Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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i love spock with cats just like everyone and i don’t know how much y’all know about cat body language but i felt this would be important to share
this cat is extremely happy (understandable), she’s slow blinking (sign that she’s content/comfortable) and even making biscuits a little bit (the way she clenched her paws like she’s kneading, another sign of comfort/that she trusts the person she’s with)
and i can’t find any other clips but you can tell the whole episode that the cat actor is just so excited to be there
anyways that wasn’t really important i just think it’s nice
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THOUGHT GAINED: INFERNAL ENGINES
PROBLEM
The world is ending. You know it, your neighbor knows it, the dealer knows it, the jailer knows it, the king and all his men know it. All one has to do is look around to see it— the future is curdling into something pale and incorporeal. The infernal machine that is this stupid world is going to blow, sooner rather than later. So what are you doing? Why are you still here? Why is anyone still here?
SOLUTION
You are doing the only thing worth doing. You are living. *Why,* you ask? Try and remember now. Remember your mother’s hand on your shoulder. Remember the taste of a fresh catch. Remember the times when you were kind to the dogs in the valley and they did not bare their teeth. Remember the weight of a child on your shoulders. Remember the stars throwing their light against the wall of sodium and smog. Remember singing until your throat was raw. Remember crying just as loudly and publicly, and the gentleness with which someone opened your curled fist and pressed a handkerchief into your palm. Crying, laughing, running, eating, screaming, haunting, loving, fighting, fighting, fighting. The fight fuels you, and you fuel the fight. You run yourself ragged just for a chance to keep running. You never stop. You cannot stop. The world depends on it. *You* are the infernal engine. You are the world. And, simply put: you want to live.
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Consider this: ghosts are actually exactly what the Fentons think they are.
They're snapshots of a longing so strong, unfinished business so deep it reaches out beyond life. Lingers just a bit longer. And if it happens to meet a dense cloud of ectoplasm (invisible to the naked eye, but omnipresent even in the mortal realm), it coalesces. The ectoplasm fits into the shape of it. Which, when the desire is strong enough, it's got a rough idea of its self-image. This tends to mean a more humanoid figure, though it's more often warped in some way–a self-reflection, skewed by said desire. The warping varies on the dead soul’s perception of themselves, the intensity of their desire, how much time passed after death, and how much ectoplasm was present.
In short… no matter how “normal" a ghost looks or acts, it really, truly isn't human. It's animated ectoplasm with a single goal: an obsession. Nothing else. They're more akin to plants than animals, following a single drive with no emotion. They react to stimuli, recognize threats (including other ghosts), and can even imitate human speech and mannerisms to obtain fulfillment of their obsession.
Not “evil" by any stretch, but they're entirely driven by instinct. A tree doesn't pause to consider the rocks it breaks with its roots. A cordyceps doesn't torture its host for fun, or kill with malice. It just does. It follows code in its DNA to survive and multiply–And ghosts just follow the code in its ectoplasm to fulfill its obsession. The more powerful a ghost, the better it's able to overcome obstacles preventing this–whether through brute force, or manipulation. This power is always directly proportional to the amount of ectoplasm present at the time of formation, and how much time passed since death.
What then, does this mean for Danny? Danny, who's previously come to the conclusion that he's only half-ghost, which surely explains how he retained his mind? His independent thoughts and emotions?
What does this mean for Phantom, who experienced an entire world’s worth of ectoplasm condensed as a singularity, at the exact time of his death? Whose strength only grows and begins to exceed every limit they previously thought possible?
If a ghost was as strong as him… could it mimic a human perfectly? Down to a molecular level?
Could it, in its desire to fill an obsession… trick its own fake mind into thinking it was still human? Or half-ghost?
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