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the-autisticats · 4 years

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What is autistic masking, and how does it affect mental health?

This is a common topic of discussion in the autistic community, but I haven’t ever written a post specifically about it before. So, here it is: a thorough explanation of what masking is, examples of it, what causes it, and why it can be harmful but sometimes necessary.

Masking is when autistic people disguise (mask) our autistic traits & behaviors, by replacing them with more “socially acceptable” (read: neurotypical) mannerisms and actions. Usually, we do this to fit into neurotypical social situations, including our schools and workplaces. Masking can require careful internal thought, and often results in a state of heightened vigilance and awareness of one’s body and how it is being perceived by others.

Autistic people are taught from a young age, whether by our families or by society at large, that the way we interact with the world is wrong. We are told that we need to look people in the eyes, smile and nod when spoken to by authority figures, sit still, and have “quiet hands.” All this, despite the fact that most of us find eye contact overwhelming, have to stim to meet our sensory needs, and find it easiest to communicate in unconventional ways.

We are taught that in order to be accepted by our peers, we have to mimic their mannerisms and speech patterns. We have to learn to fit in. Many of us try this, but it’s exhausting work. Things that seem to come naturally to other people are a constant, conscious effort on our part.

The absolute exhaustion and painful overload that happens when we mask can lead to awful meltdowns, and even long-term autistic burnout. When I was in kindergarten and elementary school, I masked all day. I didn’t let myself stim. I was a model student. I smiled and made eye contact with everyone. And when I got home, almost every day, I had massive meltdowns. Screaming, sobbing, violent meltdowns. Many of them lasted for 30 to 40 minutes, but some went on for 3 hours.

It was these meltdowns that led my parents to seek an autism diagnosis for me, which I received at 8 years old, after years of suffering from the effects of masking my autistic traits at school. Because I didn’t know I was autistic, I thought I should be acting like the neurotypical people around me. I wanted to please my teachers, and I wanted to make friends. I was extremely sensitive to criticism from teachers, so I did everything in my power to avoid it.

I distinctly remember seeing fellow autistic classmates with higher support needs wearing ear defenders, and wishing I had my own pair that I could wear to school. I wished that I could stim like them. I wished that I could have sensory breaks like them. But I couldn’t, because I wasn’t diagnosed, and besides: when you’re deemed “high functioning,” you’re expected to mask no matter what the cost is to your wellbeing.

My ability to mask, coupled with my extremely high measurable intelligence, was cause for me to be diagnosed with “mild, high functioning Aspergers.” Nevermind the fact that I still couldn’t bathe myself at 9 years old, that I had to be restrained by my parents for them to brush my teeth, or the fact that I continued to have meltdowns so violent that I broke several doors.

Because I was labeled “high functioning,” I was expected to mask my autistic traits at school and at home. But once I discovered that I was autistic, I rebelled against that mandate. At 9 years old, I started stimming more, exploring more comfortable speech patterns, and reconnecting with my senses. My parents told me to “stop acting more autistic.” But I was just rediscovering parts of myself I had lost.

Now that I’m older, I know myself. There are certain circumstances where I know that masking is a good idea, because otherwise I won’t be able to obtain certain educational or job opportunities. It’s an unfortunate reality that autistic mannerisms and behaviors are still seen as undesirable and unwanted in most professional settings.

So when I’m in those settings, I unmask as much as I can, when I can. I take vestibular stimming breaks in the bathroom. I vocal stim when other people aren’t around. I play with the rings on my hands.

But it’s still difficult. It’s still exhausting. It still takes a toll on me. I have to be aware of my posture, the position of my legs, the movements of my arms and hands, the nature of my facial expressions, the social appropriateness of my words, and more.

And that is why, more than anything, I want society to become more aware and accepting of autistic behavior and body language.

I want to live in a world where I can jump and flap and squeal in public, and instead of staring at me, people laugh and smile with joy. I want to live in a world where adults wearing ear defenders are taken seriously and treated with respect. I want to live in a world where autistic people of color are not at risk of being shot and killed for stimming or having meltdowns in public.

Unmasking will look different for everyone. But I want all of you to know that each public act of autistic expression is revolutionary. I want you to know that flapping your hands in the supermarket is a battle cry. I want you to know that wearing ear defenders in public is to wear a badge of honor. I want you to know that defying the rules in a world not built for you, standing your ground and existing despite attempts to make you disappear, is the bravest thing a person can do. We are warriors, and one day we will win. Remember that.

~Eden🐢

#actually autistic #autism acceptance #autism awareness #autism #autistic #masking #unmasking #autistic masking

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autistic-science-cryptid · 6 years

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Introduction

I am an autistic person, as I’m sure you know. And, as the title suggests, while I am not literally a cryptid, I might as well be a cryptid, at least according to autism researchers, for a number of reasons. You see, for starters,I was diagnosed with autism in the late 80s as a baby, and I mean a literal baby, just over a year old, because my mom (who later realized she was autistic and self-diagnosed as a result of watching me grow) talked to the doctors and was like “Oh by the way, I noticed that other babies look at me but my kid does not. Hmmm. I wonder why that is”. That’s the first cryptid point right there - researchers are still looking for ways to diagnose autistic kids at age 2 (so they can push that hellish ABA therapy on them - boooo) even though like two seconds of observation would enable them to see who is autistic much earlier. Which is probably a good thing if that kid has the type of parents who would push them into ABA. Good thing my parents didn’t buy into that crap, no matter how much later experience with abusive assholes convinced me they did or it was only a matter of time before they did.

Secondly, since I didn’t know how to please IQ testers when I was really little and had not been pushed through official ABA by my parents, the “experts” claimed I was (and this is their word, not mine) “retarded”. Which, as we know, is a slur, but was a medical term in use back then, before they said “intellectually disabled”. Fine thing to put on a baby. And here’s the thing: No intellectually disabled person can write the way I’m doing right now. So one more cryptid point - apparently the real me didn’t exist to them then, either.

Thirdly, when I was really little, a dog (whose owner foolishly claimed he “loves kids”) got its mouth around my throat, and my autistic nervous response of freezing up in the face of that type of danger is the only reason I’m not six feet under right now, as pretty much any neurotypical kid would have been when confronted with a situation like that. So one more cryptid point for me. Especially since I always have and still love dogs, and if anything, that incident had me firmly convinced that dogs are not mindless killing machines, because if they were, I’d be dead. Whereas a response I had to a teacher ducking me underwater and giving me fake praise was more normal - it made me afraid of the water, and only a teacher from the YMCA cured me of that fear, whereas the special ed middle school I went to, which had a pool, only punished me for that fear. I’ll get back to special ed later.

Yay “errorless learning! (/sarcasm)

I also used to stack a little table on top of a chair when I was a kid to reach stuff because for some reason, my dad always put Cheerios on top of a really high wardrobe (Gee, thanks) And I never fell because I was careful climbing that precarious structure. One more cryptid point for me - kids normally aren’t able to do that.

I am also a person who was in private Special Ed schools from the time I was like ten months old throughout high school, and my middle and high school in particular was emotionally abusive to me. While they never officially claimed to use ABA, they did - if it walks like ABA, talks like ABA, and quacks like ABA, it is ABA no matter what you call it. And really, it’s quite weaselly presenting your core discipline method as like a fun extra for your students to earn (which I found out on their website years later). It’s especially weaselly given that this method was the exact method used to punish me for not swimming a length of the school’s pool due to the fear of the water (and especially the deep end) that I mentioned earlier, a fear that wasn’t even as difficult to solve as many other hydrophobia cases, so of course a Y teacher was able to fix it. Throughout that time, but particularly during middle school years, I tried multiple different little schemes (not adult-level schemes, kid-sized ones) to try to be a more successful kid (so yes, I do sympathize with Pa Ingalls, even as I recognize that it is far more problematic for him to do that than for kid me to because he had several people to look out for and I had zero). That’s another cryptid point - usually you see that kind of behavior pattern from grown men, not tween girls.

As an extra bonus, the special ed high school I went to let me into their college program the first year, one where you take college courses for credit, and I got an A in that course. Nevertheless, my school had set me up to fail that - they had a lady teacher sit next to me, one who was entitled as fuck. This teacher whined about her job to us, and also bragged at one point about how Tom Cruise called her and was polite to her. I mean, hello? Tom Cruise is a Scientologist, and assuming that teacher wasn’t lying, the only reason Tom Cruise would call some random teacher is to recruit her into Scientology. But of course, that teacher was so full of herself that she could not see that. This teacher also, when confronted, said “I have other kids to worry about”. Nevermind that I was the only student from that special ed program that she was sitting next to. She also allowed me to work on a project alone instead of in a group because of course I was going to take that option when they offered it (even though I am perfectly capable of working on group projects). But them allowing me that option was a setup.

That, combined with talking to myself and maybe poor grooming was what they used as an excuse to kick me out of that program. Though they never told me about poor grooming as a reason, and it was usually my parents they hid things from, so I’m not sure poor grooming was what they were primarily concerned with. Anyhoo, it seems as though talking to myself was enough to get me kicked out of that program in spite of getting an A, with the teachers literally laughing like bullies at my parents as they told my parents the news, and furthermore, they recommended me for VESID, which was really just recommending that I live in a sheltered workshop (which I would have shot myself in the foot in - I am a fast worker at certain tasks, and had my parents agreed to the sheltered workshop placement, I would have given the people my best performance, and ended up getting paid less than minimum wage, and worse, they would never let me go because they would be using me to pick up the slack for other workers and would find all sorts of excuses not to let me move on).

So the A alone may as well be a cryptid point. As is my using NYC public transportation all by myself - those fuckheads claimed I couldn’t travel independently, even though I had been using the subway all by my lonesome to get to the work experience programs I did the last year (in former years, I had gone to work experience stints on the bus). So, pathetic as it may seem, my ability to use the subway/bus all by my lonesome is another cryptid point.

I also get a few more cryptid points for currently studying animal behavior and cognition in grad school and working on a Master’s thesis (which I won’t talk about so, again, as not to dox myself). Let me explain.

First of all, in spite of being kicked out of that program, the high school let me graduate, and the way they described me was literally how intellectually disabled people are described. And, while intellectually disabled people are themselves severely underestimated, they certainly are not going to be in graduate school working on a Master’s thesis in animal behavior and cognition, because the scientific papers alone would be cognitively inaccessible to them - even the lay version of scientific papers might not be cognitively accessible to an intellectually disabled person. So, according to that logic, I should not even be where I am right now.

Furthermore, some of the top people at that school are ableist as fuck, and totally champion clicker training, both for animals (which is iffy in and of itself, especially as a general behavior training for highly social and compliant species like dogs) and for, you guessed it, autistic people. They totally support ABA “therapy” as well (and yes, they support electrically shocking kids as punishment and claim it is less cruel than either medicating or restraining kids who self-injure, which is bullshit and completely dances around the fact that kids at the Judge Rotenberg Center get shocked for minor things) and they totally gloss over some pretty alarming signs. They, of course, claim I am totally high-functioning with no issues whatsoever, so to them, the side of me that has meltdowns and occasionally self-injures is also a cryptid, since apparently autistic people who can get a Master’s degree can’t have meltdowns. Even though I do get those from time to time. So one more cryptid point for meltdowns.

This is a random list of talents and abilities I have (just those, if you don’t feel like reading a list of talents, you can always skip that part)

I can do a perfect kitty meow (seriously, you would think there is a cat in there if you were in the room when I did it). And I can also stim (god, I wish autocorrect would use that as an actual word) by rhythmically tossing a ball back and forth without looking, and I can also produce songs simply by clicking my tongue. Yes, that’s a thing, although I’ve never seen anyone else do it. Believe me or not if you wish, but I’m not about to dox myself by putting up a video, especially since I don’t want to be blacklisted as a result of smear campaigns by ableist researchers. Three cryptid points right there. Four if you count me teaching myself some sort of impromptu gymnastics move at one point (well below Olympic level - it wouldn’t even qualify for a low-level gymnastics competition)- I have no idea what the hell that move looks like or what to call it. I only know how it feels, so don’t ask.

Five cryptid points if you count the fact that on occasion the neuronal electricity from my hand jumps out and “pushes” a computer button before I even touch it - it’s not really a reliably controllable act, but it is a weird quirk I have, and that I share with my mom. The only reason that isn’t a problem is because it only seems to “push” a few types of buttons and coincides only with my hand approaching the button, never before that, which is how I know it’s nerve electricity and not a glitch. If you think that’s woo, don’t follow me - I never claimed to be able to teach anyone how to do that or to identify whether someone has that ability (unless they tell me and don't falsely claim to be able to control it only to show no such ability), and it’s not like I can sell that quirk for money, either. And I can’t control it anywhere near reliably enough to prove it scientifically, either, which is probably a big reason why abilities like that (along with telepathy, which I have only ever heard of in real life, mostly not from me but from others I know, as being a random, uncontrollable occurrence or else, as in one case, so laughably pathetic that pretty much any scientific test for telepathy will never detect said ability) were never officially found, so don’t hold your breath waiting for that kind of thing.

One more talent I have is this: after seeing Orlando Bloom as Legolas (I’m aroace, so I don’t have a crush on him and don’t get any ideas) do a catlike leap onto a rock, I tried that same move and got it right on the first try, even though I had read he found it difficult to do. But then again, he’s a foot taller than me, and he has an acquired disability from foolishly walking, sober, onto a thin piece of metal that could not support his weight, and falling three stories, so maybe it’s a cryptid point, maybe not, because being a foot shorter than the guy you see doing a catlike balance move would make it pretty easy to out-cat him any day. Especially since I would never make the kind of mistake he did, because from what I can gather, Orlando Bloom is a pretty cocksure guy (kind of like Legolas, really, personality wise - too bad they made him play what seemed to be an entirely different character than the one in the book who is probably more like Orlando Bloom than the Legolas Orlando Bloom played), and I am not cocksure. Obviously not literally, because I am cis female, and not metaphorically, either.

#emotional abuse #abuse #child abuse #dangerous animals #dangerous dogs #aba #actuallyautistic #special ed #special education #judge rotenberg center #jrc #tongue-in-cheek #but the story is true #not fictionalized

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