#disability visibility | Explore Tumblr Posts and Blogs

sojourner-between-worlds · 5 months

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Even if you, personally, don't hate Discord's new UI, I am begging ya'll to still send them the following feedback:

"The changes made to Dark Mode are an accessibility issue due to the lack of a low contrast option for those who need it."

The previous dark gray was never ideal, tbh, but it was still worlds better than what we have now. As someone who can feasibly get by with the new dark mode but vastly prefers low contrast, and as someone who knows people who do need low contrast -- please tell them about this problem.

#discord #its all terrible but most of it i can get over #this i will not #its a problem and they NEED TO KNOW its a problem #disability #autism #autistic #random ramblings #PLEASE mind me #disability visibility #disability advocacy #idk what all to tag this with but hopefully thatll at least get it seen a little bit

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p1xelpc · 4 months

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Why Life is a Tragedy

[ Plain text: Why Life is a Tragedy ]

My daily routine is usually very empty. Most days it goes like this:

My mother brings me my breakfast at 8. That consists of yogurt with berries and granola, protein shake, and a cup of strawberry milk (a small cup, so I don’t upset my stomach).

She says good morning and helps me rearrange myself if I’m awake. If I’m not, she goes to her office across the hall.

I take about 15 minutes to actually work up the energy to eat and take my meds. I play Wordle while I wait.

If I feel up to it, I go to the bathroom, change my diaper, use hand sanitizer, and wash my face. Some days I may brush my teeth with a toothbrush and water. Those are rare days.

After I finish, I stay in my bathroom chair for 5-10 minutes while I work up the energy to get back to bed.

When I do get back to bed, I decide what activities I will do that day.

If I feel up to it, I set up my activities around my legs so that I can do it when I’m ready. If I don’t, I ask mama if she can set up when she gets the chance.

I play on my phone and socialize on Tumblr and Discord. I try to do my activity.

I do that until lunch. Taking breaks every 5-30 minutes depending on the activity.

Lunch is around 12. It has been hard boiled egg whites, cucumber slices, and a small cheese recently. Soon it may change to a prepackaged lunch with crackers, ham, cheese, and mini cookies. I get another (small) cup of something other than water.

After I eat, I decide what activity I will do for the rest of the day and try to set it up. I usually do not succeed and need mama to come help.

I play on my phone and socialize on Tumblr and Discord. I try to do my activity.

I do that until mama finishes work. She comes in to take my dirty dishes and she asks what I want for dinner. I want pasta please. She goes to make pasta.

I continue my activity.

She brings me my pasta and another (small) cup of something other than water.

I eat.

I do not do an activity. I may watch TV. I play on my phone and socialize on Tumblr and Discord.

At 8:00 mama comes to help me to the bathroom. After I finish, she comes in to help me wash my hands, wash my face, brush my teeth, and put on my Testosterone gel. We talk the whole time.

I go to bed. Mama helps get me situated. She helps me take my meds.

After mama closes the curtain, I play on my phone until around 10.

I go to sleep.

On weekends my days are different. Mama has to help me shower at least once (usually Sunday). That takes about 1-2 hours total. I need a lot of help.

Some days I have doctor appointments. I take around 45 minutes to get ready. It usually takes 15 minutes to get to the office. The appointments usually last an hour, not including wait time. After I get home, I lay in bed for the rest of the day and do not use the bathroom that night (I am too tired).

I cannot leave the house most days. There are many days I can barely leave my bed. Some days I cannot leave my bed at all. My usual pain level is at minimum a 6. I cannot speak, only make funny sounds. I require at least 2 forearm crutches to walk safely. I usually need a wheelchair to move. I cannot leave the house without my ear defenders on. I take a fully packed backpack everywhere I go. I need support to sit up and to stay sitting.

My hobbies include coloring, playing video games, making disability aid designs, writing, reading, and baking. My favorite animal is a Triceratops, though I only like the cartoonish designs. I like fluffy animals. I love Bluey. I enjoy learning about disability related topics. I read children’s novels because they are what I understand. I love going to the zoo. I love going to the library. I enjoy warm weather with light wind. I enjoy dressing up and doing makeup. I love ice cream cake. On days with nice weather and good health, I like to go outside and just sit.

I have 2 stuffed animals that I take everywhere (Jameson and Gerald). I have 1 that I take lots of places (Fred). I have 2 that usually stay on my bed, but travel if I’ll be gone for a while (Kougie and Melon). My favorite colors are yellow, pink, and green (no particular order). I use a light Bluey blanket, a light dino blanket, and a weighted blanket every night. I use at least Little Pillow every night (it has smiley faces). I have a cat shaped pillow for my neck.

Did you decide if my life is worth living? Do you need more information? Do you think I’m tragic? Do you need to give your sympathy to my carer as if I don’t exist? Do you know my sense of humor? Do you know why I am loved? Do you know my limits? Do you know what I am capable of? Do you know what brings me joy? Do you know if I’m a person? Do you know my identity? Do you know who I am?

Do you know if I am happy?

Do you care?

This inspired by Unspeakable Conversations by Harriet McBride Johnson

#not know if people will understand #this the one that not know where going with #this the one that made cry #pix writing #disability #visible disability #high support needs #medium support needs #autism #nonverbal #physical disability #nonspeaking #wheelchair user #cripple punk #c punk #disabled #actually disabled #actually autistic #disability visibility

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littlefeatherr · 1 year

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Echo Lives AU by Kaijurave

Also check out their carrd: https://kaijurave.carrd.co

#star wars #the clone wars #arc trooper echo #sw tcw #the bad batch echo #the bad batch #star wars the clone wars #the clone wars fanart #tbb fanart #disability visibility #we love to see it

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straying-further-from-gods-grace · 2 months

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Yo!!! Hey everybody!

I had Service Shark Vark art!

Will repost with links to new fics!!!!

For those who don't know I have fics of headcanons for disabilities and Alastor has seizures, Vark is his service shark gifted to him by Vox!

Occasionally I might write where he's Vox service dog, tho

Talking shit to the haters

(Sorry if the perspective is off, Vox should be in the foreground here)

A close up of Vox because I just love the sass. He is tearing the demon apart verbally. And uploading the roast online too, lol

Also a cute quick doodle of playing fetch! When TV daddy finally puts down the phone!

Here are the fics it's currently Relevant to will update s needed;

#ao3 fanfic #hazbin hotel #artwork #vox x alastor #alastor x vox #voxal #hazbin hotel vark #hazbin hotel vox #hazbin hotel alastor #hazbin hotel art #hazbin vark #service dog Vark #service dog #Vark is a service dog #my headcanons #fanfiction #hazbin hotel headcanon #disability visibility #disability headcanon

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godzilla-reads · 4 months

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“This may feel true for every era, but I believe I am living in a time where disabled people are more visible than ever before. And yet while representation is exciting and important, it is not enough. I want and expect more. We all should expect more. We all deserve more. There must be depth, range, nuance to disability representation in media. This is the current challenge and opportunity for the publishing industry and popular culture at large.”

—Alice Wong, from her Introduction to “Disability Visibility: First-Person Stories from the Twenty-First Century”

#godzilla reads #Alice Wong #disability visibility #disability reads #book blog #reading #books and plants #book quotes #booklr #bookworm #bookish

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fagboyfriend · 2 years

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🌈✨💖♿️

[ID: A traditional watercolor painting. The painting is of two queer men meeting in a bar. The one on the left has short, wavy black hair and faint facial hair. He is relaxed, leaning in his wheelchair while holding a can. He is wearing a white tank top that falls to the side to expose his top surgery scars, and shorts. He is smiling. The man on the right is standing and smiling nervously while blushing. He has longer red hair shaved on one side, and has a feeding tube, an ostomy bag with a rainbow cover and is using glittery forearm crutches. He is wearing a black tshirt with a pink triangle and a star of david necklace. His shirt is cropped, and he has a fishnet shirt on underneath. He is wearing tight black jeans with two patches, one on either knee. one is of a spring of lavender, while the other is a green carnation. He also has a magenta bandana tied around his neck. He has two small buttons on his shirt, likely of political messages. The Bar the two are standing in is vibrant. It has a sloped exposed wood cealing, covered in fairy lights and rainbow lanterns. The floor is pink and purple checkerboard, with a purple bar with stacked glasses and bottles behind it. There is also a red loveseat with two heart covered pillows on it, and a neon sign in the shape of a heart emoji covering a rainbow flag. The entire peice is vibrantly colored, with glitter, gloss, and metalic elements. end ID.]

A traditional redraw of this old peice. I like their designs a lot better now and had fun playing with my new liquid watercolors.

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kartsie · 1 year

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The disabled icon we all love ft. Barbara “surprising and delighting” Dick from the annual

#barbara gordon #batgirl #oracle #batgirls #nightwing #dick grayson #disability #disability visibility #also I love the artist who did the batgirls annual but they didn’t do the best job drawing a wheelchair…#I’m glad that there’s more of an effort to show babs as an ambulatory chair user but I need more across all titles #maybe it was just a stylistic thing but yeah #my art

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yikes-ajax · 6 months

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You know what? I hate how most people think I'm 100% dependant on my mobility aids. Sure I hobble around with my cane and scuttle on my crutches, but I'm not helpless. They're so surprised when they find out I don't use them at home, or that they can hurt as bad as the disability itself, or that my dependence on them is a fluid thing and changes day by day. We have this idea of how disabled people should be— bound to their aids, miserable, defenseless. These ideas only helped me reject the idea of something wrong with me longer, because I didn't look like those people. Most of the time now, I use my aids when I don't need them just because I feel like I have to look "disabled enough" for people. We've built expectations for disabilities, which is funny, cause you couldn't have picked a more unpredictable thing.

I don't expect everyone to be educated, there are so much more pressing things to worry about, but when you have a friend or family member that's disabled, the least you can do is glance at a few resources online or ask them about it. I'm just so sick of family treating this like a big deal, or nurses holding on to me like a toddler still learning to walk when I need to get on a scale, or co-workers treating my cane laying around like a reverent item i will strike them down for disgracing. It's a piece of shitty metal y'all. I don't have a sliver of trust for that thing. Complaining about how cheaply made a lot of aids are to be priced expensive is a whole other post.

I'm just saying, if there was an immediate danger, you won't see me struggling to get away. I'll have already thrown my cane at them and ran. Yes, I have a disability, but I am not weak. You think these beefy arms are for show? You think this hunk of metal I lug around is soft? You think I made it to the end of the day fighting tooth and nail just to sit down and die? I'm fucking feral, fight me.

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rebel-girl-queen-of-my-world · 1 year

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This episode, “Lurch Learns to Dance,” is adorable. It also really showcases Ted Cassidy’s incredible comic timing as Lurch:

youtube

To think the character was supposed to be mute! Cassidy just ad-libbed his famous “You rang?” and luckily the show’s makers recognized his talent. His physical comedy in this episode is a thing of beauty.

Ted Cassidy died at only 46 - sadly, the complications from acromegaly were probably nothing like today - but if you look up his bio on Wikipedia you’ll be wowed by all he packed into his too-short life.

#lurch addams #morticia addams #gomez addams #wednesday addams #the addams family #lisa loring #john astin #carolyn jones #ted cassidy #acromegaly #disability visibility #Youtube

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p1xelpc · 3 months

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Wait, You Exist?

[ Plain text: Wait, You Exist? ]

Recently I wrote about abled perception of (visibly) disabled people. I wrote of their disrespect and dehumanization. I thought that I had gotten all of my words about that out. Then I read some posts from my English professor.

I want to preface this by saying that I do not believe that he wrote these things with ill-intent. He just didn’t think about us. He forgot that we exist. Or maybe he just never learned that we exist. Maybe he’s never had our existence shoved in his face to prove that we are alive. That does not change the impact.

“If you are lucky and haven’t had a job.” This is probably meant to refer to people who are financially stable. Probably supposed to be about people that chose not to get a job. But they aren’t the only people that don’t have jobs. This man works at a community college. Most of the unemployed people there aren’t going to be rich. We attend community college because it is cheap and accessible. Take a guess at why we wouldn’t have jobs.

Visibly “different” people (whether race, gender, disability, whatever) do not get the same opportunities as people that fit the standard. As soon as we are noted as “different,” we have less of a chance to get a job. And that’s for those of us able to work. I am attending school in the hopes that I can get a job that is even close to accessible to me. Because currently? My heavily accommodated schooling is barely accessible.

“I assume you are taking this course online because you are all busy folks with lives.” This one is probably true for a lot, or even the majority, of his class. But that shouldn’t be his only assumption. I am taking online courses because in-person classes are a lot harder to accommodate for me.

I require a carer at all times outside of my home. I cannot leave the house multiple times in a row, and frequently I am only able to leave once or twice a week maximum. I can only shower once a week, peers would have complaints. I am unable to speak. I can’t walk safely. I can’t propel myself reliably. I need help to understand speech and to work out responses. Leaving the house is a rarity usually reserved for necessary doctor appointments.

I am not a busy person. I barely have a life! Almost 100% of my socializing is online. Same with shopping. And creating. Hell, I can’t even remember what an abled life looks like. Exercise maybe? Regardless, most of my day is spent in bed, in a mostly dark room, playing and socializing on my phone or laptop. Some days I may write or design something. But mostly I just play and socialize. Less emphasis on the socializing. I’m not complaining. I still enjoy the life I do have. It just definitely is not what he is talking about.

There are so often little bits like that in what I read and see. Wording that an abled person wouldn’t ever clock as ableist. Assumptions that ignore disabled people. It’s knives small enough to slip past shields and stab directly into me. They aren’t helped by context. Ableds just don’t like to pay enough attention to us to figure out what ableism looks like.

There are other little things too. Making everyone write using Times New Roman (I can’t read that font). Dropping late papers an entire letter grade (I have bad time blindness). Not allowing people to work ahead (yet posting everything on day 0).

The first assignment includes music and peer review. That seems almost fine, almost like nothing to complain about. Except that I cannot understand music that I have not intensely studied and I cannot intensely study music that hurts my ears (which is a lot of music). Also music and its meaning is so deeply personal that peer review is nearly useless for what he wants to use it for. My allistic classmates are not going to understand why I chose this song to connect to my experiences. Neither are my autistic classmates. I have to choose between authenticity and being understood to pass that assignment, which seems to go directly against what he is trying to teach us.

He describes his teaching as less “out-dated” and yet it is still incredibly exclusive. Then again, he didn’t even write his own description.

#pix writing #this one messier than others #thoughts are too big to organize right #ableism #disability visibility #wheelchair user #disabled #disability #high support needs #middle support needs #nonverbal #nonspeaking #unemployment #abled privilege #actually autistic #actually disabled #idk tags

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ilikecarsandlike4people · 10 months

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Happy disability pride month❤️

#disability pride month #disability #disability visibility

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littlefeatherr · 2 years

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Beautiful boy Echo by kaijurave

Also check out their carrd: https://kaijurave.carrd.co

#kaijurave #the bad batch #tbb echo #the bad batch echo #ct 1409 #sw tbb #star wars the bad batch #the clone wars #arc trooper echo #the bad batch art #tbb art #star wars #star wars art #he has a tattoo for fives!#disability visibility #we love to see it #disability representation #ostomy #arc trooper thursday

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thekingofcrochet · 30 days

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Books for reading:

Disability Visibility

First-person stories from the twenty-first century

Edited By Alice Wong

#book rec #the stories come with content warnings #disability visibility #kingly decree

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into-the-void-i-leap · 2 months

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Oop- insecure and Deaf Vox who is a stalker and CODA and ASPD Alastor. It's gonna end up unhinged and messy.

Lots of very unsafe and insane BDSM/Kink and such along with nonsexual BDSM with mommy Dom Rosie

Here is art from ch 1

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salomasretired · 10 months

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Okay yeah here are some disabling skin conditions not widely understood for visibility & disability pride.

I am making this post primarily because I had no inkling of having these disorders and just thought it had something to do with poor personal hygiene. This was a huge hit to my self esteem and affected the way I view self care. Hopefully other people who have these issues can better receive treatment and realize they’re not alone, nor do these conditions make them unclean or unloved.

I will be including images below these disorders.

Confluent and Reticulated Papillomatosis (CARP, Gougerot-Carteud Syndrome)

Thought to be caused by defects in the K-15 gene and simultaneous skin infection, this causes keratin to build up in these little patches that grow in a winding pattern around the truck of teens and young adults, giving the skin a rough texture and hyperpigmented appearance. It’s not particularly painful, but it does have an effect on appearance.

Dyshidrotic Eczema (Dyshidrosis, pompholyx)

Although this is named eczema, it’s pretty distinct from it. This disorder causes pin-head sized blisters to congregate under the skin on the palms and feet, causing drying, peeling, and itching. It’s not well understood but thought to be exacerbated by allergies and stress. I personally found that removing some foods that contain nickel from my diet, wet wrapping, ignoring the itch and using baking soda based handsoap keeps it roughly under control. This condition can be extremely painful during a bad flare up, where I would avoid using my hands or certain fingers when doing tasks, even unable to bend my fingers due to the tight skin sometimes.

Hidradenitis Suppurativa (HS, acne inversa)

This causes bumps, sores, pimples and cysts to appear under the arms, inner thighs, groin & butt. Basically anywhere where skin touches skin, which is unfortunately why being of a larger size makes this worse. The cause is ultimately unknown but may have something to do with hormones and disorders with the second layer of skin, the dermis. It primarily affects women, but men with the disorder may have sores along the back of their neck as well. In severe cases, it may cause scarring, hyperpigmentation, and severe pain, that makes walking and doing basic tasks difficult to impossible.

I hope this informs & helps people, especially those that aren’t even aware they might have these symptoms. If you have these conditions, feel free to add your own experiences in the replies, reblogs or tags. Thank you for taking the time to read this, and happy disability pride.

#disability pride #disability visibility #hidradenitis suppurativa #confluent and reticulated papillomatosis #dyshidrotic eczema #long post

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lifeonkylesfarm · 2 years

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Just a reminder that July is disabled pride month! I think we've all seen people talking about "gay wrath month" but please don't erase disabled pride month. Disabled people are already left out of the conversation enough.

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