurt, and it's distressing and scary and you want to avoid hurting yourself more, so you take it easy for a while until you feel better, but during that time alarm bells are still going off and your body is screaming at you something wrong and you're losing strength and flexibility, so you get more nervous and more injury prone and eventually you fall or something and hurt yourself more. Which causes more pain and more anxiety because what you feared was true, you got hurt again and your body is screaming at you that something is wrong, so you decide to rest and take it easy until you're feeling better...
The way I work on keeping myself out of that cycle is trying to give myself other feelings beyond just pain and try to reconnect to my body in a positive way. But you have to start slow, I started exercise just doing a loop around my house and took at least 6 months to take it to three miles. Now I can casually run 3 or 4 miles in my chair, and I get to feel the sun on my face and wind in my hair and my arm muscles working hard to move me.
reminder to people with chronic pain: just because you’ve gotten used to your disability doesn’t mean you are suddenly a faker and don’t need all the help you’re getting. Your condition is still there, you’ve just adapted for survival, you’re not a faker
6K notes ·
View notes
Statistics
We looked inside some of the posts by
missy9004
and here's what we found interesting.