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#focal seizure
ribbitflings · 1 month
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guys i finally got an abnormal EEG resukt in february, which led to a 3T MRI, which also led to an abnormal result there, so someone finally believed me and i have the proof that i do have epilepsy, in spite of all the people that refused to believe me or put in the effort to try to find the problem
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yourmomwhitediamond · 1 month
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This is the anon with the seizure request. Thank you for writing that. I'm not even sure sinners would be able to have seizures. But, Rosie is my main comfort character. Do you know people with epilepsy in real life? You described things incredibly well.
I added epilepsy in my will-write section because I have it (: The ones I included were a focal seizure (that's what my nurse said I have. I'm partially present during these and it's a sign that my medication is working as well as the build-up to a larger seizure) and there's tonic-clonic/grand mal (I also have these. This is what people will be most familiar with, the body jerking ones). I don't fully know what I look like during them because I don't watch the recordings, so there may have been a few grey areas.
Thank you for asking x
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seasickzig · 2 months
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Possible Seizures, help needed
Hey guys, I’m currently in a flare with my hypermobile disorder. I am still not diagnosed with EDS yet, even though ive seen five doctors and two physical therapists who all say I have it and that Im the worst case theyve ever seen. However, with this flare I have started to get new symptoms and I need some help. I know this is not a diagnostic tool and I dont plan on using it as such, I really just need support and to know I’m not alone.
The other day, I took a small hike while in a flare. I know I shouldn’t have, but I figured if I just pushed my body harder it would just result in more pain. But on the way back, I started feeling really weird. I felt nauseous and like i was going to pass out. My vision started blacking out and I could barely think. I felt clumsy. By the time I got to the car I could not move or speak at all. I was trying to tell my body to move but it just wouldnt happen. My arm jerked occasionally, and I was in and out of it all the way home. i felt like i couldnt see even with my eyes open, but i do get migraines like that. i barely remember the ride. my boyfriend had to carry me to bed. I was sobbing. I started having really bad muscle spasms and eventually slept it off.
Someone in an EDS discord I’m in said this sounds like a seizure, but I’m not sure. I was partially/fully conscious, and I didnt have any lip smacking or picking/fidgetting symptoms. Ive been having muscle spasms this whole flare, so I don’t think that it was a grand mal or anything. The lack of ability to speak might just be my autism, the loss of the ability to move might have been my physical health condition, it might not have been neurological at all, other than the occular migraine. It also all lasted multiple hours and Im not sure if thats standard for seizure activity, usually its just a few minutes with a lot of fog surrounding it, right?
I am going to talk to a doctor about this TODAY but who says hes even going to do anything? no one else has. idk i just need help and support. if you have EDS and/or seizures please reach out with your experiences. I’m really scared.
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osamu-dazai-is-mine · 4 months
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Me: *has really intense buzzing in hands and feet during night to the point it wakes me up*
Me: "shit am I having seizure, is this from higher dose of topiramate or is this normal body thing" *and goes to sleep*
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mindmojis · 2 years
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< - - !! - - > ​ SEIZURE MOJIS ! - - > seizure - - > seizures - - > general seizure - - > secondary general seizure - - > absence seizure - - > tonic clonic seizure - - > focal seizure - - > simple focal seizure - - > complex focal seizure ​ < - - !! - - >
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Cerebral palsy and epilepsy
Cerebral palsy and epilepsy
Nearly half of children with CP will also be diagnosed with epilepsy. Treatment and therapy can help alleviate the negative symptoms associated with epilepsy. Although born with CP I myself didn’t develop epilepsy until around ages of 11/12yrs old. https://www.cerebralpalsyguide.com/cerebral-palsy/coexisting-conditions/epilepsy/
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cpunkwitch · 5 months
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so theres a thing my ody does thats been happening more and more frequently
and i started debating with myself if it could be some kind of seizure, but since im awake and aware while it happens that didnt seem right and i usually passed it off as just uncontrolable stimming however because its been more frequent and getting worse i looked into it more
i found focal aware seizures are a thing
but ive never been diagnosed with epilepsy nor has anyone in my family that i know of
so im scared and not sure what else it could be nor how else to lookfurther into this
i feel sick again, my nerves are still a wreck lke the other day when i talked about feeling horrile and had issues with my legs, im still shaking and yeah it happened again between 3:30am and 4am-ish
i was laying on my back in bed while it happened, my body jerked forward and my head went back and it happened so suddenly i cut off my own air supply and choked for a second.
very likely this is being brought on my all the stress im under but it still terifies me, i cant sleep, and i have no clue what to do
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xxbottlecapx · 1 year
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I liked your post about Steve having focal seizures and Eddie figured it out because he happened to be familiar with them because of past experiences, but tbh Robin seems like she could also be someone who could pin that down. We've seen her talk about medical stuff before, specifically with the rabies rant, but I'd like to think she often looks at conditions and she finds them morbidly interesting. Can I get a version where Robin is the first to notice? I'm thinking Billy caused them, but they happen seldom until the Russians make them worse, so she notices something but doesn't piece together that he's not just being stupid until after the Russians, but you can decide how you want to do it if you even decide to
You are absolutely right. I’m not entirely proud of how this came out but this is what I got, I hope it’s okay 💜💜
1985 scoops ahoy, before the fire. 
Robin didn’t know much about Steve Harrington. 
Well, that was a lie. She was a people watcher, after all. Robin knew a lot about Steve Harrington. She knew he had been the self proclaimed (Tommy-proclaimed) King of Hawkins High. That is, until Billy Hargrove smashed his face in and Steve started rolling around with a band of middle schoolers. His downward spiral had started with Nancy Wheeler and ended with Billy Hargrove (and Jonathan was, she had been told, somewhere in the mix.) 
Steve was bad at school but good with people, bad at reading but good at speaking, bad at instruments but good with sports. Good at making friends but bad at keeping them. 
He had graduated alone. No one was there with him when he left Hawkins high that final time. As far as Robin was aware, no one seemed to care when he left at all. Robin only noticed because she was a people watcher. She liked to know things. She liked to know things about people in any way she could. At first it had just been her wanting to mimic whatever it was that King Steve did that made Tammy Thompson like him, but it quickly became a fascination. She couldn’t even tell you why. But the longer she watched him, the more intrigued she got. Especially after Billy Hargrove. 
Either way, no matter what she did or did not know about Steve Harrington; The Steve Harrington she knew of from highschool was definitely not the Steve Harrington that applied to Scoops Ahoy. 
“Hi, uh, I’m- Steve,” The King Steve said. He was wearing the proper Scoops Ahoy Gear, but his hat was one backwards. 
Robin hadn't been told she was getting a new coworker. Yesterday, Daksha seemed absolutely fine. But today she was gone. And in her place was the former King Steve, in all his lack of glory. 
“What about Daksha?” Robin said instead of greeting him in kind. He hadn’t been a nice guy. Never picked on her specifically, but Tommy sure did. 
Steve doesn’t seem miffed by her deferral. 
“Who?” 
Robin rolls her eyes, grabs his hat to put it on him correctly, and hands him Daksha’s scooper. It was bright pink, bedazzled. She expected some sort of denial but Steve only holds the scooper so stiffly she thinks he might break the handle. 
“I’m Steve.” He blinked rapidly. 
Robin crossed her arms, leaning against one of the tubs of icecream that she liked to steal from when her manager, Kanan, wasn’t looking. She wondered if he would tell on her. 
“Yeah, I know” 
“Sorry, sorry, who-“ he squinted at her, then shook his head and pulled in his shorts. They were definitely too short for him. “Who are you?” 
Robin thinks about the name tag on her shirt in bright teal. “Moira.” 
“Nice. Uh. What do I do?” Steve takes it in stride, wandering around the room without any deemed purpose. He swallows hard once, twice, and follows Robin as she opens up shop. She makes him sweep the floor three times and he doesn’t complain once. 
Eventually, she has to turn the closed sign around. “Use that Harrington charm to get more tips.” She tells him when he just blinks at her some more. “I’ll handle scooping for now.” 
Robin is a people watcher. She learns that a few things on her Steve Harrington list need an upgrade. 
The Steve Harrington from Scoops Ahoy was nothing like Steve Harrington from Hawkins High. For one thing, that Harrington charm? Didn’t exist anymore. 
This is how the You Rule, You Suck board is born. 
“Why’s there a scar in your head?” She asks him, about a month into working together. 
“Uh- got in a fight.” Is all she gets. She stares at his shaking hands, and doesn’t mention it again. 
She doesn’t have to, it seems, because the middle schoolers that follow Scoops Steve around like a flock of confused ducklings are very quick to sing his praises. 
“You know Billy Hargrove?” Dustin asks one day. He’s hiding in the break room with her. A dude had been hitting on her for weeks so whenever she sees him, Steve takes his order and Robin flees. She sits on the table and stares intensely on the bundle of bananas right next to her. They’ve become Steve’s favorite food. 
“Who doesn’t?” She says in answer. Robin was, after all, still in school. 
She hasn’t known Dustin long, and she doesn’t really understand how or why Steve likes him so much, but she does know that Dustin can talk for hours. 
“I heard you asking Steve about that scar on his head. Billy, he had a thing against Lucas dating his sister,” Dustin starts, and Robin sighs before hanging herself half off the table despite her clear interest. She couldn’t let Dustin find out he had gotten her attention. 
“Because Lucas is black, so Max and I and Lucas were hiding at his house- for unrelated reasons, and Steve had to fight Billy or Billy was gonna kill Lucas.” 
Robin sits up so quickly she almost throws up. 
“It wasn’t good. Billy slammed his head in the ground a lot and hit him with a plate. We thought Steve was dead but then Max drugged Billy so we got out all right.” Robin isn't even able to process that information before Dustin is walking out the backdoor that leads to the theater. “I don’t even think Steve went to the hospital after.” 
It’s that last line that makes Robin look just a little bit harder, later in that day, when Steve’s hand is trembling too much for him to write on the chalkboard. 
And that faint fascination that Robin had previously had on King Steve quickly hopped like a flea on to Scoops Steve. 
✯¸.•´*¨`*•✿ ✿•*`¨*`•.¸✯
There are many things that Robin knew about Scoops Ahoy Steve. 
She knew he had a favorite scooper- one that was just a little larger than the rest, with a different type of handle. Easier to hold, he said. 
She knew he couldn’t read what was on the menu, and that when she made him write their Scoop Of The Day on the chalkboard, the words didn’t always make sense (sometimes there wouldn't even be letters, just scribbles). 
She knew he couldn’t charm a girl to save his life, and sometimes when he spoke, the words didn’t make sense. She knew that sometimes his hands couldn't grab things (usually only for a minute at a time) and he liked to stare into space until she had to wack him upside the head.  
She also knew that Scoops Steve was very likely her best friend. Robin of a few months ago would have rioted at the very thought. But he was funny, and really nice, if a little confusing sometimes. He loved his little gremlin children and let her talk about her favorite interests that no one else was interested in (like zoonotic diseases, the differences in grammar structures in certain languages, and the central nervous system) 
Like Dustin said; A little dumb, slow on the uptake, but kind. 
✯¸.•´*¨`*•✿ ✿•*`¨*`•.¸✯
Robin knows a lot about Steve Harrington. Things that she knows no one else knows. 
She knows that he purposefully harassed the Russian guards so they would beat him instead of her. She knows he spent his senior year fighting monsters, probably also did it before that. She knows that for all that confidence Steve exudes, he is achingly lonely. She knows that despite Steve not knowing anything about the queer community, his first instinct isn’t to belittle her, but to crack jokes to make her laugh. Even high off his ass, his immediate response was to try and make her feel better. The popular, rich, straight white guy treated her better in that moment than anyone else she had ever met. 
Most of all, she knows what it feels like to lay bleeding in an underground Russian bunker and believe, if only for a second, that Steve is dead. 
1986, Family Video, before Vecna. 
Robin grabbed a Terry’s Bitz bar from the candy section up front and tore into it. She hadn’t been able to eat at school. Every once in a while she would somehow get reminded of the Russian elevators and all that untapped trauma would leak out of her. Steve was, at this point, her emotional support human, and she really wished he hadn’t graduated, just like that guy Eddie Munson in her band class. She doubted she would ever get to talk to that one, though. 
She could hear Steve mumbling where the fuck am I? At the register before turning around and ducking under the register to grab at a fallen tape. 
“That one goes in the aisle with the pink stickers.” Robin reminds him. She had put small colorful stickers on each row of shelves because Steve had a hard time distinguishing what she wanted if she just said aisle three. 
Steve stared into space for a moment before nodding and walking that way with the tape, his left hand making a fist, relaxing, making a fist again. 
As always, Robin follows Steve around even when she isn't scheduled to work that day. It just means she gets to hang out with her best friend and laugh at him when he has to organize shelves by himself, taunting him about her Freedom. She does her biology homework behind the counter, staring at a map of the musculoskeletal system. 
✯¸.•´*¨`*•✿ ✿•*`¨*`•.¸✯
There are a lot of differences between Scoops Ahoy Steve and Family Video Steve. 
Scoops Ahoy Steve couldn’t write legible sometimes, maybe 2 times a week. Family Video Steve couldn't write anything legible sometimes too, but five times a week instead of 2. Robin knows because she’s counted. 
Scoops Ahoy Steve didn’t get migraines (only headaches). Family Video Steve did. Scoops Ahoy Steve didn't throw up three times a week the way Family Video Steve did. Scoops Ahoy Steve didn't see the need to join Robin’s Yoga class offers the way Family Video Steve very easily caved into it. 
Don’t get her wrong- there are good differences, too. Family Video Steve will casually joke about her stealing his dates in a way Scoops Ahoy Steve didn't. Family Video Steve shared secrets with her, was more patient, acted less like a mom and more like an annoyed brother. Family Video Steve could admit he had a massive crush on the guy that ran the Hellfire club, who he's never talked to since he only sees him when he picks Dustin up (and of course, pretends to hate him). Family Video Steve, somehow, was even more of a best friend than Scoops Ahoy Steve. 
And Robin was a people watcher. That faint fascination she had taken to King Steve was now focused full-fledged on Family Video Steve. Her best friend. Her favorite person in the world, who sometimes forgot where he was, sometimes had bouts of confusing emotions he didn’t know how to deal with, moments where he struggled getting words past his lips, and trembling hands and legs that sometimes made him drop the tapes he organized at Family Video. 
✯¸.•´*¨`*•✿ ✿•*`¨*`•.¸✯
I tried to get Steve to help me with my math homework, she had heard Dustin say. but I don’t know what this says.
You could have asked me, doofus. Steve can’t write for shit. Was Erica's reply. 
Robin knows that they don’t know that Steve heard them. This is also how she knows that it must be a bad day. Steve can write, she’s seen him do it, it’s just hard on other days. And his emotions can make things worse. She knows it’s going to be a bad day not because of Steve’s writing, but because she knows he heard Dustin and Erica say it. 
Robin was a people watcher. She knows that Steve’s picked up on whatever it is that changed him. Maybe he hadn’t, before the Russians, but she did. She knew him before the illegal drugs and head trauma that changed Scoops Steve to Family Video Steve. When she looked back, and remembered King Steve, even more differences were apparent. 
Despite the party’s claim that they were all baby geniuses, none of them have picked up on it. It didn’t make sense. But then Robin tried to think harder, use her deduction skills. 
Steve had protected these kids for years. They called him their mother. Children often can’t find fault with their parents. Sure, the party was old enough to start seeing it, but trauma can affect young minds in really confusing ways. It was very possible that the upside down had hurt their little group of freshmen (and Erica) in ways they couldn’t see. OCase in point- their protector, Steve, was different now. It’s possible they were, deep down, afraid of what it would mean if there was more change added to their traumatically changing lives. Steve was a pillar to them. More of a hero of stories than man.
So she tries to give them a pass. She really does. But she sees the look on Steve’s face when Dustin says it. Steve would never admit it, but Dustin and Erica were his favorites. Robin knew that what they thought mattered more than anything. Anyone else making jabs at Steve’s intelligence washed off him like he was covered in healthy duck feathers. And Steve wasn’t an idiot the way they thought he was. Your ability to hand-write or speak didnt dicacte your intelligence. They were just teenagers who hadn’t been taught that yet. 
Dustin and Erica weren’t inherently malicious. She knew they weren’t. She would just have to find a way to show the party that Steve wasn’t an idiot.
Of course, only three days later, a cheerleader dies in a drug dealer's basement, and her whole world is torn apart. 
1986, Borders Book Store, after Vecna. 
Robin couldn’t take it anymore. On her day off, she rushes to the library, which had very narrowly escaped the Vecna-induced earthquake. It had taken 2 weeks to kill him properly, but they had done it. That didn’t mean the town was allowed to quickly forget, though. 
Luckily for Robin and Steve, so many people moved away that there were multiple job casings still open. This was good because Steve got fired 2 times and whenever Steve got fired, Robin left too. Despite his very clear pros (like being a chick magnet) other places of employment didn’t fit him. 
Anyways. Robin checks herself into the cramped biological sciences section. She takes out a list of symptoms written on ratted yellow lined paper from her back pocket, and she starts to read. 
✯¸.•´*¨`*•✿ ✿•*`¨*`•.¸✯
“What?" Steve replies, later, when she comes to him with an improvised list and a stolen library textbook. 
“Please, just listen.” She begged. They were on the floor, behind the counter of their current workplace. Sometimes if the streetlights were flashing, they’d get too scared to go home and just spend the night here. “It explains everything.”
“I can't- no, Robin.” He crossed his arms, then held himself in a tiny ball. His shoulders hunched in on themselves. “I know what a seizure looks like.” He whispered. 
“You know what one type of seizure looks like.” Is Robin’s rebuttal. “There are so many different kinds.” 
Steve swallowed hard once, twice, his left hand clenched and unclenched a few times. He nods, and lets her open the book. 
And öh, but of course, Sources 
Steve’s favorite food being bananas comes from this site, sometimes bananas help with epileptic seizures https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5855373/
Some of Steve’s symptoms come from here https://www.mayoclinic.org/diseases-conditions/seizure/symptoms-causes/syc-20365711
Some tips for what to do when someone has a seizure https://www.nationwidechildrens.org/conditions/seizure-care
One of Robin’s special interests is the central nervous system,  which houses the brain, which is typically where seizures come from/originate. https://kidshealth.org/en/teens/brain-nervous-system.html
80’s Candy references, I cant promise you these were available in Indiana so just ignore that if they weren’t https://www.eightieskids.com/greatest-chocolate-bars-1980s/5
Steve’s spasms in his hands during seizures are caused by the connection of the brain to the musculoskeletal system, https://my.clevelandclinic.org/health/diseases/14526-musculoskeletal-pain 
Steve self-rehabilitates himself with Yoga, it's a recommended exercise use for seizure patients https://lonestarneurology.net/blog/physical-activity-in-epilepsy/
I don’t know how libraries work since I’ve never been to one so if there’s inaccuracies, ignore it 
And of course, If my interpretation of a focal seizure is inaccurate, I do apologize. this one was a bit more general in the 'brain damage' section, though.
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wtfcl0ud · 5 months
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and then god said you will have only the most subjective (meaning there is no or little way to actually prove it through like a blood test or smth) physical and mental conditions and symptoms
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system-splintered · 6 months
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I've been having these episodes for as long as I can remember, I'm not sure what they are but I think I'm going to try to get in with the neurologist and see what's going on.
They're triggered by stress, flashbacks, and flashing/bright lights. My vision gets fuzzy, I stop responding to stimuli, I blink a bunch, sometimes smack or lick my lips over and over, and sometimes my hand will move a short distance at a lazy irregular speed repetitively without my input. I can hear what's going on around me but I can't respond. I can think clearly about half the time, and when I can't, I'm foggy and confused afterwards for a few minutes up to hours. It rolls over me like a wave.
I chalked it up to dissociation for a very long time but came across a video of someone having a focal seizure that looked really similar, and in looking at others I find a lot of similarities.
It was better when I was on Lyrica, gabapentin, or Lamictal, and it's also much less frequent when I smoke a lot of weed.
It happens often going into Walmart, I fuzz out and just follow my partner in a daze, or stop and stare at nothing for a few minutes before my head clears.
I've had it happen while driving at low speed, I was able to keep the car going straight and work the pedals enough to keep myself safe, but it was hard and gave me a massive migraine.
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calicoarthropodcrafts · 10 months
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A little wall art I made this morning. My gold embroidery is regretted but I think it's too late to undo.
I like basing my aesthetic off of my visual focal seizures.
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ribbitflings · 4 months
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anyone have any papers on generalized epileptic seizures triggering a PTSD relapse
I tend to like to collect scholarly papers on various subjects, this being one since it happens to be a more personal subject.
December has been a rough month personally and when it came to seizures, beginning with a lot of relational problems and devastating realizations and so far I have thirteen major seizure events on my calendar, not even including individual seizures during those events (because they can cluster). I ended up having a bad PTSD relapse during this month, pretty sure this is the worst one yet, complete with multiple kinds of hallucinations, flashbacks, nightmares, the works. I even ended up hallucinating in a postictal state and having a panic attack over it after a recent generalized seizure. I have a suspicion that the flashbacks and PTSD symptoms are worse after the more violent seizures as well, which leads me to believe it is the seizures activating these areas.
I'm on zonisamide and keppra and have been watching a little more TV than usual (important because it tends to give me anxiety, especially if what I'm watching has action scenes or is unfamiliar), so the relapse could also be from one of these things, or even the events that occurred at the beginning of the month, or perhaps even everything combined.
My current theory is that the seizures will generalize and activate the areas of the brain with the trauma, and considering my state was already fragile to begin with, it kind of facilitated a collapse. I currently only have one paper (Koubeissi, M. Z. (2012). Vivid recollection of a past traumatic event: A rare manifestation of temporal lobe seizures. Epileptic Disorders, 14(3), 325–328. https://doi.org/10.1684/epd.2012.0530) on the subject from a prior experience this summer that prompted this finding, so it isn't necessarily new to me, but at the same time, just as unsettling and infuriating. Anyway, does anyone else have any more papers on this particular subject?
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kazooie · 9 months
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Important poll that might actually help me with a diagnosis, I've been having seizures and they always start with intense dejavu, like trust me you'd know if it wasn't normal dejavu, but I've never liked dejavu so I'm curious,
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I've volunteered to give a lecture on my country's schooling system to an association that helps refugees integrate.
It's all ready. It's not a big deal : I don't like public speaking but the challenge is good for me and I like to help.
But I had an epiliptic fit this morning and my brain hurts. I'm used to it, I've had it for years... It's just that sometimes my mind sometimes doesn't work well on the day it happens.
I don't want to cancel because I'm OK physically.
But please, pray for me... I really want that presentation to go well. With God's help it will be ok.
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frostryn · 3 months
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god my life at this point is just Try Not To Have A Seizure Challenge where everyday I wake up optimistic that maybe today will end the chronic migraine (525 days straight!)/accidental injury/shitty bad news streak & then I just get slapped in the face with something worse. how the fuck am I supposed to control being stressed when I live under capitalism & I'm disabled trying to take care of myself. my seizures are stress induced & fuck I try so hard but this world is going to fucking kill me
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osamu-dazai-is-mine · 4 months
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I went to neurologist today and found out that I was having focal aware seizures for 4 months and uhhhh idk how I feel about that! Like good to know that I possibly won't have tonic-clonic seizures but now I feel bad about hanging out with people knowing that I had seizure during that :c
Like sure I can't control it, and had no idea at the time, but it feels wrong??? Idk
But also I can't just isolate myself because I'm epileptic and might possibly weird someone out ig
Ahhhh this is weird, I thought feeling hangover and having "distressing vivid dreams about daily life" while sometimes sleepwalking were strange but I had no idea it could be epilepsy???
Hopefully higher dose of antiepileptics will help, so far I've only been getting worse :/ I'm on topiramate and it used to work so well and now I feel like it's wearing off ahhhhh
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