A identity soup emote (I'm mostly curious how you'd interpret that) or a seizure emote :0 (your stuff is so so cool congrats on 400 followers!!)
dont trust myself to draw a tonic seizure well so i drew an absence seizure , hope thats alright ^^" also made the identity soup just the colors i use for the emojis
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to be an overworked student that works in a research lab and has epilepsy, so when the stress catches up on you absence seizures do too, and damn. my whole day feels like a patchwork
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Hey, I know we don't know each other, but you seem to know a lot about the topic of seizures.
If it's not a bother, could I ask you a few questions about them?
Specifically about focal seizures/partial seizures.
What is a focal seizure like for you?
I've been having these episodes for as long as I can remember that I labeled dissociation for a long time, but recently have come to find out resemble focal seizures. A few triggers are bright flashing light, and being stressed out and tired at the same time. My vision gets blurry, a wave washes over my brain (dunno how else to describe it), I feel either so spaced out I don't have feelings, or I feel extremely fearful with a feeling a deja vu, I blink a lot and lick my lips, and sometimes my hand moves on its own in repeated motions. Usually lasts about two minutes, and leaves me feeling quite haggard for hours afterwards, I usually sleep after them if possible.
I'm going to try and get into a neuro soon but it's been driving me NUTS thinking about it. Does this sound like it could be a focal seizure to you? I haven't been able to talk to anyone with epilepsy about it, and I think doing so could be enlightening, like they'd know what questions to ask to tell the difference having been through a seizure themselves.
Thank you for your time, even if you don't reply. Have a nice day.
this sounds a lot like textbook TLE focals or a generalized absence, yes. depending on your doctor, you might be labelled as "easy" or it might seem suspicious because it's "too textbook."
i just came back from a follow up that went downhill because i happen to have mood changes associated with my biggest seizures, that also clear up after the events, so i turned down antidepressants since im not currently depressed and its a self solving issue, and i have an aura, postictal state, seizures during sleep, stereotypical posturing, bro has seen literal videos of the typical events, and the moment i mentioned any kind of mood change with bigger events, he immediately slapped the mental health label on it, is ready to stop my meds, and did not set up a follow up. he was positive the appointment before that i have TLE and where it was probably coming from and now he wants to slap the mental health label and not bother. i also happen to have life stressors, as does everyone else, mine may be more so since i have insane parents and in-laws, but yeah just be really careful of that. epilepsy is a very common neurological disorder, second to headaches, but when someone isnt willing to put in the work (this guy barely asks questions and did not know that one of my recent seizures was my fault for taking meds too late and happened during my sleep), they jump to statistically unlikely conclusions that are overtly sexist and can become extremely dangerous for the patient (such as pulling a patient off of necessary meds)
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I used to have absence epilepsy, like my whole life, until a few years ago when I was around 17 (I'm 19 now). Can I use the actually epileptic tag when posting about it?
When I was younger, I hated talking or even thinking about my epilepsy, but now I find myself wanted to finally incorporate it into my art that my younger self, and hopefully others who are in that boat now, can find cathartic.
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Feel like I'm gonna faint, but I don't feel safe doing so, so prolonging the inevitable. Is that even possible? I know the trigger was sudden and not as strong as usual.
-host
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Currently getting a 24hr EEG done to look for signs of epilepsy. Cool things that have happened so far that I have no idea what they mean:
I have moments like look like absence seizures. Basically I go kinda limp and just stare off into the distance. Apparently when this happens, my friend said all the brain waves on the screen flat line. It really freaked him out the first time he saw it on the screen 😅 which honestly explains so much because when it happens it feels like all the brain goblins just decided to go on a break all at the same time so no one is running the factory.
The other thing that happens is when my brain gets really loud and chaotic. Like all the brain goblins decided to start screaming and fighting all at the same time. My head feels so full and loud in those moments. When it happened the brain waves on the screen started going absolutely wild. The screen was pure chaos and it felt like it really captured the spirit of the chaos in my head 🤣
I have no clue if either of these things indicate a larger issue or not. I just know it was really interesting to finally see a visual representation of my brain in those moments
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My mind thinking of myself as an adult by age 12 still has me recall some things incorrectly. I thought I somehow had an absence seizure (a condition of childhood) once as an adult and I was actually just 14, huh… just because I had already gone through puberty.
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Honestly I’m quite happy TikTok exists.
I have epilepsy and a video of a girl experiencing absence seizures came across my for you page which then prompted me to look into absence seizures. I experience dissociative trances and it can be incredibly hard to tell the difference between absence seizures and dissociative trances, which prompted my neurologist to want to do further EEG testing. I’m now realizing that further EEG testing to identify if I’m experiencing dissociative trances or seizures is completely fucking unnecessary.
As I was looking through TikToks of absence seizures, I noticed one significant difference between my trances and absence seizures: absence seizures seem to cause a complete breakdown in controlling your body, whereas when I go into a trance, I’m pretty much just staring into the middle distance. I’m still aware of what’s going on; I could probably still be fine to drive when I’m in a trance state as long as I have someone with me, but the thing that defines trances for me is a fundamental disconnect between my mind and body. Generally this leads to the following:
While I am aware of what’s going on around me, I don’t remember well what happens during my dissociative trances.
I don’t necessarily struggle to communicate (at least, no more than I normally do), but I might come off as distant because mentally, I am distant because of the dissociation.
If I was having seizures, I wouldn’t be able to communicate. In fact, I had neurological testing done to make sure me shutting down wasn’t absence seizures. When I go into a dissociative trance, I can continue a conversation. I might come off as a little out of it and whoever I’m chatting with might have to repeat themself because of that disconnect between my mind and body, but I’m still able to communicate and have a conversation (at least, have a conversation just as well as when I’m not experiencing a dissociative trance).
There are certain things that are sort of weird and would indicate that I’m experiencing seizures, like what triggers my dissociative trances for example:
Exhaustion makes me more likely to go into frequent dissociative trances throughout the day
Flashing lights cause me to enter a dissociative state; for example, if I play Sonic CD for long enough, I start to dissociate.
I do think I know the reason for this though. I have trauma associated with flashing lights as well as my seizures in general, and my dissociative trances are, fundamentally and by their psychological definition, a trauma response. I wouldn’t be surprised if me entering a dissociative trance upon exposure to flashing lights is a trauma response, because I can very much communicate when I’m in a dissociative trance after exposure to flashing lights.
All of this is without mentioning that I had a 3 day inpatient EEG done when I was 13 (which is what I was referring to when I said I had neurological testing done to make sure me shutting down wasn’t absence seizures) which would’ve detected any absence seizures I would’ve had because I was also experiencing dissociative trances at that point in time (I don’t remember exactly how often, I think at least once a day?).
What I’m experiencing isn’t absence seizures and I feel like I wouldn’t have been able to actually realize that without TikTok’s help honestly. I am very much experiencing dissociative trances because while yes, outwardly it looks similar to absence seizures, I don’t go unresponsive. I can still hold a conversation while I’m in a dissociative trance. I can remember being in dissociative trances, just not what was going on (at least not very well). The DSM-5 specifies that dissociative trances are characterized by “an acute narrowing or complete loss of awareness of immediate surroundings that manifests as profound unresponsiveness or insensitivity to environmental stimuli” which is EXACTLY what I experience. I have an OSDD diagnosis and I’ve experienced dissociation on some level for as long as I can remember. Outside of trances, I’m also in a near constant state of feeling like I’m not in my own body (basically similar experience to depersonalization-derealization disorder, the symptoms for which are likely covered by my OSDD diagnosis since I also experience dissociative trances. Not sure exactly how that works though, I just know you can’t generally have an OSDD diagnosis at the same time as another dissociative disorder because that’s the point of the OSDD diagnosis lol).
The fact that a neurologist is trying to override what I know to be my psychological experiences caused by trauma is not great honestly. Having epilepsy and experiencing dissociative symptoms is not a fun experience when it comes to communicating those dissociative symptoms with a neurologist 🫠
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I’m epileptic and have absence seizures, and it can be really scary going out alone because sometimes when i wake up from one i’m really disoriented and regularly almost walk into traffic lol.
that hasn’t happened in a while because meds but yk, it’s still scary because i still have very frequent seizures
another thing i do in my seizures is i just walk places sometimes. it happened a lot in grade three when i was originally diagnosed (i’m first year college) and sometimes i wake up and i’m somewhere different.
epilepsy is whack
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A description of severe temporal lobe epilepsy along with possible Mesial Temporal Sclerosis.
Some people with temporal lobe seizures will have more mild symptoms, some people with temporal lobe seizures have a more spiritual experience.
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Anyone have any ideas on how I fairy tale/fantasyify a (portable/)EEG machine? Or know anything that already has?
Specifically working in the world of the Enchanted Forest Chronicles. I might do this for my own characters in their own worlds, but i was thinking of giving Cimorene absence seizures.
I was thinking maybe the wires could be Mendanbar's magic, y'know with those invisible strings? I'm sure Telemain and Morwen could come up with something, but I'm kinda stumped.
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finds character i relate to immensely, immediately starts projecting
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if your seizures are driving you crazy clap your hands 👏👏 if your seizures are really inconvenient clap your hands 👏👏 if they happen all the time and every task feels like end of the world, if you've been having frequent seizures clap your hands 👏👏
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guys i finally got an abnormal EEG resukt in february, which led to a 3T MRI, which also led to an abnormal result there, so someone finally believed me and i have the proof that i do have epilepsy, in spite of all the people that refused to believe me or put in the effort to try to find the problem
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As a big sibling with a lil sib with epilepsy, when they read TBC they Honestly thought if they got struck with lightning reciting the lord's prayer they'd be cured like Shadowsight is from their epilepsy. I had a discussion with them on how that's not how it works, but ge was so upset they took it away from Shadowsight that he hasn't picked the books back up and has stated that 'he hopes Ashfur wins and starts a new religion.,'
I do not even know how to respond to this besides saying that your little sibling is 100% right to be pissed and I now also hope Ashfur wins and starts a new religion.
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