probably time for this story i guess but when i was a kid there was a summer that my brother was really into making smoothies and milkshakes. part of this was that we didn't have AC and couldn't afford to run fans all day so it was kind of important to get good at making Cool Down Concoctions.
we also had a patch of mint, and he had two impressionable little sisters who had the attitude of "fuck it, might as well."
at one point, for fun, this 16 year old boy with a dream in his eye and scientific fervor in heart just wanted to see how far one could push the idea of "vanilla mint smoothie". how much vanilla extract and how much mint can go into a blender before it truly is inedible.
the answer is 3 cups of vanilla extract, 1/2 cup milk alternative, and about 50 sprigs (not leaves, whole spring) of mint. add ice and the courage of a child. idk, it was summer and we were bored.
the word i would use to describe the feeling of drinking it would maybe be "violent" or perhaps, like. "triangular." my nose felt pristine. inhaling following the first sip was like trying to sculpt a new face. i was ensconced in a mesh of horror. it was something beyond taste. for years after, i assumed those commercials that said "this is how it feels to chew five gum" were referencing the exact experience of this singular viscous smoothie.
what's worse is that we knew our mother would hate that we wasted so much vanilla extract. so we had to make it worth it. we had to actually finish the drink. it wasn't "wasting" it if we actually drank it, right? we huddled around outside in the blistering sun, gagging and passing around a single green potion, shivering with disgust. each sip was transcendent, but in a sort of non-euclidean way. i think this is where i lost my binary gender. it eroded certain parts of me in an acidic gut ecology collapse.
here's the thing about love and trust: the next day my brother made a different shake, and i drank it without complaint. it's been like 15 years. he's now a genuinely skilled cook. sometimes one of the three of us will fuck up in the kitchen or find something horrible or make a terrible smoothie mistake and then we pass it to each other, single potion bottle, and we say try it it's delicious. it always smells disgusting. and then, cerimonious, we drink it together. because that's what family does.
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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so weird being an eldest sibling who can't relate to most of the "eldest sibling memes". not the being a surrogate parent against your will to your younger siblings and being expected to set the bar for success in everything you did, i did have to deal with that, but all the jokes about how you were the only one resembling an actual normal human being in your family and your younger siblings were like imps sent from hell to torment you. because out of me and my brother i was the devil sibling. he didn't like to bring his friends over to our house because they were scared of his creepy sister who would stare out at them from the windows with her horrible dead shark's eyes and read books and watch shows on tv with photos of real life decomposing corpses and diseased rotting flesh in them that would give them nightmares.
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forgotten playthings, forgotten child 🧸
Jack from my series Lost & Found Children 🤍🖤
i hope to showcase more of my ocs in 2024 hehe! im FINALLY getting around to finishing art i left to rot in my folders (the pandora hearts drawing last month being one of em). if you saw the WIP of THIS particular drawing 2 yrs ago... no you didn’t 💔
my charas are very personal to me, but tbh ive always been a bit hesitant to share their stories. over time i realized ... it’s kind of a shame to not make art from one’s heart. which is something i regret a lot year after year whenever i make my yearly art summary reflection. i'm like damn i need to make more emotionally evoking pieces!!! so i'm gonna keep going in 2024 with that in mind ❤ i have to admit, although this drawing started 2 years ago, and there's a lot i would do differently if i were to supposedly draw it now - this concept goes pretty hard.
the final drawing stayed pretty close to the original concept which im so relieved for! i think part of the reason why i left it on the backburner for so long, was the fact that i included so many details, and i was unsure of how to colour the "background". (not to mention stuff like cons & real life getting in the way).
i'm glad for discovering a really handy watercolour brush, it's helped me a lot in my last few drawings, bc i dont have to colour in each detail. especially since the witch hat atelier: eternal ephemera zine piece i did. otherwise if i coloured this back in 2022 with my usual method, i'm pretty sure i really would have included a shading and highlight layer for each individual toy... HAHAHA. much to think about
oh yeah and in the last few days of drawing this i was listening to some visual kei bands. i love how some of the band members literally have been performing since like the 90s or something and DO NOT AGE and are literal vampires. every so often i fall back into visual kei (you can tangentially thank aggretsuko although yes i know it's not the same). and i kind of realized. i like Jack's edgy design so much because he looks like. a visual kei esque vampire.
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