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dolugecat · 3 years

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On some Japanese social issues I had learned about at uni and abroad):

(Rb ok!)

Legit had an epiphany about the true hidden meaning of the last arc of Mob Psycho 100. It’s hella projection but for real there is nothing neurotypical about Mob or Mob Psycho. I do not wish to enforce my interpretation on others (ironic bc I do that all the time but this is a serious social theory). There are some interesting and very sad social issues in Japan that the west really doesn’t understand but would I think help people understand a lot of context behind not only Mob Psycho, but also a lot of other anime. I learned this at my shitty university (prestigious but horrific) and while studying abroad in Japan and talking with Japanese peers. Get ready here we go (and tw for bullying and darker things):

Unfortunately in East Asian education systems, bullying can be extremely intense. Growing up I assumed it was over exaggerated extremely in anime for drama but it really can be so horrific. From what I’ve heard, there is often a single kid or so who is just shit on by everyone else, even the teacher. Mogami land *is* the reality of some Japanese kids. I’ve read that in Korea, this social punching bag sometimes is just the darkest skinned person (yayyy colorism /angry) and or someone who does not fit in. I mean, we have that in America too, but maybe not as common for the bullying to be as focused on one misfit rather than several. These kids just can’t escape the stigma too, kids from other schools find out they were a major victim at their old school and it starts anew. Thus there is so much stigma and incentive to join in on bullying so you aren’t the one. Sadly, this also ofc leads to higher suicide rates. That’s where the “shoe on building roof” anime trope comes in, bc somehow taking off shoes is relayed to death (I forgot why sorry)

There is a difference in how intense in general high school vs college is too. In the West, commonly college is the more intense curriculum and is harder than high school, but in Japan it’s usually the opposite. Grind suuuupppeeerrrr hard for entrance exams (huge standardized tests that determines what college you can qualify to) bc unlike the ACT or SAT here, that test is by far the most important factor for college admission. Then chill and relax a bit in college. Can’t relate. Name and prestige is very critical for job application, more important than here. That’s why planning out your future is sooo much more intense for Japanese high schoolers than in America, and why there is sooo much more pressure to excel in high school than here. Japanese school years and holidays are done different than ours, I’d suggest looking it up.

Social prestige of going to an American high school or college is nuts. Like whyyy do you value our shitty education, Japan’s is much higher quality (it’s bc we neo colonized them). Being able to speak English is very, very highly valued and any association with Americans make you cooler. From my experience, some Japanese students got very excited to practice speaking English with us, and their biggest issues with learning it is pronunciation, lmao. Wasai english is unique slang that is indeed English words but it’s kinda different and it’s kinda jarring to remember lol. So, Teru having parents that are working overseas isn’t too uncommon, idk about leaving him absolutely alone, but I did have a ex-friend who just came from Japan in middle school who’s situation probably wasn’t too far off from that. Empty wealth with no love, it’s no wonder those kind of people can end up being huge bullies (minori?)

I did a presentation on 引きこもり(hikikomori) for which means “shut in”, (like Serizawa) and it’s fucked up. It’s a social phenomena where according to some Japanese researchers a mix of undisciplined parenting, guilt/not living up to expectations, and hopelessness makes an alarming amount of youth/ young adults literally never go out side their house/room. Often a parent is “enabling” the behavior by supporting them, but idk the articles seemed a bit victim-blaming to me when I read it, but I don’t think I should make a judgement too hard, not my place. I will say I do suspect and believe I read something to support that ASD might play a role in hikikomoris (there is pitiful resources for autistic people in Asia, much much less support than even here, to the point I don’t think most know it exists). Like come on, with the other points I laid out my personal opinion as an Asian American with autism is that it really seems it’s unknowing ableism against autistic classmates, but I didn’t grow up in Asia so I don’t want to say.

Mental health in general is tragically quite abysmal in Japan, and with it being so hyper competitive and brutal work culture, it’s no surprise birth rate in Japan is so low; some Japanese young adults say it seems unethical to bring a life to such hostile world. Suicide rate is of the highest in the world. It’s fucked, I’ve interacted with some of the locals in Tokyo and they were so nice, but the business men just looked dead inside, it’s so sad.

Relationships between child and parent is also strained bc of this intense work and school culture. Quality time is too scarce when you gotta work so much. And the pressure from parents to do well in education or else you might end up socially stigmatized is rough. Bc your job is who you are, it’s hyper capitalism (thanks us for making them do this)

With autism being so unknown, support for parents in raising autistic kids is almost nonexistent. What happens if the “darker” side of ASD shows up in kids? I used to be a menace when I had meltdowns, I felt so bad but really just became so indiscriminately violent. See where this is going? Legit, I think ESP is a sort of metaphor for neurodivergance to ONE. There is so much stigma around it, and even less way for kids to understand why they are different than the others. My Korean family can’t admit we all got ASD, too much fear and internalized shame.

I got finally diagnosed with ASD as an adult and I’ll tell ya, I relate too much to Mob hurting Ritsu. I felt so bad, but also not in control, I knew what I was doing but not how to stop. Luckily, is was blessed in that my hyperfixations involved science and logic, so I did well at school. Sadly, our boy Mob just don’t got the passion or ability to do well at school. His kanji is very bad, even to point of not being confident he wrote a kanji (世) they learn when they are 9, in elementary school (thanks @katyatalks). Him being a bit berated by his parents for having bad grades and bending spoons seems harsh to Westerners I think, but IMO it’s pretty tame from what I’ve seen of some Asian parents (I get to say that lmao). Ofc, however the shaming is very real and Mob just agreeing with them about how weird and stupid he thinks he is so sad. There is even more pressure for the eldest to be better than here, I feel from some interactions. Nonetheless, it’s implied Mob is quite emotionally detached from his parents, even though he loves them, which also adds to his emotional complex. Combined with originally fragile self esteem and feelings of worthlessness, we got one emotionally stunted boy. However, contrary to common belief people with ASD are sometimes hyper empathic and experience emotions very intensely. We are prone to having “meltdowns” which if not assisted with can be quite violent if very intense. For me, my worse meltdowns as a kid came from when I didn’t understand why I wasn’t getting what I wanted, it seemed selfish and cruel of me but I couldn’t control it. I wanted to be a good kid, so why did hit my moms leg at target when she refused to buy me Pokémon toys? I couldn’t come up with a good reason for why my mind just commanded my body to do bad things, just a single thought was controlling me, I want I want I want I want I want ____. Which I argue could be what ???% represents… bc well…. Yeah….. hmm….. not in control of self (mob unconscious), selfish (not actually, I’ve forgave myself but my “normal” kid self was so ashamed), destructive, hurt family, wanting to stop but can’t, that’s kind of…. Too relatable.

But legit, since realizing my new HC, I’ve started to think of the last chapter of mp100 when I “explode” and it helps me feel better and I do gain “control” a bit easier. I don’t feel so bad anymore either, Mob!

#mp100 #mob psycho 100 #my post #mp100 headcanons #welcome to my hc #asd #autism #actually autistic #kageyama shigeo #mob #mp100 meta #Japanese society #japanese culture #meta #mp100 analysis

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mimzy-writing-online · 4 years

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Writing A Blind/Visually Impaired Character: Canes, Guide Dogs, O&M

Wow, back in June I decided to take a few months break from blogging to recharge and focus on my mental health. About a month ago I began writing this specific post, slowly and in stages because of how demanding, detailed, and long it is.

I’m not sure when I planned to come back. I have about 200 posts with tags and image description in my drafts folder, waiting to be queued, but I wanted to finish this guide before I fully came back.

Come back with a bang, right?

But this blog, and specifically, my Writing a Blind or Visually Impaired Character guide, has gotten so much traffic and support that I felt incredibly motivated to come back now.

So I finished the guide, and now here it is. It’s been a year+ in the making. Since the very beginning of this writing advice series about writing blind characters, I’ve promised to write a guide specifically about canes, guide dogs, O&M, and other accessibility measures the blind community relies on.

In fact, if you look at my master post for this guide (now pinned at the first post on my blog) you’ll find that it was reserved as Part Four, even as other guides and additions were added over the last year.

In this post I’ll be explaining

What Orientation and Mobility (O&M) is

How one learns O&M

About canes, from different types of canes and their parts, as well as how to use a cane.

I will be explaining the sensory experiences of using a cane and how to describe it in narrative.

I will include small mannerisms long-time cane uses might develop.

At the very end will be a section on guide dogs, but this will be limited to research because I have no personal experience with guide dogs, being a cane user.

Disclaimer: I am an actual visually impaired person who has been using a cane for nearly three years and has been experiencing vision loss symptoms for a few years longer than that. This guide is based on both my experiences and my research. My experiences are not universal however because every blind person has a unique experience with their blindness

What Is Orientation & Mobility

Orientation and Mobility (O&M) is the specific skill of understanding and navigating the world safely and confidently with vision loss.

I’m going to quote Vision Aware’s specific definition [link]

"Orientation" refers to the ability to know where you are and where you want to go, whether you're moving from one room to another or walking downtown for a shopping trip.

"Mobility" refers to the ability to move safely, efficiently, and effectively from one place to another, such as being able to walk without tripping or falling on steps or elevation changes, crossing streets, and using public transportation

O&M can involve :

-learning how to use a cane, as well as what cane works best for you

-safely navigating obstacles with your cane, including stairs, ramps, elevators, uneven or curved sidewalks, through crowds, around furniture

-learning safe strategies for crossing the street

-planning routes to new or recurring locations

-using technology enroute, including GPS and apps like Uber and Lyft

-safely accessing public transportation

-how to ask for help when needed

-working with human sighted guides

A Note on the Blind Community and Their Relationship with Canes

The Perkins School for the Blind estimates that only 2-8% of the blind community rely on canes for navigation. The rest rely on remaining vision, guide dogs, and sighted guides. Only about 2% of the blind community relies on guide dogs however, and to get a guide dog in the first place, a person must go through O&M classes and use a cane for six months before they can sign up for a guide dog.

What this means is that 90% of the blind community don’t use a cane.

I didn’t know this fact until I begun research for this guide, and that number astounds me.

Truth be told, while I have navigated my life without a cane before, I can’t imagine going back to the way it was before I got it. Even if I only need my cane some of the time, I can’t bear to not use it in the situations I need it. Having a cane made my life a lot easier, a lot safer.

I don’t know what to attribute this number to.

I might attribute it to the concepts of invisible vs. visible disability, internalized ableism, or the feeling of ‘not being blind enough’ for a cane, as well as accessibility to the blind community and knowledge, and access to buying a cane in the first place. I could write a thing about it, but if I try it’s gonna be its own post.

Onward~

How Do You Learn O&M? How Will My Character Learn?

You will have to find an Orientation and Mobility instructor and have them personally teach you O&M skills.

The O&M Instructor is a sighted adult who has gone to school for a bachelor’s degree and gone through O&M training themselves while blindfolded, usually fulfilling a certain requirement of hours (one program required 400 hours of O&M practice blindfolded before you could become certified), and apply for certification to teach O&M.

(Or, as is the process to become an instructor in the United States, where I am from. Becoming an instructor would vary in other countries, I’m sure)

To find an O&M instructor, you would reach out to your local school or foundation for the blind. Finding your nearest school for the blind could be done through…

Google search

Your Ophthalmologist (eye doctor) referring you to a school for the blind

A Social Service Worker reaching out to you and helping you contact the school

Possibly your school (as in grade/primary school, high school, university) reaching out to the nearest school for the blind on your behalf.

Unfortunately, there is not an abundance of schools and foundations, so your nearest might still be a far travel distance. My local school is a 45 minute drive away. For some it might a few hours away.

This is, again, a U.S. experience, because our land mass is spaced out, and something like a six hour drive feels like nothing to most people (although is highly impractical and very difficult to a blind person who cannot drive themselves), but in other countries a six hour drive would mean crossing several borders, and other countries have different social programs.

There is not a full and complete database of every available school for the blind either, no one website to find every possible option. For example, the school I went to wasn’t listed in most of the website resources I found, even though it has seven branches and locations.

This is more a complaint at the real life struggle to find disabled services, that there are few comprehensive resources out there. If you ask me, it should be made significantly easier to find and access your local blind communities. Accessibility and disabled services should be easily available everywhere.

If your story is based in a real world location, googling ‘school for the blind (city/county/country)’ should suffice in finding the one most local to your setting.

What might a school for the blind provide for your character?

Well, on top of helping your character connect to an O&M instructor, a school for the blind might provide other rehabilitation classes and access to additional resources.

Those rehabilitation classes could include lessons on:

-Reading/Writing Braille & using brailling machines

-Technology classes for screen readers, magnifiers, etc on your computer and smart phone.

My local school has separate classes specific to Andriod, iOS, JAWS, Zoomtext Fusion

-Independent Living skills (cooking, cleaning, organizing, planning how to get groceries and medications)

-Self Improvement (dancing, art, music, self defense. These were classes my school taught)

The additional resources form these schools might include-

Referrals to counselors for coping with vision loss

Access to their audio-book and braille library

Access to magnifier devices, brailler machines (think of a typewriter for writing braille)

Some schools also offer grade-school or high-school education, meaning blind children/teens learn there instead of a mainstream school.

Some schools have lodgings for clients to stay at while going through rehabilitation, especially if the vision loss is sudden and severe. They live on-campus and take part in classes. Other schools only have day classes offered and you need to find transportation for every visit. Many schools might have a rehabilitation specialist or O&M instructor visit you in your home.

My local school did the last two. They had on site classes, but the school is a 45 minute drive from me, so I only visited a few times. They were able to send an O&M instructor to me.

On Wednesdays at 3 pm she would drive to my house and give me lessons on using my cane. Those included her driving me to different locations to practice certain skills (like using stairs and escalators at the mall, or crossing a moderately busy intersection, or visiting a bus station to practice boarding a bus safely and communication with a bus driver where my stop was).

She also brought multiple different types of canes for new students to try out and determine which felt best for them.

The Many Types of Canes

Long Canes are used to sweep the immediate area in front of the cane user as they’re walking. This is the cane type that the general public is most familiar with seeing. There are several sub-types of long canes. They can also be called white canes or probing canes.

[Image Description: Man in business clothes traveling on the side walk with a white and red cane. End Image Description]

White cane can be a misnomer for two reasons: One, the concept of the standard cane for the blind can look different in different countries. In America, the standard is white with a red tip. In some countries the standard is an all-white cane. In some countries an all white cane might mean the user is blind while a white cane with a red tip means the user is deaf-blind.

Two, some companies like Ambutech allow customers to customize their cane colors and tips. Example: Molly Burke’s hot pink cane. My white cane with a purple tip. An all black or all sky blue or all red or all purple cane. A black cane with a blue or purple tip. Ambutech also allows customers to request neon-colored reflective tape to make their canes more visible at night.

Probing cane is not a term I’ve personally heard before, but it is a term Vision Aware uses on their website.

There are three main types of long canes:

Non-folding Canes: a cane that has no sections, cannot be folded or collapsed.

[Image Description: stock photo of man in business suit with a non-folding all white cane. End Image Description]

Folding Canes: The cane has 3-6 sections depending on its height. The taller the cane, the more sections it has. The sections are separate pieces that are made to snap together and are held together by a strong elastic rope inside the sections.

[Image Description: a folding cane with four sections, white with a red tip, and a rolling marshmallow tip. End Image Description]

Telescopic Canes: in which the sections slide into each other, similar to a telescope/spyglass, rather than pulling apart and folding. The handle is the widest section, and the tip section is the thinnest.

[Image Description: Three stacked images of a blue telescopic cane. First is of the cane completely collapsed. Second is of the sections partially sliding out. Third is the cane sections completely out and locked.]

Beyond that is also the Identification Cane. The function of this cane is to visibly identify the user as blind. It’s not used for O&M the way long canes are, there is no sweeping out the next two steps. It can be used as a support cane, however.

It’s appeals most to the elderly who not only make up a huge percentage of the blind community, but might also benefit most from having both a support cane and an identifier for their blindness, in case they need assistance.

[Image Description: identification cane with curved handle. All white with red tip. End Image Description]

A note: From what I’ve heard in the blind community, some people prefer solid/non-folding canes over folding or telescopic canes. The reason for this is that solid canes transfer vibration better than folding or telescopic canes. It’s said that the more sections a cane has, the less precise the vibrations are.

Some cane users train themselves to understand the vibrations of the surfaces their canes are touching. It tells them what kind of surface they’re on (wood vs. marble vs. concrete), if there are nearby objects to their cane. While I rely somewhat on cane vibrations to tell me what surface I’m walking on (more on that later), it is beyond my current O&M abilities to use cane vibrations to sense nearby walls or objects.

Cane vibrations are just an additional information-sense to add to the others in use, and extra bit of data input.

Parts of the Cane: Materials, Handle, Tips, Sections, Elastic Band

Material

The three most common types of materials used to make canes are aluminum, carbon-fiber, and fiberglass. Each material has some drawbacks and benefits.

The ideal cane is lightweight and durable. It should be strong enough to withstand hitting something solid without bending or splintering.

Aluminum is strong and durable, but heavy. If it’s damage, it’s more likely to bend than break entirely. A bend can be straightened out, but it takes considerable strength.

Carbon-fiber is lightweight and durable. It’s stronger than fiberglass, and it can bend out of shape rather than splintering.

Fiberglass is lightweight but a bit rigid. If it breaks, it splinters.

Handles and Elastic Bands

While some canes can have specialized grips (plastic, wood, corkboard) the most common handle material is a black rubber handle that is about ten inches long, give or take. In the previous photos you’ve seen, the canes have had black rubber handles.

Here is an example of a cane with a wood-mesh material used as the handle.

[Image Description: a four section white cane with a red tip and a orange wood mesh handle, with black elastic band attached. End Image Description]

The benefits of black rubber handles over others are that it’s easier to hold onto, especially if your palms are wet or sweaty, than a plastic or polished wood handle. It also wouldn’t show the indents or scratches from wear and tear daily use. I’m guessing that is cheaper to make on the manufacturing standpoint, and thus is conveniently the standard.

Pay attention to the black elastic band attached to the handle in the above photo. Notice how it has a tied off loop? That is so that when the cane is folded, that loop can be stretched over the folded sections to hold it together.

[Image Description: a four section folding cane folded up with the black band around them. End Image Description]

Additional benefits or functions of the elastic could be to use it as a wrist strap while using the cane, or hanging it up on a hook while not in use. I tend to have my cane folded up and tuck my wrist under the strap to hold it more securely while carrying it. Images of that ahead in my cane-isms section.

Cane Height

Ideal cane heights depend on the user. For most users, you want your cane height to be to your shoulder, give or take a few inches. You might need a longer cane if you are a fast walker with long strides, or a shorter cane if you prefer to hold your cane at a lower angle than is traditional.

What I mean when I talk about holding your cane at a certain angle is that the standard is to hold your cane handle in your dominant hand and position it in front of your belly button, moving it side to side with each step. Traditional grip methods are holding your hand palm side up with your cane in hand, or to hold the cane at the section joint closest to the handle with what is called the pencil grip, holding the cane like a fat pencil.

Depending on the height, a cane can have anywhere between three and six sections. Longer canes have more sections. The top section includes the handle, and the last section includes the stripe color (traditionally red, unless customized) and the tip.

The sections of the cane are generally slightly reflective, regardless of color. If you hold a cane up to the light you’ll see tiny specks of light reflected back, almost like very fine, tiny particle glitter paint. This detail is important in cane production because it makes the cane more visible at night, especially if something like car headlights reflect off it while someone is crossing.

Additional visibility at night can be added by wrapping stripes of reflective tape along the shaft.

Cane Tips

There are several different tip options for canes.

[Image Description: four different types of cane tips on a blue background with labels. From left to right: marshmallow tip, ball tip, pencil tip, glide tip.]

[Image Description: a rolling marshmallow tip with a blue background. End Image Description]

[Image Description: Bandu basher tip with a white background. For anyone not familiar with the name, the long, curved cane tip that looks like a hockey stick. End Image Description]

Some of these tips are better for the tap-tap method of cane travel, as in tapping the spots where you plan to step. They can also be used to feel out the shapes of objects, stairs, etc.

marshmallow tip, pencil tip,

They should not be scraped over surfaces, the tips will wear down much faster than they should. There are better tips for rolling over surface

Some tips are better for the rolling method of cane travel, which is the method I use. They aren’t great for tapping, but it can be done in a pinch.

rolling marshmallow tip, ball tip, glide tip

The Bandu Basher tip, the hockey stick shaped tip, is best for hovering an inch off the ground and lightly tapping objects. It could be tapped. It should not be scraped over the ground like a rolling tip. It hovers.

After enough use, the tips will wear down and need to be replaced. The part of the tip that has the most contact with the ground, usually the edge of the shape, gets scrapes, sands down, and eventually begins to look like it was shaved off while still having bits of plastic still gripped to it.

Never fear, cane tips can be removed and replaced when they wear out, replacing the whole cane is not necessary.

Some tips slip on or twist on. Others hook on. By hook on I mean that the elastic that keeps the cane sections together also has a loop at the tip end that a hook onto and stay held into place. Look back at the photo of the rolling marshmallow tip and you will see the hook that attaches to the black elastic.

Cane tips sell for about 5 - 10 U.S. dollars, plus shipping, so it’s advised to buy several back up tips with your cane. I replace my rolling marshmallow tips once every six to twelve months. I don’t know if that’s considered too much or too often. The last time I needed to replace mine was June 2019 (It’s July 2020 at the date of writing this, but I’ve hardly left my home for the last six months because of COVID-virus related quarantine/social distancing.)

Sensory Details/Describing What Using a Cane Feels Like

Every surface type feels and sounds different when tapping or rolling a cane over it. It’s this difference that tells us a lot about our environment.

It tells us when we stepped off the side walk onto the grass, when we’ve walked inside because the concrete changes to wood or carpet flooring. These little details become trail markers too, useful for places we anticipate traveling to a lot.

Example: A week before every semester in college, I would travel to each of the classrooms and learn necessary routes. I learned that certain paths had giant cracks in the sidewalk that would be distinct enough to use as a trail marker to where I was on a path, or that certain paths went from cement to gravel, or cement to brick.

Carpet: The sound is very soft, and if you’re rolling your cane across carpet it sounds like a quiet swish-swish-swish. Tapping sounds depend on how thick the carpet padding underneath is, the thicker the carpet the softer the sound. If there’s a lot of padding then taps don’t make much sound, but if the padding is thin or underneath the carpet is tile or concrete then you hear a louder thudding tap. It’s still pretty quiet. If you’re rolling the cane you would feel a little bit of drag, the cane moves slower over the carpet. The thicker or shaggier the carpet is, the more drag it has.

Wood floor: Cane tips make rumbling sounds when rolling over wood floors. The smoother the wood, the less it rumbles. There’s a little vibration moving from the cane tip, through the cane and into your hand as you roll over wood planks. Very small. The more sensitive you are to vibrations, the more you feel it. Tapping makes hallow, thudding sounds on the wood. Sometimes they sound a little snappish if you’re tapping harshly. You feel stronger vibrations when tapping. Older wood feels softer, with more give. New wood is stronger, more vibrations in the cane.

Tile:It depends on the size of the tiles and the wideness of the grout lines, but it’s not a pleasant feeling. Tiles have grout lines, which are little divets between the tiles. The smaller the tiles or rougher the grout lines are, the more the cane vibrates in your hands. Every bump is felt running from the cane to your hand. The sound is a little grating too. Imagine fifty sets of stiletto shoes walking on tile, that’s what it sounds like when you roll your cane over rough, small tiles. Larger tiles with smoother grout lines aren’t so bad. Tapping the tile with your cane sounds like one really loud step of a stiletto heal, one step for each tap. Tile floors are usually found in bathrooms, kitchens, and industrial locations where the room is going to have harder walls (more tile, concrete, etc) and few furniture, so the room echoes more.

Linoleum: is a smooth even surface. It feels like your cane is gliding when you roll it, barely feeling any vibrations. The rolling sounds are very soft because of the lack of bumps, however tapping sounds are a bit louder. Not as snappish as tile or marble, but almost.

Marble: is similar to linoleum in its smoothness. Your cane glides when rolling. Tapping sounds are sharp. Because marble floors are common in high end malls, luxury homes, and fancy office building entries, places that usually have high ceilings and hard walls with minimal decorations and minimalist furnishing, those sharp tapping sounds may echo. Assuming there isn’t too much noise and the environment is relatively quiet.

Concrete: (I’m referring to concrete found in parking garages and industrial buildings, not sidewalk) It depends on the age of the concrete and how it’s maintained. Old concrete with lots of cracks and mini-craters feels very different from smooth concrete that was set less than a year ago. With old concrete there’s a rattling sound as your cane tip rolls over the bumps and those vibrations travel up your cane. New concrete can feel similar to marble or linoleum. The taps are loud thuds on dull concrete and sharper on new concrete.

Sidewalks: are made of concrete, but in my experience they feel a little different than the above example. Sidewalks have a grittier surface, they’re slightly rougher, more dry. There’s a bit more rolling cane vibration with sidewalks and the taps have more of a thud sound. And because they’re outside, you’re unlikely to hear any echoes unless you’re walking in an alley or between buildings.

Asphalt: is one of the worst surfaces in my personal opinion. Asphalt is the material used in roads and it’s made to be rough and gritty so that car tires can grip onto it and not lose traction while driving. The older and more damaged it is, the rougher it is. Because it’s rough the vibrations are much stronger, sometimes irritatingly so. I can’t roll my cane over asphalt because the bones in my hand can’t handle those kinds of vibrations, so I almost always use the tapping method instead. The sounds are gritty and dull. Unfortunately, asphalt is an unavoidable surface, unless you can find a way to never need to cross a street or walk through a parking lot.

Note: the white or yellow lines that have been painted into asphalt sometimes feel smoother because of the material they’re made of and because they’re added after the asphalt has been laid down.

Note: There’s something called tarmac which is similar to asphalt, used for a similar purpose, and more common in the U.K. (I believe) but I can’t say that I’ve ever knowingly walked on it so I have no personal experience to give you.

Gravel: Another one of those evil surfaces. Gravel is just loose rocks and they’re common in rural roads, driveways, some landscaping. The looseness of them is what makes them untrustworthy. It makes a crunching sound. If you roll your cane, you’re likely to end up tossing small bits of rock and dust here and there. If you tap, you’ll hear the crunch but your brain might not translate that into “it’s gravel” until you’re walking on it and only realize when you walk over it and the sharp rocks begin digging into your shoes.

Wood Chips: I don’t have any experience with this since vision loss and getting a cane, so I’m using my memories of being on the playground in grade school because the surface on the playground was wood chips. I’d say wood ships are a love child between gravel and wood floors. The surface is loose and rolling your cane over it would kick up loose chips and dust. It would probably sound similar to walking on sand I think, because wood chips are much softer than gravel but not as consistent as wood. If it’s rained recently, then the waterlogged wood chips sound even softer.

Hard Dirt: I’m thinking dirt roads here, which are a lesser evil to asphalt and gravel. They can be rough like all roads, but the material isn’t has hard and solid. Rolling your cane will kick up dust on a dry day, but if it rained a few days ago you might hear a soft crunch as you roll over wet dirt. Tapping will have a very soft thud.

Soft Dirt: Think gardening dirt. Because it’s so soft, it makes very little sound and is easily kicked up. There’s a bit of drag, about the same or slightly more drag than grass or sand. Tapping has almost no sound but you might feel a slight give as your tip lands in the dirt, a slight resistance as it sinks in.

Mud: Yuck. I’m imagining this getting in my cane tip and how gross it would be after. Sound and feeling depend on how wet the mud is. Wet mud sounds slurpy. There’s more squish if you roll or tap your cane. Your character might not identify it right away until their shoes begin slipping as they walk over the mud. This is a personal experience. Drier mud sounds soft and feels almost solid underneath your cane. Wetter mud has more drag for a rolling cane. Muddy areas are also generally uneven because top soil has been displaced, so muddy hills and fields have unexpected but usually subtle changes in elevation.

Puddles: have both a slurpy and splash-splash sound. The slurpy sound is more common with rolling cane techniques. The splash sound is more common with tapping. The deeper the puddle, the louder is sounds and the more drag you experience. I am not fond of this texture/experience.

Snow: I have zero experience with snow since the development of blindness. So no experience of what it’s like to walk through with a cane. This is something I hope a blind reader can inform me on so I can edit this at a later date. My best guess is that it has a soft crunch, softer than the crunch of shoes in snow. A lot of drag too. Rolling through snow would probably be near impossible, especially if it’s deep snow or hard packed. Again, my best guess. The last time I experienced snow was when I was twelve.

Grass: One of my least favorites personally. Too much drag. Worse than shag carpeting. It’s very soft and doesn’t make much sound either. Like a crisp crunch you can barely hear. If the grass is wet or frosty you hear it a bit more crunch.

Surface with fallen Autumn leaves: Leaves everywhere! This is a bit dependant on whatever surface the leaves are on. It would soften the sound of cement, but there would be a louder crunch on grass. If the leaves are big and very curvy/pocketed then they’re easy to push aside. Smaller, flatter leaves don’t push as easily. The driest ones will crunch under your cane. It’s fun sometimes, if you’re the kind of person who likes stepping on leaves on purpose, but if you can’t see the leaves it might lose some of its fun and be more unexpected.

Sand: I’ve never personally taken my cane to the beach, despite living so close to the coast. The reason is because beach sand is so squishy and loose that it’s already impossible to stay steady on your feet. The sand is always sinking under your feet, unless you’re next to the water line and the dampness has made it firmer. So a cane isn’t very useful to me at the beach. Not to mention that sand isn’t something you want inside your cane joints if you want the cane to last. Sand will erode and damage the joints, regardless of if they’re metal or plastic. If I were to take my cane to the beach, it would make the softest crunching-swishy noise of sand sliding over sand, similar to what your footsteps sound like on sand, but possibly even quieter because canes are lighter.

Side Note: My mother sarcastically asked about rolling your cane through dog poop or gum left on the floor. Can’t say I’ve ever rolled through it, so couldn’t tell you. Use your imagination I guess, Mum

The Invention of Tactile Paving

These are amazing! Tactile Paving are those yellow (or sometimes grey) bumpy squares you see on ramps leading into parking lots or when crossing the street. In 1965, Japanese engineer Seiichi Miyake used his own money to develop a tactile brick that you could feel even when walking over it with shoes, and he designed this because a friend of his was losing their vision and he wanted to help. These are amazing, and accessible to everyone, even the blind who don’t have a cane or guide dog. These are literal life savers. Before I got my cane, if I felt those bumps under my shoes I knew to immediately stop because I was about to walk into the road. Because less than 10% of the blind community uses canes or guide dogs, this is the most accessible form of blind aide available.

[Image Description: a yellow rectangle of tactile paving in front of a ramp leading into a parking lot. End Image Description]

Note: similar detail, most doors in commercial buildings (in my localized experience) have a metal plate on the threshold to hold the door in place so there are no cracks underneath. The metal scraping sound when you roll or tap your cane on it is distinct but temporary and non-repeating, so it’s a good indication that you’ve reached and passed the threshold.

Blind-isms

I have a section in this guide about blind-isms, but these ones are focused specifically on cane use.

-Do. Not. Touch. My. Cane. Don’t. Just fucking don’t.

-The above ism comes from the fact that our cane is our safety net, an extension of our body, our eyes, the one thing that makes sure we’ll get somewhere safely. For that reason, blind people hate having their canes (or their on duty guide dogs) touched by strangers, acquaintances, friends we’re not very close to, some family members.

Important Note: That is a universal thing for disabled people. Don’t. Touch. Their. Mobility Aides. It’s assault. Touching someone’s wheelchair or pushing them around without their expressed permission is assault. Moving their wheelchair while the user is currently standing is assault. (Most wheelchair users are not paralyzed, but they still need the wheelchair because of their medical condition, which is not your business to know). It doesn’t matter if the wheelchair is in the way, the disabled person needs it right there, do not touch it. Touching or grabbing someone’s support cane or their long cane is assault. Touching or moving someone’s walker is assault. Touching, poking at, or tampering with someone’s hearing aids is assault. Touching their oxygen tank or cannula is assault.

Back on topic-

-Idle motions with your cane while waiting in line. I often rest my chin on my cane or lean on it

-twirl my cane like a staff when I’m alone and no one can see. I would not ever do this in front of anyone because I don’t want anyone thinking it’s a toy or they can just touch or grab it. I’m just a little childish and bored sometimes and idle motions are a common thing for people with ADHD.

-When carrying my folded cane inside (like say a store) I hang it from my wrist by the strap.

-Keeping my cane within arms reach at all times, even in situations where I don’t need it currently. Example: if we’re doing a classroom assignment where I need to leave my desk, I know the classroom well enough to not use my cane, but I won’t leave it at my desk, ever. (This does not apply at home. And in the homes of a very few, very trusted friends I will leave it somewhere I deem safe.)

-Having a set, specific place in my home (living with my immediate family, who almost never have guests) for my cane. In my case, it’s the top of an antique dresser in the living room, across from the door. It has a little bowl for my sunglasses as well. If I move out and have roommates, my cane will be in my room.

-Love me a bag or backpack that has enough space to discretely store your cane, but most of my bags cannot do that.

-People with folding canes develop a muscle memory for folding and unfolding their cane, so they can do it without really thinking about it.

-Unfolding my cane: I hold the black handle between my thumb and palm with my other fingers folded over the remaining three sections, cane tip pointing up. I slide the elastic over the tip, loosen my four fingers and roll my wrist to the side. The red colored section unfolds first and snaps into place with its neighboring section. I roll my wrist in the opposite direction so the next white section can unfold and snap into place with it’s neighboring section. Roll it back in the first direction and the third section snaps into place with the handle. My four section cane is now unfolded and straight.

-Sometimes I just grab the black handle and let the sections fall and unfold as they will, but this is less controlled and risks your cane bumping into something or someone.

-Folding my cane: I start with the black handle, lifting it up so the joints unlock. I fold it down, grab both sections in my hand and lift the second section away from the third and fold it over. Wrap my hand over all three sections and unlock it from the red section.

-Because I have a four section folding cane, the cane tip and the handle are on the same side while the metal joints are on the opposite side. Those metal joints are what my elastic slips over.

-A three or five folding cane will have the head of the handle (and its elastic) on the opposite side of the cane tip, and you will be folding the elastic over the cane joints and tip.

-A six section cane has the tip and handle facing the same direction like the four section cane.

-People with non-folding canes like leaning their canes up against walls and other objects when not in use. Corners are popular, the corner of a desk up against a wall too.

-But oh god the frustration when the cane randomly rolls out of place and hits the floor, it’s a combination of “Not again” and “did that really just happen” and “you had one job. one job.”

-Sitting with our cane tucked between our legs. Picture a bit of man spreading, the cane tip leaned against the side of our foot to keep it stable and the cane leaning against our shoulder or opposite knee, possibly also held securely with our fingers too.

-The no-manspreading alternative of that is with the cane leaning against our shoulder, cane tip resting on the toe of our shoe or the outside of it, held securely with our fingers or our arm wrapped around it, elbow hooking it.

(Okay, a while back I was looking for photos of someone using a cane to use as a reference for drawing Ulric. I only found three, and two of them were Daredevil promo photos. Which, no offense to Charlie Cox, but he is not blind and he does not use a cane in his daily life, he does not have that relationship a blind person has with a cane and the concept of a fifth limb, and it shows. So the photos were stiff and unusable, so I had to like use several photo references of different poses and Frankenstein them together to get what I wanted.

And I still haven’t finished the painting... fuck)

-In a car with a non-folding cane:

-Right passenger seat- The cane tip goes all the way into the corner of the foot well to the right of my feet, with the handle resting over my right shoulder or on the seatbelt. It pokes a bit past my headrest. The longer the cane, the harder it is to tuck into a car.

-The U.K. / Austrailian / New Zealand / Japan version of this (because they drive on the left side of the road with their drivers seats on the right side of the car) it’s like this: Cane tip in the foot well to the left of my feet, handle on my left shoulder or on the seatbelt.

Backseat: the absolute worst. There’s less foot well room, and if you’re in a sedan there is almost no room behind your shoulder for the handle. I position my cane diagonally with the handle on the shoulder closest to the door and the tip next to the foot closest to the middle.

-For this reason, no one with a non-folding cane will want to be sitting in the backseat.

About Guide Dogs

While my knowledge of guide dogs is limited only to what I can research and not personal, I will give you some basic facts and practical knowledge from said research.

Guiding Eyes for the Blind estimates that there are 10,000 guide dog teams out there in the world. That makes up 2% of the blind and visually impaired community.

Guide Dog Training

Becoming a guide dog is the most difficult form of dog training there is. The majority of dogs who enter guide dog training wash out and either become family dogs or go into a different type of service dog training, like medical response or PTSD/anxiety response, or possibly become therapy dogs, which is a career altogether different from being a service dog.

Guide dogs go through two or three years of training, which includes puppy training, basic socialization, proper behavior when on duty and actual guide training. Most service dogs only go through a year to a year and a half of training before they are partnered with a disabled handler.

Between the cost of training, the cost of housing and feeding the dog and the cost of vet bills from birth until being partnered with a blind handler, the overall cost of a guide dog is something like 30k to 40k. While most service dog training organizations require handlers to fundraise and pay for the cost of training (usually something like 15-30k), guide dog organizations give their dogs to qualified blind clients for free. These organizations pay for the dog costs through their own fundraising and charities. Fortunately for these organizations, guide dogs are a highly respected field and have a lot more charity directed their way, while other service dog types have less public interest when it comes to charity.

Guide Dog organizations have an application process, requirements, and a wait-list before you can be partnered with a guide dog.

Requirements to get a guide dog are (usually) as follows:

Must be legally blind (as in not visually impaired, but legally blind) and have had at least six months of O&M with a cane and demonstrate enough O&M stills to navigate by oneself. They also require you to be responsible enough to independently care for a dog, able to keep up with training and retraining of the dog, as well as financially able to handle food and vet bills (which are at least a few thousand dollars every year).

The reason for cane training before getting a guide dog is because the dog cannot do everything for you. You, the dog handler, are responsible for knowing where you are and how to get where you need to be.

The dog can’t read stop signs or tell when a light is green or red, nor do they have GPS to find a brand new location nor can they learn that route on the first try, nor will they know exactly where you want to go when you say “Starbucks” or “library” or “school” or “mom’s house” and guide you all by themselves. That falls on you, the dog handler, having enough orientation and mobility skills to know when a street is safe to cross and knowing how to learn new routes and how to keep on route and make sure you make the correct turns. A guide dog can’t communicate with bus drivers for you either, they don’t know which number bus to use or what stop to choose. That falls on the blind person’s own skill.

Other Guide Dog Resources

Molly Burke is a guide dog user and has made several videos about what kind of work guide dogs do, her personal experience being a guide dog user for over ten years, how she got a guide dog, specific commands, unique experiences with things like travel, etc. She has a playlist all about guide dogs, but here are some of my favorite videos.

How Guide Dogs Guide A Blind Person

Guide Dog User Answers the Most Googled Questions about Guide Dogs

How I Met My First Guide Dog

Final Thoughts:

There is a lot more to be said about Orientation and Mobility, such as:

How do you safely cross the street with a cane?

How do you learn new routes?

How does getting a cane significantly change your life?

How do family, friends, and strangers react to you “suddenly” having a cane?

I could also write a ton on other tools the blind community relies on so strongly, such as screen readers, magnifiers, etc. In fact, I originally promised to include those in my master post when Part Four was titled Part Four: What Your Blind Character Needs to Survive and Not Die. However, this guide is ages long and it feels better to focus on this specific topic for here.

Did you like this guide?

Consider checking out my other guides, links of which can be found on the master post here.

Follow my blog, I write and curate writing advice guides outside of blindness, I reblog writing memes with image descriptions, reblog soothing aesthetic photos with image descriptions, talk about disability, lgbtqa+ issues, ableism, and mental health.

If you want to further support me, this is the link to my ko-fi (however there is no such requirement nor pressure to do so, and please don’t worry about it, especially if you are in a financial situation that can’t afford it)

#writing advice #writeblr #writing community #writing tips #blind character #character crafting

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informationsorter · 3 years

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Information Sorter Directory

Welcome. This blog will contain links to official mental health resources, and to non-professional mental health resources. Anything which does not have a source linked to it, is my own personal experience/opinion. It is of utmost importance that you work with a mental health professional on these matters. - Important Information about this tumblr blog. - Who does this blog follow?

- Links and resources. - What is the one best resource I can offer you?

- Answers to FAQS. - Myths surrounding DID/OSDD. - Definitions - How to keep yourself safe from fear mongering and misinformation.

For a full list of posts, please click “Keep Reading”.

- More on misinformation. - A Quick Look at Cognitive Biases.

- What is doxxing, and how to avoid it.

- What does endogenic mean?

- How do I know if I have DID/OSDD? - What are DID, OSDD1a, and OSDD1b? - What's the difference between DID and OSDD? - Can DID/OSDD be caused by outside influences? - Diagnostic Criteria of DID. - What is the treatment for DID/OSDD? - How is DID/OSDD therapy different from trauma therapy? - What are comorbid disorders? - What are Non-Epileptic Seizures, and how do they relate to trauma survivors? - Integration VS Fusion - a definition. - End goals of therapy. - Functional Multiplicity as an end goal. - Final Fusion. - A system’s experience with final fusion. - Is there a core/original? - Amnesia - a quick rundown. - Overt-Covert DID/OSDD.

- About Polyfragmentation.

- Why does everyone just say "See a therapist"? - How can I find a therapist? - Online therapy. - What to expect in therapy and how to act. - Five types of therapy. - What if I can’t find a therapist? - What can I do without a therapist? - My therapist is forcing me towards fusion.

- Let's talk about self diagnosing. - Anti-diagnosis fear mongering.

- How do I explain DID/OSDD to a little alter? - I have a distressed little/young alter. - Should I name my alters? - How much Separation is too much separation? - Does the ISST-D believe your alters are real? - Solving internal disputes within your system.

- What is art therapy? - What is Cognitive Behavioural Therapy? - What is 3 stage work/ 3 phase therapy? - Meditation and mindfulness. - Grounding/Anchoring. - Learning & practicing life skills. - Relearning who you are. - Self care. - What is Inner-Child work? - Alters with different disorders? - About dissociation (not DID/OSDD specific). - Why do some kids develop DID, while their siblings don't? - Is DID/OSDD Hereditary?

- What is ableism? - Is DID/OSDD a neurodivergence?

Emotionally driven posts: - Am I being selfish by concentrating on myself? - I’m too scared to try new things. - I feel like it was my fault. Personal advice with little/no evidence or citations: - How can my therapist help me tell if I'm faking it or not? - How do I deal with severe swings in mood/personality? - How do you live someone else's life right after self-realization? - The spider bag. AKA How I fight fears with logic. - What is the difference between the DSM-5 and the ISST-D treatment guidelines?, or: Neurodivergence and seeking treatment.

Reblogs: - A personal account about their negative experiences with Radical Inclusion.

- A personal account about temporarily identifying as endogenic.

************************************************************* - What is the one best resource I can offer you?

#actuallydid #dissociative identity disorder #actuallyosdd #did #osdd #dissociation #information did

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kirksfattitties · 3 years

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asks you can smell the privilege and internalized ableism radiate from

(tw for ableism and other bigoted implications)

i’m bad at reading tone but even i understand that this is 100% you being condescending and trying to cover it up with smiley faces and false sincerity. and i don’t appreciate that.

before i get into deconstructing your shitty ableist argument, i want to explain the reasons i believe in self diagnosis (self-dx):

even professional diagnosis doesn’t start with a doctor diagnosing you. there has to be a reason for seeing the doctor. some people see a doctor in their adult life because they’re struggling, some people are taken by their parents, some people are referred or suggested that they see a specialist. whatever it is, you don’t just see a doctor and they magically give you a neurodivergency. people have neurodivergencies before they see doctors and even if they NEVER see a doctor.

the psychiatry system is flawed in MANY ways and to say that it isn’t means you’re denying the experiences of people with less privledge than yourself. also like psychiatry isn’t gonna suck your dick. you don’t have to be a bootlicker lol

in many places (hi hello i’m from america where our government tries to indirectly kill us by not providing us with adequate healthcare! i and many other people have many issues we can’t get fixed because simply our government cares more about the economy than us), seeing a psychiatrist or a therapist or going to a mental hospital or WHATEVER is INCREDIBLY expensive. and to assume that everyone has access and enough time/money/energy/transportation/whatever to do all of that is classist and elitist.

ANYTHING medical (including mental health) is biased towards white cis men. most studies are done on white cis men/boys. because of this, people who aren’t white cis men (or people who aren’t perceived as white cis men) are often not diagnosed. the system is racist. the system is sexist. the system is transphobic. people don’t know how to diagnose autism or adhd or personality disorders or other neurodivergencies or even mental illnesses in black people and other people of color, in women, in trans people, etc. and GOD FORBID someone be in multiple (or all) of those categories. saying “just go get diagnosed :)” is a privileged statement to make.

shocker! the psychiatry system is also ableist. if you’re already diasabled (whether it be mental or physical) and you see a doctor about ANOTHER disability? the doctor is most likely going to shoot you down. or at least be weary about someone having mutliple disabilities.

also most people who diagnose are neurotypical. they have never and will probably never experience neurodivergency so they can never fully understand it. they operate off of stereotypes of neurodivergent people and usually only stereotypical behavior of neurodivergent white cis men (which, as i mentioned before, is problematic for anyone who isn’t a white cis man). neurotypical diagnosers don’t know the neurodivergent culture and aren’t trained to recognize very common things (like masking for example).

a professional diagnosis can also be weaponized. not everyone can get a professional diagnosis because there are some neurodivergencies (such as autism and personality disorders) and mental illnesses (like depression) that can have legal and medical respercussions to have in your record. trans people can be denied medical and legal transition for being professionally diagnosed. people can lose custody battles for being professionally diagnosed. a professional diagnosis can be used as justification for taking away someone’s body autonomy (especially if that person is also physically disabled).

a LOT of neurodivergencies also have some type of symptom (or symptoms) that make it difficult to interact with people. troubles recognizing facial expressions, troubles understanding certain phrases and types of speech, paranoid about people, audio processing issues, being nonverbal in an environment that doesn’t accommodate for it, overstimulation, extreme social anxiety, discomfort in new situations, problems with eye contact, and a lot more. because like. for many nd people, interacting with people is very difficult and stressful. and hey. if you want to get a professional diagnosis? take a WILD guess what you have to do? FUCKING INTERACT with people! LIKE?? JEHDJJDKEKKDKDKDS. do you know how many professionally diagnosed nd people i know who made their appointment COMPLETELY on their own without help from a parent or family member or friend? LITERALLY ZERO! and i know A FEW nd people who have professional diagnoses! so if someone has social issues that prevent them from doing tasks like calling and making an appointment, showing up for an appointment, talking during the appointment, etc and ALSO doesn’t have familial or friend support (because newsflash! people who are friends/family of disabled people can still be ableist)? almost impossible to get a diagnosis! plus, the diagnosis process is TIME CONSUMING. not everyone can focus on a task for that long and not everyone can miss work/school for that long.

so those are the reasons i support self-dx. (although there’s probably more that i’m forgetting but i have adhd and it’s hard for me to remember things!)

so hopefully you now understand my reasons for believing in self-dx, and perhaps even you’re pro-self-dx now because before you were just uneducated on these issues and how they impact people who aren’t you.

but in case you’re still anti-self-dx and probably hate already-marginalized neurodivergent people, let’s talk about this horrendous ask (series of asks, actually) that i got sent. i feel like i can feel the self hatred and internalized ableism OOZING from this ask and into my inbox, so thanks for that i guess /s

“Sometimes people who self diagnose can take away from those who are actually nd, even sometimes from themselves.”

starting out strong with the ableism on this one by separating people into “self diagnosed” and “actually nd” people. self diagnosed people ARE actually nd

there’s not a limited number of nd resources. this isn’t a math equation of only x amount of people can be nd because there’s only y amount of resources. more people realizing they’re nd will actually MAKE more resources for nd people and will bring more awareness to being nd

even IF someone self diagnosed, and they go back on it later, what harm was done? they learned some coping mechanisms? they made some nd friends? neither of those are problematic and i think they’re both actually very helpful. i think nt people SHOULD learn more about nd people and stuff because i think that will lead to WAYYY less misunderstandings and WAYYYY less ableism

“There are many people who fake nds for attention,”

hey anon, what fucking world do you live in that nd’s are cool enough to fake having? because i would LOVE to live there. like, i literally had a post about my personality disorder (which i will not be specifying) i had to delete because people were sending my anons about how i was “scary” and “threatening” now that they knew i had the personality disorder i have. last year i left a discord server because the ableism i was recieving from not only the members of the server, but the mods as well. there are very few people i know irl who i tell about my personality disorder, but when i tell people about my adhd, they start treating me different. they infantalize me and make fun of me and use “jokes” about stereotypical adhd behaviors to alienate me and they even TELL OTHER PEOPLE without my permission. i was SEVERELY bullied throughout elementary and middle school for being nd. i have been refused job and educational opportunities as well as literal medical attention for being nd. people aren’t “faking” being nd, and if they were they probably wouldn’t be doing it for long because it’s not something that’s EASY to deal with.

kinda ironic that you’re saying people can’t diagnose themselves but that YOU can tell when someone is faking their diagnosis. that’s both hypocritical and a double standard.

masking exists. if you think someone isn’t “acting nd enough” they’re probably masking because they’ve been fucking bullied and harrassed. also you’re probably basing whatever you think nd is on stereotypes. not every nd person is sheldon cooper lol.

this is a side note but can we talk about how you’re literally just taking transmed rhetoric and molding it to fit nd people? like. you really come onto MY NONBINARY NEURODIVERGENT blog and expect me to validate your recycled “but what about the REAL [insert group] people?” ??? like grow up, elitist. you’re not better than anyone else just because you lick some boots 🥾 👅

“and claiming that self diagnosis (and this is just what I interpreted) is just as valid as professional diagnosis”

it is 😌

the only difference between self diagnosis and professional diagnosis is that a professional diagnosis can also get you medicine. not every neurodivergency needs meds and not every neurodivergency can be treated (at this time or even ever). for example, my pd (self diagnosed) doesn’t have a specific treatment but multiple symptoms of the pd (all professionally diagnosed) have specific treatments and medicines that work, so patients are given/diagnosed with/prescribed those instead. also, medicine doesn’t work for everyone! and sometimes people are allergic to or take medicines that will conflict with any new medicine.

“can really devalue the account of someone who actually has a disorder”

here we go again with that “self diagnosed” vs “actually nd” bullshit. literally just say you hate poor people n minorities and leave lol

someone having a different experience than you isn’t devaluing you, but if you’re the one who always has the spotlight maybe you should use your privledge uplift other marginalized people instead of feeling angry when everything isn’t all about you 100% of the time

“I have a second ask”

i don’t want it

“Plus it can be damaging for a person if they self diagnose wrong.”

how? what if they learn information that they wouldn’t’ve otherwise known like coping mechanisms that help them with their own neurodivergencies? that’s definitely not a bad thing

i think it’s funny that you bring up that people can self diagnose wrong and don’t even MENTION that doctors can diagnose wrong. like. you know. the people who GIVE OUT MEDICINE to people. i think it’s MUCH more dangerous when a PROFESSIONAL diagnosis is wrong. what are self-dx people with wrong diagnoses gonna do? read up on nd tips? maybe smoke some weed? drink some coffee? that’s about all they can do with a self-dx. but if a MEDICAL PROFESSIONAL gives you an INCORRECT diagnosis, they can ACTUALLY fuck you up.

“I was recently diagnosed with PTSD, a disorder which I would have never considered I’d have.”

that’s great about your professional diagnosis! i don’t know you but i’m glad you’re finding out about yourself and getting the help you want and/or need /srs

sorry if this sounds blunt, but honestly i’m not surprised you never considered you could have PTSD. based on your asks, you sound like you have a lot of internalized ableism you need to work through and a lot more research about neurodiversity you need to do. being anti-self diagnosis is a common belief among a lot of people with internalized ableism and a lot of these same people are the ones who have no issue with and even SUPPORT auti$m $peaks. many nd organizations that are run BY nd people (like asan) actually support self-dx.

“If I had of diagnosed my own symptoms and then started treating myself or taking precautions based on my self diagnosed "condition", it could of really hurt me.”

how? taking precautions to preserve your mental health is NEVER a bad idea. i’m not ptsd, but someone i care deeply about DOES have ptsd and has shared a lot of the precautions and coping mechanisms for ptsd with me and honestly they’ve been incredibly helpful. it’s almost as if different neurodivergencies and/or mental illnesses have overlap and that’s why there’s a whole community for us to be able to share these resources and information with each other!

the same person was rejected a formal autism diagnosis because of their ptsd, plus the fact that they’re transgender and the fact they have symptoms of adhd. it’s not really my place to talk about their experience with professional diagnosis, but i’ll send this post to them and allow them to add on their experience in a rb if they’re comfortable with that. but it’s almost as if their experience with the professional diagnosis process was unhelpful, harmful, ableist, and transphobic 🧐 and unfortunately this is a pretty common experience

“Also, by self diagnosing, I devalue the account of a person with the disorder l assumed I had.”

how? if someone thinks they’re nd, they have a legitimate reason for thinking so. either they have another neurodivergency than the one they thought they had, or they’re neurotypical and need to figure themself out and have a need for support. either way, they learned more about the specific neurodivergency, more about the nd community, and more about themself. i don’t see how that’s a bad thing.

if you think self-diagnosed people’s experiences inherently have less value, that is straight up ableism. especially considering that other marginalized identities and minorities have trouble getting professional diagnoses, you might also be bigoted in some other way. or at the very least, refusing to acknowledge your privilege.

“only one more I promise”

i don’t want it

“I understand that doctors are expensive and professionals can get it wrong,”

okay. if you understand this, then dm me your information so i can bill you for the cost of my professional diagnoses, the cost for my therapy sessions, the cost for my medicine, and the cost for transportation to and from all these places. PLUS the cost of the work and school i’ll be missing for these sessions. 🤲

“but self diagnosis can be really harmful to yourself or others.”

nah, you’re just ableist and a gatekeeper lol

“If you feel like you have a disorder, go see a psychiatrist, you may have it.”

[remembers when i went to a psychiatrist who diagnosed me with two major symptoms of a personality disorder and said i had other symptoms of the pd as well but refused to diagnose me with the actual personality disorder because i was a minor at the time and he told me “kids don’t have personalities so they can’t have personality disorders”. i understand being weary about diagnosing children with personality disorders because they aren’t fully developed but this dude straight up told me that i didn’t have a personality. this man literally only worked with children so that means he literally never diagnosed personality disorders. this man was literally just lazy and didn’t care about his patients. this man also refused to believe me when i told him the medicine he prescribed me made my symptoms worse and even made me hallucinate. he ignored me and refused to change my medicine so eventually i just changed psychiatrists and they put me on a new medicine that DIDNT make my symptoms worse and DIDNT make me hallucinate. also i looked it up after our session and apparently ONLY people with my pd and related ones experience hallucinations on that certain medication. it’s almost like his refusal to diagnose me and ignoring my symptoms/concerns harmed me. this man also constantly misgendered me and told me that homosexuality and transgenderism should’ve still been in the dsm. like golly, it’s almost as if being queer and neurodivergent in an extremely conservative state is harmful and dangerous. and that psychiatrists aren’t immune from being homophobic and transphobic and ableist.] but yes :) perhaps i should see another psychiatrist in this conservative state :)

“I don't want to undermine anyone's actual experiences, but it can be dangerous.”

then stop undermining people’s actual experiences :)

no ❤️

“If you feel like something's wrong, go see a professional.”

the whole point of the neurodiversity movement is that there IS no such thing as a “normal” brain, so saying that neurodivergent people have something “wrong” with them is ableist.

💰 🤲 hand it over

“I don't want to offend, I just don't want anyone to get mislead or hurt. :)”

you absolutely meant to offend. you literally said that self-diagnosed people’s experiences aren’t valid and have less value than people who have professional diagnoses

i know more people who have been (and personally have been) mislead and hurt by professionals than by simply existing as a self-diagnosed person

also i want to say that being pro-self dx is NOT being anti-professional/formal diagnosis. i think that people should absolutely get a professional diagnosis (if they are able to without negative repercussions)! being pro-self dx is more inclusive of marginalized people (like people of color, women, lgbtq+ people, people with multiple disabilities, etc). pro-self dx is simply just saying that professional diagnosis isn’t the only option

(neurotypical people and anti-self dx people don’t add anything; pro-self dx neurodivergent people are allowed to add with their experiences if they want)

#asks #long post #nd adventures #ableism tw #sexism tw #racism tw #transphobia tw #misgendering mention #medical abuse mention #not star trek #homophobia tw

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moonlight-breeze-44 · 3 years

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Em’s Year in Review

Hey, guys! It’s been a long time since my last personal post on here, but as it’s officially 2021 (thank God), I wanted to do the cheesy Year in Review thing and give thanks to the friends I’ve made, the communities I’ve joined, and the things that have changed me beyond words this year that I want to share with you all.

To start, perhaps the biggest and best change of the year was when I joined the Shadowhunters fandom. Not to mention the friends I’ve made along the way and the support I’ve received and the amazing community I found my home in, Shadowhunters managed to rejuvenate my love for this site and fandom in general. Shadowhunters transformed this blog from an occasional place that I would visit to kill time into a means of expression that I am extremely proud of. Shadowhunters transformed my AO3 from a practically extinct account with three fics posted to an up-and-running, 80-fics-and-still-going-strong profile that is, truly, one of my biggest accomplishments.

Shadowhunters also led to several friendships that I know I will cherish for the rest of my life. I would like to take this time to give thanks to some of them, and I apologise deeply if you deserve to be on this list and you aren’t; I know there are probably some people that I’m forgetting. You’re all important to me, and you’re all a part of the reason I am writing this right now.

To start off, @arialerendeair has been an incredible source of support, friendship, and love for me throughout my journey into the Shadowhunters fandom, and she means more to me than words can say. She is a forever friend, a wonderful person, the best kind of enthusiastic and encouraging, and she is one of the most amazing people I have ever had the pleasure of knowing.

Before I joined the @malecdiscordserver and met a myriad of people that I gladly call my friends, I existed in the Shadowhunters fandom solely on Tumblr, and I would like to give thanks to my very first Shadowhunters fandom friend, @lightwormsiblings, for making me feel at home here and generally being an amazing person.

@sugarandspace is a wonderful author and an even better person, and my friendship with her has led to many amazing fics, conversations, and sweet words. Her mental health fics and her response to mine are what inspired me to really start writing for this fandom, and as I’m sure you can imagine, that is something that I am very grateful for. <3

I would also like to give a shout-out to my fluffy counterpart, @bidnezz, who created the Fluff vs. Angst Battle 2020 with me, an AO3 collection that has made me smile countless times. Likewise, @aceon-ice deserves a shout-out, as well, for being an amazing person and supporting me despite my angsty tendencies.

I have @eternallysilvermagnusandalec and @emma-arthur to thank for my love of Autistic Alec, and I want to give them the biggest of virtual hugs for screaming with me, bouncing headcanons with me, and generally being my biggest Autistic Alec supporters. They are wonderful friends, and I’m so lucky to have them both in my life.

As for friends that aren’t actively on Tumblr, I would like to give thanks to Val, one of my favourite sprinting buddies and an amazing friend, Hannah, my favourite dinosaur-obsessed Among Us murderer and the source of endless support, and Evi, my recently-found friend, writing support extraordinaire, and fellow Team Angst comrade.

I am extremely grateful for every single friend I’ve made in the Shadowhunters fandom, and every person who helped me feel at home in this community and showed me that this is a place where I can belong. You are all amazing, and I wish I had the words to express my gratitude for you.

Another thing that the Shadowhunters fandom brought me was a means of self-expression, through a character like no other I’ve ever encountered before. Alec Lightwood and his place in Shadowhunters has brought me endless joy, validation, and hope for the future. Alec Lightwood is a character that I love dearly and relate to strongly, and his happy-ever-after as a gay man in love with a bisexual warlock truly lifted me up when I needed it. His character helped me to start writing things that I love, things that I enjoy, and things that benefit me to put on paper. For that, I am forever grateful.

This year has brought a lot of changes to my life, but I can say without a shadow of a doubt that Shadowhunters & the friends it’s made me are by far my favourites.

Other than Shadowhunters, there are a few other things that have shaped my year in large ways that I would like to give mention to.

To start things off, as most of you know, I’ve been a fan of Supernatural since before I even knew fandom was a thing - hell, before fandom really was a thing. Supernatural and the SPN family and the AKF campaign got me through some of my toughest times, and I will always be grateful to that show for giving me everything that it did.

Despite the discourse and despite everything that took over Tumblr with the finale and Cas’s confession, I am so happy that I made it to see that finale. It gives me a lot of joy to know that I’ve been here for fifteen seasons of a show that changed my life, and everything that comes in between. I love Sam and Dean and Castiel and all of the other characters that captured my heart in Supernatural, and I’m so grateful that I got to be a part of a family like this one. My experience in and with the Supernatural fandom will always be important and special to me, and I want to thank my first ever fandom friend (you know who you are), who encouraged me to post my first ever fanfiction back when I was younger and taught me what it means to be a part of a fandom community. She is the reason I’m fandom-ing it up today, and I’ll forever be grateful to her for that.

I’ve already mentioned them once before, but I want to give another shout-out to @eternallysilvermagnusandalec, @emma-arthur, and @arialerendeair for being truly amazing, wonderful people when it comes to a certain aspect of my identity that I’ve just started becoming okay with.

For any of you who may not know: I am autistic. ...damn, that felt good to say. At this time last year, I was still very much “in the closet” about having autism and I was masking so much that I panicked at the slightest hint that I was “different”. I did not like who I was, and I had been conditioned to believe that I had to hide my differences if I wanted to have any chance of being accepted by others.

These three made me see that that isn’t the case.

Constantly being told “Quiet hands!” and to just look at somebody when I was talking to them and that it was irrational & dumb to be too overwhelmed to speak took its toll, but the Shadowhunters fandom and Silver, Emma, and Aria helped me realise that my hands can be as loud as they need to be, it’s okay if I stare at the wall while I talk to someone, and sometimes not being able to speak is just the way the cookie crumbles. Their acceptance of me and their incredible support has helped me become so much more comfortable with myself, to the point where I’m unmasking when I’m alone and letting myself stim without fear of repercussions or the feeling that I’m doing something wrong. They are the best kind of people, wonderful friends, and truly incredible.

It is largely thanks to them that I am even fighting this ongoing battle against my own internalized ableism, and it’s important to me that all three of them know that. <3

For more information on autistic masking and what it looks like and why some of us do it, I recommend checking out this video, made by an autistic creator!

If you’d like to know the true, harsh meaning of “Quiet Hands”, I recommend checking out this post, which explains the phrase & its connotations better than I ever could.

Thank you to everyone who has read this far, and I hope you all have a wonderful 2021! This year was hard, but we survived. There have been times when I wanted to give up, and there have been times when you wanted to give up, I’m sure. But we are both still here, and that counts for something. That counts for a lot, actually. It’s everything. I did it. You did it. We did it. That’s something to be proud of.

Going into 2021, I hope that everyone will be kind, do their best to be understanding of other people’s differences, and treat others with the amount of respect they deserve.

I love you all, and thank you for making this year, despite all of its challenges, one that I will remember and cherish for the rest of my life.

#year in review #long post #em rambles too much #my friends #shadowhunters #supernatural #autism #neurodiversity #positive mental attitude #Fandoms #what i'm thankful for #happy new year

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personalcoachingcenter · 3 years

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Research Paper: Language Matters

New Post has been published on https://personalcoachingcenter.com/research-paper-language-matters/

Research Paper: Language Matters

Research Paper By Charlene Moynihan (Ability Coach, UNITED STATES)

Introduction

A man is worked upon by what he works on. He may carve out his circumstances, but his circumstances will carve him out as well. –Frederick Douglass

Diversity is inherent in everything we experience such as nature and its multitude of variance, and, people and their cultures. If we are to truly celebrate differences, we must begin by knowing and understanding those differences. As coaches, that knowing/understanding must begin with ourselves. As one who will work with those who have a relationship to a disability, I must have knowledge and awareness of disability culture.

Moreover, as an individual with a disability, I must understand what it is that makes me different than others if I am to truly approach this endeavor with a celebratory mindset.

ICA teaches us that

Culture exists in the minds of the individuals that have learned from other human beings what is acceptable in their interactions with other human beings. Culture allows us to communicate with one another in a language that we have learned and share in common. -International Coach Academy

With the understanding that coaching sessions are about the client and not the coach, how to promote my work to potential clients has much to do with who I am and how I present myself. I felt I needed to address the issue of how much of my personal experience to share in the promotional process since how I am perceived affects the assessment of a good fit between coach and client.

This brings up the dilemma that many potential clients will face, exactly what, when, and how much is appropriate to disclose when it comes to disability. As a person with an acquired disability, it was a question that I needed a comfortable answer to. If I can understand the process it takes to answer that question, I can recognize a similar struggle and the need to address it with my clients.

I looked to disability theory with a particular focus on the language used to speak about disability for some insight. The language we use communicates much about who we are, how we think, and what we believe. This paper will focus on the language used to speak of disability.

Let’s start with an explanation of the predominant models of disability theory.

Disability Theory

The Medical Model

The medical model of disability talks of it in terms of impairment, deficiency, and/or abnormality. It is something that exists within the body/the person and it is the person’s responsibility to learn how to deal with it. The medical field seeks to cure and/or treat the disability with therapies that are aimed at making the person function more “normally”. Most of the language used by the medical community to discuss/describe disability are negatives, suffering from, and afflicted with for example. These words communicate that disability is not something desirable and reflects an attitude of negativity in the way the non-medical community thinks about disability.

The Social Model

The social model sees disability as simply a part of who one is; no different than gender, race, or age. The problem of disability is viewed as one of interaction in a society that is often inaccessible and unaware of the severity of the struggles it presents. The social model seeks to fix these struggles through a change in society, through awareness and accessibility. The language used by the social model is person-centered as opposed to identity-centered, a “person with a disability” vs. a “disabled person” treating the disability as only a part of the whole. These phrases are far less negative.

These are the two major models of disability at play. They are far more complicated than I have related and the advantages and consequences of each warrant much consideration. Many interdisciplinary approaches to these models exist and are not dissimilar to those related to issues of sexual identity and race when it comes to disclosure and discrimination. But the brief descriptions demonstrate incredible differences in the way people think and speak about a disability.

The Research

For this paper, I will limit my discussion to that the language used to speak of disability and its impact on the members of the community. It is the language we use that reflects one’s understanding of disability. It is also the language others use that impacts a decision to disclose ones’ identity to the speaker or not. Comfort level and confidence in the speaker’s understanding are paramount. In this cancellation culture, what language does one choose when speaking about disability? How does one speak of disability in a way that communicates comfort and confidence? My research offered some insight into these questions. I was able to locate two papers addressing this issue that struck a note with me.

A lot of controversies exist around the use of the word disability. In #SaytheWord: A Disability Culture Commentary on the Erasure of “Disability” the authors say, “The literature indicates that despite the importance of language on attitudes toward disabled people, attempts to avoid the term ‘disability’ remain and may have unintended consequences.” -Andrews, E. E., Forber-Pratt, A. J., Mona, L. R., Lund, E. M., Pilarski, C. R., & Balter, R. (2019). Some thought by removing the word disability and substituting things like “differently-abled” would remove some of the associated negativity in the same way that person-first language helps to minimize labeling and categorizing people by identity-first.

The concern is that the use of euphemisms can serve to reinforce the idea that disability is negative and can be indicative of bias or prejudiced thinking. Such euphemisms, like Photoshop, take something less appealing and make it more acceptable to the viewer; that the viewer may feel more comfortable/more pleased with the subject matter. This reluctance to use the word disabled is more about the needs of the non-disabled who have bias and/or prejudice thinking that underlies their discomfort, and, the disabled who fear being stigmatized; the primary reason reported for not disclosing a disability. Yet many are reclaiming the word disabled. It allows self-identity and serves to place them into a community that can protect against the stigma (and fear of) by “externalizing rather than internalizing disability prejudices.”Andrews, E. E., Forber-Pratt, A. J., Mona, L. R., Lund, E. M., Pilarski, C. R., & Balter, R. (2019).

In “Disclosing Our Relationships to Disabilities: An Invitation for Disability Studies Scholars”, Joan O’TooleCorbet writes, “…we need to examine our reluctance to support public disclosure, open academic inquiries into public signifiers, encourage public disclosure, and use signifiers of one’s relationship to disability.” I found this a fascinating perspective. She writes about how disclosure is managed in the disability rights community. Corbet goes on to say that in this community, they are “expected to locate themselves about the lived disability experience.” One would say, for example, I am disabled, or, I am the parent of a disabled child, or, I am a non-disabled teacher of disabled adults. The reasoning behind this sort of disclosure is that it explains perspectives based on the nature of the relationship to disability that goes beyond the binary disabled or non-disabled identity. It respects that each relationship to disability has valuable information to be shared. Stating a relationship to disability is not the same as sharing specifics of the nature of one’s disability. That remains a personal decision. The rule of thumb is that you may state your relationship to disability but you must not speak to the experience of another as it presumes that you know the lived experience of another and you cannot. This understanding can be applied nicely in the coaching session.

Another positive here is that “Public disclosure of the relationship to disability increases the number of people discussing and identifying disability oppression.” Disclosing one’s relationship to disability provides community membership, support, and strategies to combat ableism. Ableism is to the disability community what white supremacy is to communities of a minority race. Stating one’s relationship to disability opens a space for productive discussion of disability-related issues and helps combat ableism.

Analysis

In any discussion of oppressed populations, it behooves one to understand the issues at play. I will be focusing the efforts of my transformational coaching practice on serving clients with acquired disabilities. We live in a world demanding political correctness and the cancellation of those who are not. Use of language that, either intentionally or not, communicates negativity towards any group/community and/or culture inhibits trusting relationships and has no place in coaching.

I have chosen to use the word disabled in my marketing/promotional materials. I will use it without the shame and negativity it carries for some. My intent will be clear. I will use it to identify membership within a supportive community. As one with a relatively invisible acquired disability, I know the isolation that comes with not speaking about disability. I want my potential clients to know that they need not feel the isolation that comes with keeping silent and that there is a way to speak of it without the need to disclose one’s diagnosis and specific limitations. That information is disclosed on a need-to-know basis and most simply don’t need to know. I want them to feel welcomed to experience membership in that community, that culture that offers support and advocacy if they so choose.

I will also speak in terms of my relationship to disability because of its ability to communicate differing perspectives on disability. I cannot share my lived experience by sharing a diagnosis. My relationship to disability is relevant to my clients because of its ability to communicate perspectives and open lines of communication on the subject of disability. Since I have identified people with an acquired disability and those with a similar relationship, it also explains my desire to expand services to family, caregivers, friends, and professionals working with my clients of choice.

I will share my relationship to disability as follows. As a child, I attended a summer camp for developmentally disabled children with my siblings (where my mother worked as a camp nurse). I grew up laughing and playing with children who were different but very much the same as me. I was a friend of disabled children. I worked in schools and residential homes for adults with multiple disabilities. I was non-disabled support professional. My father became disabled due to chronic illness. I was the daughter of a disabled man. I was diagnosed with a disabling condition when my children were young. I am a disabled person.

My child has a disabling condition. I am the disabled parent of a disabled adult. I have multiple friends with disabilities. I am a disabled friend of disabled adults. I ended my career as a Disability Claims Specialist at the Social Security Administration (S.S.A.). I conducted in-depth interviews to uncover and document the specific physical, psychological and cognitive phenomenon that results in meeting the legal definition of disability used by S.S.A.This gave me an intimate look into the lived experience of many disabled individuals. I am a disabled individual with intimate knowledge of both my own and the disabling conditions of others.

This communicates so much more than disclosing that I have Multiple Sclerosis. Do you feel the difference? Asking for and providing one’s relationship to disability provides relevant and useable information in discussions of disability. The provision of a diagnosis generally either suppresses conversation due to discomfort with the disclosure or leads to additional (and inappropriate in many situations) questions regarding the personal limitations of the disabled person. I would much rather enable a productive conversation than suppress or encourage inappropriate ones.

Conclusion

I change my thoughts, I change my world. ~ Norman Vincent Peale

We are taught at ICA to, “Be aware of personal strengths and weaknesses when it comes to one’s own Coaching Mindset.” ICF talks of “the criticality of a partnership between coach and client, and the importance of cultural, systemic and contextual awareness.” For these reasons, I undertook this study. My coaching mindset needed nurturing. If I am to be a focused partner with clients, I must feel confident that I have communicated, upfront, what is appropriate for my clients to know; that they can then decide if they want to develop a partnership with me.

Despite my years of work with individuals with disabilities, I needed to look at the bigger picture. My experience was job-related and focused on meeting their needs. More caregiver than a coach. My perspective needed to shift. I needed to understand how to speak of disability in a non-directive way. More importantly, I needed to understand how the language I use communicates my thoughts, values, and beliefs. I needed to understand the mindsets of others who participate in the discussion of disability. I needed to understand disability at a different level; one that addressed the need for cultural, systemic, and contextual awareness.

The journey has been well worth the time and energy. It is no longer my role to meet the physical and emotional needs of those with whom I work. I know in my heart that they are entitled to self-determination, just as I am, and I will support and empower them to pursue their goals no longer as a caregiver but a coach. I have learned much about the language used to speak of disability. I have also come to understand the intent behind my need to do this research. I have never spent much time thinking about nor identifying myself as a person with a disability. I needed to acknowledge myself as a member of the community and find a way to communicate that membership in a way that felt comfortable. In doing so, I have resolved my questions regarding how to communicate my thoughts, values, and beliefs by the language I will use to speak of disability with my clients and promote my business. First impressions matter and the language we use speaks volumes about who we are and what we value.

Sources:

Websites

Critical Disability Theory. Stanford Encyclopedia of Philosophy. https://stanford.library.sydney.edu.au/archives/win2019/entries/disability-critical/

Disability and Justice. Stanford Encyclopedia of Philosophy. https://plato.stanford.edu/entries/disability-justice/.

Disclosing Our Relationships to Disabilities: An Invitation for Disability Studies Scholars. Corbett Joan O’Toole 1 (disabled) 2 Independent Researcher. https://dsq-sds.org/article/view/3708/3226.

Disability Studies Quarterly.Siebers, Tobin. Disability Theory. Ann Arbor: University of Michigan Press, 2008. Reviewed by Michael Davidson. https://dsq-sds.org/article/view/160/160.

Medical Model of Disability versus Social Model of Disability. Living with Disability and Chronic Pain. https://canbc.org/blog/medical-model-of-disability-versus-social-model-of-disability/.

Disability Studies Quarterly. Un/covering: Making Disability Identity Legible. Heather Dawn Evans. https://dsq-sds.org/article/view/5556/4550.

Andrews, E. E., Forber-Pratt, A. J., Mona, L. R., Lund, E. M., Pilarski, C. R., & Balter, R. (2019). #SaytheWord: A disability culture commentary on the erasure of “disability”. Rehabilitation Psychology, 64(2), 111–118. https://doi.org/10.1037/rep0000258.

https://docs.google.com.

Original source: https://coachcampus.com/coach-portfolios/research-papers/charlene-moynihan-language-matters/

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fandomshatewomen · 4 years

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(1/3) The whole "reylo is the only feminist star wars ship" thing reminds me a lot of the "actually stucky is feminist and steggy is a straight man's ship" posts that the stucky shippers were pushing post endgame. I know there's a lot of racism tied up with the reylos and finn and john that didn't exist between the stucky shippers and peggy and hayley (although there was some internalized misogyny for sure), and that stucky shippers did have homophobia to contend with (although it's hardly true

(2/3) that every queer mcu fan shipped stucky), so I don’t want to make a false equivalence, but the “this ship between two men/white people is the only feminist option and we’re the real defenders of this woman/black character that we’ve spent years ignoring, and the queer women/people of color who claim to be their fans are the real misogynists and homophobes/racists” is really familiar. It’s clear that co-opting feminism to make their preferred ship into the Only Right Option when people

(3/3) don’t get the ending they wanted is becoming a Thing that needs to stop, but I’m not really sure how to address it. Those fandoms also have the “if everything isn’t about this white male side character all time, it’s bad writing” problem in common, and that feels related as well.

Ok so this is a very complicated topic and I’ll preface itby saying two things first I’m not actually familiar with the argument that “Reylois the only feminist star wars ship” because thankfully my dash is filled withsensible people that don’t inundate me with faux feminist opinions that try torebrand an abusive ship into a feminist ship. Second racism actually plays a partin the stucky shippers too and I’ll demonstrate why in a bit.

For those of you reading this I will pretend this is the first time you’ve ever encountered the assertion that Reylo is abusive statement. I’ll try to do this quickly but here goes. Kylo starts off by literally torturing her and telling her he can take whatever he wants. Invading not only her mind but initially hedoesn’t know she has the force. So its not a battle of equals we saw how easilyhe took what he wanted from Poe Dameron. She does eventually get into his head but this is just the first encounter. Then snoke bridges their minds together Kylo is constantly entering Rey’s mind telling her she’s nothing she comes from nothing he needs him to realize her full potential. Mind you Kylo had years ofjedi training he probably knows someone bridged their minds together onpurpose. Rey is horrified this is the man who killed a good man his own fatherin cold blood and put her new friend in a coma. But Kylo keeps at her tellingher its inevitable that they’ll be together. (Some extra bits of fandom herethe Reylos are not shy with their fanon that Kylo/Ben was neglected as a childby his parents, which is completely a fabrication. They also say he’s beenbrainwashed which while confirmed by TROS that Palpatine was impersonating his Grandfather Darth Vader/Anakin this does not answer the why of the matter that if Finn, who was stolen from his parents, could fight the brainwashing why not Kylo? Another bit of contention I absolutely hated how they wrote Luke in TLJ and while I accepted it doesn’t explain why Kylo killed all the padawanlearners that didn’t join him.) TL:DR of this section: going back to Kylo’s abusive behavior, calling Rey nothing, invading her mind, insisting that she leave her new friends that care for her and support her to be with him is classic abusive behavior. Don’t believe me check out Lundy Buncroft.

Moving on how is stucky vs steggy racist? Its quite simple really, in the fact that if anyone was written to be romantic interest for steve besides Peggy it was Samnot Tony, Natasha or Bucky. There’s a great meta post I’m not sure is on thisblog but it should be on mcufhpoc if you care to dig about how Sam was writtenas a love interest framed by the story in the winter soldier to perfectly setSteve up to be bisexual. Now I have nothing against Bucky but Steve spent most of his time violently at odds with Bucky in the winter soldier and civil war. Not exactly what you would want from a ship. Why do you think so much Stucky fanfic is about preserum Steve/Bucky? Gross implications about ableism aside it was for years the only way you could justify the ship. The only other optionin canon was Sharon but frankly the writers of the mcu seemed to hate herreducing her role substantially from what was originally planned. There was allsorts of cries incest (when literally this is the same fandom that ships Thorkiabout two brothers who were raised as brothers except one of them happens to beadopted. Like they can’t even get the definition of incest right Steve was dating Peggy not Peggy and Sharon.) Also he didn’t know they were related until years after he met Sharon. I’m only including this Sharon bit because it demonstrates so nicely the kind of internalized misogyny in display in this fandom. According to Stucky fans no woman is worthyof Steve only the white dude he grew up with and fought several times and btw they make the most sense when Steve is being cared for preserum/sarcasm. Which brings me to the other big Steve ship Stony. That’s a huge ship and they can barely stand each other in canon.

TL;DR of this section its obvious from the numbers that Stucky and Stony are the only ships that matter the fandom only really wants is white dudeslash.

Btw its not actually feminist for so many straight women to ship dudes. Gay men have been begging for straight women to listen to them about this for years.

Last implicit question: What phenomenon is actually at work here if it doesn’t fit feminism because Reylo is abusive and Stucky just shows off the tip of the iceberg of internalized misogyny?

Answer: Its white supremacy.

Which goes back to your statement of “Those fandoms also have the "if everything isn't about this white male side character all time, it's bad writing" problem in common, and that feels related as well.”

These fandoms and all fandoms really can only fathom fandom as yet another way of obsessing over white men.

mod m

#Anonymous #anti reylo #abuse mention #white ships #fandom racism #fandom anti blackness.

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mszegedy · 4 years

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30 Days of Autism Acceptance: Days 17-26

This is a list of questions by @autie-jake (full list here), where you’re supposed to answer one per day for every day of April. I keep forgetting to do these daily, so here’s all the days since my last post. My last post is here.

April 17: Have you experienced ableism before? If so, how did it feel and how did you handle it?

Yes! Actually, it made my childhood so bad that my brain decided to forget it. So, clearly nothing to write about here.

April 18: Discuss how you felt when you felt when you first learnt you were autistic vs how you feel now.

I’m not good at the whole “remembering how I feel” thing. My memories of my feelings are all semantic memory. I know as a 6th grader I thought autism was super cool and I read a whole autobiography of an autistic savant because I wanted to find out more about it (Born on a Blue Day by Daniel Tammett). After a lot of intense research, I decided that I couldn’t conclusively self-diagnose, and regretfully slinked away back into not understanding or advocating for my needs. Sometime later, an actually autistic coworker of mine looked at me for like five (5) minutes, and was like, “Hey, have you been diagnosed with autism yet?” I’ve since adopted her as my second mom, for that and other reasons. I’ve had very few moments in my life when I was sad to have an autistic trait, and I got over it fairly quickly.

April 19: Talk about scripting. Is scripting something that you normally do? What kind of situations do you have a script for? Does it help you?

People don’t like my apologies, so I have a couple apology scripts saved. Otherwise I tend to just wing it and fail spectacularly. The apology scripts tend to sound… scripted, but they’re better than just doing it myself, I think.

April 20: Discuss stimming. In what ways do you stim? What does stimming mean to you? What do individual stims that you do mean? Do you have any stim toys? What would you like people to know about stimming?

Pressure stims are the most important stims for me. I’m more likely to be squeezing a part of my body than not. If nothing else, I can cross my legs tight and squeeze them together. This doesn’t have any specific function; it’s just something I do that makes me feel better. When I’m stressed, I do it more.

I also do motion stims. Often my way of locomotion is more like dancing. This is a little strange, because I don’t otherwise dance. I always feel happy, relaxed, and in control when I do that. When I’m sad or tired, my feet are too heavy for it. I am also very animate with my hands when I talk. When I taught English in Hungary for the first time, the first question I was asked whether all Americans talk with their hands as much as I do. (I don’t think they do. I have it on good authority from at least one American I trust utterly that the way I use my hands is rather unique.)

I have two improvised stim toys for pressure stimming (a scarf for wrapping very tight around limbs, and a butterknife for applying waves of uniform pressure). I also recently found one of those head scratchy thingies, and now I use it every five minutes or so. It’s a little inconvenient with headphones on, but I’m rather creative with it, anyway. I don’t actually like light touch or tickles, but generally the head scratchy thingy can be given enough pressure to provide a substantial stimulus.

April 21: Give a shoutout to some of your favorite autism blogs/autistic bloggers

UM. HMM. Like 10-50% of the people I follow are autistic, but hell if I can remember any of their handles.

I reblog from @nonbinary-hawke and their native issues-related sideblog @finding-my-culture like multiple times a day but I’m pretty sure they kinda just tolerate me? I’m mostly cut off from the actual native community I’m supposed to be part of (the Siberian one), so I try to follow American native issues with kind of a “not my lane but I’m still sympathetic” vibe, and their blogs are most of my way of keeping in touch. But we have a lot of other random things in common too; similar age, similar neurotype, similar fandoms, etc. So I’m pretty much always gonna have a platonic tumblr crush on them, given that and how much I respect their principles.

@autisticadvocacy is ASAN’s official blog, I think, and it’s always posting useful and relevant articles.

@autisticjoy and @autismisaokay are two blogs I’ve followed for most of my time on tumblr. I get the majority of my autism-related content from them.

@autistic-noodle is the first autism-related blog I ever followed! I highly recommend her; if I haven’t unfollowed her after all this time, then that means that they’ve never reblogged anything that’s triggered me, which is pretty darn impressive.

@bogleech is my favorite webcomic artist, which is a vaunted honor coming from someone with ¾ of a special interest in webcomics. I’m not actually sure if he’s autistic, but he posts enough autism-related content to justify being on this list one way or another.

I’ve definitely learned at least one useful thing from @autisticlifehack. What was it? Who knows?

@autistic-flirting is very cute, if not very active.

Shout out to @tikibats and @dreamfriend, who I actually know IRL.

April 22: What are some social rules that do not make sense to you/that you don't understand?

I’m, uh. Actually not sure? I can usually explain stuff if I think hard enough. There’s some stuff I’ve never bothered to figure out, but none of it’s so pressing that I can actually remember it.

Oh! Actually! One night during freshman year of college, I went to the computer lab to do my homework in a not-at-all-revealing bathrobe. I’ve received several explanations on why this was wrong, but I don’t remember any of them.

April 23: Do you have any internal rules? What are they?

LOTS, wow. If I didn’t have them, I wouldn’t have any shred of consistency whatsoever. I am nothing but these rules. Some of them feel more like strong opinions that can be taken or left, like the ones pertaining to writing style, but even those I follow 99% of the time. They range from really foundational moral ones like, “Everything with a mind intrinsically deserves your friendship and understanding,” and, “Every neurotype deserves to exist,” to, “Always wrap code to 80 columns (unless it’s highly nested like Lisp, in which case consider 100 columns),” and, “When mixing fruit flavor tea, always pour the syrup before the tea.” It’s quite the hodgepodge.

April 24: Talk about community. What does the autistic community mean to you? Is it important? How does it feel?

I haven’t had much of a chance to actually participate in any autistic community yet. I don’t even really participate in the tumblr autistic community. It’s just sorta me, my second mom, and a couple random people I get to see occasionally. (Also, my dad, but we don’t talk about my dad.) Most of my friends are neurodivergent in some way, though, so I’m happy with the people I have. (Not that I don’t enjoy hanging around neurotypical people, too. But it feels good to not have to work to make yourself be understood.)

April 25: Do you know any other autistic people off the internet? Is anyone else in your family autistic or are you the only one? Do you wish you knew more?

See yesterday’s answer! I wouldn’t do this if I were doing these day by day, but I’m totally justified here, because it’s literally the previous paragraph.

April 26: In what ways can allistic people better accommodate you and other autistic people? What would you consider helpful?

It’s a broad question. My mom has been getting better at not punishing me for my autistic traits, but the other day she still antagonized me for stimming at the dinner table. (I’m 22. Nearly 23.) So it’d be great if she didn’t do things like that. Not even gonna talk about what my dad could do better. (The ways he does accomodate me seem unintentional.)

Outside of that, I appreciate it when people give me very clearly-worded instructions, broken down into small steps, with every possible detail specified. I appreciate it even more when those instructions are in written form, because I can only remember two or three of those when they’re spoken aloud.

I appreciate it when food places with complex menus have the option to just sit down with the menu, without a time limit, and make up your order. Sandwich and wrap places, like Subway, make me very uncomfortable for reason; Subway has an extremely combinatorically complex menu, and you’re expected to make up your order while they’re making the sandwich. I’d like to spend some time staring at a sheet with each sandwich ingredient listed and explained, and the ways they can be combined, first.

The current switch to online classes has been great for my ability to understand lectures, and terrible for my ability to do classwork and homework. Hearing the lecture through headphones circumvents most of my auditory processing issues, and seeing the lecture slides clearly circumvents most of my attention issues. But when it comes to doing classwork and homework, executive dysfunction rules me. I do wish my executive dysfunction were better accomodated for even in the case of normal classes (and probably careers), but it’s hard to guess what form that would take. I’ve run out of brainpower for good ideas.

For the rest of the month I will do these questions daily, one at a time. Hopefully.

#2020 #30daysofautismacceptance

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yallarewild · 7 years

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20 reasons why i think self dx is dangerous (as a nd/mentally ill person who’s spent a decade researching psych)

this was made purely to highlight the dangers of self diagnosis and the importance of necessary medical treatment

important disclaimers:

self dx =/= self advocacy, i.e. researching symptoms that you think you might have and trying to compare them to your own behavior without actually dxing yourself, regardless whether you are going to seek medical help. i believe this is extremely important: it can provide you w/a sense of validation to know you’re not alone, and it can put you in touch with your feelings a little more once you realize there actually may be something going on with you.

this post is not made for the intention of judging the character of people who self dx- there are many other posts out there about the ableism factors, the trivialization of mental illness, or the way tumblr communities handle mental illness, etc.

tl;dr: .it’s not a fucking joke, please go get checked out by a professional medical practitioner, or don’t (but pls do), but whatever you do please don’t self dx

i often see the phrase “no one knows you better than yourself” as a justification for self dx and while you’re the only one who has access to your emotions and thoughts, no one is objective about their health, thoughts, and emotions. it’s impossible to truly dx yourself with any mental disorder because you subconsciously bring different types of cognitive biases into the process – this is why “medical intern syndrome” is such a prevalent phenomenon. you might know your emotions and thoughts, but this fails to address the fact that your perception of your feelings are grossly affected by your true mental illness (which says something ab your mental illness in and of itself).

not having access to mental health care doesn’t mean you should dx yourself with a mental illness, its not black or white. i often see teenagers saying they don’t want to get a prof dx because they don’t want their parents involved and i totally understand that, ableism is so terrible and i’ve experienced it for so long, trust me. luckily, there are ways to access mental health care at little to no cost, insurance or not, without getting your parents involved, but im not here to judge those who struggle w/resources to care.

untreated mental illness does not go away & a pro dx is crucial for access to treatment, disability benefits or other types of care or services. this could literally mean life or death. the prognoses for untreated mental illnesses are across the board terrible and may have devastating effects on your life: the longer they’re left untreated because you decided to not seek treatment, the more disabling they’re going to become. like one argument for self dx is that not everyone can access mental health care/resources…so instead they do something that literally prevents them from accessing resources….. uhhhhhh ??

you could put yourself in grave danger because symptoms of mental disorders may actually be life threatening symptoms of serious physical issues requiring medical care: thyroid issues, liver damage, vitamin deficiencies, blood/bone/brain infections, neurological disorders, many types of cancer, autoimmune disorders, brain tumors, epilepsy, diabetes, etc

you could put yourself in grave danger because you may be dealing with early symptoms of a more serious mental illness, such as schizophrenia, DID, etc. there are many early symptoms that mask other disorders. obv all mental illnesses are very serious but if you self dx with depression because you’re experiencing the “negative” symptoms of schizophrenia: lethargy, lack of affect, etc. you may not think a pro dx is necessary and early treatment is crucial for successful long term treatment of schizophrenia.

there is so much misinformation about what symptoms look & a psychiatrist is able to determine the degree and direction of the symptoms. there is a huge spectrum within each symptom and it honestly takes a trained medical professional to determine the severity. for ex: mood swings are common in both bipolar disorder & BPD but they look and feel totally different for each disorder. people justify this with: “well i fit the literal dsm diagnosis” except,,,, you probably dont. the dsm was NOT designed for people who are not medical professionals to interpret- there are nuances of specific symptoms that determine a dx

just because you experience several behaviors doesn’t necessarily mean you have a mental illness at all, diagnoses are based on the specific combination of symptoms. you may look at mood swings, anxiety and issues w/interpersonal relationships, and think you def have bpd; however it’s important to factor in that mood swings/anxiety are associated with hormones, eating patterns, stress, situational conditions etc but since you’re in the lens of looking for a diagnosis you might point to that and think it fits within that diagnostic criteria. im not saying you’re faking or don’t have a mental illness, im saying one or more of your symptoms may not be accounted for mental illness.

if you self dx and then don’t get treatment and/or medication you’re generally at a HIGH risk for self medication which may or may not include self-harm and substance abuse. since mental illnesses generally do not get better over time, so the longer you wait, the higher your chances of engaging in self destructive behaviors. there are some mental disorders that are literally inherent chemical imbalances that can really only be treated with medication, no matter how much self care you engage in.

i often see the argument that “psychiatrists just go down a checklist to diagnose you and that’s it!”, as well as, “My psychiatrist googled ‘x disorder quiz’ and printed the first one that came up!! i was in and out in five minutes!!!” as justifications for self dx: like either your psychiatrist needs to get their fucking license revoked or that’s just not true. the testing process generally takes an hour and involves diff types of observations of behavior as well as a very long list of questions- it’s not a fucking list printed from the internet from a random site.

additionally i see, “psychiatrists make mistakes too!!” right, true but the chances of a psychiatrist making a mistake vs the chances of you making a mistake are very slim in relation to each other due to the reasons listed here, i.e. decades of research on a phd level

just because some people go to the psychiatrist post-self dx and learn they were correct about their self dx doesnt mean that it applies to everyone and REGARDLESS it doesnt mean you shouldnt get professionally diagnosed anyway. these are a few experiences out of a million. it literally doesn’t mean that you are definitely right in yours.

quizzes taken on the internet aren’t fucking diagnosis (and neither is 6 months of research)??? like i don’t care if you’ve taken ten of them. if they’re designed with the proper controls they could def help SCREEN for mental illness symptoms, but even then it requires a lot of second party consulting, it’s something you’re literally not qualified for, for the reasons listed above.. if i took diff quizzes or tried to research my symptoms i could def try and self dx with so many diff disorders that aren’t even comorbid. they need to be interpreted by a medical professional and are usually designed to help guide ppl towards treatment

“all psychiatrists are neurotypical and dont understand my mental illness!” how do you know they’re neurotypical? they wouldn’t tell you even if they were??? also what does being neurotypical have to do with their ability to correctly do their job???? would you expect an oncologist to have gone through cancer in order to do their job?

the concept of self fulfilling prophesy is hard at work with self diagnosis; if you attach a label of depression to yourself it’s going to influence your behavior and self perception whether or not you’re aware of it. you might end up seriously damaging yourself because youre trying to fit the diagnosis. when i obsessively tell myself i feel very depressed, after awhile i actually prevent myself from feeling better because i keep telling myself i’m depressed, for example.

one phrase i see a lot: “well people self dx with a cold, why is this any different?” well, for one thing, the physical ramifications of a cold and a chronic mental illness ie a literal chemical imbalance in your brain are miles apart. they’re not even medically comparable in terms of immediate and long-term effects. additionally, it really highlights the fact that many people treat mental illness as a personalized experience whereas they treat their physical health w/objective opinions from medical professionals. this analogy is not only inaccurate but it’s dangerous as fuck.

people might not be aware symptoms they’re experiencing are abnormal because that’s their normal state based on their actual mental illnesses. for ex someone who suffers from an anxiety dx might just be used to adapting to it their whole life when they actually have a serious disorder and not even think about getting help for it. your baseline cannot be assessed objectively.

sometimes the self dx community is enabling in a bad way- the lack of treatment for disorders real or otherwise make them more susceptible to encouraging/justIfying unhealthy coping habits. its kind of like the blind leading the blind. like it’s just not a good idea.

just because it might take a couple diff psychiatrists to get an accurate diagnosis isnt a good justification for self dx. this can be due to a million different reasons- maybe you were diff ages when you saw each one, maybe you were exhibiting signs of something else at the time- i was originally diagnosed with depression before bipolar disorder because my mental health hadn’t stabilized so my mania wasn’t present.

using the excuse of “ask someone close to you what they think about you possibly having [x] dx” as a legitimate step towards self diagnosis is as bad as saying you don’t have a personal bias… like the answer from your friend/family member is based on so many factors: the nature of the relationship, how honest the person is, their emotional state at the time, their own ability to analyze the people around them, how aware of psychological symptoms they are, their bias towards mental illness, the way the symptom description is presented, the setting the discussion took place, etc etc

last but not least, i see the phrase: “well mental illness didn’t suddenly appear as soon as i got a diagnosis!” obviously it was always there but you may have mislabeled it before your diagnosis if you self dx’d first, thats it. no one is pretending mental illnesses suddenly appear when a professional diagnosis is assigned

your best “research” on the internet is not equal to ten years of medical school, its just not, and it’s concerning to me that self diagnosis is such a prevalent trend on here. please seek treatment, even if it’s in the form of your high school or college counseling center; the links i’ve provided in number 3 may be helpful in locating mental health care, whether it’s a community mental health care center, or a therapist close to you who offers reduced cost treatment.

you owe it to yourself, it’s 10000% worth it.

#self diagnosis #self dx #anti self dx #anti self diagnosis #actuallymentallyill #mental illness #mental illness discourse #ableism #not ableism #prof dx #psychiatry #dsm v #actuallybipolar #mental health community #mental heath support #sjw bullshit #medication #self medication #self care

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jadelyn · 6 years

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Heya. Recently saw a post of yours going around regarding mental illness and not having to censor your own experience, be constantly positive, offer up your success story ect. I suffer from clinical depression and anxiety myself and I was kind of interested in your referring to yourself as an "old crazy" and what not. A lot of times I feel like depression is more like a... comparatively "pretty" MI and like it's barely even valid to talk about having a MI in certain ways you know? 1/?

But you're confident enough with it that you'll say things like "old crazy" and just generally... treat it with the seriousness it deserves? I feel like there's almost two sides of it. When talking to nurotypicals yeah, depression is obviously a MI and our experience is way different from theirs, but when talking with other folk with MI's it feels almost like... whining? Maybe a bit like being a "small fat" in regards to fatphobia vs someone who is much bigger and receives more scorn for it? 2/?

Anywho, if there was a question in there I supposed it was going to be"is depression the only mental illness you suffer from? And what's your opinion on "reclaiming", I guess, stigmatized words like "crazy" when one suffers from comparatively less stigmatized MI's?" I mean I've got best friends who deal with hallucinations, family with bipolar disorder, in laws with disassociative identity disorder and I guess I low key feel like I cant even call myself someone with an MI by comparison. Idk. 3/3

So...okay. Let me start by saying, I’m really trying not to be an asshole about this. If I come off sounding like a jerk, it’s not intentional, and I’m mad at the ideas and social forces behind them, not you for giving voice to them in my inbox.

That said...fuck that noise.

My specific diagnoses are honestly nobody’s business but mine and my doctor’s. I’m pretty open about them here, but it does rub me a bit the wrong way to be asked, basically, “what are your Crazy Credentials?”

I’ve been formally diagnosed with chronic major depression and social anxiety. My therapist has made noises about C-PTSD a few times but never anything official, more just letting me know that some of the things I thought were shitty personality quirks actually fit the diagnostic criteria for C-PTSD and may be less my own fault than I think. And I’m about 99% sure I have ADHD, to the point where I’m about ready to seek out official diagnosis to see if I can get treatment for that in addition to my depression, bc I think it would really help me.

Short answer re my thoughts on reclaiming “crazy” as someone with...I can’t even bring myself to say “less severe” tbh considering that my depression has tried really hard to kill me several times over the past 20 years and has almost succeeded more than once, but someone who doesn’t have psychotic or personality disorders, is that if people use it against me I have a right to reclaim it for myself. And that has happened enough times that I’m feeling pretty confident in my Earned Right to call myself a bitter old crazy fucker.

I also suuuuuper object to the classification of depression as a “pretty” MI, even comparatively. Like. That shit made me drop out of college, cost me the first ten years of my adult life, I have literal physical scars from the self-harm I used to do because of my depression, I’d have died years ago if not for the family and loved ones who took care of me when I couldn’t take care of myself. None of that shit is fucking “pretty”. I hear you say it’s a comparatively “pretty” MI (and like I said, I’m not mad *at you* so much as the ableist cultural attitudes that make people think that about it) and all I can think of is the nights when I would be curled up as tight as I could get, sobbing so hard I couldn’t breathe, hating myself so intensely that if I could’ve spontaneously wished myself out of existence I would have. I think of the emotional neglect I perpetuated against the man I love, the way that him trying to take care of me left him with scars and issues of his own, and all I can do is offer my experience in how to cope with those kinds of things, I can’t undo it for him, I can just ironically use my experience of the depression that harmed him to help him learn to cope with his own. I think of the fact that I’m 32, but I’m a mere 4 years into my career, basically the point where someone in their mid-20s would be, because of the way my depression crippled my ability to work for so long. I think of the fact that I only stopped stashing razor blades around my living space “just in case” I needed to self-harm about a year or two ago, and even now I know without having to even pause that if I suddenly decided to go back to that, the exacto knife in my little home toolkit under the kitchen sink upstairs has a box of extra blades that I could use.

That’s...not...pretty.

But I think you’ve actually hit on a pretty perfect comparison in the “small fat” thing, tbh. I’m fat, undeniably so, but I’m a smaller fat, only a size 18. So there are parts of the “fat experience” I’ve never had to deal with, like having to use seatbelt extenders on an airplane or buy a second seat or get kicked off a flight.

But that doesn’t mean I’m insulated from fatphobia, including the deadly kinds like medical neglect. It doesn’t mean I can’t or shouldn’t call myself fat.

If you can look at someone who’s a size 16 or 18 and simultaneously acknowledge that said person is fat and faces fatphobia for it, and that they’re a small fat and that bigger fat people face unique issues that the smaller fat person doesn’t...can you do the same with MIs? If you have depression, or mood disorders or anxiety disorders in general, you are mentally ill and you face ableism and stuff because of it; at the same time, there are types of ableism that you aren’t targeted by since you don’t have a personality or psychotic disorder. Those things can be true at the same time. And it really sounds like you’re struggling with some internalized ableism around this, that you’ve picked up some of the general cultural attitudes around Real and Bad MIs like psychosis vs meh MIs like depression.

It’s okay, and entirely possible, to both understand that someone with a mood disorder faces a different level/type of ableism than someone with a personality disorder - and still understand that both of those people are still mentally ill, both of those mental illnesses “count”. There’s no mental illness olympics. Having different types of MIs results in different experiences, sure, but that doesn’t make people with mood disorders not *really* mentally ill.

We need to stand together, all of us, in fighting stigma and ableism around mental illness. Those of us with less-stigmatized disorders need to stand with those who have more-stigmatized disorders - but doing that doesn’t require that we minimize or dismiss our own illnesses or experiences.

Don’t let mundanes divide us against ourselves.

#depression #mental illness #suicide cw #self-harm cw #Anonymous #asks

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mimzy-writing-online · 4 years

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Hey!! I was wondering if you had any advice for a character concept I've been playing with? :) long story short, my character wasn't born blind, but throughout the story she progressively becomes blind from cataracts- cortical vision impairment to be exact. Is this inherently a bad concept? I really don't want to misrepresent this, and the last thing I want is to make people mad about it. Is there a way I should go about this? Thanks!!

Later message from same Anon: Hey! Just following up on my ask of writing a blind character in the Victorian era- sorry if I missed it

Note: in a message between the first and third, anon added that this story takes place in the Victorian era.

You certainly did not miss it, I’ve just been lazy (struggling) with blog maintenance and have been procrastinating answering several asks. Historical fiction is out of my area of expertise, so this required more research than general advice.

Also, my first and second attempts at an answer were eaten away by computer/tumblr difficulties, so I had to rewrite a lot.

I think it is a fantastic idea to have your character go blind slowly over time. It is also ambitious, so it is something you need to be careful with, but it’s totally doable.

So the era throws me a little because I’ve never had much practice with historical fiction and history wasn’t a fave subject of mine. Most of my research into blind history has been after World War I, because the sudden surge of blinded veterans changed the course of history for the blind community. This and technology overall led to those huge changes.

So I did a little reading up on the recent evolutions of blindness and the world’s general understanding of it in the 1800s.

Conclusion: society was shit with disability, but I already knew that. There were some remarkable inventions and innovations for blindness in this century, which I will get to later.

So this post will be: 1. The more personal aspects of going blind over time (instead of all at once) such as acceptance vs denial, life changes, and internalized ableism. 2. Speculating on society’s perception of the blind. 3. Innovations for the blind in that era and what comes after.

So, part one. The Emotional…

As someone who has slowly lost vision over the course of years and has no idea how far this will progress, I can tell you that it’s an agonizing process of realization, denial, understanding, acceptance, adaption.

Realizing you’re going blind comes in small pieces that eventually add up to become a puzzle. And for this reason, adaption follows a similar pattern.

You identify a problem, feel conflicted about this change, wonder if you should ignore or investigate, and regardless of which path you take, you find a new way to adapt.

I’m going to use an example of my process through this, so you can see the actual thought patterns and how they circle between “this isn’t a problem” – “wait this is a problem” – “no I’m fine!” – “this is a problem.” – “I’m fine, what am I complaining for” – “I made this change and now my life is 100x easier??? Who knew? Why didn’t I do this sooner?”

Example from my life: Light is bright. That hurts but I’m fine. I get sunglasses. The pain with bright light is getting worse. Okay, that’s concerning, maybe I should talk to a doctor. Doctor says I’m fine but now I’m thinking I’m not okay. Why are my eyes doing this? Why do I hurt? Oh, and now bright lights at night are becoming a problem, and I get more headaches associated with light. I could wear sunglasses at night and indoors, but society has given me a negative and judgemental opinion of that, so I don’t want to do it. Best friend pushes me to give up on that negative view for the sake of my health. Finally I listen and life feels much better, but I’m still a little uncomfortable with this change. I feel very blind with my sunglasses, but that’s the only way to not feel pain. And now I feel blind when I’m not wearing any light protection, but I’m in pain this way. What’s wrong with me?

And this is just my internal argument with sunglasses and light sensitivity, from age 17-22. On the other side is my struggle with “do I need a cane” from age 21-22, which goes like this-

It’s August and I’m walking through a semi-familiar but gigantic and ridiculously crowded park with a group of friends. It’s bright out and I need to wear my sunglasses. And now I’m realizing there is a dilemma. I can’t see. My sunglasses are too dark to see. But going without is painful and just as bad vision wise. BUT I CAN’T SEE! I’m scared, I’m going to run into someone or something, I’ll get lost or separated from my friends and not be able to find them. I can’t see curbs or pillars or people and the only thing keeping me safe is holding onto K, who knows my current vision situation when no one else does

And I think to myself- this day would be so much easier if I had a cane.

But I haven’t needed one before, and I don’t ‘normally’ need one. Just every time I go outside on a sunny day. I don’t need it all the time, so I can’t have one, I’m fine.

But these things keep happening, where I’m outside and terrified but I think I’m still “sighted” and my only problem is some light sensitivity and not-super-great sunglasses. My glasses let me see 20/20 (or they did, which they did not a year later) so I definitely don’t need a cane at all.

Young past self, you were so wrong. You needed that.

Eventually I had a breaking point when one year later I’m seeing 20/50 with best correction (so, by legal definitions I’m not even visually impaired yet) but I’m terrified of leaving my house and can’t travel alone and am a literal danger to myself because I can’t see and can’t tell people I can’t see because of social anxiety and internalized ableism-

And the breaking point was that I finally got seriously hurt because I was in a situation where I couldn’t see and wasn’t brave enough to ask my current company to be a sighted guide. That’s the day I ordered a cane, and when it came two weeks ago, I finally remembered what it’s like to not be so terrified for my life every time I left my home.

Your character will over time find problems with her daily life that she didn’t have before, and she’ll deal with each one individually, but with all of them will usually be a repeating thought pattern that is unique to her. It depends on her internalized ableism and society’s ableism (and that era is full of it) and accommodations available to them at the time (also not great).

She’ll solve each problem at a different point that may coincide with other problems and yet still seem like entirely separate problems to them. Like how I wouldn’t relate my need for sunglasses and my need for a cane at the same time because they felt like separate battles to me with their own timelines and similar but still different thought processes.

You will have to decide on a case by case basis what accommodations or accessibility she can have at that time.

Society’s view on blindness:

It’s shit.

It’s not great now, in the world of information available at your fingertips. It’s desperately worse in history.

(TW: abuse of disabled people mentioned -thoroughly- in the next two paragraphs)

Everyone with a disability was treated like shit. Sensory disabilities (Deaf or Blind or Deafblind people) and mental illness were treated the worst. There is historical religious persecution against them, saying that they were made ill by the devil or a vengeful God. Which lead to abuse. They were seen as helpless or unproductive, defective, and so were treated as burdens upon their family and society. Because of this, abuse from parents and family members was horribly common for disabled people. Disabled people were often left in asylums by their family members because they were seen as a burden, where there was usually still more abuse to come.

There are still children with disabilities who are abused by their parents, families, care givers, or any facility they’ve been placed in. The cases of abuse are less, but by no means over.

Ableism in general is just rampant and it’s only cured through the distribution of information. Most people (today) have never met a blind person in real life, had a conversation with one. Through the internet they can find information, but in pre-internet and media eras I can’t imagine how much ignorance runs about.

Most people think blindness is something that only happens with old age, birth defects, or tragic accidents. Or that blindness is obvious in a person. Not the case, as we both know, but certainly a cause for many misunderstandings.

This section is where the development of technology and understanding of blind people begins, but there’s still some ugly history involving abuse of the disabled to come.

Technology and History

(TW: abuse towards historical disabled people in next paragraph)

In 1785 the Institut National des Jeunes Aveugles, the world’s very first school for the blind was established in Paris, France. It was opened internationally to children who society had previously deemed unteachable. Valentin Haüy witnessed acts of bullying and cruelty done to blind hospice patients and it inspired him to attempt teaching a blind beggar. He taught the boy to read through raised letters (because Braille was not yet invented). The school he founded could better be described as a trade school, because its primary purpose was to teach work skills like letter press and weaving (going back to Valentin’s childhood, whose family worked as weavers)

Due to criminal activity (he was labeled as a terrorist related to the French Revolution and was a member of the Panthéon Club) he was forced to leave the school in 1802. He later moved to Russia (1806) and began a new school upon the request of Alexander I of Russia.

(TW: child abuse mention in next paragraph)

After his leave, the school had a change in leadership and location, and subsequently quality. Sébastien Guillié became the new director and was later forced to leave because of the inhumane conditions of the facility and welfare of the children. Those children lived in a French Revolution prison that was refurbished as an asylum/school for their education. It was cold and dirty. They were kept in the dark, only allowed to bathe once a month, and poorly fed. This went on until 1821 when he was forced to leave.

Louis Braille (the inventor of Braille) was a student of the school until Guillié’s reign of terror.

The school was later moved to Boulevard des Invalides, and it remains there today. Information with this school is hard for me to access. It doesn’t have the prettiest history, so I can only speculate how much was left out of the books to save the school, and what information I could access is in French.

However, back to Braille.

Braille was invented by Frenchman Louis Braille in 1824. Before his invention, he was taught to read through raised lettering, and he concluded that raised lettering was impractical because-

1. It is difficult to read, the letters had to be printed in huge font to be fully felt out and printed on thick paper.

2. Thick paper means higher quality, more expensive. Larger font means more paper is needed for a single text.

3. This made it inaccessible due to expense and the sheer volume of a text.

4. If today’s Braille books are hard to access and giant compared to traditional books, I can’t imagine how inaccessible those raised letter books really were

Five years later The Perkins School for the Blind was founded in America, making education accessible to blind and deafblind children, and this time it focused on reading and mathematics, more education than trade school.

Though it would not have been possible for your character to attend the school herself, it could be possible that she became acquainted with a teacher or former student of either school, who might have passed on some O&M skills to her or some not so pleasant tales.

Side note: the Perkins Brailler (a typewriter machine for Braille) was developed by a wood working teacher at the Perkins School for the Blind – in 1951, so not applicable to your character’s time period, but I didn’t know this, so I must info-dump

This is before the eugenics movement of 20th century America, when the belief that people with “poor breeding” should be prevented from breeding. The eugenics movement targeted not only the disabled, but lower class and people of color.

The white cane as an accessibility tool was not “discovered” until the 1930’s by Philip Strong, who painted his walking stick white to make himself more visible. This piece of history is a little flimsy in my opinion. Techniques are discovered and lost and rediscovered all the time. You can’t prove he was the first person to “wave a stick” in front of him to find obstacles.

But he is credited for making the white cane something that could be a standard identifier to tell people (moving obstacles) “hey, I’m blind, don’t hit me with your loud vehicle” and made a movement of other people getting white canes to identify themselves.

I very much thank him for it, seeing as I’m so sighted-passing sometimes. If white canes weren’t standard everyone-must-know-what-this-means sort of thing, I think people would just watch me “wave a stick” around and think I’d lost my mind.

(TW: suicide of disabled character mention in next paragraph)

So when you see something like in Downton Abby (season 2) when Thomas and Sybil are trying to teach a blinded soldier how to use a cane to navigate… it could be possible, something that actually occurred to some people then. Although, now that I think about it, that character killed himself by the end of the episode and that still upsets me.

Downton Abby got the period-typical ableism right, I will give them that. Both the internalized ableism as well as how strangers treat you, they got that right. What they did to their disabled characters still bothers me (i.e. death and cure subplots)

(TW has been lifted, you made it past.)

But with World War 1, there was a huge number of blinded veterans entering the world and that did make way for big changes in the world of blindness-

Within a few decades guide dogs were being trained, white canes were becoming a thing, Schools for the Blind were thinking, “hey, maybe we should teach adults these skills too!” and life continued on until it eventually reached out modern world. Which, not applicable to your era, but I think it’s important to know what wasn’t available or common knowledge for your character.

If anyone has other information about historical fiction, the Victorian era, and historical ableism and disability, please feel free to reblog with your input and I’ll reblog it.

As always, this post can be found on my blog through the tags: reference, blind character, historical fiction

#writeblr #writing advice #writing community #historical fiction #blind character #writing advice written by me #victorian era #Anonymous

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personalcoachingcenter · 3 years

Text

Research Paper: Language Matters

New Post has been published on https://personalcoachingcenter.com/research-paper-language-matters/

Research Paper: Language Matters

Research Paper By Charlene Moynihan (Ability Coach, UNITED STATES)

Introduction

A man is worked upon by what he works on. He may carve out his circumstances, but his circumstances will carve him out as well. –Frederick Douglass

Moreover, as an individual with a disability, I must understand what it is that makes me different than others if I am to truly approach this endeavor with a celebratory mindset.

ICA teaches us that

Let’s start with an explanation of the predominant models of disability theory.

Disability Theory

The Medical Model

The Social Model

The Research

Analysis

Conclusion

I change my thoughts, I change my world. ~ Norman Vincent Peale

Sources:

Websites

Critical Disability Theory. Stanford Encyclopedia of Philosophy. https://stanford.library.sydney.edu.au/archives/win2019/entries/disability-critical/

Disability and Justice. Stanford Encyclopedia of Philosophy. https://plato.stanford.edu/entries/disability-justice/.

Disclosing Our Relationships to Disabilities: An Invitation for Disability Studies Scholars. Corbett Joan O’Toole 1 (disabled) 2 Independent Researcher. https://dsq-sds.org/article/view/3708/3226.

Disability Studies Quarterly.Siebers, Tobin. Disability Theory. Ann Arbor: University of Michigan Press, 2008. Reviewed by Michael Davidson. https://dsq-sds.org/article/view/160/160.

Medical Model of Disability versus Social Model of Disability. Living with Disability and Chronic Pain. https://canbc.org/blog/medical-model-of-disability-versus-social-model-of-disability/.

Disability Studies Quarterly. Un/covering: Making Disability Identity Legible. Heather Dawn Evans. https://dsq-sds.org/article/view/5556/4550.

https://docs.google.com.

Original source: https://coachcampus.com/coach-portfolios/research-papers/charlene-moynihan-language-matters/

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