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cripplecharacters · 3 days

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Hello! Want to double check that I've done a decent job of avoiding disfiguremisia, and try to turn it into great counter to hatred instead of just an okay one.

Preface: I have a form of memory loss and likely brain damage so I cannot always phrase things clearly although I will try my best.

Personally I do not feel happy reading escapist stories as that happy ending is not achievable for real people. We don't get to live in a place that's completely safe and free from judgement. I'd like to write people in a hostile world who find love and safety and community, however this does necessite writing hostility. I want to make sure I'm doing so with care.

I would like to make sure that the hostility written as tension does not tar how I write how one of the main characters. He should be written with dignity and respect even when he is not being treated well by those around him.

One of my characters is blind and develops severe burn scars. He wears a blindfold to help with photophobia and sensory overwhelm, but takes it off when its dim. (CVI plus autism.)

While he does wear a cloth coverings in public due to ugly laws, he views it as a ridiculous requirement and happily removes this mask when with friends. He also enjoys that being visibly strange or somewhat unnerving to most people means that shallow people who judge by appearances avoid him.

Question: what other things might I be able to employ to counter disfiguremisia? I have him being content with his face as it tells a story of his life and he's a blunt, forward person, not covering his face for most of the story despite laws necessitating that he do so, and a few other things too (and many side characters with facial differences and deformities also).

Also none of the central plotlines centre around facial difference. He's joining a servant rebellion, befriending a bitter exile intent on status at all costs, and discovering the truth of history. (Also a mind controlling octopus being is involved and a semi sentient moon amalgam thing but don't worry about it everything's fine.)

I think later books will be a more effective counter due to lack of ugly laws and him finding a lovely interest. I will also do my best to make the counters feel real and feasible - I want it to feel like an achievable option for those who deal with prejudice in the real world. I want his happy ending to feel real.

I respect the hell out of escapist fantasies it's just that they do nothing for me personally. I really want to write someone dealing with a lot - more than I ever have - and coming out the other end happy. Yes this world is hostile and will judge me but I can find joy despite it all. Some say the world is universally cruel but I have not found this to be the case. It is wise to be wary but myself and friends can create small sections of time and space where no precautions are necessary. Am I not part of the world? Are not they? The world is not universally cruel as long as I and those I treasure live in and we are not extraordinary, simply uncommon, and what is uncommon is still a great bounty. (Something to that effect.)

I'm set on what I want to write but the specifics I'm more than happy to change in order to bring joy. Do you have ideas on how I can do this full idea full justice?

Hello,

before getting to your actual ask, I have a "few" questions about the premise of the story itself.

You mention that you don't like escapist fantasies - that's fair. Taste differs; you can write whatever and that's great. But I do find the insistence to write a story about a specific type of discrimination as an outsider rather strange. If you want to have facial difference representation, I assume you want to have readers with facial differences, correct? I mean, I don't think that many able-bodied people would be too interested in it specifically considering most don't know what it is. So okay, this is supposed to be a story of characters with facial differences overcoming centuries worth of hatred and all that. Arguably more, considering that disfiguremisia and ableism go all the way back to Biblical times.

Why are you the person who needs to tell this story?

Just as people with facial differences are readers, we can be authors as well. We tell our stories. I will take an #OwnVoices book over a one that isn't that any day, and this fact will influence the rest of this answer. I'm a firm believer in #NothingAboutUsWithoutUs and all when it comes to this stuff.

Have you talked to people with facial differences who would be interested in the kind of story you want to tell? Do you know what they want to see from an author that's not taking it from their own experience? I don't count here, because as I made clear before, I'm not and won't be interested in it. I also don't know anyone in the community who has ever said "I wish more people without our experiences wrote about how hard it is to be us!". You need to make sure there are people who want this.

So, have, or will you, reach out to those that could like it? Sensitivity readers, random people online who like to read about disfiguremisia in their free time, advocates who work on media-centric problems? Anyone who would enjoy it is automatically a better candidate to help than me. I'm too jaded, I suppose.

If you want to talk about people with facial differences in such detail and setting, you need to get to know us. One guy with a specific set of opinions from a blog on Tumblr isn't that (thank god), but I guess I can serve as a reminder that not everyone will be excited to read a book that represents them in some way. We still have preferences.

To write it, you need to involve yourself in the community, start actually spreading activism about our issues. Preach about Face Equality and celebrate when our once-a-year week happens in May. See what disfiguremisia causes. Share our efforts to get all the problematic garbage off the big screen. Read our stories. Understand us as people who are incredibly diverse, and that not all of us like to be described as strange or unnerving.

If you only want to talk about our suffering as some quota to fill on a "types of discrimination" list, it will always be flat and inauthentic, and if you don't put in the effort it's pointless. We don't want tragedy porn, and we don't need to be included in every story about struggles that just wants some brand-new type of bigotry in it. We want authors who care about us, the living and breathing people. And sometimes it might mean respecting our opinions on writing disfiguremisia.

Here is a great post by @writingwithcolor explaining the effects of tragedy exploitation. Not everything there applies, but I would consider it a very valuable read.

If you think about all this, and decide that you are ready to write such a heavy, community-based story, go ahead to...

Actual Answers! Hooray

what other things might I be able to employ to counter disfiguremisia?

Sympathize with him. Disfiguremisia is a tragedy, it's brutal and it hurts. It's traumatic and impossible to forget, even if it wasn't happening constantly just to remind us that it's still there. On this note, I would recommend you research writing characters with PTSD.

Have him think about it. Sometimes I get home after getting stared down on the street and just want to yell. You don't forget a microaggression or a hate crime after five minutes. Let him vent and let him be upset. He can have flashbacks or recall similar situations that happened in the past.

I'm glad that he's aware of disfiguremisia unlike a ton of characters who are somehow always unable to figure out that it's a problem. If the ableism he's facing is so systemic and severe, individual people will be even more extreme. You can have him remember that the shop owner was a slur-spitting bigot, or that his neighbors avoid even talking to him. I want him to call them out - in retrospective, at the moment, in his head, whatever - on what they're doing. Throw a "not this fucking thing again" or something in there.

The minimum is to make him feel like a human with an internal thought process, who is able to actually experience what's happening to him, and for it to have long-term effects.

Also, outside of the whole disfiguremisia thing and me being overdramatic, check out our #blindness tag, and research burn scar care. If you don't show the boring and mundane, it will only feel closer to tragedy porn; just a sad thing one after another.

I will also do my best to make the counters feel real and feasible - I want it to feel like an achievable option for those who deal with prejudice in the real world.

This I think is the part of the ask that made me the saddest, and not because of what you wrote. I tried to think of achievable ways; ways that we did it, tried to do it, and are doing it, and one-by-one I crossed them out as "didn't work", "no one cared enough" or "kinda worked but honestly, it didn't". Face Equality is basically non-existent, not matter how much it hurts me to admit it! We are trying our best, and it doesn't work. It's just plain hard for me to come up with suggestions for this.

In fiction, I suppose that personal resistance is the way when it comes to this. I don't think there are feasible systemic changes that could happen that don't border on magical thinking or get into the "singular glorious revolution that somehow fixes everything and everyone lived happy ever after. We fixed racism, yay!". This just sucks.He could try to educate the people who are willing to listen - that's somewhat what I'm trying to pull off here on this blog, I guess. Sometimes it works, often it doesn't, but in his situation it wouldn't hurt to try.

The fundamental part here will be whether your character is able to find a way to make the ordinary person care in the end. To me, society who still hates us just as much, with a small group that thinks we're okay isn't a happy ending. The opposite, rather. It's cold and isolating to know only your friends could value you as a human being, and downright sad to imply that we should be happy for that. I don't mean that everyone should love us in every story, but there's a difference between The Ableism being represented by an antagonist or two versus the entire world except for the main characters.

If you decide to go forward with this story, I do hope your other readers with facial differences enjoy it!

mod Sasza

[This ask was submitted before my announcement of not taking questions regarding this subject matter. As of publishing this, it still applies.]

#mod sasza #anonymous #face difference #disfiguremisia #tw ableism #long post

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northern-passage · 11 months

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i've been thinking a lot about the word "representation" and what it means and how it's changed over the last few years, particularly when it comes to the writing/publishing landscape but also in movies and tv shows… and i really don't like it anymore. to be clear, of course i think it's important to have diversity in your work, i'm not saying i hate the concept of representation. but i do really dislike the way it's used now, and i really just hate the word itself

in a broader sense it's just become a marketing tool. i'm not impressed by any publisher or author who just describes their book by listing all of the minorities/identities the characters represent as if that should be enough. it feels very gross, very exploitative and disingenuous. it also really bothers me because it's always marginalized identities- which i understand Why, but it feels very othering to me (and again. Very exploitative as an advertisement). you would never list out "cishet able-bodied white man" as a character description to pat yourself on the back over. so why do it to everyone else? why insinuate that one is the "default" and the other one is "special"? (and when i say this i'm mainly talking about advertisements/marketing. i understand why people would specify about characters in descriptions with the plot, but i don't like to see an ad that's just "this book has gay people!" with nothing else)

which then leads me to my other point, which is that a lot of people treat "representation" as if it's "too hard." like "oh i don't know enough to write about that, i don't have that experience, etc" which is a fair way to feel! however… it's weird that people only say this about writing trans characters or characters of color. i'm writing a story right now with a character who is really into motorcycles. i personally do not know that much about motorcycles, so i researched what parts are what & what different kinds of models there are & what basic bike care looks like. i guarantee Most people will have to google something at some point in their writing process. so what's the problem? it also, again, feels very othering when authors treat certain groups of people as "impossible" to write, "too hard" to understand. they are just.. people. you write them as a person. and then you figure out the rest later.

and i think part of the refusal or fear to write something outside of your experience is because of the way representation is treated as So Special. these characters are So Special that they aren't allowed to be anything other than "representation." they're Not allowed to be characters with complex emotions and interesting motivations, they have to just be Trans or Gay or Disabled or whatever. they're not allowed to be people. which means, at the end of the day, we loop right back around to where we were at the start….

there is bad representation. there are depictions of certain marginalized people that are harmful and that are damaging, i'm not trying to minimize that or argue against it at all, in fact we should all be mindful of that while writing and reading. but i also think it's possible to swing too far in the opposite direction as well and put certain groups of people on a pedestal and not allow them to do anything at all but be Perfect Representation, if that makes sense.

#anyways. is this anything #sorry i dont have anything insightful to say at the end here i just wanted to ramble #especially abt the way ppl market books now it like. genuinely disgusts me #cannot imagine marketing tnp in that way. my characters are many things AND they are trans. and their transness #is not just a flashy feature for attracting attention #also i do understand the fear of 'getting it wrong' but that's why you have beta readers or even actual sensitivity readers #that's why you ask for feedback. especially in this space like... people will give it #that's what makes sharing your process and early draft in this community so rewarding #and there's also just the reality that no matter what you do some people will Not like it 🤷#and ime a lot of ppl look at representation very individualistically #as in it's only good representation if it represents Me #which sucks. and you're never going to please those people #ANYWAYS also to be clear this is not a vague or meant to be targeted at any one person please don't be fucking weird #this is just some thots i've had recently esp since ive seen the representation conversation pop up quite a few times #and since i've been doing research for characters in my other project #personal

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