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I also have always had this, even as a child. And it never made it easier when people would say things like ‘you’re just being lazy’ or ‘you don’t even know what tired is. Wait till you have a ______[job, partner, child, etc].’

Listen to people when they tell you they are not okay.

And if this all sounds too familiar, definitely get checked out. There are a whole lot of us out there.

Sending love to all the other Spoonies out there.

I've always had chronic fatigue. I remember being twelve, and an adult mentioned how I couldn't possibly know how tired they felt because adulthood brought levels of exhaustion I couldn't imagine. I thought about that for days in fear, because I couldn't remember the last time I didn't feel tired.

Eventually I came to terms with the fact that I was just tired, and I couldn't do as many things as everyone else. People called me lazy, and I knew that wasn't true, but there's only so many times you can say "I'm tired" before people think it's an excuse. I don't blame them. When a teenager does 20 hours of extracurriculars every week and only says "I'm too tired" when you ask them to do the dishes, it's natural to think it's an excuse. At some point, I started to think the same thing.

It didn't matter that I could barely sit up. It was probably all in my head, and if I really wanted to, I could do it.

When I learned the name for it, chronic fatigue, I thought wow, people that have that must be miserable, because I am always tired and I cannot imagine what it would feel like if it were worse.

Spoiler alert, if you've been tired for a decade, it's probably chronic fatigue.

Once I figured that out though, I thought of my energy as the same as everyone else's, just smaller in quantity. And that might be true for some people, but I've figured out recently that it absolutely isn't true for me.

I used to be like wow I have so much energy today I can do this whole list for sure! And then I'd do the dishes and have to lay down for 2 hours. Then I'd think I must gave misjudged that, I didn't have as much energy as I thought.

But the thing is - I did have enough energy for more tasks, I just didn't go about them properly.

With chronic fatigue, your maximum energy is obviously much smaller than the average person's. Doing the dishes for you might use up the same percentage of energy that it takes to do all the daily chores for someone else.

If someone without chronic fatigue was to do all the daily chores, they would take breaks. Because otherwise, they're sprinting a marathon for no reason and it would take way more energy than necessary. We have to do the same.

Put the cups in the dishwasher, take a break. Put the bowls in, take a break. So on and so forth. This may mean taking breaks every 2-5 minutes but afterwards, you get to not feel like you've run a marathon while carrying 4 people on your back.

Today, I had a moderate amount of energy. Under my old system of go till you drop, I probably could have done most of the dishes and wiped off the counter and then been dead to the world for the rest of the day.

Under the new system, I scooped litter boxes, cleaned out the fridge, took the trash out, cleaned the stove, and wiped off the counter and did all the dishes. And after all that, I still had it in me to make a simple dinner, unload the dishwasher, and tidy the kitchen.

It was complete and utter insanity. Just because I sat down whenever I felt myself getting more tired than I already was.

All this to say, take fucking breaks. It's time to unlearn the ceaseless productivity bullshit that capitalism has shoved down our throats. Its actively counterproductive. Just sit down. Drink some water. Rest your body when it needs to rest.

There will still be days where there is nothing to do but rest, and days where half a load of dishes is absolutely the most I can do. But this method has really helped me minimize those, which is so incredibly relieving.

#spoonies #chronic fatigue #this isn’t just being tired #this is a real condition

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i learned about Tim Wong who successfully and singlehandedly repopulated the rare California Pipevine Swallowtail butterfly in San Francisco. In the past few years, he’s cultivated more than 200 pipevine plants (their only food source) and gives thousands of caterpillars to his local Botanical Garden (x)

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I love this old man and her horrible old man jokes.

Star Trek DS9: 5x06 Trials and Tribble-ations

bonus:

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Garak was late to lunch that day because he was building a bomb to destroy his shop. He was eating Delavian chocolates while he made it. He saw an assassin and knew for whom the bell tolled, but he still ate his chocolates, and he still went to lunch, just a little late. Because he was making a bomb to blow himself up with.

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I’m telling you. The only way Philadelphia Story really ends it’s knowing they’re in a throuple.

Jimmy Stewart and Cary Grant The Philadelphia Story | 1940

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And wearing two rings on his ring fingers.

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Andy has said that the moment he saw Sid, he knew that’s why Garak was approaching him. Sid has said the moment they played that forest scene together, they both were like, yes, absolutely, this is A Thing.

this bit from an alexander siddig interview is driving me INSANE

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Next step- rounding them up and throwing them in one area so they don’t ruin the view for rich white people.

Looks like we’re well on our way to the Bell Riots, after all.

#bell riots #homeless #America

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This scene transition will always be flawless

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Oh, don’t forget— rather than take away the guns, they develop Kevlar backpacks for children in schools and teach the children to hide under their friend’s dead bodies.

But yes, til-tok surely must be dangerous.

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Other resources:

https://digitalcommons.assumption.edu/cgi/viewcontent.cgi?article=1009&context=honorstheses

I haven't seen this, and I probably won't, but I'm really tired of the 'let's show disabled people as psychopaths and murderers and people who constantly destroy stuff.'

I'm also tired of abled actors playing disabled actors when there are disabled actors out there. If you're going to make movies about us being pyschopaths and murders, I can't stop you. But at least hire someone who has the condition the main character has. There are Deaf/HoH actors out there who could have played this role if they really wanted to make the movie.

Abled actors can play disabled or abled roles. Disabled actors can really only play disabled roles. So until that changes, at least cast a Deaf actor in the role.

#Youtube

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If you are writing an academic work, a novel, tv show, film script, painting, sculpture, comic, youtube short, radio play, podcast play, or even fan-fic, please look at some of academic articles on representation and stereotypes of disability within culture and media. Please be aware that how you represent disabled people, especially if your protagonist or antagonist/villain is disabled, matters. The stereotypes people use for disability are harmful to us all.

Here are a few resources to get you started.

https://www.researchgate.net/publication/269094007_Disability_Portrayal_in_Film_Reflecting_the_Past_Directing_the_Future

I haven't seen this, and I probably won't, but I'm really tired of the 'let's show disabled people as psychopaths and murderers and people who constantly destroy stuff.'

I'm also tired of abled actors playing disabled actors when there are disabled actors out there. If you're going to make movies about us being pyschopaths and murders, I can't stop you. But at least hire someone who has the condition the main character has. There are Deaf/HoH actors out there who could have played this role if they really wanted to make the movie.

Abled actors can play disabled or abled roles. Disabled actors can really only play disabled roles. So until that changes, at least cast a Deaf actor in the role.

#representation of disability within popular culture and media #please stop portraying disabled people as dangerous psychopaths and villains #research your writing #research your art #stereotypes are damaging #disability #disability studies #writer #writing #artist #artwork research #disability awareness #academic resources #academic research #education #characters #creating characters #disney #representation

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I haven't seen this, and I probably won't, but I'm really tired of the 'let's show disabled people as psychopaths and murderers and people who constantly destroy stuff.'

I'm also tired of abled actors playing disabled actors when there are disabled actors out there. If you're going to make movies about us being pyschopaths and murders, I can't stop you. But at least hire someone who has the condition the main character has. There are Deaf/HoH actors out there who could have played this role if they really wanted to make the movie.

Abled actors can play disabled or abled roles. Disabled actors can really only play disabled roles. So until that changes, at least cast a Deaf actor in the role.

#deaf #disabled #actors #disabled actors #tired of disabled characters constantly being shown as dangerous psychopaths #stop casting abled actors in disabled roles #there are deaf actors who could have played this role #but seriously stop making psychopath characters disabled #films

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this is why i ask, Mike, do you need to talk about anything

Yes, the aspect ratio is a thing & actors had to stand/sit very close depending on the shot. But having to stand/sit close to each other doesn’t mean you need to rest your head (coughnuzzlecough) on the other person…