#and it felt like it was about more than just day's disability

[leidensygdom]

Ok, I'm gonna start a post idea I had been pondering. If you're either mentally or physically disabled and you have opinions about representation, this is the thread for you!

So, I've been seeing more people trying to tackle the topic of autism in their stories, but I've felt some of it tries to woobify a bit what is to live with autism, or just focus on the more socially acceptable quirks of it. And as someone with autism/ADHD (was suspected of it for most of my life, got it finally diagnosed by my therapist (who specializes in autism and ADHD) last year), sometimes I'd like for people to acknowledge the more unsavoury parts of it, the weird quirks, etc.

So, this post is going to be about that- If you wanna help people understand how your disability/neurodivergency affects your life, feel free to add to it! Just mention what do you have (no need for a full list, just what you consider relevant to the post) and some experiences, quirks, anecdotes or such that you think that are not often seen in stories or media, and that you consider an important part of it. They don't need to be huge things! I encourage people to share just whatever they feel comfortable. My list is gonna be a mix of stuff, but yours can be very different. Let me start!

Clothes and how they feel was surprisingly one of the most disruptive parts of my autism. As a kid, if I was forced to wear something that caused me some bad texture/sensitivity issues, it would significantly affect my behaviour and performance. It took me many years to be allowed to use mostly sportswear. (And it turns out being a "girl" (not anymore) wearing only sportswear tends to cause a whole lot of bullying)

This happens even nowadays. I've found out that non-heeled boots are more comfortable to me than sport shoes, because feeling something against the back of my foot makes me feel overwhelmed. I tend to wear yoga pants under actual pants, because they keep the actual pants' seams from causing sensory issues. There's almost a sort of ritual on how do I need to combine clothes to be able to function "normally", mostly consisting on reducing how much they annoy me.

On that topic, hygiene is actually a huge thing too. As a kid, I wasn't allowed to shower daily. Days I didn't shower, no matter how much I tried to keep my hygiene in other days, were "bad days" to me. I would literally plan hanging out with friends or eating out around the days I was allowed to shower. I could physically feel the difference between the day I showered and the day I didn't (even if I washed my face, armpits, used the bidet, etc).

This is true even nowadays. I can thankfully now shower daily, which isn't recommended by a lot of experts (specially because it can damage your hair and skin), but it's more worth to me than having days where I feel like I shouldn't be seen in public.

Being overwhelmed sucks! Meltdowns are mostly associated with kids, mostly because adults either learn to mask them, or do everything they can to AVOID having that meltdown. I've mostly figured out routines and such. There's this one place we go eat out every other Tuesday- And in the hours we go in, there's a sort of silent corner that is always free. This week's schedule was a mess, so we went yesterday to that same place, and the silent corner was filled with a very loud group. I got extremely overwhelmed. But enough masking drilled to me means I just sat there unable to talk for maybe 30 minutes.

Autistic adults still do have autism and experience often the full spread of traits, they've just found ways to mask, or avoid being in situations where they do need to do that. I've adapted my life and routine to that. But sometimes I land on situations out of my comfort zone that will make me feel just like when I was a kid. I want to freelance online because I'm fully aware I can't perform properly in a public facing job.

Group projects sucked so much. I know they suck for most people, but most times it was easier for me to do the entirety of the project by myself and add the others' names to it than dealing with chasing people for their parts. My college had a 6-months-long massive group project in the last year, with a 7 people group, which obviously I couldn't do alone. The whole experience was so harmful in so many ways I've had several full therapy sessions talking about it :'')

One of the reasons it's because mental flexibility is HARD with autism. If i set a schedule, I expect that schedule to be followed. If people agree to do a part, I expect that part to be delivered (unless there's a proper reason) on due time. People hate this a lot usually! It will tear group projects apart!

Stimming can be harmless, or it can be very annoying to some. I tend to shake legs and play with something in my hands. I could easy this off drawing in classes- My high school found out that I was paying more attention when I was allowed to draw in classes, and my academic performance was pretty much perfect, so they gave me permission to do that.

However, I had a teacher in middle school that did forbid me from drawing. I stimmed during a class with pens- She got so mad she sent me home with a note to my parents they had to sign. Fun!

Not exactly an anecdote, but I am ace. I hate the discourse about "making an autistic person be aro or ace is infantilizing autism". Aro/ace people can have autism. That's just how it is. I've been infantilized a lot for being ace- Which only got worse because I am autistic, and people perceived some of my special interests as child-ish. The combo didn't make things easy.

On that topic, people will often be very patronizing of your opinions or takes for being autistic. I've had people debate my sexuality (or lack of thereof), my gender identity and presentation, my hobbies, my preferences for everything, down to "what do you want to eat tonight?". This isn't too different to shitty takes about how "autistic people are more prone to being affected by the trans activistsTM", because people assume autistic people can't choose on their own. Trust me: We can.

Anyhow, I'd love if this post could be a good compilation of these sort of anecdotes! I think it could help people who wanna learn more about what is it to live with specific disabilities (and how to better portray them in media)

#nd #neurodivergent #neurodiversity #disability #disabled #autism #adhd #neurodivergencies #long post

[morzowo]

so one character got to learn how to live again, how to reenter society after traumatizing event that will forever impact his life, got to heal and rebuild his relationship with his family even estranged father, reconnected with his old friends and was able to create reliable support system of people that also grew throughout this healing process and now can understand him more and be there for him, got to graduate and start his own business and now can even give inspirational speeches to help others

and the other one had to leave two closest people to him that were his only support after his family death bc 'friends' he had before weren't type of people worth reconnecting with, move out of his country abandoning everything he knew his whole life just to * checks notes * start a job he didn't really want and the main reason he needed higher pay was to establish financial stability for one of two people who he had to leave and that no longer wanted to be with him

okay yea okay sure both cases are about personal 'growth'

#last twilight #to clarify it's more about time skip and the talk at the end of part 2 bc yea ofc mhok also changed throughout whole series in general #the fact that 'growth' for mhok was equal to getting a job just doesn't sit well with me #his sister killed herself bc of their financial problems and then they put sole responsibility on him for providing for himself and day #and it felt like it was about more than just day's disability #like ironically his mechanic friend offered more support and understanding than most of the other characters #what kind of 'growth' is uprooting yourself and leaving everyone behind when you are still in vulnerable state and need someone to rely on #it would make sense in other story with other character but here it just hurts #i do have some other problems with the series as a whole but nothing that wasn't said already #everyone is angry at part 4 but end of part 2 was the breaking point for me #moving out for work is extremely lonely and alienating experience especially when it's not even to a country you particularly care about #what is the lesson here with mhok's plot line? #to completely isolate yourself to heal from your trauma somehow without anyone close to you? #and oh yea job being the most important thing for 'personal growth' actually? #in hotel in hawaii nonetheless... #i'm getting so tired of these series not being able to stick the landing fr